Canadian folk artist Maud Lewis is a legend in Nova Scotia and in our eyes, a role model to people living with juvenile arthritis. The story of Maud Lewis came to life on the big screen with Maudie, a biopic released in June. The movie features Sally Hawkins as Lewis and Ethan Hawke as her husband Everett. The film, directed by British filmmaker Aisling Walsh and written by Canadian screenwriter Sherry White, focuses on Lewis’s resilience as an artist, despite hardships. The pictures in this article is from Artsy‘s editorial The Joyous World of Overlooked Canadian Folk Artist Maud Lewis.
Photo from Artsy: Maud Lewis, Oxen in Spring, ca. 1960s. Courtesy of the Art Gallery of Nova Scotia.
Maud Lewis (1903-1970) grew up in the seaside town of Yarmouth, Nova Scotia. She was diagnosed with juvenile arthritis at a young age. Her arthritis left her with a pained and crooked gait. People would make fun of her because she looked and walked different. Her arthritis pain forced her to stay indoors at her parents’ home. It was here that she began to draw.
Les sciences humaines, qui se déclinent sous plusieurs formes (littérature, musique, art, théâtre) offrent un éclairage particulier sur ce que être humain signifie. Elles peuvent également procurer des bienfaits aux patients et aux professionnels de la santé qui les traitent. C’est ce qu’avance la conférencière invitée du colloque annuel de l’American College of Rheumatology (ACR), la docteure Paulette Hahn, professeure agrégée de médecine et vice-présidente associée à l’enseignement du Département de médecine de l’Université de Floride.
The humanities come in many forms – literature, music, art, drama – and provide us perspective on what it means to be human. They can also provide benefits for patients and their healthcare professionals, said American College of Rheumatology (ACR) annual meeting keynote speaker, Dr. Paulette Hahn, Associate Professor of Medicine and Associate Vice Chair of Education in the Department of Medicine at the University of Florida.
In their Fall issue, The Open Journal of Occupational Therapy featured an article titled “Occupation and the Artist: Sculpting the Illness Experience” on a person that is a favourite in the arthritis and art community – Otto Kamensek. In the article, Otto shares what his exhibit “Glimmer of Hope” means to him.
“Glimmer of Hope” is a visual journal of the pain Otto has experienced throughout his life with Juvenile Rheumatoid Arthritis (JRA). It illustrates the changes and sensations that have occurred in his body. Throughout his work, he uses symbolism to represent the types of pain he experiences and where it occurs in his joints. Lightning bolts represent flashes of pain, needles represent sharp pain, melted down nails represent festering pain, and elongated pyramids represent monumental pain. His sculpture also depicts scars from hip and knee replacements, muscle wasting, and physical changes in the feet and hands.
Rarely, if ever, have the movies depicted rheumatoid arthritis, but last Friday, the movie “Words and Pictures”, starring Academy Award-winning actress Juliette Binoche, did just that.
Words and Pictures tells the story of an artist – Dina Delsanto, Ms. Binoche’s character – who, challenged by advancing rheumatoid arthritis (RA), had to change the way she painted and deal with the emotional challenges brought on by the disease. This is perhaps the first time a feature film has focused attention on rheumatoid arthritis – an autoimmune disease with hallmark symptoms of inflammation and resulting pain.
Arthritis Consumer Experts (ACE) Founder, Cheryl Koehn, was thrilled to be called on to assist Ms. Binoche in her preparation for the role, and honoured to be asked to review the script and provide comment to ensure the emotional characterization of RA was as accurate as film would allow. Kudos go to ACE physiotherapy advisor, Dr. Linda Li, who assisted Ms. Binoche with the physical portrayal of her character, and Mr. Otto Kamensek, an arthritis community leader and artist himself, who shared his artistic process and art.
Congratulations to everyone involved in the making of Words and Pictures and the awareness it will raise for RA.
#Goals4Arthritis – Goal 21: Art for arthritis’ sake
As the host of the 2014 FIFA World Cup™, Brazil is known for its dynamic and vibrant arts. Brazil’s distinctive styles of art, include the creative choreography of the Samba Schools, the elaborate custom tailored costumes of traditional dancers, the continuous rhythm and beat of the African, European, and Amerindian influenced music, and the street arts of Brazil.
Today’s #Goals4Arthritis is to stimulate your mind and express your artistic personality.
Street arts – graffiti – are one way for Brazilians to voice their opinions. Some of the street arts for the 2014 FIFA World Cup™ are positive and focus on the patriotic support of Brazil while others show admiration for famous footballers around the world. Yet many more are political in its messaging.
How can we use the power of artistic expression convey the story of arthritis?