“Preventing Rheumatoid Arthritis (Pre-RA): perspectives of people with RA, people at risk and of rheumatologists” study
A research study funded by the Canadian Rheumatology Association’s Initiative for Outcomes in Rheumatology cAre (CIORA) wants to understand the perspectives of people with RA, those at risk of RA and health care providers about potential treatments aimed at preventing rheumatoid arthritis. Arthritis Consumer Experts is a partner organization on the project.
- Aged over 18?
- Someone with rheumatoid arthritis OR you have a first degree relative (parent, sibling, adult child) with rheumatoid arthritis?
- Someone with access to a computer and the internet?
Join the study as a patient with RA: https://surveys.core.ubc.ca/PreRA_RAs/login.html
Join the study as a first-degree relative: https://surveys.core.ubc.ca/PreRA_FDRs/login.html
It is becoming possible to predict RA in certain people before they develop symptoms, and there is a chance that eventually the disease could be stopped in people at risk of getting it before it affects their lives. While this could lead to treatment programs for people who are at risk of developing RA, there are many things that are still uncertain about these treatments.
If you want to be a part of advancing prevention strategies in RA, the research team is looking for participants to fill out a survey to find out their preferences about hypothetical preventative treatments. The survey should take about 30 minutes to complete. It is important for the project that we understand the perspectives of both patients and their first-degree relatives. So if you are someone with rheumatoid arthritis we would appreciate you completing the survey, and ask you to forward this email or a link to the survey to one of your first degree relatives (brother, sister, mother, father, etc.).
If you would like more information, please contact Katherine, Research Coordinator, by email at email@example.com or by phone at (604) 682-2344 ext 66239 on behalf of the lead researchers Dr Mark Harrison (University of British Columbia and Centre for Health Evaluation and Outcome Sciences, Arthritis Research Centre of Canada) and Dr Marie Hudson (Jewish General Hospital; McGill University Health Centre).