All posts related to "patients"

Modèles de soins pour les patients souffrant de polyarthrite rhumatoïde : une enquête internationale

Faisant partie d’un réseau international d’organisations de patients atteints de PR, Arthritis Consumer Experts vous invite à participer à une enquête mondiale portant sur des patients souffrant de PR et qui s’attachera à l’examen du diagnostic, du traitement et des soins reçus par ces patients pour leur polyarthrite rhumatoïde. L’objectif de cette enquête est de mieux comprendre, selon la perspective et l’expérience du patient, comment les « modèles de soins » actuels pour le traitement de la polyarthrite rhumatoïde se comparent, d’un pays à l’autre.

Global RA Network Survey/ enquête BannerVotre expérience et votre point de vue comptent beaucoup

Parce que vous êtes une personne atteinte de PR, partager votre expérience à propos des soins que vous recevez est d’une importante capitale. Grâce à votre aide, nous serons en mesure d’atteindre les objectifs de cette enquête et d’élaborer des programmes d’information et d’éducation susceptibles d’améliorer la perception des patients des modèles de soins offerts pour la PR afin d’obtenir les meilleurs résultats de traitement possible dans votre pays

Comment participer ?

Si vous acceptez de participer, vous devrez répondre à un questionnaire d’enquête qui exigera environ 10 minutes de votre temps. Tous les renseignements recueillis dans le cadre de cette enquête seront regroupés pour respecter la confidentialité et protéger votre anonymat.

Pour être admissible à participer à cette étude, vous devez :

  • être âgé(e) de 18 ans ou plus
  • recevoir des soins de santé au Canada
  • avoir accès à l’Internet

Nous vous remercions de bien vouloir considérer notre demande de participation à cette enquête. Votre participation permettra à d’autres personnes atteintes de PR dans votre pays d’en savoir plus sur les soins de santé qu’ils devraient recevoir.

Veuillez cliquer sur ce lien pour répondre au questionnaire.

Join us for our Facebook and Twitter “Live” event! #CRArthritis

Want to know what Canada’s leading rheumatologists are thinking? Join us for our groundbreaking Facebook and Twitter “Live” event!

Canada’s arthritis consumer-patient organizations and groups to host Facebook and Twitter “Live” #CRArthritis Speaker’s Corner

Picture of a microphoneArthritis Consumer Experts (ACE) will be in Ottawa to attend the 2017 Canadian Rheumatology Association (CRA) Annual Scientific and Arthritis Health Professions Association Annual Meetings.

Powered by ACE and supported by representatives from the Arthritis Patient Advisory Board of Arthritis Research Canada, Canadian Arthritis Patient Alliance, Canadian Spondylitis Association, and Patient Partners, Arthritis Broadcast Network (ABN) will be interviewing keynote speakers, meeting attendees, patients living with arthritis, and disease experts. We invite you to participate in the Facebook and Twitter “Live” event. Like, share and retweet the live interviews, send us your comments or questions through Facebook and Twitter during the interviews.

Join the conversation at the Arthritis Broadcast Network Facebook page or Twitter (@ArthritisNetwrk) feed using #CRArthritis. Interviews will take place from Wednesday, February 8th until 12:00 pm, Friday, February 10th.
Continue reading

Denosumab maintains bone quality in rheumatoid arthritis

Japanese LanternsA recent study from Keio University School of Medicine in Tokyo showed that denosumab inhibited the progression of bone erosion and increased bone mineral density (BMD) in Japanese patients with rheumatoid arthritis (RA) who were on methotrexate. This study confirmed the findings of an earlier study conducted in the U.S. and Canada.

The study followed 350 patients who have lived with RA for 6 months to less than 5 years’ duration. They were randomized to receive placebo or denosumab in doses of 60 mg every 6 months, every 3 months, or every 2 months. Participants were grouped together according to their glucocorticoid use and rheumatoid factor (RF) status at baseline. Throughout the study, they continued taking methotrexate at 6 to 16 mg/week and were treated with supplemental vitamin D and calcium. Researchers found that the changes from baseline in modified Sharp erosion score at 12 months were lower in the denosumab groups than in the placebo group. Continue reading

Arthritis’ devastating impact on young adults

young adultsA recent Canadian research published in BMC Musculoskeletal Disorders found that older adults with arthritis are less likely than young and middle-aged adults to report worse outcomes that include more pain, sleep disturbance, and impaired mental health. Regardless of age, the researchers stress the importance of timely diagnosis and treatment for all ages in order to prevent or minimize arthritis-related impairment.

