All posts related to "life"

Call for patient organization input

Stickman with megaphone calling for patient organization inputCall for patient organization input on certolizumab pegol (Cimzia®) for psoriatic arthritis

Do you have psoriatic arthritis or care for someone who does? We need your valuable input.

The Common Drug Review (CDR) is currently welcoming patients and their caregivers to provide input to patient organizations on the manufacturer’s submission for certolizumab pegol (Cimzia®) for the treatment of psoriatic arthritis (PsA). Certolizumab pegol is indicated for use in combination with methotrexate for reducing signs and symptoms and inhibiting the progression of structural damage as assessed by X-ray, in adult patients with moderately to severely active psoriatic arthritis who have failed one or more disease-modifying anti-rheumatic drugs (DMARDs). Continue reading

Spotlight on Arthritis Superheroes

SuperheroesToday, the “Spotlight on Arthritis Superheroes” is directed on Rheumatoid Arthritis Guy.

RA Guy’s rheumatoid arthritis started when he was in his 20’s. His heels were in pain and his knees creaked. In the winter time, his RA symptoms became worse. In his 30’s, his pain never went away and he was unable to use his knees. Finally, after many visits to a doctor, he came across a rheumatologist who confirmed that he had rheumatoid arthritis.

Since his diagnosis, RA Guy has learned a lot about rheumatoid arthritis.

“I learned what TENS means. I gained weight. I regained the use of my knees. I got on meds. I got off meds. I got back on meds. I started doing yoga. I lost a lot of weight. I started taking hot baths. I started sleeping with wool socks. I started taking lots of NSAIDs. I started having stomach problems. I got depressed. I started wearing ankle braces. I started wearing wrist braces. I got happy. I started meditating. I started writing positive affirmations. I started pacing myself through my day-to-day activities. I went into remission. I came out of remission. I had lots of flares. I started therapy. I started getting early joint damage. I started this blog. Most importantly, I started to learn how to LIVE with rheumatoid arthritis.”

Join RA Guy as he shares his ups and downs and continues his journey through chronic pain and debilitating inflammation. Our favourite part about his blogs is that he uses humor to shed light onto matters that others may consider serious. Continue reading

Rheumatologists should ask “How’s your sex life?”

Couple close togetherOne of the main goals of the PRECISION project, showcased in July’s issue of JointHealth™ monthly, is to enable clients to lead a healthy life in the context of their chronic disease. Besides medical adherence, rheumatologists should also express concern about their patient’s sex life and ask, “How’s your sex life?”

In an interview with The Rheumatologist, Alex Shteynshlyuger, MD, a New York urologist, said that more than half of all rheumatoid arthritis patients have difficulties with sex and yet the topic gets little attention from rheumatologists.

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“In Sickness As in Health” – A book review by Chronic Marriage

The Arthritis Broadcast Network would like to share with you below Chronic Marriage’s blog post titled “In Sickness As in Health”, where Helena shares her response to a book on navigating marriage (and life) with chronic pain.

In Sickness As in Health

Every once in a while, you stumble upon a really helpful book that you want to share with everyone.  In Sickness As In Health – Helping Couples Cope with the Complexities of Illness (Roundtree Press, 2013) byBarbara Kivowitz and Roanne Weisman is one such book.

Book Cover for In Sickness As in HealthIn Sickness As In Health is full of hope as well as lessons learned; a breath of fresh air for those of us desiring new and sound strategies for navigating marriage (and life) with chronic illness.

Co-author Barbara Kivowitz has herself lived with chronic pain since 1999 so she writes from experience and with authority.  She is also a psychotherapist, organizational consultant and advisor to several health systems.  In other words, she knows her stuff.

The book is broken down into three parts and 12 chapters:

Continue reading

JointHealth™ monthly: Three Women Who “Rock” Arthritis

JointHealth™ monthly – May, 2014: Three Women Who “Rock” Arthritis

Title Banner for JointHealth monthlyWomen and arthritis are strongly linked: Two out of three living with the disease are women; sixty percent of Canada’s medical students are women, and they will become doctors providing care to women with arthritis; women have led a number of significant advances in clinical arthritis research in Canada.

In this issue of JointHealth™ monthly, Arthritis Consumer Experts (ACE) is proud to profile three women who “rock” the arthritis world. You will find the following interviews:

  • Dr. Linda Li on arthritis knowledge and exercise in the digital age
  • Dr. Janis McCaffrey on being a “Doctor Mom” living with lupus
  • Dr. Julia Alleyne on sports and exercise

Face of feature three womenThis issue’s “Health Happenings” highlights ACE’s latest initiative, Canada’s Best Workplaces for Employees Living with Arthritis competition, and how your company can qualify for this award.

AS it Goes – Jackpot! Winner of the Rheumy Lottery

Jackpot!

Photo Courtesy of Stuart Miles via freedigitalphotos.net

Reflecting on how few rheumatologists there are in Canada and how many people live with arthritis, Fran counts herself among the select few—a jackpot winner, in a way—for having a rheumy.

I am one of the fortunate ones. There have been many days of late when I didn’t feel so lucky with an inflammatory disease that likes to highjack my life. But apparently I should count myself among the select few because I have a rheumatologist I am able to see for regular checkups or call on in crisis (depending what’s brewing with my ankylosing spondylitis). Continue reading