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Is ‘Big Data’ a big deal for healthcare in Canada?

A survey to learn what people think about the use of large data sets for research purposes

PURPOSE OF THIS STUDY:
Big Data, in health care, is large and complex sets of data that have information routinely collected on patients’ health and their use of health care systems.

The purpose of this study is to understand the public’s knowledge and opinions about the use of Big Data in Canadian health research. This includes:

  • Current level of knowledge about Big Data;
  • Willingness to participate in projects using Big Data;
  • Major concerns about the use of Big Data;
  • Interest in learning more about research using Big Data;
  • Preferred modes of receiving more information about Big Data

WHO CAN PARTICIPATE?
To be eligible to participate in this study, you must:

  • Be 18 years of age or older
  • Be a Canadian resident
  • Have access to a device with internet access

WHAT IS INVOLVED?
Participants will be asked to complete a survey consisting of multiple choice questions. The survey should take approximately 20 minutes to complete.

CONTACT INFORMATION:
Lynn Nowoselski, MPH, Research Assistant
Phone: 604.207.4034 National Toll Free: 1.844.207.0400
Email: lnowoselski@arthritisresearch.ca

LINK TO SURVEY:
https://survey.ubc.ca/s/BigDataSurvey/langeng/

STUDY DURATION
Now until April 10, 2017

STUDY LOCATION
You can take the survey on-line from the comfort of your home. It is securely hosted by Arthritis Research Canada as part of the PRECISION project.

LEAD RESERACHER
Dr. Linda Li - Senior Research Scientist, ARC;
Professor, Department of Physical Therapy, UBC

PROJECT CONCEPTION & LEAD
Consumer Core comprised of people living with inflammatory diseases

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