All posts related to "disease management"

Cold hands are one of several warning signs of Raynaud’s Phenomenon

Close up of girl wearing mittens - way to prevent Raynaud'sRaynaud’s phenomenon is a condition in which there is an exaggerated blood vessel tightening in response to cold or emotional stress, restricting blood flow to certain areas of the body – most often the fingers, but sometimes the toes, ears, or the end of the nose.

The exaggerated vascular response (tightening) in Raynaud’s phenomenon is called vasospasm, which often occur in response to cold or emotional stress. With vasospasm, the fingers turn white and cold then blue with dilated veins followed by relaxation of the vessel and normal blood flow causing a red ‘flushing’

According to a recent article published in The New England Journal of Medicine, Raynaud’s affects approximately 3 to 5 percent of the population – women are more often affected than men. Raynaud’s phenomenon occurs in two forms – primary and secondary. Primary is the most common and has no underlying cause. Secondary is when Raynaud’s phenomenon occurs in combination with another autoimmune disease like scleroderma, rheumatoid arthritis, Sjogren’s syndrome or systemic lupus erythematous. The article also states that people who work with certain chemicals, like vinyl chloride, or vibrating tools like a jackhammer are also susceptible to secondary Raynaud’s. Continue reading

Social networking and disease management in arthritis

Effects of Social Networking on Chronic Disease Management in Arthritis

Do you have rheumatoid arthritis? Sign up for the Social Networking for Arthritis Patients (SNAP) study now.

SNAP BannerThe Social Networking for Arthritis Patients (SNAP) study is funded by The Rheumatology Research Foundation, a non-profit organization dedicated to research to improve the health of people with arthritis. Throughout the study, you will be having social interactions with patient representatives from The Arthritis Foundation, The International Foundation for Autoimmune Arthritis and The Arthritis Society. You may qualify for the study if you:

  • Are 18 years or older
  • Have been diagnosed by a doctor as having rheumatoid arthritis for 10 years or less
  • Have an email address
  • Able to communicate in English
  • Are comfortable with using the internet
  • Are familiar with social media
  • Live in the United States of America or Canada

Your participation would be online only and you will receive compensation for your time and effort. Your expected time commitment is 6 months. The participant will be asked to access webpages and complete online questionnaires at three time points.Do you have rheumatoid arthritis? Sign up for the Social Networking for Arthritis Patients (SNAP) study now.

This study is being conducted by investigators at the University of Texas MD Anderson Cancer Center. To find out if you are eligible to participate, contact Jessica, research coordinator, at 1(713)563-8817 or email snaparthritis@gmail.com.