The Big Sick film highlights writer’s real-life battle with adult-onset Still’s disease. The Big Sick film is based on the real-life courtship between Silicon Valley actor Kumail Nanjiani and his wife, writer Emily V. Gordon. In the movie, Zoe Kazan portrays Gordon onscreen, and Holly Hunter and Ray Romano play her parents.
The romantic dramedy portrays how the married co-writers dealt with the extremely rare form of arthritis that brought them together 10 years ago. Back then, Gordon was a therapist in Chicago and has been together with the then standup comedian Nanjiani. Gordon’s initial symptoms were similar to a cold. She thought she had a really bad cold or pneumonia. She fainted in the middle of getting an X-ray and was rushed to the emergency room.
Gordon was eventually diagnosed with adult-onset Still’s disease (AOSD), a rare form of arthritis that can shut down major organs if untreated. Adult Still’s disease is characterized by high fevers, inflammation of the joints, and a salmon-coloured rash on the skin. It can either be chronic or episodic (having flare-ups a few times a year). In children, this disease is known as systemic onset juvenile rheumatoid arthritis; when it occurs in people over age 15, it is known as adult Still’s disease. In Gordon’s case, AOSD affected her lungs, causing water to accumulate in her lungs. As a result, she had trouble breathing.Continue reading →
Join Cassie and Friends for their Scotiabank 5K & Half Marathon Team to raise money for all the kids affected by juvenile arthritis and other rheumatic diseases in BC.
Over the last 10 years, Team Cassie and Friends has laid it all on the course for kids with arthritis. Their team of 100 runners and walkers, from toddlers to grandparents, have transformed the lives of kids and families diagnosed with Juvenile Arthritis and other rheumatic diseases in BC and across Canada.
But, there is still so much more we can do to support and connect families, fund critical research and raise awareness – we hope you’ll join Cassie and Friends! Make a gift or sign up to be a part of their team. Cassie and Friends has created a virtual run for those who are unable to attend the Vancouver event.
Click here to register. Please use charity pin codes (all child registrations will be reimbursed):5K -17CFS5K or Half Marathon– 17CFS21K
The Qualman-Davies Arthritis Consumer Community Leadership Award
Do you know a person with arthritis who has, or is, providing leadership in the community and deserves recognition for their valuable volunteer work? We encourage you to help us celebrate their contributions by nominating them for the Qualman-Davies Arthritis Consumer Community Leadership Award.
The Qualman-Davies Arthritis Consumer Community Leadership Award was created in 2014 to recognize one person’s contributions to helping Canadians living with the disease to be heard in decision-making processes that affect millions. That’s what Ann Qualman and Jim Davies did as early pioneers in arthritis advocacy in Canada. Their tireless and selfless efforts helped millions of Canadians.
To submit a nomination, please follow the four steps listed below.
Obtain the prospective nominee’s consent to be nominated prior to submitting this form.
Click here for the nomination form. If you create a separate nomination document, please use the headings provided on the Nomination Form PDF for ease of review by the award adjudication committee.
Provide the completed nomination form to the nominee for their review for accuracy and obtain their signature on the document.
The application deadline is August 31, 2017. Each submission will be reviewed by the award adjudication committee and scored on a points system. The winner and their nominator will be notified by the adjudication committee chair by September 8, 2017. The award will be bestowed in person at the Arthritis Alliance of Canada’s Annual Conference Gala, this year taking place on October 26, 2017 in Vancouver, British Columbia (award recipient’s expenses will be covered).
The BC provincial election is on May 9, 2017 – Vote for arthritis!
Arthritis Consumer Experts (ACE) asked British Columbia’s political parties, leaders and candidates to share their views on how to improve arthritis prevention, treatment and care.
Arthritis affects 1 in 5 British Columbia residents and is the leading cause of disability in the province. The economic burden of arthritis is expected to double within a generation and strain the BC health system’s ability to provide quality care to BC patients with arthritis.
ACE sent an open letter and survey to all candidates and political parties running in the upcoming May 9th British Columbia provincial election. ACE has received party responses from the BC Liberal Party, BC NDP, BC Green Party, BC Citizens First Party and the BC New Republican Party to questions regarding models of care, osteoarthritis education, aboriginal arthritis care, reimbursement for inflammatory arthritis medications and flexible work arrangements. To view a political party’s response, click on the links below.
Canadian Obesity Network publishes first-ever Report Card On Access to Obesity Treatment For Adults in Canada 2017
A paradigm shift in the prevention and treatment of obesity.
