…oppose changes to planned expansion to BC government’s Reference Drug Plan. Better Pharmacare Coalition eager to work with government to get it right for patients
A recent Better Pharmacare Coalition (BPC) poll has found that British Columbians oppose expansion of the Ministry of Health’s Reference Drug Program based on concerns that expansion could compromise patient health.
The BC government has approved amendments to the Drug Price Regulation that will expand the Ministry of Health’s Reference Drug Program (RDP). In anticipation of this expansion, the BPC conducted an online poll, which found a resounding 82% of British Columbians are concerned that administrators of the BC PharmaCare program will be implementing a policy that tells physicians which medications they can prescribe for patients, even if it goes against physicians’ opinions of the best care for their patients. Continue reading →
On January 18, Eagles guitarist Glenn Frey died in New York at the age of 67 due to a combination of problems associated with rheumatoid arthritis (RA), acute ulcerative colitis, and pneumonia. Frey’s manager, Irving Azoff, said that Frey secretly battled rheumatoid arthritis for more than 15 years before he died.
In the outpouring of mourning for Glenn Frey on Twitter, Cheryl Koehn, Founder and President of Arthritis Consumer Experts and a rheumatoid arthritis patient of 25 years, tweeted, “I’m tired of hearing “no one dies of arthritis”. Time for main stream media to recognize our losses. RIP Glenn.”
The band is famous for tracks such as Take It Easy and Hotel California. Despite his secret battle with RA, Frey participated in the Arthritis Foundation’s 2013 Walk to Cure Arthritis Fundraiser. Below is a picture from the Arthritis Foundation’s website of Frey and rheumatologist Dr. Rinaldi from the 2013 event.
“Rheumatoid arthritis has taken the life of an incredibly talented musician, whose amazing music will always be part of our lives.” – The Arthritis FoundationContinue reading →
Getting the perfect Christmas or New Year’s gift for an adult or child with arthritis requires some thoughtful thinking. Things you may consider before you purchase your gift include:
How long have they had the disease for?
What is their lifestyle like?
Do they live alone or with family and friends?
Do they work or go to school?
What do they like to do?
What type of arthritis do they have?
What treatment therapy are they on?
Here are some gift ideas to help lessen the burden of arthritis on everyday life. If you are trying to be a #GreenAngel and want to create memories, not garbage, note the gift ideas with the hashtag symbol beside them. For those on your list who works with arthritis: Continue reading →
AS Health Storylines is a self-care app for ankylosing spondylitis (AS) and associated spondyloarthritis diseases. It is developed in partnership with the Canadian Spondylitis Association, and is powered by the Health Storylines™ platform from Self Care Catalysts Inc. The Canadian Spondylitis Association is a national association to advocate for and support those living with ankylosing spondylitis, psoriatic arthritis, and associated spondyloarthritis diseases.
This app is created with input from people with AS so that the right health tools are available to you. The app allows you to record your symptoms, fatigue levels, moods, and more. Choose what you want to track to build your own summary – “My Storylines” – to learn more about your health, and to share – safely and securely – with your doctor about what happened between visits.
The following health tools in the app will help you better manage and monitor your AS or associated spondyloarthritis disease: Continue reading →
Investing in employee health and wellness: 2015 Canada’s Best Workplaces for Employees Living with Arthritis
In this issue of JointHealth™ monthly, Arthritis Consumer Experts (ACE) announces the winners of the 2015 Canada’s Best Workplaces for Employees Living with Arthritis award. Using an extensive evaluation process, ACE has awarded Simon Fraser University, L’Oréal Canada and High Liner Foodsfor their best arthritis practices in the workplace and their commitment to investing in employees’ health and well-being.
ACE also looks at recent policy changes in the private health insurance that potentially could affect employees living and working with arthritis. In this issue, you will find:
The winners for the 2015 Canada’s Best Workplaces for Employees Living with Arthritis award
What you need to know about arthritis in the workplace
The Canadian Institute for the Relief of Pain and Disability (CIRPD) regularly hosts free webinars. The next one, conducted in partnership with Pain BC and the Canadian Pain Coalition, will be on Wednesday, December 9 at 9:30 am PST (12:30 pm EST). The Digital Health Technologies: Improving Outcomes in Paediatric Chronic Pain webinar will look at how the use of digital health technologies has facilitated access to appropriate and timely care. Continue reading →
Simon Fraser University, L’Oréal Canada and High Liner Foods lead the way for best arthritis workplace practices in Canada
Canadian employers, working with their private health insurers, are increasingly looking for ways to promote patient-focused prevention, treatment and management of chronic disease as part of a health and wellness program for employees. To recognize the best arthritis practices and most innovative initiatives to raise arthritis awareness, Arthritis Consumer Experts (ACE) announced the winners of its second annual search for Canada’s Best Workplaces for Employees Living with Arthritis.
Based on workplace insights shared by employees and company managers, ACE is awarding these Canadian companies for their best arthritis practices in the workplace and commitment to investing in employee health and well-being:
Oliver Sachgau, a young university graduate living with juvenile arthritis, shared his medication treatment journey with the Globe and Mail this week. He was diagnosed with juvenile arthritis at the young age of 14. Throughout his high school and university years, he kept his arthritis symptom-free by taking the biologics Enbrel, which costs $1,800 a month and was thankfully covered under his family’s insurance plan. When he graduated from university, he was no longer covered under his family’s health plan.
In the article, he said: “I’m not a unique case. Enbrel is part of a class of medication called biologics. For those who take them, biologics can perform miracles. But their high cost, which is rarely mitigated by medical coverage, has created a unique situation for thousands of Canadians who want, but can’t have, their life-changing medication.” The medication cost Canada’s public health plans more than half a billion dollars in 2013, for about 30,000 beneficiaries. Continue reading →
Que ce soit un contenu infographique, une vidéo ou une brochure en ligne, le comité ACE est toujours à la recherche de nouvelles façons conviviales de partager l’info avec ses membres, abonnés et visiteurs en ligne pour leur permettre de se tenir au courant des sujets les plus populaires et des enjeux liés à l’arthrite et aux soins de santé. En lançant notre nouveau programme, les contenus partageables JointHealth™, nous vous offrons tout cela en un seul endroit pratique. Chaque contenu partageable JointHealth™ traitera d’un thème présentant un intérêt particulier identifié par vous, nos lecteurs et visiteurs en ligne.
Les deux premiers contenus partageables JointHealth™ traitent :
JointHealth™ shareables – Check it out, and feel free to share!
Whether it is with an infographic, video, or on-line booklet, ACE looks for new, user-friendly ways to share information to help its members, subscribers and visitors stay current with popular arthritis and related healthcare topics and issues. With today’s launch of JointHealth™ shareables, we are giving you all three in one convenient spot. Each JointHealth™ shareable will cover a specific topic of interest identified by you, our reader and on-line visitor.