All posts related to "children"

Last day to register! Run/Walk for kids with arthritis

Do it for the kids! Participate with your family and friends in the Scotiabank Charity Challenge 5K or Half Marathon with Team Cassie & Friends! Proceeds support research and programs for kids with juvenile arthritis and other rheumatic diseases and their families. Free kid registrations, activities and prizes. If you are unable to make the run, you can still participate by cheering for the team on along the run/walk route!

Post card for run walk with kids announcementToday is the last day to register online! For more information about the event and to register online, please visit www.canadarunningseries.com and register with the charity code 16VCASSIE.

About Juvenile Arthritis

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Gift-giving for adults and children with arthritis

Boxed gifts or variety sizesGetting the perfect Christmas or New Year’s gift for an adult or child with arthritis requires some thoughtful thinking. Things you may consider before you purchase your gift include:

  • How long have they had the disease for?
  • What is their lifestyle like?
  • Do they live alone or with family and friends?
  • Do they work or go to school?
  • What do they like to do?
  • What type of arthritis do they have?
  • What treatment therapy are they on?

Here are some gift ideas to help lessen the burden of arthritis on everyday life. If you are trying to be a #GreenAngel and want to create memories, not garbage, note the gift ideas with the hashtag symbol beside them.  For those on your list who works with arthritis: Continue reading

“It hurts!” cried the little kid with arthritis

Kid on grass crawling with a puzzled lookThe question is, how badly does it hurt?

A recent study conducted to evaluate pain measures developed by the Patient Reported Outcomes Measurement Information System (PROMIS) under the National Institutes of Health help captured the young patient’s perspective of living with chronic pain. The study addressed the different categories of pain experience and language used by children when they talk about chronic pain. In an interview with the Medical Xpress, researchers identified these as:

  • Pain behaviour – The child initiates he or she becomes irritable or suffers a lack of appetite (or other behaviour) when in pain.
  • Pain interference – The child describes slower movement, such as walking, or lack of energy due to pain interference.
  • Pain quality – The child describes pain as sharp, cutting, dull or achy.

The research study was based on the results of individual and focus group interviews with 32 children and with parents of children with chronic pain, such as those affected by juvenile arthritis, sickle cell anemia, and cerebral palsy. Continue reading

Digital Health Technologies: Improving outcomes in paediatric chronic pain

Child and adult Hand HoldingThe Canadian Institute for the Relief of Pain and Disability (CIRPD) regularly hosts free webinars. The next one, conducted in partnership with Pain BC and the Canadian Pain Coalition, will be on Wednesday, December 9 at 9:30 am PST (12:30 pm EST). The Digital Health Technologies: Improving Outcomes in Paediatric Chronic Pain webinar will look at how the use of digital health technologies has facilitated access to appropriate and timely care.  Continue reading

Juvenile arthritis affects the future of the human race

Close up of kids, a boy and girlIn the United States alone, more than 300,000 kids, teens, and young adults live with some form of juvenile arthritis (JA). A recent study conducted by the British Society for Paediatric and Adolescent Rheumatology in the United Kingdom found that the mortality rate is high in patients with systemic juvenile idiopathic arthritis. Researchers noted that the death rates are the highest among girls, up to 50 times greater than those from the non-JA population.

Juvenile idiopathic arthritis (JIA) is chronic inflammatory arthritis developing in children under the age of 16 years. Previously called juvenile rheumatoid arthritis (JRA), juvenile idiopathic arthritis strikes up to one in 1000 children and is one of the most common chronic diseases among children. Continue reading

CRA Interview Series 2015 – Ms. Jo-Anne Marcuz: Update on Juvenile Spondyloarthritis

Arthritis Broadcast Network’s “CRA Interview Series 2015″ – Ms. Jo-Anne Marcuz: Part II – Update on Juvenile Spondyloarthritis 

Today’s feature interview – Ms. Jo-Anne Marcuz

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Jo-Anne Marcuz (From SickKids)

Picture of Jo-Anne

Picture from SickKids

Jo-Anne Marcuz is a graduate of the University of Toronto and has been working as a Physical Therapist in the Department of Rehabilitation Services at SickKids since 2003. She has had the privilege of working within the Division of Rheumatology since 2005. Jo-Anne’s clinical expertise is in the area of pediatric rheumatic disease and associated musculoskeletal disorders. She also has experience helping to manage chronic pain and cardiorespiratory conditions like CF.

Jo-Anne holds a status-only appointment of Lecturer at the University of Toronto, Department of Physical Therapy and has enjoyed classroom and clinical teaching for several years. Additionally, she is a member of the Arthritis Health Professions Association the allied health professionals division of the Canadian Rheumatology Association. Continue reading