All posts related to "arthritis"

Osteoarthritis, insomnia, and depression

Close up head shot of a woman sleepingOn World Suicide Prevention Day, learn more about the connection between osteoarthritis, insomnia, and depression. According to a recent study published in Arthritis Care & Research, pain, insomnia and depression were the main reasons for people living with osteoarthritis (OA) to schedule a visit with their doctor.

The study consisted of 2,976 people and half the participants had at least one of three symptoms: pain, insomnia, and depression. An estimated 34 percent of the patients studied experienced insomnia and 29 percent had depression, in addition to moderate to severe pain.

Dr. Minhui Liu is the lead author of the study and a research fellow at Johns Hopkins School of Nursing in Baltimore. His team found that among patients with osteoarthritis, about 47 percent of them reported moderate to severe pain, 17 percent clinical insomnia, and 21 percent clinical depression. In addition, about 13 percent of participants experienced moderate to severe pain and clinical insomnia at the same time, and 13 percent experienced moderate to severe pain and clinical depression at the same time.  Continue reading

JointHealth™ insight – September 2018: Where is Arthritis? – Everywhere!

Cover photo for JointHealth insightArthritis Consumer Experts (ACE) releases a special edition of JointHealth™ insight for Arthritis Awareness Month in Canada: “Where is arthritis? – Everywhere.” Arthritis is everywhere and can affect patients’ jobs, financial resources, academic studies or relationships with family and friends. There are now more than 6 million people of all ages, living with more than 100 separate types of arthritis and musculoskeletal diseases in Canada. Arthritis can generally be categorized into two types: osteoarthritis and inflammatory arthritis. This issue of JointHealth™ insight provides evidence-based information on strategies to help change, overcome or manage the challenges arthritis patients face, including:

  • A guide to living well with osteoarthritis including information on the disease, diagnosis and self-care
  • Back-to-school tips for students living with inflammatory arthritis
  • How to participate in our #WhereIsArthritis social media campaign

Arthritis Awareness Month in Canada: Arthritis Consumer Experts’ #WhereIsArthritis social media campaign

#WhereIsArthritis Banner graphicArthritis Consumer Experts is celebrating Arthritis Awareness Month in Canada with the #WhereIsArthritis social media campaign. #WhereIsArthritis is a fun way for you to familiarize yourself with Arthritis Consumer Experts’ online resources, which are designed to help you live a better life with arthritis. By participating, you are creating awareness about arthritis while educating yourself and others about the many different types of diseases, and showing your support for people living with it.

Every day from Saturday, September 1 to Sunday, September 30, 2018, you will:

  • Find a #WhereIsArthritis question and hint on ACE’s Twitter (@ACEJointHealth) and Facebook (@ACEJointHealth) account
  • Find and tweet, Facebook post or email the answer to us – Be sure to include the #WhereIsArthritis hashtag!

Sample #WhereIsArthritis question and answer:

Question: Q1: What are four non-medication treatments listed on the ACE website? Hint: See “About Arthritis” http://bit.ly/2xs5Ik5 #WhereIsArthritis
Answer: Hey @ACEJointHealth, the answer is: vitamins and minerals, diet and nutrition, physiotherapy, occupational therapy! #WhereIsArthritis

To participate, please follow #WhereIsArthritis on our Twitter account @ACEJointHealth and Facebook account Arthritis Consumer Experts. Help us drive arthritis awareness in September:

  • like, retweet, and reply on Twitter using #WhereIsArthritis; or,
  • like, comment, and share on Facebook using #WhereIsArthritis; or,
  • email your answers to feedback@jointhealth.org with subject heading #WhereIsArthritis

Each time you do any of the above from your personal social media account, your name will be entered into a draw for a $50 Amazon gift card. The draw will take place on Wednesday, October 3, 2018 and the winner will be notified by direct message or email.

Let’s find #WhereIsArthritis resources together!

Reminder: Call for nominations – Help us celebrate community leaders living with arthritis!

Do you know a person with arthritis who has, or is, providing leadership in the community and deserves recognition for their valuable volunteer work? We encourage you to help us celebrate their contributions by nominating them for the Qualman-Davies Arthritis Consumer Community Leadership Award.

Qualman-Davies Award SlideThe Qualman-Davies Arthritis Consumer Community Leadership Award was created in 2014 to recognize one person’s contributions to helping Canadians living with the disease to be heard in decision-making processes that affect millions. That’s what Ann Qualman and Jim Davies did as early pioneers in arthritis advocacy in Canada. Their tireless and selfless efforts helped millions of Canadians.

To submit a nomination, please follow the steps listed below:

  1. Obtain the prospective nominee’s consent to be nominated prior to submitting this form
  2. Click here for the nomination form. If you create a separate nomination document, please use the headings provided on the Nomination Form PDF for ease of review by the award adjudication committee.
  3. Provide the completed nomination form to the nominee for their review for accuracy and obtain their signature on the document
  4. Submit the form to feedback@jointhealth.org

The application deadline is September 20, 2018. Each submission will be reviewed by the award adjudication committee and scored using a points system. The winner and their nominator will be notified by October 2, 2018. The award will be announced at the Arthritis Alliance of Canada’s 2018 Annual Meeting Reception taking place on Wednesday, November 21, 2018 in Toronto, Ontario.

JointHealth™ insight – Summer 2018

English JointHealth insight front cover pageSmart Design for People Living with Arthritis

In this issue of JointHealth™ insight, we look at how smart choices in our living environments can make your arthritis experience easier, safer, and less painful, providing you solutions on how to modify your home or work environment.

