Arthritis Consumer Experts leads formation of world’s first international network of RA patient organizations.
ACE has helped lead the formation of the world’s first international network of RA patient organizations. Founded in 2016 by RA patient organizations and leaders from 18 countries, the Global RA Network builds international relationships and identifies and works on common goals and initiatives to improve the lives of people living with RA around the world.
The Global RA Network today launched its website – http://globalranetwork.org/– that represents an on-line meeting ground and a place to share its ongoing work and educational and informational resources with RA patients, care providers and governments.
The Global RA Network’s first initiative was to conduct a survey on patient experiences of RA models of care. The survey findings will be presented at the upcoming American College of Rheumatology Annual Scientific Meeting on November 5, 2017.
Based on survey findings, the Global RA Network will develop education, information and advocacy initiatives to improve RA patients’ understanding about the kind and quality of care they should be receiving to enable the best outcomes possible in member countries.