All posts related to "JointHealth™ monthly"

JointHealth™ insight – numéro de mai 2016

Mise à jour de la recherche sur l’arthrite – le rapport ACE

Man addressing his audienceLe comité ACE (Arthritis Consumer Experts) est heureux de dévoiler une nouvelle présentation et un nouveau nom pour son bulletin JointHealth qui devient le JointHealth™ insight.

Depuis 17 ans, notre mission a été d’offrir aux personnes atteintes d’arthrite de l’information et des programmes éducatifs précieux, impartiaux, fondés sur des preuves et axés sur le consommateur, et ce, dans les deux langues officielles. Rien de tout cela n’a changé, mais ce qui a changé, c’est plutôt l’aspect et la présentation de notre bulletin qui a profité d’une nouvelle conception et d’un nouveau nom. Cette nouvelle présentation reflète ce que bon nombre de nos lecteurs nous avaient suggéré dans plusieurs de nos sondages. Plusieurs d’entre vous ont fait des commentaires sur l’évolution et les changements rapides dans l’accès au remboursement et aux options de traitements. Les lecteurs atteints d’arthrite inflammatoire et d’arthrose ont également indiqué que certains de leurs besoins en information n’étaient pas entièrement comblés, particulièrement en ce qui a trait à leur collaboration avec leur rhumatologue, la gestion de leur maladie et l’importance d’apprendre de l’expérience personnelle d’autres patients consommateurs.

JointHealth™ insight continuera de viser une meilleure compréhension et d’humaniser l’expérience arthritique en puisant parmi les expériences de vie de patients-consommateurs pour le bénéfice de toutes les personnes arthritiques, leurs proches, leurs amis, les membres de leur équipe de soins et le grand public. Nous avons également créé une version épurée et plus vivante de notre bulletin et croyons qu’il sera ainsi plus invitant et plus facile à lire, autant pour la version papier que la version en ligne, que ce soit sur votre tablette ou votre téléphone intelligent.

Dans ce premier numéro a, vous trouverez un aperçu des avancées de la recherche sur l’arthrite telles que discutées dans le cadre du plus récent Colloque scientifique annuel de l’American College of Rheumatology et de l’Association des professionnels de la santé pour l’arthrite, y compris les renseignements les plus récents sur :

  • Les nouvelles lignes directrices cliniques pour le traitement de la polyarthrite rhumatoïde;
  • La définition du consommateur du concept « Objectif du traitement »;
  • L’importance de la méthotrexate dans le traitement de la polyarthrite rhumatoïde;
  • Les nouvelles données sur les produits biologiques ultérieurs; et
  • Les nouveaux médicaments et développements de la recherche sur le lupus et la grossesse

Nous espérons que vous apprécierez ce numéro et que l’on pourra vous compter encore parmi nos fidèles abonnés du JointHealth™ insight.

JointHealth™ insight – Arthritis Research Update: The ACE Report

Picture of man addressing a crowdArthritis Consumer Experts is excited to unveil a new look and proud to announce a new name for our JointHealth™ newsletter: JointHealth™ insight.

For 17 years, our mission has been to bring valuable, unbiased, evidence-based and consumer-focused information and education programs in both official languages to people living with arthritis. This hasn’t changed. What is changing is the look and feel of our newsletter through a redesign and name change. Our new look reflects what our readers have told us in multiple surveys. Many of you have commented on how treatment options and reimbursement access are evolving and changing quickly. Readers living with inflammatory arthritis and osteoarthritis have also told us about unmet information needs, particularly regarding working with their rheumatologist, disease management and the importance of learning from other consumers’ personal experiences. Continue reading

JointHealth™ monthly – December 2015: The Report Card

The JointHealth™ Arthritis Medications Report Card

How does your province compare?
Picture of Report Card

 

During the last year, Arthritis Consumer Experts continuously monitored scientific and medication treatment advances that have the potential to affect the lives of those living with arthritis. The JointHealth™ Arthritis Medications Report Card summarizes and ranks these medication treatment advances and helps Canadians and their rheumatologists identify how their province measures up to other provinces in terms of providing reimbursement access to medications approved for autoimmune forms of arthritis.

The understanding of combination medication therapy allows people with arthritis to live healthier, more productive lives. To help prepare the arthritis consumer with the information they need to talk to their healthcare provider, this issue of JointHealth™monthly will also look at:

  • New arthritis medications on the horizon
  • The coast-to-coast discussion about a national pharmacare program
  • Take action now to improve your province’s drug formulary ranking

What can patients like you do? Continue reading

JointHealth™ monthly – October/ November 2015

JHM Title Page ImageInvesting in employee health and wellness: 2015 Canada’s Best Workplaces for Employees Living with Arthritis

In this issue of JointHealth™ monthly, Arthritis Consumer Experts (ACE) announces the winners of the 2015 Canada’s Best Workplaces for Employees Living with Arthritis award. Using an extensive evaluation process, ACE has awarded Simon Fraser UniversityL’Oréal Canada and High Liner Foodsfor their best arthritis practices in the workplace and their commitment to investing in employees’ health and well-being.

