All posts related to "spondyloarthritis"

EULAR update: Talking ’bout a therapy evolution (spondyloarthritis)

EULAR BannerFrom this year’s EULAR annual conference comes major news for people living with spondyloarthritis (SpA). Based on recommendations from a task force of European and North American patients, rheumatologists, dermatologists, and health professionals, new treat-to-target (T2T) guidelines for SpA were announced that emphasize the importance to set a target in shared decision making between a specialist and patient and carefully monitor the disease in order to improve a patient’s health outcome.

“The T2T recommendations are following the principle that you have to define a target you want to reach and adapt management to reach this target. This is independent of the treatment you use to reach the target,” said Professor Desiree van der Hejde, a professor at Leiden University Medical Centre in the Netherlands. Continue reading

Register now for the 2016 Spondyloarthritis Patient Forum

This forum will help patients with ankylosing spondylitis and psoriatic arthritis and their family. Register now for free!
Forum bannerThe Spondyloarthritis Research Consortium of Canada and the Canadian Spondylitis Association, in collaboration with The Arthritis Society, would like to invite you to register for free to the 2016 Spondyloarthritis Patient Forum. The forum aims to help patients living with ankylosing spondylitis (AS) and psoriatic arthritis (PsA) and their family. Light refreshments will be provided.

Here are the event details:

Date: Saturday, April 30, 2016
Location: Sheraton Vancouver Wall Centre, Junior Ballroom CD
1088 Burrard Street, Vancouver
Time: 3:30pm-7:00pm
Cost: Free

Please note pre-registration is required. Seats are limited. You can register: Continue reading

AS Health Storylines: An app for your AS journey

Screen grab image of appAS Health Storylines is a self-care app for ankylosing spondylitis (AS) and associated spondyloarthritis diseases. It is developed in partnership with the Canadian Spondylitis Association, and is powered by the Health Storylines™ platform from Self Care Catalysts Inc. The Canadian Spondylitis Association is a national association to advocate for and support those living with ankylosing spondylitis, psoriatic arthritis, and associated spondyloarthritis diseases.

This app is created with input from people with AS so that the right health tools are available to you. The app allows you to record your symptoms, fatigue levels, moods, and more. Choose what you want to track to build your own summary – “My Storylines” –  to learn more about your health, and to share – safely and securely – with your doctor about what happened between visits.

The following health tools in the app will help you better manage and monitor your AS or associated spondyloarthritis disease: Continue reading

CRA Interview Series 2015 – Mr. Michael Mallison: Thoughts from the CSA

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Mr. Michael Mallison: Thoughts from the Canadian Spondylitis Association (CSA)

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Mr. Michael Mallison

Michael MallisonMichael was diagnosed with Ankylosing Spondylitis ten years after onset. Looking for support, he joined the Ontario Spondylitis Association, becoming its Fundraising Chair and then President. Michael was elected the first President of the Canadian Spondylitis Association in 2007 and continues to fill that role. Continue reading

CRA Interview Series 2015 – Dr. Michel Zummer on Spondyloarthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Michel Zummer on Spondyloarthritis

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Michel Zummer (From Arthritis Alliance of Canada)

Picture of Michel Zummer

Photo from: AAC

Dr. Michel Zummer received his M.D. from Université Laval, in Ste-Foy, Quebec, and internal medicine and rheumatology training at the Université de Montréal and McGill University. Continue reading

CRA Interview Series 2015 – Dr. Walter Maksymowych on spondyloarthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Walter Maksymowych on spondyloarthritis

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Walter Maksymowych (from CaRE Arthritis)

Picture of Walter Maksymowych

Photo from CaRE Arthritis

Dr. Maksymowych is a rheumatologist at the University of Alberta. He is a Professor in the Department of Medicine, Division of Rheumatology at the University of Alberta. He is also a Medical Scientist of the Alberta Heritage Foundation for Medical Research, Outcome Measures in Rheumatology (OMERACT) steering committee member and Chair of the International OMERACT Soluble Biomarker Working Group, a member of the Canadian Arthritis Network Centres of Excellence, executive member of the Assessments of Spondyloarthritis International Society (ASAS), the Scientific Chair of the Alberta Rheumatoid Arthritis and Pharmacovigilance Program and Outcomes Research in Therapeutics (RAPPORT) committee, and a Principal Investigator and Executive Board member of the Spondyloarthritis Research Consortium of Canada (SPARCC). He is past-Chair of the Scientific Committee of the Canadian Rheumatology Association. Continue reading

CRA Interview Series 2015 – Ms. Marie-Josée Berthiaume: MRI of Spondyloarthropathies

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Ms. Marie-Josée Berthiaume: MRI of Spondyloarthropathies – The New Gold Standard

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube.

Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

Note answers in this interview are provided in French only. A translation will be provided in the next few weeks.