In this issue, you will learn about:

  • Smart design solutions for home: Around the house, bedroom, dressing, kitchen, bathroom, laundry room, dining room, living room, and foyer
  • Smart design solutions for work: Desk and work schedule
  • The importance of educating co-workers and employers about arthritis

Continue reading

Surrey Inflammatory Arthritis Clinic: innovative, convenient, informative

Ask for your rheumatologist’s referral to make an appointment at the clinic! 

The recently opened Surrey Inflammatory Arthritis (IA) Clinic is located at the Surrey Memorial Hospital and provides services for people living with inflammatory arthritis. The clinic has therapists (occupational therapy and physical therapy) who are specifically trained to help you manage and treat the physical and mental impacts of rheumatoid arthritis.

Sarah Bryant, an occupational therapist at the Surrey IA Clinic, explains her work relationship with the clinic’s physical therapist: “We work in a transdisciplinary model, which means that we both train each other in the basics of our profession in rheumatology and that if you have something really specific to the discipline, you can see either one of us, as needed.” This transdisciplinary approach eliminates the stress associated with multiple visits to the clinic.

The services provided at the clinic are publicly funded and available for people living with inflammatory arthritis who are:

  • 18 years of age or older
  • diagnosed with rheumatoid arthritis within the last two years
  • living in the Fraser Health region
  • have a rheumatologist’s referral to the Surrey IA Clinic

This video provides general information about what you should expect when you visit an occupational or physical therapist at the Surrey IA Clinic. For more information about the clinic or to schedule an appointment, please call 604-585-5666 (extension 778778).

To subscribers who live outside of British Columbia:

If you know of a clinic in your area of Canada that offers a similar program, please email us at feedback@jointhealth.org so that we may share it on our resources page.

Everything you need to know about the shingles vaccine (Shingrix®) if you have inflammatory arthritis or are on a biologic

Image of files and envelops

What is shingles?

Shingles (Herpes Zoster) is an infection that causes a painful skin rash and can lead to a variety of more complex, serious conditions. Shingles is caused by the varicella zoster virus (VZV), the same virus that causes chickenpox. VZV can stay in the nerve cells of an individual long after they recover from chickenpox. The virus may lay dormant for decades, and then reactivate and cause shingles when the individual’s immune system is more weak.

Individuals over the age of 50 have an increased risk of developing shingles as well as anyone who has a compromised immune system. Many people with inflammatory arthritis have a compromised immune system due to taking medications that partially or completely suppress the immune response of an individual.

What is different about Shingrix®?

Shingrix® is not a live vaccine, so individuals cannot develop shingles from the vaccine. Another shingles vaccine, called Zostavax®, is not suitable for individuals with a compromised immune system because it is a live vaccine.

Who should receive Shingrix®? Continue reading

Call for nominations: Help us celebrate community leaders living with arthritis!

Do you know a person with arthritis who has, or is, providing leadership in the community and deserves recognition for their valuable volunteer work? We encourage you to help us celebrate their contributions by nominating them for the Qualman-Davies Arthritis Consumer Community Leadership Award.

Qualman-Davies Award Slide

The Qualman-Davies Arthritis Consumer Community Leadership Award was created in 2014 to recognize one person’s contributions to helping Canadians living with the disease to be heard in decision-making processes that affect millions. That’s what Ann Qualman and Jim Davies did as early pioneers in arthritis advocacy in Canada. Their tireless and selfless efforts helped millions of Canadians.

To submit a nomination, please follow the steps listed below:

  1. Obtain the prospective nominee’s consent to be nominated prior to submitting this form
  2. Click here for the nomination form. If you create a separate nomination document, please use the headings provided on the Nomination Form PDF for ease of review by the award adjudication committee.
  3. Provide the completed nomination form to the nominee for their review for accuracy and obtain their signature on the document
  4. Submit the form to feedback@jointhealth.org

The application deadline is September 20, 2018. Each submission will be reviewed by the award adjudication committee and scored using a points system. The winner and their nominator will be notified by October 2, 2018. The award will be announced at the Arthritis Alliance of Canada’s 2018 Annual Meeting Reception taking place on Wednesday, November 21, 2018 in Toronto, Ontario.

“Nothing About Me, Without Me” – Patient Engagement in Research

Patient engagement in research or patient-oriented research refers to patients, their family members and other informal caregivers partaking in research as more than study participants but as members of the research team. For example, involving patients in some or all parts of the research process from deciding what topic is studied, to how the research is conducted to how the findings are presented and used.

Partnering with patients ensures that health research is both relevant and meaningful to the patient community. For example, in rheumatology, patients’ perspectives have been instrumental in broadening the scope of the research agenda to include more patient-relevant factors such as well-being, fatigue and sleep patterns. These are significant aspects of life with inflammatory forms of arthritis, yet until recently the topics were largely ignored or underrepresented in research and outcome measurement. This example depicts why patient engagement is so critical. If researchers do not work with patients how can they know what they are studying is relevant to the population that will be most affected by it? It is in this context that the saying “nothing about me, without me” applies so strongly. Other benefits of patient engagement include enhanced quality of research with more perspectives considered, meaningful role(s) for patients and greater involvement in their communities, co-learning between patient and researchers as well as getting important research findings to a broader audience. Overall, patient engagement is a promising way to improve healthcare services and patient experience.

Model of patient engagement in research by Clayon

Figure that summarizes the components of meaningful patient engagement in research from a patient perspective. Developed by the PIERS Project Team

Continue reading