All posts related to "study"

“Preventing Rheumatoid Arthritis (Pre-RA): perspectives of people with RA, people at risk and of rheumatologists” study

Logos for pre-ra rheumatoid arthritis study“Preventing Rheumatoid Arthritis (Pre-RA): perspectives of people with RA, people at risk and of rheumatologists” study

Join the study as a patient with RA or first-degree relative

A research study funded by the Canadian Rheumatology Association’s Initiative for Outcomes in Rheumatology cAre (CIORA) wants to understand the perspectives of people with RA, those at risk of RA and health care providers about potential treatments aimed at preventing rheumatoid arthritis. Arthritis Consumer Experts is a partner organization on the project.

Are you:

  • Aged over 18?
  • Someone with rheumatoid arthritis OR you have a first degree relative (parent, sibling, adult child) with rheumatoid arthritis?
    AND,
  • Someone with access to a computer and the internet?

Continue reading

Young generations reporting arthritis at an earlier age

Picture of youths in the park for arthritis articleA Canadian Study in Arthritis Care & Research concludes that young generations are reporting arthritis at an earlier age. The authors of the study believed it is linked to rising obesity rates.

The study looked at arthritis incidence in four different groups:

  • The World War II group (1935-1944) is the benchmark group.
  • The generation Xers (1965-1972), where the odds ratio for arthritis was 3.20.
  • The younger baby boomers (1955-1964), where the odds ratio for arthritis was 2.14.
  • The older baby boomers (1945-1954), where the odds ratio for arthritis was 1.48.

The study was conducted by Elizabeth Badley, PhD, of the Dalla Lana School of Public Health at the University of Toronto, and her colleagues. Bailey and her team found that severely obese people were 2.5 times more likely than people with a normal body mass index (BMI). Continue reading

Walk10Blocks helps get sedentary people moving

The Vancouver Coastal Health Research Institute published a news article about the Walk10Blocks app, commenting how researcher-consumer-patient group collaboration can facilitate knowledge translation. The Walk10Blocks team thanks the Vancouver Coastal Health Research Institute and other groups for sharing the Walk10Blocks app with their network.

Below is an excerpt of the article:

Researcher-consumer-patient Group Collaboration Facilitates Knowledge Translation

Two people walking with Walk10Blocks app on mobile phoneWalk10Blocks helps get sedentary people moving.

The development process behind a new app to help sedentary people get moving shows how unique partnerships between researchers, consumers, and patient groups can lead to innovative health research. Vancouver Coastal Health Research Institute (VCHRI) scientists Dr. Linda Li and Dr. Teresa Liu-Ambrose credit the collaboration between themselves and consumer and patient groups, including Arthritis Consumer Experts, the Alzheimer Society of B.C., and CARP (the Canadian Association of Retired Persons), for the development of the Walk10Blocks app.

Dr. Linda Li, professor in the Department of Physical Therapy at the University of British Columbia and Canada Research Chair in Patient-Oriented Knowledge Translation at UBC and Arthritis Research Canada. 

“We’re very proud of this collaboration. It’s a perfect example of how researchers getting together with patient and public groups can come up with innovative ideas and actually make things happen,” says Dr. Li.

“I’ve built apps before for other research projects and it usually takes a very long time. Walk10Blocks only took one year from conception to testing launch in the community. When consumer and patient groups are involved–they know what works and they’re really driven to get things done fast and done right.”

Walk10Blocks is the first app designed specifically to help adults get over the hurdle of starting regular physical activity by encouraging them to walk 10 blocks a day (or about one kilometre per day), which according to research may help delay or minimize risk of dementia and improve cardiovascular and joint health over time. 

Walk10Blocks, which is currently available for free on iTunes, can be installed on an iPhone 5S or above. The app uses the phone’s core motion sensor to collect data about a person’s movement activity. The app converts this activity into a walking log, which tracks the distance travelled throughout the day and how many theoretical city blocks have been covered. The goal is to encourage sedentary people to walk at least 10 blocks per day. The app offers motivating, friendly alerts, has easy-to-read measurements, helps set reasonable walking goals, and awards badges for meeting goals.

By downloading the app, Walk10Blocks participants have also agreed to take part in an innovative research study that uses the app to collect data through surveys. Information gathered for the study includes patients’ fatigue, pain, mood, stress, and walk ratings to give researchers a better understanding of what individuals’ walking opportunities look like. The study also aims to help users recognize and understand their own physical activity levels and sedentary behaviour, create awareness about neighbourhood resources, and determine the overall feasibility of the app.

