Arthritis Broadcast Network’s “CRA Interview Series 2014″ – Dr. Brian Feldman: Measuring stuff? What’s right? What’s wrong?
Today’s interview features Dr. Brian Feldman, the Division Head of Rheumatology at The Hospital for Sick Children in Ontario. Dr. Feldman won the Distinguished Investigator award for twenty years of contribution to the field of rheumatology. He shares with us information from his workshop titled “Measuring Stuff: What’s Right? What’s Wrong? We Can’t Manage What We Don’t Measure.” He explains about reducing bias when it comes to understanding whether a treatment is working for a patient.
Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). Starting March 14, feature interviews will be posted daily on the ABN YouTube channel at http://bit.ly/ABNYouTube. We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.
Here is your chance to help BC Children’s Hospital raise funds for urgently needed equipment and have a little fun too. All you need to do is watch this fun Christmas music video featuring Bobs and LoLo and then share it with all your friends and encourage them to do the same. Click here to watch video. Every time the video is viewed Raymond James will donate 25 cents up to $25,000 to help sick kids get the care they need. There isn’t any cost and there isn’t any limit to how many times you can share. Just take a moment to enjoy the sounds of the season and encourage your friends and family to do the same. Arthritis Consumer Experts’ Johanna Kendall’s son is one of the kids in the video. For those who know him, see if you can spot him in the video!
Health Canada approves tocilizumab (Actemra®) to treat Canadian children with polyarticular juvenile idiopathic arthritis.
Nearly two years ago tocilizumab (Actemra®) was approved by Health Canada for treating the systemic form of juvenile idiopathic arthritis (JIA). One week ago that approval was expanded to include polyarticular-course JIA. Continue reading
The Arthritis Society indicates that 24,000 Canadian children aged 18 and under live with arthritis. The alarming number means that 3 out of every 1,000 kids live with some form of arthritis. The most common form of arthritis in children is juvenile idiopathic arthritis (JIA). Other common forms of arthritis include lupus, psoriatic arthritis and vasculitis. Continue reading
Juvenile idiopathic arthritis (JIA), formerly known as juvenile rheumatoid arthritis (JRA), is an autoimmune disease that affects children age 16 or younger. It causes joint swelling, stiffness, pain, and loss of motion. Uveitis is an inflammation of the uveal tract in the eye and is often a condition that develops along with JIA.
Juvenile idiopathic arthritis affects 50,000 to 100,000 children in the United States. Ten percent of these children will develop JIA-related uveitis. Despite their illness, children are staying strong and fighting their JIA. Enjoy this inspirational story from Gabrielle’s Vision!
A child’s environment contains certain risk factors that may contribute to the development of juvenile arthritis. According to the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), 294,000 children under the age of 18 in the United States have arthritis or other rheumatic conditions.
Study show that genetic predisposition – genes a child receives from family members, along with other factors, may be a cause of juvenile arthritis. A study of 2,816 cases of juvenile arthritis from over 40 pediatric rheumatology clinics discovered 14 new genes linked to juvenile arthritis. This study was published in Nature Genetics.
Environmental determinants for juvenile arthritis include, but is not limited to, lack of breastfeeding, maternal smoking, childhood infections, and parents’ socio-economic status and siblings. Continue reading