All posts related to "health"

Are you interested in health research? Let’s talk!

Lets talk health research bannerThe BC Health Research Connection Project invites you to a community dialogue on health research. Registration is free.

You’re invited to a community dialogue on health research to discuss the development of a new provincial program that will help connect people like you to research opportunities. Below are the details for the event:

Date: Tuesday, June 27, 2017
Time: 5:45pm-8:00pm
Location:
Marpole-Oakridge Community Centre (Auditorium)
990 West 59th Avenue,
Vancouver
Registration: Free, click here. Please register by June 23.
*Refreshments will be served.

Whether you are healthy, sick, young or old, you can help by volunteering to participate in research in a variety of ways.

Come and share your ideas and tell us:

  • Why is health research important to you?
  • How can we keep you informed of research opportunities?

For additional information, contact:
Stefanie Cheah, Project Manager at Stefanie.cheah@vch.ca or 604-875-4111 (Ext. 22781)

The event is hosted by the BC Health Research Connection Project, which is led by Vancouver Coastal Health Research Institute in collaboration with health authorities, research institutes and universities across BC. Cheryl Koehn, Founder and President of Arthritis Consumer Experts, is a member of the research team.

Attention ACE members with psoriatic arthritis and psoriasis

An image of PureCare Herbal CreamHealth Canada has issued a warning about ingredients in PureCare Herbal Cream 

PureCare Herbal Cream, advertised as a natural treatment for eczema and psoriasis in children and babies, may pose serious health risks.

Health Canada testing confirmed the presence of a prescription steroid (clobetasol propionate) and another ingredient (phenoxylethanol) not declared on the product label. These ingredients may cause health effects ranging from skin irritation and dehydration to increased blood pressure. Continue reading

Indigenous children expresses pain through art

The Aboriginal Children’s Hurt and Healing Initiative wanted to answer one simple question: What does pain look like? Not what it feels like, but what pain would look it if you had to express it on paper, or in this case, canvas.

In an interview with CBC News, John Sylliboy, community research co-ordinator with the Aboriginal Children’s Hurt and Healing Initiative, said: “Aboriginal children feel and experience pain just like anyone else. It’s just that they express their pain very differently. They don’t necessarily verbalize their pain, or they don’t express it outwardly through crying or through pain grimaces. A lot of kids, they just suck it up. That’s what they say all the time. ‘We just suck it up.'”

The research study spawned in 2008 when Margot Latimer, a clinical scientist at the Centre for Pediatric Pain Research at the IWK Health Centre in Halifax, observed there was no First Nations youth being referred to their pain clinic at the IWK hospital.

One of the paintings from the children

“My painting is about pain and the black represents how she feels inside. But she has like this white kind of atmosphere and it separates it from her pain.” – Artist, 16-year-old
Source: http://www.cbc.ca/news/health/aboriginal-youth-art-pain-hurt-healing-1.3852646?cmp=rss

Continue reading

SPINACH-project: SupPortIng seNiors And Caregivers to stay mobile at Home

SPINACH-project: SupPortIng seNiors And Caregivers to stay mobile at Home

Participants sought for short evaluation of online module with options how to stay independent at home when aging

A picture of two seniors

 

Decisions about how to stay independent at home are difficult ones for seniors, and we often hear that they do not know what their options are to do so.

We have created an online module (webpage) for seniors and caregivers who are facing decisions (with their health professionals) about how to stay independent at home. We are currently looking for seniors and caregivers that are willing to have a look at our module (as long as you like), and fill out a one-time questionnaire with your evaluation of it (10-15 minutes). With your help we can improve the module to meet your needs.  Continue reading

ACE launches JointHealth™ Education

North America’s first on-line classroom designed to educate, empower and graduate today’s modern arthritis patient

Arthritis Consumer Experts (ACE) today announced the launch of its newest on-line patient education program: JointHealth™ Education. Designed to enable arthritis patients to progress from being a “student” of arthritis to full-fledged “graduate,” JointHealth™ Education empowers and equips them to be equal partners on their health care team. As part of the launch, ACE is introducing the first course in the program – JointHealth™ Education: Rheumatoid Arthritis (RA) – to help patients and their healthcare providers better understand each other’s motivations and goals for the patient’s overall treatment and care plan.

JointHealth™ Education was inspired by many of ACE’s members living with an inflammatory arthritis who have told us they lack the communications expertise to have full, satisfying conversations with their rheumatologists on topics such as treatment options during their clinical visits. The program is informed by our organization’s participation on a global advisory panel that conducted a survey in 16 countries of rheumatoid arthritis patients and their health care providers. The results illuminate the discord between the needs, concerns and fears of patients compared to the views of their health care providers,” said Cheryl Koehn, Founder and President of Arthritis Consumer Experts and a member of the RA Narrative Global Advisory Panel.

Key findings of the RA Narrative Global Patient Survey included: Continue reading

Best Arthritis Workplaces: It’s Arthritis Awareness Month – the search is on!

Best Arthritis Workplaces BannerACE is searching for Canada’s Best Workplaces for Employees Living with Arthritis

To help kick off Arthritis Awareness Month in Canada, Arthritis Consumer Experts ACE) today announced the launch of the third annual Canada’s Best Workplaces for Employees Living with Arthritis. The judging criteria this year will particularly value those organizations providing an environment that meets the needs of employees living with arthritis to manage their disease and work with symptoms such as pain, fatigue, joint dysfunction or immobility.

“Smart employers know committed, productive teams require an environment where employees know they can balance work, family and personal responsibilities. In this third year of our award, we are looking closely at the availability of flexible work benefits and policies, as well as employees’ comments on their effectiveness,” said Cheryl Koehn, President and Founder, Arthritis Consumer Experts. “We want to recognize companies providing innovative flexible work arrangements to help employees with arthritis, and other chronic diseases, take better care of themselves, and in turn report less pain, fatigue, and disruption at work, allowing them to remain employed for longer.” Continue reading