ACE also looks at recent policy changes in the private health insurance that potentially could affect employees living and working with arthritis. In this issue, you will find:

  • The winners for the 2015 Canada’s Best Workplaces for Employees Living with Arthritis award
  • What you need to know about arthritis in the workplace
  • New policies in private health insurance

JointHealth™ monthly – Dr. Cy Frank

Canada loses healthcare leader and arthritis patient champion

Dr. Cy Frank pictureApril’s JointHealth™ monthly celebrates the life of Dr. Cy Frank – orthopaedic surgeon, scientific researcher, teacher, mentor, entrepreneur, health-system administrator, policy maker, patient champion, and friend of many in the arthritis community.

In this JointHealth™ monthly, you will also find:

  • A chronology of Dr. Frank’s career achievements
  • Dr. Frank: Researcher and Innovator
  • A leader’s commitment to healthcare system reform and meaningful patient involvement

JointHealth™ monthly – The JointHealth™ Medications Guide issue

Annual JointHealth™ Medications Guide: A consumer’s guide to arthritis medications

The reliable, quick reference arthritis medications guide you need to assist you and your health care team with your therapy conversations 

Picture of JHM MarchThis year’s JointHealth™ Medications Guide gives you, our member, subscriber and on-line visitor concise, fact-based information on the most commonly prescribed medications for inflammatory types of arthritis and osteoarthritis. Feature articles about new medications and scientific advances that give a deeper understanding of the importance of timely initiation of medication therapy in appropriate doses, and a patient’s perspective on the therapy conversation, are key pieces that lead toward “personalized medicine”.

Medication information for the following diseases is included in this year’s guide: rheumatoid arthritis, spondyloarthritis, (systemic) juvenile idiopathic arthritis, psoriatic arthritis, systemic lupus erythematosus, vasculitis, osteoarthritis, and osteoporosis.

In this JointHealth™ monthly, you will also find:

  • An explanation of a new targeted small molecule medication and a subsequent entry biologic approved in Canada in 2014.
  • An interview with Alison Hoens, a woman living with rheumatoid arthritis, about therapy choices.
  • A history of methotrexate as an arthritis treatment.
  • Emerging research in the field of personalized medicine.

JointHealth™ monthly – Celebrating arthritis research

February JHM coverCelebrating arthritis research

In this JointHealth™ monthly, we showcase research stories that demonstrate the value of collaboration between those who conduct research and those who use its results – consumers likes us, people living with arthritis.

  • What “window of opportunity” and “treat-to-target” mean in rheumatology.
  • The latest on what Canadian arthritis researchers are doing.
  • The 2014 Canadian Institute of Health Research (CIHR) Partnership Award: A partnership between public, private and patient groups.
  • A summary of Arthritis Consumer Experts’ participation at the Canadian Rheumatology Association’s 70th Annual Scientific Meeting.

Celebrating arthritis research 2000-2015

Turn back the clock 15 years ago when Arthritis Consumer Experts was founded, when new research began to suggest that osteoarthritis started attacking joints long before middle age, even before a person experienced symptoms of pain and inflammation. A paradigm shift in arthritis understanding was occurring and would deeply impact patients and their families, government and employers. Back in 2000, the world for people with arthritis was on the verge of dramatic transformation based on this new research and with the introduction of biologic therapy for inflammatory types of arthritis, like rheumatoid arthritis, a driver of indirect healthcare costs and a leading cause of work disability in Canada. Fast-forward to today and the scene looks much different. With well-trained Canadian researchers continuing to work and lead in collaboration with their counterparts around the world, the words “prevention” and “remission” are heard in rheumatology offices across the country. Pain is being reduced, quality of life is improving, and work disability is dropping in people with arthritis who would have done much worse had the knowledge from research not been utilized in their model of care.

This collection of stories highlights the significant impacts arthritis research can achieve. Although each is different, as a group, they exemplify the commitment of Canadian researchers to improving the health of Canadians living with arthritis……

JointHealth™ monthly – November/December 2014

November JHM ENThe JointHealth™ Arthritis Medications Report Card: How Does Your Province Measure Up?

While there are no cures for arthritis, scientific advances and improved treatments, along with a better understanding of combination medication therapy, are allowing people with arthritis to live healthier, more productive lives. In the last year, advances in arthritis treatment include the expansion of two new classes of medications used to treat autoimmune forms of arthritis. This year’s JointHealth™ Arthritis Medications Report Card reflects this change and covers three medication categories – biologic response modifiers, subsequent entry biologics, and targeted small molecule medications – increasing the number of individual arthritis medications evaluated in the Report Card to 13.

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