All posts related to "Cheryl Koehn"

JointHealth™ insight – The JointHealth™ Arthritis Medications Report Card and Medications Guide Edition

Arthritis Consumer Experts’ 10th Annual Arthritis Medications Report Card and Medications Guide: The changing landscapes of reimbursement for arthritis medications in Canada

JointHealth™ insight banner on Arthritis Medications Report Card and Medications GuideArthritis Consumer Experts (ACE) has released its 10th Annual JointHealth™ Arthritis Medications Report Card and Medications Guide – the reliable, quick reference tool to help you evaluate where your province ranks in terms of providing reimbursement for medications to treat inflammatory forms of arthritis.

Commenting on the changing landscape for reimbursement of arthritis medications, ACE President, Cheryl Koehn stated: “Any new pharmaceutical policy that promises to deliver significant drug plan savings must do so without compromising patient safety and efficacy. ACE has also consistently advocated that any drug plan cost savings related to changes in policy that affect arthritis medication reimbursement access should be reinvested back to drug formulary budgets to support the listing of new arthritis medicines and other non-medication related initiatives to improve models of arthritis care such as creating rheumatology nursing billing codes.”

The JointHealth™ Arthritis Medications Report Card and Medications Guide gives you information on the most commonly prescribed medications for inflammatory types of arthritis, such as rheumatoid arthritis, axial spondyloarthritis, psoriatic arthritis or juvenile idiopathic arthritis.

In this JointHealth™ insight, topics covered include:

  • The changing landscapes of reimbursement for arthritis medications in Canada
  • The federal health department consultation on medication pricing regulations
  • The essential drugs program initiative in British Columbia
  • The Children and Youth Pharmacare plan in Ontario
  • Medication policies and politics in Canada

About the Report Card
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Everyday Health features Cheryl Koehn and her life with rheumatoid arthritis

Everyday Health featured an article about Cheryl Koehn, Founder and President of Arthritis Consumer Experts. In the article, Cheryl Koehn shares her story to help others with RA learn from the mistakes she made, such as missed symptoms, diagnosis denial, and treatment delays. Below is an excerpt of the Everyday Health feature:

What Rheumatoid Arthritis Taught an Olympic Volleyball Player

Picture of rheumatoid arthritis advocate Cheryl Koehn

Cheryl Koehn, with Molly, an Australian Labradoodle, started Arthritis Consumer Experts to help improve RA education.

 

Is denial a common response to a rheumatic disease diagnosis? Cheryl Koehn will be the first person to tell you that she had trouble accepting her diagnosis of rheumatoid arthritis (RA). After all, as a teenager, she was already an elite volleyball player, competing with the U.S. Junior National Team. She earned a four-year scholarship at the University of Washington in Seattle. But by age 27, just a few years after playing a competitive sport at a high level, she needed to sit in the handicapped seat on the bus to get to work. “The toughest part of accepting it,” Koehn says, “was that when I began to look into the disease, I didn’t see anyone like me.”

The Lack of Arthritis Education and Awareness

It was this experience that led Koehn to create Arthritis Consumer Experts, a Vancouver-based organization dedicated to helping those with arthritis to increase their health literacy and to understand what they are facing. “I put off treatment for about a year after my diagnosis,” Koehn says. “If my health literacy were much higher then, I probably would have made different choices.”

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Free webinar – Citizen as KT agent: Keeping the government informed about research

KT Connect Free Webinar BannerThe Michael Smith Foundation of Health Research and Arthritis Research Canada have partnered to co-develop and host a series of monthly expert-led, beginner-level KT training webinars with the goal of developing a sustainable resource for researchers and trainees to learn knowledge and skills that will enable them to develop KT practice in their work.

Webinar details

Topic: Citizen as KT Agent: Keeping the government informed about research
Speaker: Cheryl Koehn, Founder and President of Arthritis Consumer Experts
Date and time: Friday, April 28, 2017 from 12:00 pm-1:00 pm PDT
Register: Please click here to register for this free webinar
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JointHealth™ insight – décembre 2016 : Meilleurs vœux de la part du comité ACE !

JointHealth insight French snippet

En ce temps des Fêtes, alors que toute l’équipe se penche sur les 17 années passées à servir les Canadiennes et Canadiens touchés par l’arthrite, le comité ACE (Arthritis Consumer Experts) souhaite également partager avec vous les plus récentes informations sur la recherche et souligner nos programmes pour 2017. Vous trouverez donc dans ce numéro du JointHealth™ insight :

  • Le message de remerciement tout spécial de la part de Cheryl Koehn, fondatrice et présidente du comité ACE (Arthritis Consumer Experts)
  • La revue de toutes les réalisations du comité ACE en 2016
  • Une présentation des nouveaux cours Éducation JointHealth™ sur l’arthrite psoriasique et la spondylarthrite ankylosante
  • Une nouvelle recherche et étude de cas sur les biosimilaires
  • Une explication du concept de « données du monde réel »

Picture of Cheryl Koehn« Au nom de tous les membres de l’équipe ACE et des membres de son Conseil consultatif d’experts scientifiques et médicaux et de personnes atteintes d’arthrite, je tiens à vous remercier encore une fois de votre intérêt soutenu, de votre participation généreuse et du soutien que vous apportez à nos travaux. Nous vous souhaitons un joyeux temps des Fêtes et l’amélioration de votre santé en 2017. » – Cheryl Koehn

JointHealth™ insight – December 2016: Happy Holidays from ACE!

JointHealth insight December snippetThis season, as we reflect on our 17 years serving Canadians with arthritis, Arthritis Consumer Experts wants to also share with you new research information and highlight 2017 programs. In this issue of JointHealth™ insight, you will find:

  • A special thank you message from Cheryl Koehn, Founder and President of Arthritis Consumer Experts
  • A review of ACE’s accomplishments in 2016
  • An introduction to new JointHealth™ Education programs for psoriatic arthritis and ankylosing spondylitis
  • New research and case study on biosimilars
  • An explanation of “real world data”

Picture of Cheryl Koehn

“On behalf of my ACE team members and our Scientific, Medical and Consumer Advisory Board, I want to thank you again for your interest, participation and support of our work. We wish you a joyful holiday season and improved health in 2017.”

– Cheryl Koehn

Près d’un Canadien sur cinq souffre d’arthrite. Alors qu’attendons-nous pour lancer un mouvement social ?

Picture of Cheryl KoehnLes personnes atteintes d’arthrite doivent réagir. Ensemble, nous devrons faire sortir notre maladie du placard et commencer à en parler, très abondamment.

Au cours d’un récent dîner, un bon ami à moi me confiait quelque chose d’assez révélateur : « Je ne te considère pas comme handicapée ». Pour lui, son commentaire était plutôt un compliment. Mais pour moi, il illustre l’ampleur de cette fausse perception très répandue à propos de la douleur arthritique comme étant un « état » associé au vieillissement et qu’on ne peut pas vraiment traiter. Son commentaire m’a également rappelé à quel point les personnes atteintes d’arthrite, souvent embarrassées à propos de leur maladie, vivent la douleur arthritique en silence, et cela, en dépit du fait que l’arthrite, une maladie invalidante et la cause principale de l’incapacité de travail au Canada, affecte plus de 4,6 millions de Canadiennes et de Canadiens et restreint de près de 20 pour cent les activités de nos concitoyens. Continue reading