WHO: Research Ambassadors are members of the public who live with, or advocate for others living with a condition that falls under CIHR – IMHA’s research mandate (conditions related to bones, joints, muscles, connective tissue, skin and teeth). Research Ambassadors bridge the gap between researchers and patients, addressing the different stages of the research process known as: Basic Biomedical Science, Clinical Science and Knowledge, and Clinical Practice and Health Decision Making.
Researchers, patients and government come together
The conversation on new reform from the Canadian Institutes of Health Research that impacts federal research funding continues.
We commend Minister Philpott for her request for the Canadian Institutes of Health Research (CIHR) to convene a working meeting with key representatives of the research community to find common ground and move forward with solutions that address the issues around the quality and integrity of CIHR’s peer review system.
Minister Philpott’s actions are in response to views expressed within the health research community, and from patient organizations like Arthritis Consumer Experts (ACE).
All stakeholders in healthcare – governments, researchers, clinicians and patients – have an obligation to consider the impact of changes to the CIHR and Canada’s world-class standing in the scientific community and the benefits of health research for all Canadians.
Below is the message from Minister Philpott to Canada’s health research community: Continue reading →
A free workshop by Aging, Mobility, and Cognitive Neuroscience Lab
Explore the role of exercise on physical and brain health with professional experts Drs. Steven Blair, Kirk Erickson, and Brian Saelens. The doctors will be sharing their research on the physical and cognitive health benefits of physical activity in today’s society.
Space is limited so please register by April 29, 2016!
Date: Friday, May 6, 2016 Time:3pm-5pm Location: University Centre (UBC), 6331 Crescent Road, Sage East (Main Level)
*Registration opens at 2:30pm. Light refreshments will be provided.
A research team from the University of Calgary and Statistics Canada found that people living with osteoarthritis (OA) have almost twice the risk of losing work time due to illness or disability as those without OA. Furthermore, the researchers found that people with OA are three times as likely to become unemployed.
Combining the National Population Health Survey, the researchers selected 659 people with OA, matched them with 2,144 non-OA individuals on the basis of age and sex, and compared their reported work time loss from 2000 to 2010. Work time loss was 90% higher and unemployment tripled due to illness or disability among the OA patients after adjusting for sociodemographic, health and work-related status.
Osteoarthritis is by far the most common type of arthritis. It is estimated to affect more than 3,200,000 Canadians-about 1 in 10. The disease is the leading cause of chronic pain and loss of mobility in Canada and is associated strongly with diminished productivity and increased utilization of healthcare resources. Disease onset usually occurs during the working years. Continue reading →
…oppose changes to planned expansion to BC government’s Reference Drug Plan. Better Pharmacare Coalition eager to work with government to get it right for patients
A recent Better Pharmacare Coalition (BPC) poll has found that British Columbians oppose expansion of the Ministry of Health’s Reference Drug Program based on concerns that expansion could compromise patient health.
The BC government has approved amendments to the Drug Price Regulation that will expand the Ministry of Health’s Reference Drug Program (RDP). In anticipation of this expansion, the BPC conducted an online poll, which found a resounding 82% of British Columbians are concerned that administrators of the BC PharmaCare program will be implementing a policy that tells physicians which medications they can prescribe for patients, even if it goes against physicians’ opinions of the best care for their patients. Continue reading →
On January 18, Eagles guitarist Glenn Frey died in New York at the age of 67 due to a combination of problems associated with rheumatoid arthritis (RA), acute ulcerative colitis, and pneumonia. Frey’s manager, Irving Azoff, said that Frey secretly battled rheumatoid arthritis for more than 15 years before he died.
In the outpouring of mourning for Glenn Frey on Twitter, Cheryl Koehn, Founder and President of Arthritis Consumer Experts and a rheumatoid arthritis patient of 25 years, tweeted, “I’m tired of hearing “no one dies of arthritis”. Time for main stream media to recognize our losses. RIP Glenn.”
The band is famous for tracks such as Take It Easy and Hotel California. Despite his secret battle with RA, Frey participated in the Arthritis Foundation’s 2013 Walk to Cure Arthritis Fundraiser. Below is a picture from the Arthritis Foundation’s website of Frey and rheumatologist Dr. Rinaldi from the 2013 event.
“Rheumatoid arthritis has taken the life of an incredibly talented musician, whose amazing music will always be part of our lives.” – The Arthritis FoundationContinue reading →