The study examined and compared the physical and mental health effects of arthritis in older Canadian adults (75+ years) and younger adults (20-44, 45-64, and 65-74 years). Led by Siobhan O’Donnell, MSc, an epidemiology researcher at the Centre for Chronic Disease Prevention in Ottawa, the study analyzed poll data on 4,565 respondents from the arthritis component of the 2009 Survey on Living with Chronic Diseases in Canada (a cross-sectional follow-up survey to the larger 2008 Canadian Community Health Survey). The survey looked at the following: Continue reading

JointHealth™ monthly – September 2015

Sep JHM Banner

September is Arthritis Awareness Month in Canada. In this issue of  JointHealth™ monthly, Arthritis Consumer Experts (ACE) looks at Models of Care for Inflammatory Arthritis to improve the way healthcare is delivered to patients by the health policy decision makers, rheumatologists, allied health professionals and other health care providers who care for them.

Below are highlights from this month’s newsletter:

  • What is an inflammatory arthritis model of care
  • The foundation of modernizing IA care in Canada
  • The role of IA patients in the development of a pan-Canadian approach to inflammatory arthritis models of care
  • Models of care infographic

FDA proposed new naming policies for biosimilar drugs for RA

Yellow and Purple pills in palm of handThe Food and Drug Administration (FDA) has proposed new naming policies for the distinct naming of biosimilars and biologics for rheumatoid arthritis treatment. The new draft guidance is called Nonproprietary Naming of Biological Products: Guidance for Industry and is available to view here.

Under the new policies, which will be designated and enforced by the FDA, separate and distinctive names will be required when it comes to biosimilars and biologic drugs. This will ensure that pharmaceutical companies are following regulations and will remain compliant when it comes to the naming and marketing of biosimilar medications.  Continue reading

Move More. Sit Less: A Survey for patients living with chronic disease

Move More. Sit Less BannerA survey for patients living with chronic disease.

The Physical Activity Support Kit Initiative (PASKI) is a B.C. province-wide project to develop an online “one-stop shop” of information and resources to help persons living with chronic disease to ‘move more and sit less’.

Active Business WomanNinety-seven patients, researchers and health care providers are working to develop this online toolkit. To help us better understand what patients would most like to see included in the toolkit, we have developed a short (10 minutes) survey.

If you are living with a chronic disease, we would appreciate your input. The survey is open until September 18, 2015, inclusively.

Please forward this email to friends and family living with chronic disease so that they may also participate.

JointHealth™ mensuel – docteur Cy Frank

Dr. Cy Frank pictureHommage à un grand défenseur des patients arthritiques et chef de file dans le domaine des soins de santé

Le numéro d’avril du mensuel JointHealth™ se veut un vibrant hommage à la vie et à la carrière du docteur Cy Frank – chirurgien orthopédiste, chercheur scientifique, enseignant, mentor, entrepreneur, administrateur du système de santé, décideur de politiques, défenseur du patient et ami de tous dans la collectivité arthritique.

Dans ce numéro du mensuel JointHealth™, vous trouverez également :

  • Une chronologie des réalisations professionnelles du docteur Frank
  • Docteur Frank : chercheur et pionnier
  • L’engagement d’un leader pour la réforme du système de santé et la participation active du patient

CRA Interview Series 2015 – Dr. Michael Vallis on Motivational Interviewing

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Michael Vallis on Motivational Interviewing

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Michael Vallis

Photo from: Behaviour Change InstituteDr. Vallis is a registered Psychologist at Capital Health and Dalhousie University in Halifax, Canada. He is an Associate Professor in Psychiatry and Adjunct Professor in Psychology. He has a Ph.D. from the University of Western Ontario, London and his main focus is in adult healthy psychology, with a clinical emphasis on diabetes, gastroenterology, cardiovascular risk and obesity. He developed the CDHA Behaviour Change Institute. The institute offers health care providers training and support in working with patients and clients who could benefit from assistance in changing unhealthy behaviour patterns. They have a training program for lifestyle counseling skills for physicians, nurses, dieticians and other healthcare providers.  Continue reading