All posts related to "Sjögren’s"

Cold hands are one of several warning signs of Raynaud’s Phenomenon

Close up of girl wearing mittens - way to prevent Raynaud'sRaynaud’s phenomenon is a condition in which there is an exaggerated blood vessel tightening in response to cold or emotional stress, restricting blood flow to certain areas of the body – most often the fingers, but sometimes the toes, ears, or the end of the nose.

The exaggerated vascular response (tightening) in Raynaud’s phenomenon is called vasospasm, which often occur in response to cold or emotional stress. With vasospasm, the fingers turn white and cold then blue with dilated veins followed by relaxation of the vessel and normal blood flow causing a red ‘flushing’

According to a recent article published in The New England Journal of Medicine, Raynaud’s affects approximately 3 to 5 percent of the population – women are more often affected than men. Raynaud’s phenomenon occurs in two forms – primary and secondary. Primary is the most common and has no underlying cause. Secondary is when Raynaud’s phenomenon occurs in combination with another autoimmune disease like scleroderma, rheumatoid arthritis, Sjogren’s syndrome or systemic lupus erythematous. The article also states that people who work with certain chemicals, like vinyl chloride, or vibrating tools like a jackhammer are also susceptible to secondary Raynaud’s. Continue reading

Marilyn Muldoon’s tips on living with Sjögren’s

The ROAR 2014 event saw a couple of great presentations, including a captivating one by Marilyn Muldoon, a patient living with Sjögren’s. Other presentations included:

  • Dr. Marie Westby – Hip and Knee Replacements in Canada: What does quality rehabilitation care look like?
  • Dr. Lynne Feehan – Well in Hand and Feet…Bone health and physical activity in early RA
  • Dr. Catherine Backman – Changing Shoes: The impact of arthritis on self identity and roles
  • Dr. Linda Li – Web, Apps and Wearables: Tools for joint health?
  • Dr. James Dunne – A beginner’s guide to Raynaud’s

The Arthritis Broadcast Network was onsite to capture the day’s best moments. One of our favourite moment from the event was the graphic representation of all the presentations drawn by graphic recorder artist Sam Bradd. Marilyn Muldoon captivated audience with her talk on “A beginner’s guide to Raynaud’s” or as we like to call it, her personal tips on how to live with Sjögren’s. We have enclosed the a raw video of her talk above for your viewing pleasure. Enjoy!

Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study

Equation for EMCEarly Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study

Participate in this study to help develop and maintain a new equation for change in rheumatology

The International Foundation for Autoimmune Arthritis (IFAA), with the help of the Spondylitis Association of America, Lupus UK, Sjögren’s Syndrome Foundation, and the International Still’s Disease Foundation, have created a study called the “Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study”.

The purpose of the study is to develop and maintain a new equation for change in rheumatology. According to the research, early detection + early referrals + early diagnosis + early treatment = better chance to combat unnecessary, irreversible damage and elevate the chances for remission in autoimmune arthritis. The study hopes to address improper identification of early symptoms that may correlate with a delay in diagnosis. 
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