All posts related to "news"

Scholarship opportunities from UCB Canada Inc.

UCB Canada Inc. has launched its seventh annual UCBeyond 2013 Scholarship Program.

The UCBeyond 2013 Scholarship Program is offering one-time scholarships of up to $5,000 CAN for students diagnosed with inflammatory arthritis, who are enrolled in or awaiting acceptance from a Canadian-based institution of higher education (e.g. university, college, or trade school) for the fall semester of the 2013 school year.

The winners must demonstrate academic ambition and embrace a way of life that goes above and beyond the boundaries of living with inflammatory arthritis.

The deadline to apply is June 30, 2013.

Please click here for more information.

UCBeyond 2013 Scholarship Application

Rural and remote physicians conference gets noticed

The 21st Annual Rural and Remote Medicine Course “Sea To Sea To Sea” conference that ABN representatives are attending in Victoria right now, made the news last night.

Click here to view the CTV News clip.

Booth at rural and remote physician's conference

To raise awareness about arthritis among rural physicians, the National Arthritis Awareness Program is attending an annual educational event for rural physicians from across Canada.

 

Arthritis: The Elephant in the Room

Arthritis Consumer Experts exhibitArthritis: like the elephant in the room, it’s big and no one’s talking about it. Not in the way they do cancer or diabetes. Yet, it is as much a threat to Canadians’ health as these two well-known diseases. Arthritis strikes 1 in 6 people, including children. It’s debilitating, lifelong, and can lead to early death.

Arthritis Consumer Experts and the Arthritis Broadcast Network, are in Victoria this week working to get people talking about arthritis. Continue reading

Êtes-vous atteint de polyarthrite rhumatoïde ?

Pour faire entendre votre voix, participez à une enquête mondiale anonyme à propos de la polyarthrite rhumatoïde (PR).

Une société internationale d’études mène une courte enquête pour recueillir de l’information chez les personnes atteintes de PR, partout dans le monde. Les résultats de cette enquête contribueront à accroître la sensibilisation mondiale à l’impact de la maladie et à mieux outiller les personnes qui souffrent de PR afin de leur permettre de gérer plus efficacement la maladie.

L’objectif de l’enquête est d’identifier comment les personnes atteintes de PR :

  • sont affectées physiquement, émotionnellement, socialement et professionnellement
  • obtiennent leur information à propos de la maladie et à quel point elles estiment cette information fiable
  • gèrent et comprennent bien leur maladie
  • établissent des relations et obtiennent un soutien des personnes de leur entourage comme leurs médecins, infirmières, amis, famille et employeurs

Toutes les réponses des participants seront intégrées et les résultats globaux seront partagés avec la grande collectivité de la PR, y compris les patients, les prestateurs de soins de santé et les groupes de défenses des patients de partout sur la planète.

Toutes les réponses demeurent anonymes.

Pour contribuer à une meilleure compréhension de la PR, faites entendre votre voix—répondez à l’enquête ici. Vous pouvez répondre à l’enquête jusqu’au 11 avril 2013.

Qu’est-ce que « PR : joignez-vous à la lutte » ?

PR : joignez-vous à la lutte est une campagne mondiale lancée par AbbVie Inc. pour accroître la sensibilisation à l’impact de la polyarthrite rhumatoïde chez les personnes qui en sont atteintes. La polyarthrite rhumatoïde est une maladie auto-immune peu reconnue, qui touche environ de 0,5 à 1 pour cent de la population. Pour mieux comprendre et faire comprendre l’impact physique et émotionnel de la PR de même que les besoins des personnes qui en souffrent, une enquête mondiale anonyme est actuellement en cours, dans 42 pays à travers le monde. Les renseignements ainsi recueillis seront utilisés par AbbVie pour la mise au point de meilleurs outils pour informer les patients, les membres de leur famille et les soignants à propos de la PR. Pour en savoir plus sur ce sujet, consultez le : www.RAJointheFight.com.

Avertissement : La mention de cette communication d’AbbVie Inc. ne constitue d’aucune manière un endossement de l’entreprise. Le comité ACE ne fait aucunement la promotion d’une « marque », d’un produit ou d’un programme dans aucun de ses matériels ou sur son site Web, ou pendant aucun de ses programmes ou activités de formation.

