Arthritis Consumer Experts (ACE) is celebrating Arthritis Awareness Month with the #ArthritisMadLibs Twitter Project. The goal is to help others understand the impact of arthritis and make informed decisions about the development of new arthritis programs that will benefit patients and their caregivers.
#ArthritisMadLibs is a chance to re-write the arthritis patient story during Arthritis Awareness Month – one word at a time. On the Labour Day long weekend, the #ArthritisMadLibs hashtag garnered 329.892K impressions, 135 Tweets, 24 participants – averaging 2 Tweets per hour and 6 Tweets per participant.
Since September 1, #ArthritisMadLibs had 910.103K impressions, 379 Tweets, 46 participants – averaging 1 Tweet per hour and 8 Tweets per participant. We thank the patients, health care professionals, patient groups, and researchers who have engaged with us thus far. Our engagement rate on @ACEJointHealth’s Twitter account is at an impressive rate of 2.8% engagement rate (34 link clicks, 179 retweets, 235 likes, 138 replies) – a significantly high engagement rate compared to the average Twitter engagement rate of .7% for the top 25 brands on Twitter. Social media is a tricky business and who you follow, who you have following you, and how many followers you have can affect these statistics but for a grassroot patient organization, we are pretty proud of the #ArthritisMadLibs and its participants and supporters!
Here is a summary of the #ArthritisMadLibs (thus far) and some of our favourite Twitter moments:
Top 5 Tweets by impressions
- For my arthritis, I like being able to work at home because___. #ArthritisMadLibs @cherylkoehn @anetto @arthritissoc @ArthritisNetwrk (910 impressions)
- I have ___(disease name) and I’ve had it for ___yrs. #ArthritisMadLibs bit.ly/2xs5Ik5 @CherylKoehn @accordingtokenz @IFAArthritis (822 impressions)
- At home, the work I enjoy most is _____. #ArthritisMadLibs @ArthritisNetwrk @CherylKoehn @IFAArthritis @Arthritis_ARC @anetto @jgchayko (801 impressions)
- I am a _____ of someone living with #arthritis. #ArthritisMadLibs @CherylKoehn @CAFsociety @Arthritis_ARC @ArthritisSoc @SPONDYLITISCA (765 impressions)
- My physio does ____ for my arthritis and it makes me so happy! #ArthritisMadLibs #WorldPTDay @WCPT1951 @Caot_bc @CherylKoehn @cath_back pic.twitter.com/MBnPrHU3NO (673 impressions)
Top 5 Tweets by engagement rate
- I have ___(disease name) and I’ve had it for ___yrs. #ArthritisMadLibs bit.ly/2xs5Ik5 @CherylKoehn @accordingtokenz @IFAArthritis (8.3% engagement rate)
- For someone living with arthritis, the hardest food to eat is/are ____. #ArthritisMadLibs @CherylKoehn @steveston_gal @jgchayko @UBC @SFU (7.8% engagement rate)
- If I can choose only one work accommodation for my arthritis, I’d prefer _____. #ArthritisMadLibs @Arthritis_ARC @HR_Council @GLOBE_CAREERS (7.6% engagement rate)
- The aspects of my arthritis that affects my social life most is ____. #ArthritisMadLibs (7.3% engagement rate)
- Sex is difficult if you have #chronicpain. This may help:____#ArthritisMadLibs #HumpDay @chronicsexchat @CherylKoehn pic.twitter.com/yMYs9cpU0K (7.2% engagement rate)
We had the most Tweet activity on the following days:
- September 1, 2017 – 59 Tweets
- September 4, 2017 – 35 Tweets
- September 5, 2017 – 33 Tweets
- September 12, 2017 – 34 Tweets
- September 13, 2017 – 33 Tweets
The #ArthritisMadLibs Influencers
#ArthritisMadLibs Twitter Poll
Some of the #ArthritisMadLibs were designed as a poll question on Twitter to create a visual representation and comparison of the answers to common questions a person living with arthritis may encounter during their disease journey. Each poll ran for 7 days from the time of publishing. Below are some closed poll questions and their results:
- I am a ____ of someone living with arthritis.
- Parent – 0%
- Child or sibling – 40%
- Partner – 20%
- Friends – 40%
- At home, the work I enjoy most is ____.
- Cooking – 52%
- Cleaning – 17%
- Gardening – 30%
- Laundry – 0%
- When I can’t get professional healthcare help on Sunday, I ______.
- Review my appt. notes – 0%
- Call local Health lines – 67%
- Consult with other patients – 33%
- I exercise at work by: _____.
- Transit to/from work – 0%
- Taking the stairs – 29%
- Stretch & exercise breaks – 14%
- Walking where possible – 57%
- As a patient, I wish to/to be ____.
- More involved in research – 0%
- Communicate well with my doc – 25%
- Advocate for arthritis – 13%
- Educate and help others – 62%
- Should employers allow animals in the workplace?
- Yes – 82%
- No – 0%
- If it’s a service animal – 18%
- The thing I fear most about my arthritis is _____.
- Emotional stress – 0%
- Permanent disability – 40%
- Reduced quality of life – 50%
- Unemployment – 10%
The following polls are still open:
- The aspects of my arthritis that affects my social life most is ____. (This question received the most votes!) – 1 day left to vote
- Pain – 46%
- Fatigue – 50%
- Time – 4%
- Stress – 0%
- In relation to my arthritis, the thing that frustrates me at work most is _____. – 2 days left to vote
- Over helpful colleagues – 0%
- Feelings of guilt – 38%
- Explaining my disease – 62%
- Falling behind – 0%
- For someone living with arthritis, the hardest food to eat is/are ____. – 4 days left to vote
- Shelled nuts – 27%
- Food with bones – 27%
- Shellfish – 20%
- Certain fruits – 26%
- When my parents visit me, they are usually _____. – 5 days left
- On their own – 60%
- With a family member – 40%
- With a friend – 0%
- With a private nurse – 0%
- If I can choose only one work accommodation for my arthritis, I’d prefer ____. – 5 days left
- Flexible hours – 22%
- Sit/Stand desk – 11%
- Able to work from home – 56%
- Exercise/pool amenities – 11%
Arthritis Consumer Expert’s favourite #ArthritisMadLibs Twitter moments:
In response to the poll question “At home, the work I enjoy most is _____.”, Thérèse Humphrey @TerezHumphrey posted a picture of her personal four-legged Roomba. Thank you Therese for sharing this and putting a smile on our faces over the long weekend!
In response to “I use adapted tools, like ___, for my arthritis. It makes ____ easier to complete.”, Kelly English @steveston_gal posted “timers and ice packs for my arthritis. Makes my quilting easier to complete. Can’t lose my hobby too. Makes me happy!” Thank you Kelly for sharing pictures of your homemade quilts!
In response to the same #ArthritisMadLibs, Annette McKinnon @anetto posted a picture of her Swedish knife, a knife that puts less strain on the small joints in your hand because of the angle of the knife. Thank you Annette for sharing this so other people living with arthritis will not get weird looks when they use tools similar to this one!
More #ArthritisMadLibs to come!
For those of you who have missed the #ArthritisMadLibs, you can look them up on Twitter using the hashtag #ArthritisMadLibs. If you do not have a Twitter account, you can follow our Twitter feed on the Arthritis Consumer Experts website (www.jointhealth.org) and email your answers to firstname.lastname@example.org.
Help us drive #ArthritisMadLibs and advocate for Arthritis Awareness Month in Canada by liking, retweeting, and replying to our posts on Twitter! The #ArthritisMadLibs are also posted on the Arthritis Consumer Experts Facebook page.