All posts related to "#ACEJHEd"

It’s time to see your rheumatologist. Let’s record and take notes!

Picture of smartphone and journal with pen for taking notesIt’s time to see your rheumatologist and specialist. Please have your recorder, pens and paper ready.

A study published in Psychological Science provides two hypotheses as to why note-taking is beneficial in a classroom setting. The first hypothesis is called encoding hypothesis, which says that when a person is taking notes, “the processing that occurs” will improve “learning and retention.” The second hypothesis is called the external-storage hypothesis – you learn by being able to look back at your notes, or even the notes of other people.

The same concepts can be applied to your medical appointments and is currently practiced by Dr. James Ryan, a family physician in Ludington, Michigan. With his patients’ approval, Dr. Ryan records their appointments, then uploads the audio file to a secure web platform for his patients. The recordings are annotated so that patients can easily search for specific topics in the conversation. Patients will be empowered and engaged in their own healthcare because they will have a reference of what was discussed. They can give family members access to the recordings as well.

Continue reading

ACE lance le programme Éducation JointHealth™

Première salle de cours en ligne en Amérique du Nord conçue pour l’éducation, la responsabilisation et l’obtention d’un diplôme par le patient arthritique d’aujourd’hui

JHEd logo animate gifLe comité ACE (Arthritis Consumer Experts) a annoncé aujourd’hui le lancement de son plus récent programme éducatif en ligne pour les patients: Éducation JointHealth™. Conçu pour permettre aux patients de passer du statut « d’étudiants » en matière d’arthrite à celui de « diplômés » à part entière, le programme Éducation JointHealth™ leur permet de se responsabiliser et de s’armer d’outils pour devenir les leaders de leur équipe de soins. Dans le cadre de ce lancement, le comité ACE présente le premier cours du programme, Éducation JointHealth™: La polyarthrite rhumatoïde (PR) – élaboré pour aider les patients et leurs fournisseurs de soins de santé à mieux comprendre leurs motivations respectives et les objectifs du plan de traitement et de soins du patient dans son ensemble.

« Le programme Éducation JointHealth™ a été inspiré et documenté par la participation de notre organisation à un groupe consultatif mondial qui a mené dans 16 pays une enquête sur les patients atteints de polyarthrite rhumatoïde et leurs fournisseurs de soins de santé. Les résultats ont éclairé d’une lumière nouvelle la divergence entre les besoins, les préoccupations et les peurs des patients et la vision de leurs fournisseurs de soins de santé », indique Cheryl Koehn, fondatrice et présidente du comité ACE (Arthritis Consumer Experts) et membre du Groupe consultatif mondial sur la PR.

Principaux constats de l’enquête menée par le Groupe consultatif mondial sur la PR : Continue reading

ACE launches JointHealth™ Education

North America’s first on-line classroom designed to educate, empower and graduate today’s modern arthritis patient

Arthritis Consumer Experts (ACE) today announced the launch of its newest on-line patient education program: JointHealth™ Education. Designed to enable arthritis patients to progress from being a “student” of arthritis to full-fledged “graduate,” JointHealth™ Education empowers and equips them to be equal partners on their health care team. As part of the launch, ACE is introducing the first course in the program – JointHealth™ Education: Rheumatoid Arthritis (RA) – to help patients and their healthcare providers better understand each other’s motivations and goals for the patient’s overall treatment and care plan.

JointHealth™ Education was inspired by many of ACE’s members living with an inflammatory arthritis who have told us they lack the communications expertise to have full, satisfying conversations with their rheumatologists on topics such as treatment options during their clinical visits. The program is informed by our organization’s participation on a global advisory panel that conducted a survey in 16 countries of rheumatoid arthritis patients and their health care providers. The results illuminate the discord between the needs, concerns and fears of patients compared to the views of their health care providers,” said Cheryl Koehn, Founder and President of Arthritis Consumer Experts and a member of the RA Narrative Global Advisory Panel.

Key findings of the RA Narrative Global Patient Survey included: Continue reading