Rheumatoid Awareness Day

groundhog day = rheumatoid awareness dayA new event, based in the U.S. is Rheumatoid Awareness Day (RAD), which is always on February 2, the same as Groundhog Day. As the folklore goes, when the groundhog comes out of its burrow and it is cloudy, spring will come early. If it is sunny, then we can expect another 6 weeks of winter because the groundhog will see its shadow. Groundhog Day was chosen for RAD because 6 weeks is also the critical period for identifying and treating rheumatoid arthritis to avoid joint damage.

Also, the month that RAD is celebrated is Heart Month since there is a link between rheumatoid arthritis and heart disease,

The power behind this new celebration is Rheumatoid Arthritis Warrior (Kelly Young).

To learn more, visit: rheum4us.org/rheumatoid-arthritis-awareness-day

Tell ACE what you think: JointHealth™ survey

JointHealth survey

Arthritis Consumer Experts (ACE) wants to do more to better help you: people living with arthritis and JointHealth™ subscribers. To achieve this, we regularly conduct JointHealth™ Program Satisfaction and Interest surveys.

From your valuable input we aim to improve our programs, activities and communications tools. The information we gather measures our relationships with people who live with arthritis (consumers) and spotlights areas of information we need to focus more attention to. The survey also gives you the opportunity to make suggestions for what you would like to see in future JointHealth™ programming.

The survey includes 15 questions and will take approximately 15 minutes to complete.

We sincerely thank you for taking the time to help us work toward improving ACE’s JointHealth™ programs and related projects for the 4.6 million Canadians living with arthritis. At times, the survey leads to the development of focus groups and follow-up surveys, which help dig more deeply into consumer issues.

Click here to take the survey.

Man’s best friend, indeed

New puppy named MollyMost pet owners don’t need reminding that animals help make people feel good.

Your favorite animal can make you healthier and help you stay that way. You may be surprised at just how many ways a pet can improve your health.

On that note we would like to welcome Arthritis Consumer Experts’ new puppy!

Welcome to the team, Molly!

Toni Braxton battles lupus

microphone alone on stageSinger-songwriter, Toni Braxton was recently hospitalized with health problems, including blood clots, related to lupus. She was diagnosed at the age of 15 with the autoimmune disease. Her lupus has affected her career, causing her to have to declare bankruptcy twice.

Lupus affects about 15,000 Canadians or about 1 in 200. It is known to run in families. Recent studies show that the brother or sister of a person with lupus is 25 times more likely to develop the disease than someone in the general population. Toni Braxton’s uncle had lupus. He passed away from complications of the disease. Braxton’s brother also lives with the illness. However, having a genetic predisposition for the disease, fortunately, doesn’t guarantee you’ll develop it.

Read more: Examiner, Samantha Chang, December  2012

Also in this article: Lady Gaga, another celebrity singer, announced two years ago that she has family members with lupus, and said that test results indicated she was “borderline positive” for the disease.

Vancouver rheumatologist wins award

Dr. John Esdaile, Scientific Director of ARC and rheumatologistAt last week’s American College of Rheumatology Annual Meeting, our very own Dr. John Esdaile is only the second Canadian to win the 2012 ACR Masters award. Recognition as a Master of the American College of Rheumatology (ACR) is one of the highest honours the College grants. It is given to ACR members, age 65 or older, who “have made outstanding contributions to the field of rheumatology through scholarly achievement and/or service to their patients, students, and profession.”

Dr. John Esdaile is an internationally respected rheumatologist who spearheaded the creation of the Arthritis Research Centre of Canada (ARC), of which he is now the Scientific Director. ARC co-leads the National Arthritis Awareness Program with Arthritis Consumer Experts.

His areas of research interest include rheumatoid arthritis, osteoarthritis and systemic lupus erythematosus. His publication of the efficacy of hydroxychloroquine in systemic lupus erythematosus is considered a landmark paper that has altered the treatment of this disease for many patients.

Dr. Esdaile has written more than 180 publications in refereed journals, as well as more than two dozen books and book chapters. His writing includes Rheumatoid Arthritis: Plan to Win, along with co-authors Cheryl Koehn (president and founder of ACE) and Taysha Palmer.

His other achievements include:

  • The Distinguished Investigator Award at the 2005 Canadian Rheumatology Association meetings in Quebec
  • Being named a Kirkland Scholar by the Kirkland Foundation in New York, 2006
  • Being elected a Fellow of the Canadian Academy of Health Sciences, 2007.

To learn more about Dr. Esdaile, click here.

Congratulations, Dr. Esdaile!

Share the news on Twitter or Facebook, or send an email to ARC congratulating Dr. Esdaile.