The Aboriginal Children’s Hurt and Healing Initiative wanted to answer one simple question: What does pain look like? Not what it feels like, but what pain would look it if you had to express it on paper, or in this case, canvas.
In an interview with CBC News, John Sylliboy, community research co-ordinator with the Aboriginal Children’s Hurt and Healing Initiative, said: “Aboriginal children feel and experience pain just like anyone else. It’s just that they express their pain very differently. They don’t necessarily verbalize their pain, or they don’t express it outwardly through crying or through pain grimaces. A lot of kids, they just suck it up. That’s what they say all the time. ‘We just suck it up.'”
The research study spawned in 2008 when Margot Latimer, a clinical scientist at the Centre for Pediatric Pain Research at the IWK Health Centre in Halifax, observed there was no First Nations youth being referred to their pain clinic at the IWK hospital.
“My painting is about pain and the black represents how she feels inside. But she has like this white kind of atmosphere and it separates it from her pain.” – Artist, 16-year-old Source: http://www.cbc.ca/news/health/aboriginal-youth-art-pain-hurt-healing-1.3852646?cmp=rss
SPINACH-project: SupPortIng seNiors And Caregivers to stay mobile at Home
Participants sought for short evaluation of online module with options how to stay independent at home when aging
Decisions about how to stay independent at home are difficult ones for seniors, and we often hear that they do not know what their options are to do so.
We have created an online module (webpage) for seniors and caregivers who are facing decisions (with their health professionals) about how to stay independent at home. We are currently looking for seniors and caregivers that are willing to have a look at our module (as long as you like), and fill out a one-time questionnaire with your evaluation of it (10-15 minutes). With your help we can improve the module to meet your needs. Continue reading →
North America’s first on-line classroom designed to educate, empower and graduate today’s modern arthritis patient
Arthritis Consumer Experts (ACE) today announced the launch of its newest on-line patient education program: JointHealth™ Education. Designed to enable arthritis patients to progress from being a “student” of arthritis to full-fledged “graduate,” JointHealth™ Education empowers and equips them to be equal partners on their health care team. As part of the launch, ACE is introducing the first course in the program – JointHealth™ Education: Rheumatoid Arthritis (RA) – to help patients and their healthcare providers better understand each other’s motivations and goals for the patient’s overall treatment and care plan.
“JointHealth™ Education was inspired by many of ACE’s members living with an inflammatory arthritis who have told us they lack the communications expertise to have full, satisfying conversations with their rheumatologists on topics such as treatment options during their clinical visits. The program is informed by our organization’s participation on a global advisory panel that conducted a survey in 16 countries of rheumatoid arthritis patients and their health care providers. The results illuminate the discord between the needs, concerns and fears of patients compared to the views of their health care providers,” said Cheryl Koehn, Founder and President of Arthritis Consumer Experts and a member of the RA Narrative Global Advisory Panel.
ACE is searching for Canada’s Best Workplaces for Employees Living with Arthritis
To help kick off Arthritis Awareness Month in Canada, Arthritis Consumer Experts ACE) today announced the launch of the third annual Canada’s Best Workplaces for Employees Living with Arthritis. The judging criteria this year will particularly value those organizations providing an environment that meets the needs of employees living with arthritis to manage their disease and work with symptoms such as pain, fatigue, joint dysfunction or immobility.
“Smart employers know committed, productive teams require an environment where employees know they can balance work, family and personal responsibilities. In this third year of our award, we are looking closely at the availability of flexible work benefits and policies, as well as employees’ comments on their effectiveness,” said Cheryl Koehn, President and Founder, Arthritis Consumer Experts. “We want to recognize companies providing innovative flexible work arrangements to help employees with arthritis, and other chronic diseases, take better care of themselves, and in turn report less pain, fatigue, and disruption at work, allowing them to remain employed for longer.” Continue reading →
WHO: Research Ambassadors are members of the public who live with, or advocate for others living with a condition that falls under CIHR – IMHA’s research mandate (conditions related to bones, joints, muscles, connective tissue, skin and teeth). Research Ambassadors bridge the gap between researchers and patients, addressing the different stages of the research process known as: Basic Biomedical Science, Clinical Science and Knowledge, and Clinical Practice and Health Decision Making.
Researchers, patients and government come together
The conversation on new reform from the Canadian Institutes of Health Research that impacts federal research funding continues.
We commend Minister Philpott for her request for the Canadian Institutes of Health Research (CIHR) to convene a working meeting with key representatives of the research community to find common ground and move forward with solutions that address the issues around the quality and integrity of CIHR’s peer review system.
Minister Philpott’s actions are in response to views expressed within the health research community, and from patient organizations like Arthritis Consumer Experts (ACE).
All stakeholders in healthcare – governments, researchers, clinicians and patients – have an obligation to consider the impact of changes to the CIHR and Canada’s world-class standing in the scientific community and the benefits of health research for all Canadians.
Below is the message from Minister Philpott to Canada’s health research community: Continue reading →