Arthritis affects 1 in 5 British Columbia residents, so healthcare to treat the more than 100 different types of the disease is extremely important to the more than 600,000 British Columbians living with the disease. Any party that wishes to become government needs to consider these constituents. To help the parties understand this, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the BC Liberal Party and the New Democratic Party.
Leading in with background information about the high number of people who undergo joint replacement surgeries due to arthritis, the questionnaire asked the following: Continue reading
Participate in an anonymous global survey about rheumatoid arthritis (RA) to have your voice heard.
An international research company is doing a short survey to gather information from people living with RA around the world. The survey results will help to increase global awareness about the impact of the disease and to empower those living with RA to better manage the disease.
The goals of the survey are to learn how people living with RA are:
- Affected physically, emotionally, socially, and at work
- Getting their information about the disease and how much they trust that information
- Managing and understanding their disease
- Establishing relationships with and getting support from those around them, such as doctors, nurses, friends, family, and employers
All participants answers will be combined and the overall results will be shared with the larger RA community, including patients from all over the world, healthcare providers, and patient advocacy groups.
All responses are anonymous.
To help create a better understanding of RA, it’s time to let your voice be heard—take the survey here. The survey will be open until April 11, 2013.
What is “RA: Join the Fight”?
RA: Join the Fight is a global campaign developed by AbbVie Inc. to raise awareness about how rheumatoid arthritis affects those who live with it. Rheumatoid arthritis is an under-recognized autoimmune disease that occurs in roughly 0.5 to 1.0 % of the population. To better understand and relay the physical and emotional impact of the disease and needs of people living with RA, an anonymous global survey is being conducted in 42 countries around the world. Information from the survey will be used by AbbVie to design better tools to educate patients, family members, and caregivers about RA. To learn more about the background, please see: www.RAJointheFight.com.
Disclaimer: Sharing this announcement from AbbVie Inc. is in no way an endorsement of the company. ACE does not promote any “brand”, product or program on any of its materials or its website, or during any of its educational programs or activities.
Juvenile dermatomyositis (JDMS) is an inflammatory autoimmune disease affecting approximately three in one million children.
Autoimmune diseases generally occur when the body’s immune system begins to malfunction and attack healthy tissue in various parts of the body, causing inflammation and damage. In dermatomyositis, muscle and skin are attacked by inflammation, but the joints, lungs, heart, and intestinal tract can also be affected.
Fibromyalgia causes symptoms such as pain and tenderness, fatigue, and sleep and memory problems. It is a condition characterized primarily by chronic widespread pain (CWP) in the muscles, ligaments and tendons, and a heightened sensitivity to touch resulting in pain that can last for months.
A recent study done by the Mayo Clinic looked at how often people, especially men, were not diagnosed with fibromyalgia when they should have been. The results showed that an estimated 6.4 percent of people aged 21 and older had fibromyalgia but only 1.1 percent of them had been diagnosed. The study found that 20 times more men had symptoms of the condition than had been diagnosed. While for women it was three times. Therefore, fibromyalgia rates may be higher overall than thought, especially among men.
Read more: Linda Rath, Arthritis Today, January 2012
A fourth joint exam video is now available to be viewed from the JointHealth™ website.
The video is part of a series of five originally created for the ArthritisID PRO app for iPhone. Now you can watch them from your personal computer. Continue reading
The third in ACE’s series of five joint exam videos is now available to be viewed from the JointHealth™ website. Originally created for the ArthritisID PRO app for iPhone, now you can watch them from your personal computer. Continue reading