All posts related to "#ArthritisMadLibs"

Global RA Network present results of international survey of the rheumatoid arthritis patient care experience at ACR / ARHP Annual Meeting

Global RA Network present results of international survey of the rheumatoid arthritis patient care experience at ACR / ARHP Annual Meeting

The Global RA Network, founded by patient-led national arthritis organizations from 21 countries, presented the results of a global survey – “Patient Experiences of Rheumatoid Arthritis Models of Care: An International Survey”1 – investigating patient-reported experiences of rheumatoid arthritis models of care at the American College of Rheumatology’s (ACR) / Association of Rheumatology Health Professionals (ARHP) Annual Meeting.

GlobalRANetwork Poster at ACRAt an ACR poster session on November 5, 2017, Cheryl Koehn, lead author of the abstract and President of Arthritis Consumer Experts, Canada’s largest patient-led arthritis organization, said: “The survey highlights the difference between best practice RA models of care and the patient’s lived experience of managing a life-long condition like RA. The survey will also advance collaboration between the RA patient organizations involved in the Global RA Network. By analyzing and interpreting the survey results for each participating country, the Global RA Network can develop education and information initiatives to raise awareness of symptoms and ensure RA patients receive the best possible care.”

The first crowd-sourced research of its kind designed by RA patients, for patients, to better learn what their care experiences are like in the their country, the global survey fielded responses from 2,690 respondents from 14 countries in Europe, the Middle East, and North and South America. The survey highlights self-reported gaps and delays in all five key elements of a standardized RA models of care, including significant delays to diagnosis and specialist access globally, delayed therapy effectiveness assessment, and additional education/information to increase the level of confidence to describe RA and improve effective self-care practice.

Key takeaways: Continue reading

Viruses transmitted by mosquitos are associated with infectious arthritis

Mosquito warning signage - infectious arthritisViral infections are responsible for approximately 1% of all cases of infectious arthritis. These infections include parvovirus B19, HIV, hepatitis B, hepatitis C, hepatitis E, human T-lymphotrophic virus type-1, and arboviruses. Infectious arthritis can last for hours or days and is marked by pain, heat, rash, redness, and swelling. Some people, particularly the elderly, will experience fever and chills. Most infectious arthritis cases involve only one joint and more than half of these affect the knee. It can also affect the wrists, ankles, shoulders, hips, and spine.

According to Everyday Health, infectious arthritis occurs when germs invade the joint due to:

  • animal or insect bites
  • skin infections
  • injury to the joint
  • bacterial infection during surgery
  • spread from a nearby infection
  • blood stream infection

People with an increased risk of getting infectious arthritis include people who: Continue reading

JointHealth™ insight – numéro de septembre 2017

JointHealth™ insight – numéro de septembre 2017

Des soins de l’arthrite qui visent la « satisfaction du patient »

JHI Banner for September Arthritis Awareness MonthDans ce numéro du JointHealth™ insight, pour souligner le mois de sensibilisation à l’arthrite au Canada, nous attirons votre attention sur trois études internationales qui ont contribué à identifier les lacunes des modèles de soins de l’arthrite, du point de vue du patient. Nous aimerions savoir ce que vous en pensez. Veuillez répondre à chacun des trois courts sondages proposés dans ce numéro du JointHealth™ insight. Vos réponses serviront à baliser l’information et les programmes éducatifs que nous proposerons en 2018 pour offrir un soutien aux patients et améliorer les soins qui leur sont administrés par les rhumatologues, les professionnels paramédicaux, les décideurs en santé et tous les autres fournisseurs de soins impliqués dans le traitement des Canadiennes et Canadiens atteints de toutes les formes d’arthrite.

Vous trouverez également dans ce numéro :

  • De l’information sur le modèle de soins de la polyarthrite rhumatoïde
  • Un modèle de Lettre à la rédaction visant à augmenter la sensibilisation de l’arthrite dans votre collectivité

Continue reading

JointHealth™ insight: Getting “Patient Satisfaction” from Arthritis Health Care

JointHealth™ insight – September 2017

Getting “Patient Satisfaction” from Arthritis Health Care

JHI September Arthritis Awareness BannerTo celebrate Arthritis Awareness Month in Canada, in this issue of JointHealth™ insight, we highlight three international surveys that have helped identify gaps in arthritis models of care from the patient perspective. We want to know what you think. Please complete the three mini surveys in this month’s JointHealth™ insight. Your responses will help drive our 2018 information and education programs to support patients and improve the way health care is delivered by the rheumatologists, allied health professionals, health policy decision makers and others who provide care to Canadians with all types of arthritis.