The report is a shift away from considering obesity to be merely the result of poor lifestyle choices toward a socio-ecological model of health that carries with it an obligation to our health systems and society to prevent and treat it as we do other chronic diseases.
Understanding your Body Mass Index (BMI)
Health Canada’s Canadian Guidelines for Body Weight Classification in Adults uses the Body Mass Index (BMI) to determine if someone is overweight. You can calculate your BMI using the formula below or online here:
BMI = weight (kg)/height (m)2
Health Canada’s Health Risk Classification According to Body Mass Index (BMI) table shows the correlation between your BMI score and your risk of developing health problems, such as type 2 diabetes, high blood pressure, heart disease, stroke, arthritis and cancer. Please note other factors may influence your BMI. You should consult your family physician if you are concerned about being overweight. Continue reading →
The next general election in British Columbia is scheduled for May 9, 2017. What change would you want to see?
Arthritis affects 1 in 5 British Columbia residents, so healthcare to treat the more than 100 different types of the disease is extremely important to the more than 600,000 British Columbians living with the disease. Any party that wishes to become government needs to consider these constituents. To help the parties understand this, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the 2017 BC Provincial Election.
People living with rheumatoid arthritis (RA) are twice as likely as the rest of the population to feel depressed. An important thing to understand is that it is NOT your fault you are depressed, therefore, YOU are not making your RA worse. It is natural to feel anxious or sad as a result of the diagnosis and to be depressed as a symptom of the disease. Instead, realise that it just demonstrates that rheumatoid arthritis is a complex condition that may require multiple levels of treatment; and, that an important strategy for reducing the pain of arthritis is treating your depression. Two approaches can be used, non-pharmacological and pharmacological, together or individually.
Separate from improving mood, antidepressants have been shown to reduce pain in many different chronic conditions, including arthritis, and they work even when depression is not a factor. How these drugs work to reduce pain is not fully understood, but may have to do with improving sleep, relaxing muscles, or increasing neurotransmitters in the spinal cord that are responsible for lessening pain signals.
Please consult your doctor to discuss your treatment options.
There are many strategies you can try, which you may find useful for helping you to avoid or alleviate depression without using drugs. No matter what suggestions you decide will work best for you, we recommend you speak with your doctor or therapist before getting started: Continue reading →
A Canadian Study in Arthritis Care & Research concludes that young generations are reporting arthritis at an earlier age. The authors of the study believed it is linked to rising obesity rates.
The study looked at arthritis incidence in four different groups:
The World War II group (1935-1944) is the benchmark group.
The generation Xers (1965-1972), where the odds ratio for arthritis was 3.20.
The younger baby boomers (1955-1964), where the odds ratio for arthritis was 2.14.
The older baby boomers (1945-1954), where the odds ratio for arthritis was 1.48.
The study was conducted by Elizabeth Badley, PhD, of the Dalla Lana School of Public Health at the University of Toronto, and her colleagues. Bailey and her team found that severely obese people were 2.5 times more likely than people with a normal body mass index (BMI). Continue reading →
Putting on clothes can be a difficult task for people living with arthritis, limited mobility and range of motion, and other medical problems.
For someone living with arthritis, simple tasks, such as buttoning a shirt, tying shoelaces, or pulling up a zipper, are made difficult by joint pain and inflammation. Caregivers can help in this aspect but it can be a demeaning, intimate and tricky task for both parties. People with Alzheimer or dementia may also have trouble in dressing themselves. They may forget how to put on a shirt or which way the buttons face.
One way to make things easier is to use adaptive clothes. Adaptive clothes have details like Velcro tabs instead of zips and buttons, as well as adjustable or removable components that help to save time and reduce the risk of injury. “More importantly, this type of clothing improves one’s comfort and bolsters self-esteem,” said Ms. Punithamani Kandasamy, a registered nurse and caregiving trainer at Active Global Specialised Caregivers. In an interview with the Straight Times in Singapore, Ms. Punithamani explains how different types of adaptive apparel and footwear can be useful for both the wearer and the caregiver. Below is an excerpt from the interview: Continue reading →
Arthritis in the workplace: Are employers and employees speaking the same language?
In this issue of JointHealth™ insight, Arthritis Consumer Experts looks at the current state of arthritis in the workplace. Find out what makes the City of Ottawa and Aboriginal Peoples Television Network two of Canada’s best workplaces for employees living with arthritis.
In this issue, you will also find:
A summary on arthritis in the workplace, including the latest statistics about the cost of work disability
Suggestions on what kind of flexible work arragements would help workers with arthritis