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Throwback Lupus – What was the state of lupus in 2010?

Slide image with butterfly to represent lupusIn honour of Lupus Awareness Month, the Arthritis Broadcast Network is doing a throwback coverage on lupus. The coverage highlights Arthritis Research Canada and Arthritis Consumer Experts’ coverage of the 9th International Congress on Systemic Lupus Erythematous, Vancouver 2010 (“Lupus 2010”). The event was held in Vancouver, British Columbia, Canada in June, 2010. Hundreds of world leading researchers, healthcare professionals, and individuals living with systemic lupus erythematosus (SLE) learned about the current state of the science in SLE and future opportunities in lupus research, education and care.

The objectives of the Lupus 2010 were to:

  1. Review the state of the science and the “state of the art” in SLE treatment and management.
  2. Identify future opportunities in research.
  3. Train and encourage young scientists to be the next generation of leaders in SLE research through mentorship by the current leaders.
  4. Narrow the gap between what we know, what we do, and what we could do for those living with lupus to ensure that as advances are made in treatment and management they are communicated world-wide.
  5. Reduce knowledge barriers between cultures, between the lay public and professionals, and between different disciplines.
  6. Empower patients through education.

Lupus 2010 Introduction

Lupus 2010 was held in Vancouver this past June. Hundreds of researchers, healthcare professionals, and individuals living with lupus attended and learned about the current state of the science in SLE and future opportunities in lupus research, education and care. A key objective for the three day congress was to attempt to close the gap between what we know, what we do, and what we could do worldwide in SLE therapeutics, medical and public education, and clinical and fundamental research.

Patient Stories
People with lupus share their experiences and perspectives.

Narrowing the Gap 

A special symposium on Narrowing the Gap in the Treatment and Study of SLE Worldwide opened the Lupus 2010 Congress. It helped define the state of the art for lupus treatment in settings with constrained resources, and how to build a network of clinicians and scientists to disseminate knowledge and to support one another.

Introduction – Treatment & Study of SLE Worldwide
Matthew H. Liang, MD, MPH, FACP, FACR, USA
Dr. Liang introduces the special symposium on narrowing the gap and how lupus is cared for in developed and less developed countries.

Vietnam — Seoul Collaboration
Sang-Cheol Bae, MD, PhD, MPH, South Korea
Dr Bae describes a working collaboration established in 2007 between Vietnam and South Korea designed to improve relations between the two countries and to improve the health and quality of life through medical cooperation and exchange. The program delivers information and education to patients and doctors dealing with rheumatic diseases.

Current Practices in the Management and Monitoring of Moderately Active and Life Threatening SLE in South Africa
Marietjie du Plooy, MD, South Africa
Dr. du Plooy discusses the state of healthcare for SLE, the protocols for monitoring moderately active SLE and the protocols for treating life-threatening SLE, and the most important needs for optimizing outcomes for patients.

Lupus in Constrained Environments
Graciela S. Alarcón, MD, MPH, USA and Peru
Dr. Alarcón talks about the constraints of the various medical coverage programs in Peru and provides data on the resulting outcomes for patients with SLE.

Experiences with Indigenous Peoples in Canada
Allen J. Lehman, MA, PhD, Canada
Antonio Avina-Zubieta, MD, MSc, PhD Candidate, Canada
Christine Peschken, MD, MSc, FRCPC, Canada

Dr. Avina-Zubieta explores the disparities in lupus care in First Nation communities across Canada. Dr. Lehman discusses research challenges and successes in the Indigenous community with a focus on Vancouver Island. Dr. Peschken discusses inter-relationships between research and access to care in aboriginal communities.

The Barbados Experience
Cindy H. Flower, MD, Barbados
Desiree Tulloch-Reid, Jamaica
Anselm Hennis, Barbados

Dr. Flower leads a panel discussion on the current practice in the management and monitoring of moderately active and life threatening SLE in the Caribbean.

Healthcare After the Earthquake in Haiti
Nathan M. Nickerson, RN, MSN, DrPH
Dr. Nickerson provides background on the state of healthcare in Haiti and talks about the steps that have been taken to provide healthcare after the January 12, 2010 earthquake in Port-au-Prince.

From Epidemiology to Genetics
Bernardo A. Pons-Estel, MD, Argentina
Mr. Pons-Estel provides an overview of lupus research over the past 10 years in Latin America.

The India Experience
Sujata Sawhney, MD, MRCP, CCCST, India
Working in pediatric rheumatology in New Delhi, Dr. Sawhney describes the Indian healthcare setting and the protocols for treatment of lupus.

Latin America
Rafael Raúl Valle Oñate, MD, Colombia
Dr. Oñate provides an overview of lupus treatment in Colombia.

A NIAMS Diversity Outreach Initiative for the Metropolitan Washington DC Area
Michael M. Ward, MD, USA
Dr. Ward describes a community-based program that provides a clinical care platform for health disparities research.

To view all the sessions from the congress, please click here. The Arthritis Broadcast Network will provide an update on the state of lupus in a later post. Stay tuned!