All posts related to "Cheryl Koehn"

Everyday Health features Cheryl Koehn and her life with rheumatoid arthritis

Everyday Health featured an article about Cheryl Koehn, Founder and President of Arthritis Consumer Experts. In the article, Cheryl Koehn shares her story to help others with RA learn from the mistakes she made, such as missed symptoms, diagnosis denial, and treatment delays. Below is an excerpt of the Everyday Health feature:

What Rheumatoid Arthritis Taught an Olympic Volleyball Player

Picture of rheumatoid arthritis advocate Cheryl Koehn

Cheryl Koehn, with Molly, an Australian Labradoodle, started Arthritis Consumer Experts to help improve RA education.

 

Is denial a common response to a rheumatic disease diagnosis? Cheryl Koehn will be the first person to tell you that she had trouble accepting her diagnosis of rheumatoid arthritis (RA). After all, as a teenager, she was already an elite volleyball player, competing with the U.S. Junior National Team. She earned a four-year scholarship at the University of Washington in Seattle. But by age 27, just a few years after playing a competitive sport at a high level, she needed to sit in the handicapped seat on the bus to get to work. “The toughest part of accepting it,” Koehn says, “was that when I began to look into the disease, I didn’t see anyone like me.”

The Lack of Arthritis Education and Awareness

It was this experience that led Koehn to create Arthritis Consumer Experts, a Vancouver-based organization dedicated to helping those with arthritis to increase their health literacy and to understand what they are facing. “I put off treatment for about a year after my diagnosis,” Koehn says. “If my health literacy were much higher then, I probably would have made different choices.”

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Free webinar – Citizen as KT agent: Keeping the government informed about research

KT Connect Free Webinar BannerThe Michael Smith Foundation of Health Research and Arthritis Research Canada have partnered to co-develop and host a series of monthly expert-led, beginner-level KT training webinars with the goal of developing a sustainable resource for researchers and trainees to learn knowledge and skills that will enable them to develop KT practice in their work.

Webinar details

Topic: Citizen as KT Agent: Keeping the government informed about research
Speaker: Cheryl Koehn, Founder and President of Arthritis Consumer Experts
Date and time: Friday, April 28, 2017 from 12:00 pm-1:00 pm PDT
Register: Please click here to register for this free webinar
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JointHealth™ insight – décembre 2016 : Meilleurs vœux de la part du comité ACE !

JointHealth insight French snippet

En ce temps des Fêtes, alors que toute l’équipe se penche sur les 17 années passées à servir les Canadiennes et Canadiens touchés par l’arthrite, le comité ACE (Arthritis Consumer Experts) souhaite également partager avec vous les plus récentes informations sur la recherche et souligner nos programmes pour 2017. Vous trouverez donc dans ce numéro du JointHealth™ insight :

  • Le message de remerciement tout spécial de la part de Cheryl Koehn, fondatrice et présidente du comité ACE (Arthritis Consumer Experts)
  • La revue de toutes les réalisations du comité ACE en 2016
  • Une présentation des nouveaux cours Éducation JointHealth™ sur l’arthrite psoriasique et la spondylarthrite ankylosante
  • Une nouvelle recherche et étude de cas sur les biosimilaires
  • Une explication du concept de « données du monde réel »

Picture of Cheryl Koehn« Au nom de tous les membres de l’équipe ACE et des membres de son Conseil consultatif d’experts scientifiques et médicaux et de personnes atteintes d’arthrite, je tiens à vous remercier encore une fois de votre intérêt soutenu, de votre participation généreuse et du soutien que vous apportez à nos travaux. Nous vous souhaitons un joyeux temps des Fêtes et l’amélioration de votre santé en 2017. » – Cheryl Koehn

JointHealth™ insight – December 2016: Happy Holidays from ACE!

JointHealth insight December snippetThis season, as we reflect on our 17 years serving Canadians with arthritis, Arthritis Consumer Experts wants to also share with you new research information and highlight 2017 programs. In this issue of JointHealth™ insight, you will find:

  • A special thank you message from Cheryl Koehn, Founder and President of Arthritis Consumer Experts
  • A review of ACE’s accomplishments in 2016
  • An introduction to new JointHealth™ Education programs for psoriatic arthritis and ankylosing spondylitis
  • New research and case study on biosimilars
  • An explanation of “real world data”

Picture of Cheryl Koehn

“On behalf of my ACE team members and our Scientific, Medical and Consumer Advisory Board, I want to thank you again for your interest, participation and support of our work. We wish you a joyful holiday season and improved health in 2017.”

– Cheryl Koehn

Près d’un Canadien sur cinq souffre d’arthrite. Alors qu’attendons-nous pour lancer un mouvement social ?

Picture of Cheryl KoehnLes personnes atteintes d’arthrite doivent réagir. Ensemble, nous devrons faire sortir notre maladie du placard et commencer à en parler, très abondamment.

Au cours d’un récent dîner, un bon ami à moi me confiait quelque chose d’assez révélateur : « Je ne te considère pas comme handicapée ». Pour lui, son commentaire était plutôt un compliment. Mais pour moi, il illustre l’ampleur de cette fausse perception très répandue à propos de la douleur arthritique comme étant un « état » associé au vieillissement et qu’on ne peut pas vraiment traiter. Son commentaire m’a également rappelé à quel point les personnes atteintes d’arthrite, souvent embarrassées à propos de leur maladie, vivent la douleur arthritique en silence, et cela, en dépit du fait que l’arthrite, une maladie invalidante et la cause principale de l’incapacité de travail au Canada, affecte plus de 4,6 millions de Canadiennes et de Canadiens et restreint de près de 20 pour cent les activités de nos concitoyens. Continue reading

Roughly 1 in 5 Canadians live with arthritis. Where is our social movement?

People with arthritis need to take action. Together, we need to pull our disease out of the closet and start talking about it.

Picture of Cheryl KoehnAt a recent dinner party, a good friend of mine said something revealing to me: “I don’t think of you as disabled.” My friend’s comment was meant as a compliment but also reflected the still common misperception of arthritis pain as a “condition” associated with getting old and that can’t really be treated. It also reminded me how people with arthritis are often embarrassed about it and live in silence. This in spite of the fact that arthritis affects more than 4.6 million Canadians, is a debilitating disease and the leading cause of work disability in Canada and limits the activities of nearly 20% of Canadians.

I have had rheumatoid arthritis for 27 years and while I have learned to live it, my life is a far cry from what it once was and what I wanted it to be. In my work, I try to build “pride” in everything ACE does. Still for reasons we have no “movement” but not because we’re not proud.  Continue reading