Ankylosing spondylitis gets attention in the news.
Today, The Globe and Mail profiles the story of Andrew Turner who went from a fit athlete to bedridden, and then back again.
A few years ago, X-rays and a blood test revealed he had ankylosing spondylitis (AS), an autoimmune disease that can lead to a fusing of the spine.
What turned things around for Turner? Early intervention with a biologic medication. After becoming so debilitated by AS that he was forced to take a leave of absence from work, he began this new treatment. Within days he was back on his feet, then skiing two weeks later. Now, he’s training for Ironman competitions.
Read more of Turner’s story in this Globe and Mail article: From bedridden to Ironman: one man’s journey with spinal arthritis
Whether you want to learn more about ankylosing spondylitis (or related diseases), live with the disease, or are wishing to find resources for yourself, a friend, or a family member, please visit the Canadian Spondylitis Association (CSA) website, www.spondylitis.ca. We also encourage you to become a member of the CSA’s Facebook group.
Hundreds of patients and experts meet to shape future of arthritis research in Canada
Hundreds of patients and experts will gather in Ottawa this week at the Arthritis Alliance of Canada inaugural Conference and Research Symposium to discuss the latest advances and the future of arthritis research in Canada. The three-day event features participation from across the country, including medical and allied health professionals, patient advocates, government representatives and non-profit health organizations.
“This precedent-setting event is a unique opportunity to bring together all stakeholders in the Canadian arthritis community,” says Alliance Chair Janet Yale. “Canada is a world leader in research into arthritis and chronic pain. The work being done at this event will lay out the roadmap for future research priorities designed to advance our understanding of arthritis – what causes it, how to diagnose and treat it, how to care for those living with it, and ultimately how to prevent and cure it.” [Read more]
Des centaines de patients et d’experts se réunissent pour façonner l’avenir de la recherche sur l’arthrite au Canada
Des centaines de patients et d’experts se réuniront à Ottawa cette semaine au Congrès inaugural et symposium sur la recherche de l’Alliance de l’arthrite du Canada pour discuter des dernières avancées et de l’avenir de la recherche sur cette maladie au pays. L’événement de trois jours attirera des participants de partout au Canada, y compris des professionnels de la santé et paramédicaux, des groupes de défense des droits des patients, des représentants du gouvernement et des organisations sans but lucratif du domaine de la santé.
« Cet événement sans précédent est une occasion unique de rassembler tous les acteurs du milieu de l’arthrite canadien, explique la présidente de l’Alliance, Janet Yale. Le Canada est un chef de file dans la recherche sur l’arthrite et la douleur chronique. Le travail accompli à cet événement permettra d’établir une feuille de route pour les futures priorités en matière de recherche en vue d’améliorer notre compréhension de l’arthrite – ses causes, son diagnostic et son traitement, les soins à prodiguer aux personnes atteintes et, en définitive, sa prévention et sa guérison. » [En lire plus]
If you struggle to open child-proof medication bottles, you will be happy to know that researchers are helping a large pharmaceutical company come up with a new secure cap that could receive the U.S Arthritis Foundation’s ease-of-use commendation.
Going so far as to wear gloves that would help them understand the experience of trying to open medicine bottles with arthritis—specifically “the limited ability to grasp, pinch, turn, lift and twist objects”—the researchers made recommendations that the company considered in their final design.
The process of developing the new pill bottle tops is rather interesting. Check out the article on medicalxpress.com.
Increasingly, research is showing that gut flora (gut bacteria) play a role in our health.
For example, arthritis researchers at NYU School of Medicine think they may have found a new clue to help understand the cause of rheumatoid arthritis.
The NYU researchers examined the fecal samples of those living with rheumatoid arthritis, and for comparison, also looked at the poop of healthy people. They discovered that those newly diagnosed with RA had more P. copri (Prevotella copri) than people either without RA or living with treated rheumatoid arthritis. Also, though it is typically a beneficial gut bacteria, the researchers found that when there was an overgrowth of P. copri, there were also fewer of another group of beneficial gut bacteria (of the genera Bacteroides).
It has not yet been concluded that the overabundance of P. copri causes rheumatoid arthritis; however, the researchers think problems may occur because this imbalance in gut flora interferes with the immune system and causes it to malfunction. How this happens still needs to be worked out in further studies.
For details about this fascinating study, please check out this article on the website Science Codex.