All posts related to "spondyloarthritis"

April 21: Spondyloarthritis Information Session – Live stream or in-person in Halifax

The Canadian Spondylitis Association will be hosting a Spondyloarthritis Information Session tomorrow in Halifax!

You can join in-person in Halifax or on the live stream tomorrow morning from the comfort of your home from anywhere!

A picture of the Halifax Central Library where Spondyloarthritis info session will happenIf you are attending in person, the event will take place in the BMO Community Room on the second floor of the Halifax Central Library on Spring Garden Road. Registration starts at 9:15 am.

The live stream of the event will start at approximately 9:30 am AST/8:30 am EST/5:30 am PST. To join online, click the following link: http://www.spondylitis.ca/the-latest/live-event/ 

In case you are unable to access the link above, please try: https://livestream.com/45north/events/8157608

To ensure a smooth live streaming experience, make sure you have a strong internet connection or cellular network if you are participating from your mobile devices. To ask questions during the event, email questions@spondylitis.ca

Please ensure your volume is adjusted appropriately to hear the broadcast.

Complete this short “Co-Morbidity Survey” to stand-up to spondyloarthritis!

Please take a few minutes to complete a short survey to help the Canadian Spondylitis Association help you. 

Picture of a spine for the co-morbidity spondyloarthritis surveyA co-morbidity is not a side effect.

A focus of the Canadian Spondylitis Association (CSA) in 2018 will be on highlighting and educating members about co-morbidities that are associated with spondyloarthritis. The CSA are forming partnerships to bring you the education and support that you should have. Individuals are sometimes diagnosed because of a co-morbidity or by a professional outside of rheumatology. In some cases, diagnosis is delayed due to the complexities of spondyloarthritis and its many co-morbidities.

Stand-up to spondyloarthritis! Together we can make a difference. Please take a few minutes of your time to complete a short survey to help the CSA help you.

The CSA will be updating their website with information on co-morbidities and include articles in upcoming newsletters highlighting a co-morbidity.

Complétez ce court sondage pour tenir tête à la spondylarthrite!

S’il vous plaît, prenez quelques minutes afin de complétez ce court sondage pour aider l’Association Canadienne de Spondylarthrite à vous aider! 

Picture of a spine for the co-morbidity spondyloarthritis surveyUne co-morbidité n’est pas un effet secondaire.

En 2018, l’ACS mettra l’accent sur la sensibilisation et l’éducation des membres sur les co-morbidités associées à la spondylarthrite. Nous formons des partenariats pour vous apporter l’éducation et le soutien dont vous avez besoin. Les individus sont parfois diagnostiqués à cause d’une co-morbidité ou par un professionnel de la santé autre que la rhumatologie. Dans certains cas, le diagnostic est retardé en raison de la complexité de la spondylarthrite et de ses nombreuses co-morbidités.

Tenez tête à la spondylarthrite! Ensemble nous pouvons faire la différence. Veuillez prendre quelques minutes de votre temps pour remplir un court sondagepour nous aider – à vous aider.

Nous mettrons à jour notre site Web avec des informations sur les co-morbidités et incluant des articles, dans les prochains bulletins d’informations mettant en évidence une co-morbidité.

EULAR update: Talking ’bout a therapy evolution (spondyloarthritis)

EULAR BannerFrom this year’s EULAR annual conference comes major news for people living with spondyloarthritis (SpA). Based on recommendations from a task force of European and North American patients, rheumatologists, dermatologists, and health professionals, new treat-to-target (T2T) guidelines for SpA were announced that emphasize the importance to set a target in shared decision making between a specialist and patient and carefully monitor the disease in order to improve a patient’s health outcome.

“The T2T recommendations are following the principle that you have to define a target you want to reach and adapt management to reach this target. This is independent of the treatment you use to reach the target,” said Professor Desiree van der Hejde, a professor at Leiden University Medical Centre in the Netherlands. Continue reading

Register now for the 2016 Spondyloarthritis Patient Forum

This forum will help patients with ankylosing spondylitis and psoriatic arthritis and their family. Register now for free!
Forum bannerThe Spondyloarthritis Research Consortium of Canada and the Canadian Spondylitis Association, in collaboration with The Arthritis Society, would like to invite you to register for free to the 2016 Spondyloarthritis Patient Forum. The forum aims to help patients living with ankylosing spondylitis (AS) and psoriatic arthritis (PsA) and their family. Light refreshments will be provided.