About Ms. Marie-Josée Berthiaume

Picture of Marie JoseeMs. Marie-Josée Berthiaume is a bone radiologist from Maisonneuve-Rosemont Hospital in Montreal. In her presentation, she reviewed how new imaging outcomes have improved the diagnosis and follow-up of spondyloarthritis and the assessment of therapeutic modalities.  Continue reading

CRA Interview Series 2015 – Ms. Jo-Anne Marcuz: Update on Juvenile Spondyloarthritis

Arthritis Broadcast Network’s “CRA Interview Series 2015″ – Ms. Jo-Anne Marcuz: Part II – Update on Juvenile Spondyloarthritis 

Today’s feature interview – Ms. Jo-Anne Marcuz

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Jo-Anne Marcuz (From SickKids)

Picture of Jo-Anne

Picture from SickKids

Jo-Anne Marcuz is a graduate of the University of Toronto and has been working as a Physical Therapist in the Department of Rehabilitation Services at SickKids since 2003. She has had the privilege of working within the Division of Rheumatology since 2005. Jo-Anne’s clinical expertise is in the area of pediatric rheumatic disease and associated musculoskeletal disorders. She also has experience helping to manage chronic pain and cardiorespiratory conditions like CF.

Jo-Anne holds a status-only appointment of Lecturer at the University of Toronto, Department of Physical Therapy and has enjoyed classroom and clinical teaching for several years. Additionally, she is a member of the Arthritis Health Professions Association the allied health professionals division of the Canadian Rheumatology Association. Continue reading

CRA Interview Series 2015 – Dr. Shirley Tse: Update on Juvenile Spondyloarthritis

Arthritis Broadcast Network’s “CRA Interview Series 2015″ – Dr. Shirley Tse: Part I – Update on Juvenile Spondyloarthritis 

Today’s feature interview – Dr. Shirley Tse

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning, March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Shirley Tse

Picture of Dr. Shirley TseDr. Shirley Tse is an Assistant Professor in the Department of Paediatrics at the University of Toronto. She is also the Program Director for the Division of Rheumatology at The Hospital for Sick Children in Toronto. At the Canadian Rheumatology Association’s 70th Annual Scientific Meeting in February, she gave a presentation titled “Update on Juvenile Spondyloarthritis: Practical Tips for Translation to Clinical Practice”.

 

About Juvenile Spondyloarthritis (From spondylitis.ca)

Juvenile Spondyloarthritis, also called Juvenile Onset Spondyloarthritis (JSpA) and Juvenile Idiopathic Arthritis – Enthesitis Related Arthritis (JIA-ERA).

Juvenile Spondyloarthritis describes a group of arthritic diseases that start before the 16th birthday. The term Juvenile Idiopathic Arthritis (JIA) was introduced to standardize and classify the different arthritic conditions seen in children. Juvenile Spondyloarthritis is now classified as Enthesitis Related Arthritis (ERA) in this new system. Enthesitis is inflammation where tendons or ligaments attach to the bone. Enthesitis is a major manifestation of SpA especially in children. In fact unlike adult onset SpA, JSpA / ERA may start as peripheral arthritis or enthesitis in the majority with axial manifestations appearing only later on.

JSpA includes all the Spondyloarthritis diseases of Ankylosing Spondylitis, Psoriatic Arthritis, Reactive Arthritis, Enteropathic Arthritis (arthritis associated with Inflammatory Bowel Disease) and Undifferentiated Spondyloarthritis. To learn more about JIA, please visit here on the JointHealth™ website.

AS it Goes – We are ALL Arthritis Athletes

Arthritis athletes

Courtesy of Vlado | freedigitalphotos.net

The litany of famous athletes who suffer from various types of arthritis is long: golfers, cyclists, figure skaters, baseball stars, downhill skiers … you get the idea. There are countless athletes performing and competing at world-class levels in every imaginable sport. They do it all despite their arthritis and many have become high-profile and public supporters for their form of arthritis.

These athletes have found a way to compete at the highest echelon of their sport even as they suffer from the effects of arthritis. They do it with the aid of sports psychologists (keep attitudes positive), physiotherapists (keep joints limber), coaches (keep on the game), trainers (keep in top physical shape), medical personnel (keep tweaking meds), and maybe a financial advisor and a business agent too. On the other hand, we mere mortals must play all those roles (and more) by ourselves and all at the same time. The team behind us is far less comprehensive: probably a medical doc (rheumatologist) and then a bunch of friends and family cheering us on from the sidelines.

We are all arthritis athletes

Courtesy of lamnee | freedigitalphotos.net

In recent years, arthritis research and advocacy organizations have made important inroads in creating public awareness about the many types of arthritis (and related inflammatory diseases). However, I think that there’s nothing like an athlete’s star power to help focus attention on arthritis, which until recently was not understood or even considered a “serious” disease by many health professionals.

Athletes are terrific ambassadors for spreading the word about arthritis; their personal stories provide comfort and inspiration about how they cope with their condition during their sports careers. They possess the ideal public platform to get out the message about arthritis’ deleterious impact on millions of lives. In bringing awareness to the seriousness of the disease, they also help to direct more dollars towards research and ultimately, a cure.

Fran HalterPersonally, we all deserve to consider ourselves as winners. Every day, we haul our pain around with us, we cope with hurting joints and aches, and the secondary effects created by various medications, including fatigue and depression. Unlike high-performing athletes, we do this without the benefit of a team of medical and/or health professionals. We participate as best we can in the “game” of life; we find our personal motivation and encouragement to keep moving. We may not run marathons, bolt down ski slopes at breakneck speeds, or drive a golf ball 300 yards, but we are all arthritis athletes in our own right. ~Fran