Arthritis Broadcast Network had the pleasure of interviewing Dr. Cheryl Barnabe at a #CRArthritis event, a champion of arthritis care and research in Indigenous communities. In this interview, Dr. Cheryl Barnabe, Assistant Professor at the Division of Rheumatology at the University of Calgary, shares with us information from her workshop “Investigating access to arthritis health services for Aboriginal people: A Framework for System Reform”.
Rheumatoid arthritis affects about 1% of the Canadian population or 1 out of every 100 people. This increases to 5% for aboriginal Canadians. This population not only is at greater risk for getting RA but the disease is more severe than with other populations. For aboriginal people rheumatoid arthritis is one of the five top five chronic diseases reported. More Canadian women get RA then men (3:1), however, this figure almost doubles for aboriginal women.
A study conducted by the National Aboriginal Health Organization (NAHO) 2002, by First Nations people for First Nations people, had approximately 22,000 participants making up 238 communities, both on-reserve and off-reserve First Nations people across Canada.
The following highlights some of the results of the study:
arthritis is one of the five top conditions to affect the First Nations population
more than half (52%) of First Nations adults with disabilities reported having arthritis compared to 14.6% without disabilities
25.3% of First Nations adults have arthritis compared to 19.1% of the general Canadian population
there is a higher rate of arthritis among First Nations women compared to other women in Canada, except for women over 60 years of age. The following chart shows the range of difference between these two groups with more than double the First Nations women with arthritis compared to other Canadian women up to age 39 years.
Dr. Barnabe is also a past recipient of the Canadian Institutes of Health Research’s (CIHR) Foundation Grant. Below is the description of the award on the CIHR website:
Developing a more complete picture of arthritis in Indigenous communities
“Most people aren’t aware that women and Indigenous people are at a much higher risk for arthritis, and that kids can get arthritis too.” — Dr. Cheryl Barnabe
CIHR Foundation Grant Recipient
Dr. Cheryl Barnabe
Cumming School of Medicine
University of Calgary
Dr. Barnabe’s Research
Dr. Cheryl Barnabe, a Métis clinician and researcher at the University of Calgary, is exploring why arthritis appears to disproportionately affect Indigenous communities, and what can be done to reduce these disparities. Continue reading →
The Aboriginal Children’s Hurt and Healing Initiative wanted to answer one simple question: What does pain look like? Not what it feels like, but what pain would look it if you had to express it on paper, or in this case, canvas.
In an interview with CBC News, John Sylliboy, community research co-ordinator with the Aboriginal Children’s Hurt and Healing Initiative, said: “Aboriginal children feel and experience pain just like anyone else. It’s just that they express their pain very differently. They don’t necessarily verbalize their pain, or they don’t express it outwardly through crying or through pain grimaces. A lot of kids, they just suck it up. That’s what they say all the time. ‘We just suck it up.'”
The research study spawned in 2008 when Margot Latimer, a clinical scientist at the Centre for Pediatric Pain Research at the IWK Health Centre in Halifax, observed there was no First Nations youth being referred to their pain clinic at the IWK hospital.
“My painting is about pain and the black represents how she feels inside. But she has like this white kind of atmosphere and it separates it from her pain.” – Artist, 16-year-old Source: http://www.cbc.ca/news/health/aboriginal-youth-art-pain-hurt-healing-1.3852646?cmp=rss
ACE is sharing the latest research news from this year’s American College of Rheumatology annual meeting (ACR) in Washington, DC.
The ACR is a gathering of more than 16,000 arthritis researcher, clinicians and patients from around the world to discuss the newest science about arthritis prevention, care and treatment. This week ACE will share the daily news from the ACR and interviews with arthritis leaders making a difference for you.
Arthritis can affect aboriginal people in North America differently than other ethnic groups. At a clinical symposium at the ACR – Rheumatic Diseases in Native Americans: What Can We Learn, How Can We Help? – conference attendees heard how the unique responses of aboriginal populations to arthritis have lessons for the rest of the arthritis community. Continue reading →
ACE “Vote for Arthritis” Survey Results: Where the parties stand on arthritis health issues
One of the longest federal election campaigns in Canadian history is heading for the home stretch in a tight contest between the three major parties. To help you understand where the Conservative Party of Canada, New Democratic Party of Canada, and the Liberal Party of Canada stand on important issues for Canadians living with arthritis, ACE asked the major parties to complete a survey. The Conservative Party is the only party that did not respond.
