Le PCEM fait partie de l’Agence canadienne des médicaments et des technologies de la santé. Le PCEM examine avec objectivité et rigueur l’efficacité et la rentabilité des médicaments et fournit des recommandations aux régimes d’assurance-médicaments publics du Canada (à l’exception du Québec) quant à leur inscription sur la liste des médicaments assurés.
Afin de l’aider dans son processus de recommandation, le PCEM accepte la rétroaction de groupe de patients comme le comité ACE (Arthritis Consumer Experts). C’est dans cette optique que nous désirons recueillir vos commentaires pour communication au PCEM.
Voici l’information que recherche le PCEM dans ce dossier particulier : Continue reading →
North America’s first on-line classroom designed to educate, empower and graduate today’s modern arthritis patient
Arthritis Consumer Experts (ACE) today announced the launch of its newest on-line patient education program: JointHealth™ Education. Designed to enable arthritis patients to progress from being a “student” of arthritis to full-fledged “graduate,” JointHealth™ Education empowers and equips them to be equal partners on their health care team. As part of the launch, ACE is introducing the first course in the program – JointHealth™ Education: Rheumatoid Arthritis (RA) – to help patients and their healthcare providers better understand each other’s motivations and goals for the patient’s overall treatment and care plan.
“JointHealth™ Education was inspired by many of ACE’s members living with an inflammatory arthritis who have told us they lack the communications expertise to have full, satisfying conversations with their rheumatologists on topics such as treatment options during their clinical visits. The program is informed by our organization’s participation on a global advisory panel that conducted a survey in 16 countries of rheumatoid arthritis patients and their health care providers. The results illuminate the discord between the needs, concerns and fears of patients compared to the views of their health care providers,” said Cheryl Koehn, Founder and President of Arthritis Consumer Experts and a member of the RA Narrative Global Advisory Panel.
Arthritis Consumer Experts today announced the launch of the Biosim•Exchange
Arthritis Consumer Experts today announced the launch of the Biosim•Exchange – the first central resource in Canada for consumers to find timely, fact-based information on biosimilars safety and effectiveness and report on public and private health insurance formulary policy or listing decisions on biosimilars.
“There is a real need for balanced, evidence-based information on biosimilars. Our aim with the Biosim•Exchange is to help patients better understand biosimilars and their place among other inflammatory arthritis treatments. With this knowledge, patients can have a full therapy conversation with their rheumatologist (or other specialist) in order to best decide on their choice of medications, including originator biologics or biosimilars,” said Cheryl Koehn, Founder & President, Arthritis Consumer Experts.
Last call for Qualman-Davies Arthritis Consumer Community Leadership Award
Friday, August 26 is the deadline to nominate an outstanding leader for the Qualman-Davies Arthritis Consumer Community Leadership Award in honour of Canada’s earliest pioneers in arthritis advocacy – Ann Qualman and Jim Davies – whose efforts contributed to the well-being and future of millions of Canadians.
Support the people that are making a difference in Canada by nominating an individual for the Qualman-Davies Arthritis Consumer Community Leadership Award.
To submit a nomination, please follow the four steps listed below.
Obtain the prospective nominee’s consent to be nominated prior to submitting this form.
This year’s recipient of the Qualman-Davies Arthritis Consumer Community Leadership Award will be honoured at the Arthritis Alliance of Canada’s Annual Conference Gala on October 27, 2016 in Montréal, Quebec.
WHO: Research Ambassadors are members of the public who live with, or advocate for others living with a condition that falls under CIHR – IMHA’s research mandate (conditions related to bones, joints, muscles, connective tissue, skin and teeth). Research Ambassadors bridge the gap between researchers and patients, addressing the different stages of the research process known as: Basic Biomedical Science, Clinical Science and Knowledge, and Clinical Practice and Health Decision Making.
EULAR Press interviews Cheryl Koehn on patient satisfaction and RA treatment
Cheryl Koehn discusses the importance of treatment conversations between patients and healthcare professionals.
This year’s European League Against Rheumatism Annual Congress (EULAR2016) highlighted patient-focused initiatives that aimed to:
Improve the understanding of the patient perspective
Encourage patient participation
Optimize care of rheumatic diseases
One of the initiatives is the RA NarRAtive initiative – a patient survey fielded in 15 countries around the world and designed to evaluate the patient/healthcare professional relationship and communication and patients’ experience and satisfaction with treatment and disease management. To view the interview with Cheryl Koehn, please click here.
“Further understanding the responses from this survey will be important to facilitate communication between patients and healthcare professionals, with the ultimate aim of improving treatment outcomes,” said Ms. Cheryl Koehn, President of Arthritis Consumer Experts and member of the RA NarRAtive global advisory panel.
To learn more about the study, please click here to view the press release.