In this issue, you will also:

  • Read about the model of care for rheumatoid arthritis
  • Find a Letter to the Editor template to increase awareness about arthritis in your community

Surveys Continue reading

Arthritis Awareness Month: ArthritisMadLibs takes Twitter by storm

Multi talk bubblesArthritis Consumer Experts (ACE) is celebrating Arthritis Awareness Month with the #ArthritisMadLibs Twitter Project. The goal is to help others understand the impact of arthritis and make informed decisions about the development of new arthritis programs that will benefit patients and their caregivers.

#ArthritisMadLibs is a chance to re-write the arthritis patient story during Arthritis Awareness Month - one word at a time. On the Labour Day long weekend, the #ArthritisMadLibs hashtag garnered 329.892K impressions, 135 Tweets, 24 participants - averaging 2 Tweets per hour and 6 Tweets per participant.

Since September 1, #ArthritisMadLibs had 910.103K impressions, 379 Tweets, 46 participants - averaging 1 Tweet per hour and 8 Tweets per participant. We thank the patients, health care professionals, patient groups, and researchers who have engaged with us thus far. Our engagement rate on @ACEJointHealth's Twitter account is at an impressive rate of 2.8% engagement rate (34 link clicks, 179 retweets, 235 likes, 138 replies) - a significantly high engagement rate compared to the average Twitter engagement rate of .7% for the top 25 brands on Twitter. Social media is a tricky business and who you follow, who you have following you, and how many followers you have can affect these statistics but for a grassroot patient organization, we are pretty proud of the #ArthritisMadLibs and its participants and supporters!

Here is a summary of the #ArthritisMadLibs (thus far) and some of our favourite Twitter moments:

Top 5 Tweets by impressions Continue reading

Pour le souligner, le comité ACE lance une campagne sur Twitter : #ArthritisMadLibs

Au Canada, septembre est le mois de sensibilisation à l’arthrite. Pour le souligner, le comité ACE lance une campagne sur Twitter : #ArthritisMadLibs

La campagne #ArthritisMadLibs pendant le mois de sensibilisation à l’arthrite : une occasion de réécrire l’histoire du patient arthritique, un mot à la fois.

 l’arthrite
Le comité ACE (Arthritis Consumer Experts) souligne le mois de sensibilisation à l’arthrite en lançant une campagne sur Twitter : #ArthritisMadLibs. L’objectif est d’aider les autres à comprendre l’impact de l’arthrite et à prendre des décisions éclairées à propos du développement de nouveaux programmes sur l’arthrite destinés autant aux patients qu’aux fournisseurs de soins.

Mad Libs est un jeu de mots dans lequel certains mots essentiels à une phrase sont laissés en blanc pour que le joueur puisse y substituer ses propres mots. Comme nous en apprenons toujours grâce aux sondages réalisés chez les patients arthritiques à travers le monde, la communication est un élément essentiel de la relation entre les patients et leurs médecins, rhumatologues, infirmières, pharmaciens, amis, collègues et chercheurs. La campagne #ArthritisMadLibs est l’occasion de réécrire l’histoire du patient arthritique – un mot à la fois.

Pendant le mois de sensibilisation à l’arthrite, le comité ACE publiera quotidiennement sur Twitter des micromessages de jeu Mad Libs sur 5 thèmes différents : les patients, le travail, la famille et les amis, les soins de santé et les animaux. Pour y participer, suivez le mot-clic #ArthritisMadLibs sur notre compte Twitter @ACEJointHealth. Si vous n’avez pas de compte Twitter, mais que vous désirez tout de même participer au jeu, suivez notre fil Twitter sur le site Web (www.jointhealth.org) et faites parvenir vos réponses par courriel à feedback@jointhealth.org. Pour alimenter la campagne, aimez, retweetez et répondez sur Twitter. Le Réseau de diffusion sur l’arthrite (www.arthritisbroadcastnetwork.org) offrira chaque semaine un résumé Mad Libs !