Development of the app started with one of Drs. Li and Liu-Ambrose’s research groups consulting with patient groups and receiving a grant from the Improving Cognitive and Joint Health Network (ICON), a Canadian Institutes of Health Research knowledge translation catalyst network.

“What we heard loud and clear through our consultations was a desire for more efficient, effective use of what we know about physical activity and its health benefits in terms of managing diseases, especially for people whose health may worsen without it.”

Early on, the groups met with Dr. Liu-Ambrose, researcher at the Djavad Mowafaghian Centre for Brain Health and the Centre for Hip Health and Mobility, who shared with them current evidence with relation to exercise and cognitive function. According to Dr. Li, the group was most interested in findings from a nine-year observational study in the U.S. that showed that walking approximately 10 city-sized blocks results in better cognition and better brains.

“That specific information had our consumer groups almost jumping for joy because to them it was finally something concrete that could be used and brought back to stakeholder groups as the minimum amount of physical activity you needed to do for positive effect,” according to Dr. Li.

Dr. Liu-Ambrose, who is also Canada Research Chair in Physical Activity, Mobility, and Cognitive Neuroscience, says the group got quite motivated by the idea that you don’t necessarily need to run a marathon to have a positive impact on brain health. “This led to the concept of the app and Cheryl Koehn, president of Arthritis Consumer Experts and head of our arthritis patient group, really has been the driving force behind it.”

“The evidence is accumulating to suggest that exercise is beneficial–but where there is a void is how to put it into action. The app is a bit of that component,” she adds. “When everyone has a common goal and shared interests, I think that’s when we make good progress.”

“And so in many ways, recommending regular activities, such as moderately paced walking, seems to be a pretty reasonable approach for promoting physical and cognitive health over the lifespan.”

Have you started talking about biologic medications for Rheumatoid Arthritis with your doctor?

Super Study bannerThe latest online tool to help make your treatment decisions.

We are looking for people to participate in a study to determine the usefulness of a web-based program designed to aid people with rheumatoid arthritis in making decisions to start or switch biologics.

If you have started discussing STARTING OR SWITCHING BIOLOGICS with your doctor, we invite you to participate in this study.

You may be eligible if you:

  1. Have a diagnosis of rheumatoid arthritis
  2. See a rheumatologist
  3. Have started discussing switching or starting biologic medication with your doctor
  4. Have a valid email and internet access

This study can be completed from home or anywhere with internet access. Any information you provide will be completely confidential. An honorarium will be provided for your time.

If you would like more information, please contact Jasmina Geldman, Research Coordinator by phone at 604-207-4007, toll free 1-877-871-4575, or email jgeldman@arthritisresearch.ca. Please also visit our UBC Study Website for more information.

Chronic diseases decrease social participation in middle-age population

Three girls in front of a blue backgroundA recent study from McMaster University found that middle-aged adults living with a combination of arthritis, heart disease, diabetes, and/or depression are more likely to experience disability and limited involvement in society.

The research was conducted by Lauren Griffith, an associate professor in the Department of Clinical Epidemiology and Biostatics and the McLaughlin Foundation Professorship in Population and Public Health. Researchers from McMaster University published the study in the Journal of Epidemiology and Community HealthThey found that physical and mental chronic diseases, alone or in combination, were associated with disability and reduced social participation. The results differed by gender and age. Continue reading

Social networking and disease management in arthritis

Effects of Social Networking on Chronic Disease Management in Arthritis

Do you have rheumatoid arthritis? Sign up for the Social Networking for Arthritis Patients (SNAP) study now.

SNAP BannerThe Social Networking for Arthritis Patients (SNAP) study is funded by The Rheumatology Research Foundation, a non-profit organization dedicated to research to improve the health of people with arthritis. Throughout the study, you will be having social interactions with patient representatives from The Arthritis Foundation, The International Foundation for Autoimmune Arthritis and The Arthritis Society. You may qualify for the study if you:

  • Are 18 years or older
  • Have been diagnosed by a doctor as having rheumatoid arthritis for 10 years or less
  • Have an email address
  • Able to communicate in English
  • Are comfortable with using the internet
  • Are familiar with social media
  • Live in the United States of America or Canada

Your participation would be online only and you will receive compensation for your time and effort. Your expected time commitment is 6 months. The participant will be asked to access webpages and complete online questionnaires at three time points.Do you have rheumatoid arthritis? Sign up for the Social Networking for Arthritis Patients (SNAP) study now.

This study is being conducted by investigators at the University of Texas MD Anderson Cancer Center. To find out if you are eligible to participate, contact Jessica, research coordinator, at 1(713)563-8817 or email snaparthritis@gmail.com.