Here are the event details:

Date: Saturday, April 30, 2016
Location: Sheraton Vancouver Wall Centre, Junior Ballroom CD
1088 Burrard Street, Vancouver
Time: 3:30pm-7:00pm
Cost: Free

Please note pre-registration is required. Seats are limited. You can register: Continue reading

AS Health Storylines: An app for your AS journey

Screen grab image of appAS Health Storylines is a self-care app for ankylosing spondylitis (AS) and associated spondyloarthritis diseases. It is developed in partnership with the Canadian Spondylitis Association, and is powered by the Health Storylines™ platform from Self Care Catalysts Inc. The Canadian Spondylitis Association is a national association to advocate for and support those living with ankylosing spondylitis, psoriatic arthritis, and associated spondyloarthritis diseases.

This app is created with input from people with AS so that the right health tools are available to you. The app allows you to record your symptoms, fatigue levels, moods, and more. Choose what you want to track to build your own summary – “My Storylines” –  to learn more about your health, and to share – safely and securely – with your doctor about what happened between visits.

The following health tools in the app will help you better manage and monitor your AS or associated spondyloarthritis disease: Continue reading

CRA Interview Series 2015 – Mr. Michael Mallison: Thoughts from the CSA

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Mr. Michael Mallison: Thoughts from the Canadian Spondylitis Association (CSA)

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Mr. Michael Mallison

Michael MallisonMichael was diagnosed with Ankylosing Spondylitis ten years after onset. Looking for support, he joined the Ontario Spondylitis Association, becoming its Fundraising Chair and then President. Michael was elected the first President of the Canadian Spondylitis Association in 2007 and continues to fill that role. Continue reading

CRA Interview Series 2015 – Dr. Michel Zummer on Spondyloarthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Michel Zummer on Spondyloarthritis

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Michel Zummer (From Arthritis Alliance of Canada)

Picture of Michel Zummer

Photo from: AAC

Dr. Michel Zummer received his M.D. from Université Laval, in Ste-Foy, Quebec, and internal medicine and rheumatology training at the Université de Montréal and McGill University. Continue reading

CRA Interview Series 2015 – Dr. Walter Maksymowych on spondyloarthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Walter Maksymowych on spondyloarthritis

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Walter Maksymowych (from CaRE Arthritis)

Picture of Walter Maksymowych

Photo from CaRE Arthritis

Dr. Maksymowych is a rheumatologist at the University of Alberta. He is a Professor in the Department of Medicine, Division of Rheumatology at the University of Alberta. He is also a Medical Scientist of the Alberta Heritage Foundation for Medical Research, Outcome Measures in Rheumatology (OMERACT) steering committee member and Chair of the International OMERACT Soluble Biomarker Working Group, a member of the Canadian Arthritis Network Centres of Excellence, executive member of the Assessments of Spondyloarthritis International Society (ASAS), the Scientific Chair of the Alberta Rheumatoid Arthritis and Pharmacovigilance Program and Outcomes Research in Therapeutics (RAPPORT) committee, and a Principal Investigator and Executive Board member of the Spondyloarthritis Research Consortium of Canada (SPARCC). He is past-Chair of the Scientific Committee of the Canadian Rheumatology Association. Continue reading

CRA Interview Series 2015 – Ms. Marie-Josée Berthiaume: MRI of Spondyloarthropathies

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Ms. Marie-Josée Berthiaume: MRI of Spondyloarthropathies – The New Gold Standard

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube.

Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

Note answers in this interview are provided in French only. A translation will be provided in the next few weeks.

About Ms. Marie-Josée Berthiaume

Picture of Marie JoseeMs. Marie-Josée Berthiaume is a bone radiologist from Maisonneuve-Rosemont Hospital in Montreal. In her presentation, she reviewed how new imaging outcomes have improved the diagnosis and follow-up of spondyloarthritis and the assessment of therapeutic modalities.  Continue reading