All posts related to "lupus"

Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study

Equation for EMCEarly Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study

Participate in this study to help develop and maintain a new equation for change in rheumatology

The International Foundation for Autoimmune Arthritis (IFAA), with the help of the Spondylitis Association of America, Lupus UK, Sjögren’s Syndrome Foundation, and the International Still’s Disease Foundation, have created a study called the “Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study”.

The purpose of the study is to develop and maintain a new equation for change in rheumatology. According to the research, early detection + early referrals + early diagnosis + early treatment = better chance to combat unnecessary, irreversible damage and elevate the chances for remission in autoimmune arthritis. The study hopes to address improper identification of early symptoms that may correlate with a delay in diagnosis. 
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JointHealth™ monthly: Three Women Who “Rock” Arthritis

JointHealth™ monthly – May, 2014: Three Women Who “Rock” Arthritis

Title Banner for JointHealth monthlyWomen and arthritis are strongly linked: Two out of three living with the disease are women; sixty percent of Canada’s medical students are women, and they will become doctors providing care to women with arthritis; women have led a number of significant advances in clinical arthritis research in Canada.

In this issue of JointHealth™ monthly, Arthritis Consumer Experts (ACE) is proud to profile three women who “rock” the arthritis world. You will find the following interviews:

  • Dr. Linda Li on arthritis knowledge and exercise in the digital age
  • Dr. Janis McCaffrey on being a “Doctor Mom” living with lupus
  • Dr. Julia Alleyne on sports and exercise

Face of feature three womenThis issue’s “Health Happenings” highlights ACE’s latest initiative, Canada’s Best Workplaces for Employees Living with Arthritis competition, and how your company can qualify for this award.

May 10 is World Lupus Day

World Lupus Day LogoMay 10 is World Lupus Day. According to the World Lupus Day website, an estimated 5 million people around the world have lupus – a chronic autoimmune disease that can affect any part of the body (skin, joints, and/or organs inside the body).  The best way to help those living with lupus is to help raise worldwide recognition of lupus, to ensure earlier diagnosis, better treatments, and garner more support for people living with lupus.

In Canada,  lupus affects about 15,000 Canadians-approximately one in 2000. Continue reading

Congratulations to PRECISION researchers!

Quote bubblePRECISION is a research study aimed at preventing complications from inflammatory skin, joint and bowel conditions. Researchers involved in the study include doctors from the Arthritis Research Centre of Canada, the University of British Columbia, and the Vancouver Coastal Health Research Institute. PRECISION was awarded Canadian Institute of Health Research’s “Team Grant: Health Challenges in Chronic Inflammation Initiative” grant. Continue reading

CRA Interview Series 2014: Dr. Janis McCaffrey – Thoughts from a doctor living with lupus

Arthritis Broadcast Network’s “CRA Interview Series 2014″: Dr. Janis McCaffrey – Thoughts from a doctor living with lupus

Today’s interview features Dr. Janis McCaffrey, a general practitioner and person living with lupus in B.C. She shares her thoughts on traditional Chinese medicine, acupuncture, social media in health care and immunization. Please note you should always consult your doctor and rheumatologist before starting a new treatment plan.

Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). Starting March 14, feature interviews will be posted daily on the ABN YouTube channel at We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.

Accelerating Medicines Partnership promotes teamwork in pharmaceutical industry

Stick Man holding handsTen big drug companies have joined together with the National Institutes of Health (NIH) to accelerate the discovery of new medicines for diseases like alzheimers, diabetes, rheumatoid arthritis and lupus. The project is called the Accelerating Medicines Partnership. Under the five-year agreement, the companies will be sharing scientists, tissue and blood samples, and data. The underlying goal is to help identify targets for new drugs. Continue reading