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The Power of the Patient

Exploring Patient-Centered Care in Inflammatory Arthritis

Two women talkingA research team at the University of British Columbia is exploring experiences of people who have inflammatory arthritis dealing with their healthcare team. A healthcare team may include healthcare professionals, loved ones, and other caregivers.

The team is looking for patients who are:

  1. age 18 years or older
  2. live within the Greater Vancouver area
  3. can understand and speak English
  4. have been diagnosed with inflammatory arthritis (rheumatoid arthritis, ankylosing spondylitis and other spondyloarthropathies, reactive arthritis, psoriatic arthritis, gout and pseudo-gout, lupus, connective tissue disorders)
  5. have been diagnosed within the last two and a half (2.5) years

If you are interested in participating in the study, researchers will arrange an interview time and location that is convenient for you. The interview will take approximately one hour and will ask about your experience with your own care, with others who provide you with care, and with the healthcare system. Researchers will also ask about your sense of empowerment in relation to others who provide you with inflammatory arthritis care.

At the end of the interview, you will be asked to complete a brief survey. Participants, if willing, would be asked to keep a journal of their experience dealing with their healthcare system. An audio journal is available for those who prefer not to write.

Researchers may interview you six months later with some follow up questions. With your permission, they will also interview members of your healthcare team. All names will be protected with pseudonyms and all data will be stored securely.

In appreciation for your help with their research project and helping others like you, participants will be provided $25 in cash for their time and expenses.

To participate in the study, please contact Dr. Laura Nimmon by phone at 604-822-8573 or by email at laura.nimmon@ubc.ca.