I’ve had rheumatoid arthritis for over a quarter century now, and I’m sick of it.
Canadians living with one of over 100 types of arthritis are told to understand that what they have is “just arthritis.” They are frustrated by the self-management routine they are supposed to be “in charge of” because they don’t have access to the very things they are supposed to self-manage with. They’re discouraged to read about other important diseases in the media spotlight, but not their own. They’re saddened that yet another Arthritis Month in Canada has begun without a cure for any type of arthritis. That’s how I feel, too. What about you?
Our community continues to face significant barriers to elevating arthritis with the public, governments and workplaces across the country where the havoc wreaked by the diseases is still underestimated and poorly understood.
Well, I’ve had enough. We can’t passively accept arthritis. It maims and kills, but people seem afraid to say that. I’m going to start saying it in my life and in my work.
I am rheumatoid arthritis. Who are you?
We need to break through the sound barrier. Please take a moment and tell me, tell your arthritis sisters and brothers, who you are. I want to know. Make millions know. Continue reading →
A survey for patients living with chronic disease.
The Physical Activity Support Kit Initiative (PASKI) is a B.C. province-wide project to develop an online “one-stop shop” of information and resources to help persons living with chronic disease to ‘move more and sit less’.
Ninety-seven patients, researchers and health care providers are working to develop this online toolkit. To help us better understand what patients would most like to see included in the toolkit, we have developed a short (10 minutes) survey.
If you are living with a chronic disease, we would appreciate your input. The survey is open until September 18, 2015, inclusively.
Hannah Coulthurst, a volunteer with Arthritis Care UK, was diagnosed with chronic idiopathic arthritis in 2003 at the young age of eight. Since her diagnosis, she has been a full time wheelchair user. Despite her diagnose, she never gave up on her passion for sports. In search for a sport that she can participate in, she discovered table tennis and started training in 2007. She trains regularly with the Great Britain squad in Sheffield and represented Great Britain at the Commonwealth Games in Delhi in 2010.
Hannah is pursuing her dream of participating in the Brazil Paralympics Games in 2016. To thank Hannah for her inspiration and in celebration of the table tennis events happening at the Toronto PanAm Games, today’s #ABNPhotoADay features table tennis.
Hannah is currently a psychology student at the University of Hull. In 2013, she was profiled by Arthritis Care UK. Below is Hannah’s story from the interview:
My name is Hannah. I was diagnosed with Chronic Idiopathic Arthritis at the age of eight after spending seven weeks in hospital. Recently I have also been diagnosed with Reflex Sympathetic Dystrophy as well. I am now 18 years old and have been using a wheelchair for the past 10 years. Continue reading →
Medical cannabis refers to the use of plant material (either whole or in extract form) that contains various cannabinoid molecules such as tetrahydrocannabinol (THC) and cannabidiol (CBD). THC has psychoactive (mind altering), and pain relieving properties. CBD may also reduce pain and inflammation while having no known psychoactive side-effects.
The hemp plant Cannabis saliva (cannabis), known as marijuana, can be used as a therapy to alleviate symptoms such as pain and fatigue caused by chronic disease. Cannabis has a history of medicinal use dating back thousands of years across many cultures.
The Arthritis Society recently released a position paper on medical cannabis. Here is what they have to say about medical cannabis and arthritis:
Today, the “Spotlight on Arthritis Superheroes” is directed on Helena Madsen of Chronic Marriage.
Chronic Marriage is a blog run by Helena Madsen, a wife, mother, writer, and counselor who lives with Muscular Dystrophy, symptoms of which are similar to those experienced in arthritis and include poor balance with frequent falls, difficulty walking, and a limited range of movement. Helena is all about living with chronic illness AND an extraordinary marriage.
The Arthritis Broadcast Network would like to share with you below Chronic Marriage’s blog post titled “In Sickness As in Health”, where Helena shares her response to a book on navigating marriage (and life) with chronic pain.
In Sickness As In Health is full of hope as well as lessons learned; a breath of fresh air for those of us desiring new and sound strategies for navigating marriage (and life) with chronic illness.
Co-author Barbara Kivowitz has herself lived with chronic pain since 1999 so she writes from experience and with authority. She is also a psychotherapist, organizational consultant and advisor to several health systems. In other words, she knows her stuff.
The book is broken down into three parts and 12 chapters: