All posts related to "juvenile arthritis"

CRA Interview Series 2015 – Mr. Tristan Kerr on juvenile arthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Mr. Tristan Kerr – The risk of growth retardation and obesity in children with juvenile idiopathic arthritis (JIA) treated with contemporary treatments: Results from the ReACCh-OUT Cohort

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks. Continue reading

CRA Interview Series 2015 – Ms. Jo-Anne Marcuz: Update on Juvenile Spondyloarthritis

Arthritis Broadcast Network’s “CRA Interview Series 2015″ – Ms. Jo-Anne Marcuz: Part II – Update on Juvenile Spondyloarthritis 

Today’s feature interview – Ms. Jo-Anne Marcuz

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Jo-Anne Marcuz (From SickKids)

Picture of Jo-Anne

Picture from SickKids

Jo-Anne Marcuz is a graduate of the University of Toronto and has been working as a Physical Therapist in the Department of Rehabilitation Services at SickKids since 2003. She has had the privilege of working within the Division of Rheumatology since 2005. Jo-Anne’s clinical expertise is in the area of pediatric rheumatic disease and associated musculoskeletal disorders. She also has experience helping to manage chronic pain and cardiorespiratory conditions like CF.

Jo-Anne holds a status-only appointment of Lecturer at the University of Toronto, Department of Physical Therapy and has enjoyed classroom and clinical teaching for several years. Additionally, she is a member of the Arthritis Health Professions Association the allied health professionals division of the Canadian Rheumatology Association. Continue reading

CRA Interview Series 2015 – Dr. Shirley Tse: Update on Juvenile Spondyloarthritis

Arthritis Broadcast Network’s “CRA Interview Series 2015″ – Dr. Shirley Tse: Part I – Update on Juvenile Spondyloarthritis 

Today’s feature interview – Dr. Shirley Tse

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning, March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Shirley Tse

Picture of Dr. Shirley TseDr. Shirley Tse is an Assistant Professor in the Department of Paediatrics at the University of Toronto. She is also the Program Director for the Division of Rheumatology at The Hospital for Sick Children in Toronto. At the Canadian Rheumatology Association’s 70th Annual Scientific Meeting in February, she gave a presentation titled “Update on Juvenile Spondyloarthritis: Practical Tips for Translation to Clinical Practice”.

 

About Juvenile Spondyloarthritis (From spondylitis.ca)

Juvenile Spondyloarthritis, also called Juvenile Onset Spondyloarthritis (JSpA) and Juvenile Idiopathic Arthritis – Enthesitis Related Arthritis (JIA-ERA).

Juvenile Spondyloarthritis describes a group of arthritic diseases that start before the 16th birthday. The term Juvenile Idiopathic Arthritis (JIA) was introduced to standardize and classify the different arthritic conditions seen in children. Juvenile Spondyloarthritis is now classified as Enthesitis Related Arthritis (ERA) in this new system. Enthesitis is inflammation where tendons or ligaments attach to the bone. Enthesitis is a major manifestation of SpA especially in children. In fact unlike adult onset SpA, JSpA / ERA may start as peripheral arthritis or enthesitis in the majority with axial manifestations appearing only later on.

JSpA includes all the Spondyloarthritis diseases of Ankylosing Spondylitis, Psoriatic Arthritis, Reactive Arthritis, Enteropathic Arthritis (arthritis associated with Inflammatory Bowel Disease) and Undifferentiated Spondyloarthritis. To learn more about JIA, please visit here on the JointHealth™ website.

Juvenile idiopathic arthritis and bullying

Girl thinkingJuvenile idiopathic arthritis (JIA) is chronic inflammatory arthritis developing in children under the age of 16 years. The disease strikes up to one in 1000 children and is one of the most common chronic diseases among children.

Autoimmune diseases generally occur when the body’s immune system begins to malfunction and attack healthy tissue in various parts of the body, causing inflammation and damage. In JIA, joints are attacked by inflammation and become stiff, painful, and swollen. Some children with JIA develop inflammation involving their eyes as well; in some severe subtypes of JIA, organs such as the heart or lungs can be involved. Continue reading

Arthritis New Zealand’s ORANGE sets out to inspire

Poster for the playArthritis New Zealand has produced ORANGE, a unique stage work to celebrate and release the artistic voice of young people with arthritis. The play is performed by a group of young and talented people, aged 17 to 24 years, living with arthritis. They will articulate the struggles, alongside the strengths and resilience experienced by young people with arthritis to inspire the fight against arthritis. If you are inspired by this play, talk to your local school or community to create a similar play to raise awareness for arthritis.

In a press release, Arthritis New Zealand CEO, Sandra Kirby said: “ORANGE is a multi-disciplined performance combining and displaying the unique talents of the young actors, dancers, singers and musicians involved, celebrating their abilities. We are incredibly proud of the performers and the work that has gone into bringing ORANGE to life. The audience will be taken on an inspirational and very personal journey throughout the performance. A truly collaborative effort with an emphasis on the challenges, alongside the personal triumphs experienced every day by young people with arthritis.” Continue reading

Spotlight on Arthritis Superheroes

Today, the Spotlight on Arthritis Superheroes is shining on an organization called Cassie and Friends Society for Children with Juvenile Arthritis and Other Rheumatic Diseases.

Cassie and Friends started with a little girl named Cassie. Juvenile arthritis became a part of Cassie’s family in September of 2006 when Cassie, then 20 months old, wouldn’t walk when her parents took her out of the crib. Eventually, Cassie was diagnosed with juvenile idiopathic arthritis. Her parents were shocked with the diagnosis, as they believed arthritis was only a disease for the elderly. They soon learned how common arthritis is in children.

Cassie and Friends

Continue reading