Here is a summary of responses to ACE’s survey from the Liberal Party of Canada and the New Democratic Party. You can review the ACE survey results in full here.
Does your party think standardized models of arthritis care is necessary? If so, what should the key components of this model be? Continue reading →
#Goals4Arthritis – Goal 10: Celebrate National Aboriginal Day
Soccer players in the FIFA World Cup come from all backgrounds – some of which are of Aboriginal descent.
Here is a partial list of famous Aboriginal soccer players over the years:
Bridgette Starr – The first Aboriginal woman to play at the World Cup final in 1999.
Charles Perkins – A former Manchester United soccer player who became a national figure in Aboriginal politics.
Harry Williams – The first recognised Aboriginal Australian to play for the senior Australian national soccer team in the 1970s. In total, Williams played 6 World Cup matches and represented Australian 17 times between 1970 and 1978.
John Moriaty – The first Aboriginal person to represent Australia in soccer. He is currently the ambassador for Football Federation Australia’s Indigenous Football Development Program.
Kyah Simon – A female soccer player who led the Matildas into the knockout stage in the 2011 FIFA Women’s World Cup in Germany. She is the first Aboriginal Australian to score a goal in a World Cup tournament.
Today, Canadians from all walks of life will be celebrating National Aboriginal Day.
Today’s #Goals4Arthritis is to celebrate the unique heritage, diverse cultures and outstanding achievements of First Nations, Inuit and Métis peoples in Canada and around the world. Click here to see a list of celebrations happening across Canada.
On this occasion, Arthritis Broadcast Network is also pointing out the need to for better arthritis healthcare in the Aboriginal community. Rheumatoid arthritis affects about 1% of the Canadian population or 1 out of every 100 people. This increases to 5% for aboriginal Canadians. This population not only is at greater risk for getting RA but the disease is more severe than with other populations. For aboriginal people, rheumatoid arthritis is one of the five top five chronic diseases reported. More Canadian women get RA then men (3:1), however, this figure almost doubles for aboriginal women.
When asked about arthritis in Aboriginal communities, rheumatologist and Manitoba Metis native Dr. Cheryl Barnabe told ABN: “One major reason individuals may not seek out care when they start to have arthritis symptoms comes from misconceptions and stereotypes that people in healthcare often have about aboriginal people. Another reason is that in the context of social or psychological trauma, or other diseases, their coping strategy has become “toughing it out”. Finally, since arthritis is common—everyone in their family may have it—it is normal to have arthritis, so it may seem to some people that medical care is unnecessary.”
With the proper support system, improving arthritis healthcare is possible in these communities, visit www.jointhealth.org for more information on aboriginals and arthritis.
The Canadian Rheumatology Association (CRA) has announced that effective March 10, 2014, the Non-Insured Health Benefits (NIHB) Program’s limited use criteria for coverage of biologic therapies for rheumatoid arthritis (RA) has been modified. The change came following a recommendation from the NIHB Drugs and Therapeutics Advisory Committee. As a result, there are changes to the following biologics for RA: infliximab (Remicade®), etanercept (Enbrel®), adalimumab (Humira®), golimumab (Simponi®), abatacept (Orencia®) and certolizumab (Cimzia®).
How does the biologics reimbursement in your province and territory’s provincial formulary compare to the NIHB’s coverage? Find out by reading the JointHealth™ report card.
Arthritis Broadcast Network’s “CRA Interview Series 2014” – Dr. Cheryl Barnabe and access to arthritis health in Aboriginal communities
Today’s interview features Dr. Cheryl Barnabe, Assistant Professor at the Division of Rheumatology at the University of Calgary. She shares with us information from her workshop “Investigating access to arthritis health services for Aboriginal people: A Framework for System Reform”. At this year’s Canadian Rheumatology Association meeting, Dr. Barnabe was the recipient of the “Young Investigator Award”.
Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). Starting March 14, feature interviews will be posted daily on the ABN YouTube channel at http://bit.ly/ABNYouTube. We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.