The next general election in British Columbia is scheduled for May 9, 2017. What change would you want to see?
Arthritis affects 1 in 5 British Columbia residents, so healthcare to treat the more than 100 different types of the disease is extremely important to the more than 600,000 British Columbians living with the disease. Any party that wishes to become government needs to consider these constituents. To help the parties understand this, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the 2017 BC Provincial Election.
The questionnaire asked the following questions: Continue reading
As part of an international network of RA patient organizations, Arthritis Consumer Experts invites you to participate in a global survey of RA patients to examine the diagnosis, treatment and care they receive for their RA. The goal of this survey is to understand, from the patient experience and perspective, how current “models of care” for rheumatoid arthritis compare between countries.
Your experience and perspective matter
As a person living with RA, sharing your experiences about the care you receive is vitally important. With your help, we can meet the study goals and develop education and information programs to improve patients’ understanding about RA models of care to enable the best treatment outcomes possible in Canada.
How you can participate
If you agree to participate, you will be asked to answer a survey questionnaire, which should take approximately 10 minutes to complete. All the information gathered during the survey will be combined to protect your privacy and anonymity.
To be eligible to participate in this survey, you must:
- Be 18 years of age or older
- Receive health care in Canada
- Have access to the internet
Thank you for considering our request to participate in this survey. Your participation will help you and other people living with RA in your country know more about the health care they should be receiving.
Please click here to complete the survey.
A survey to learn what people think about the use of large data sets for research purposes
PURPOSE OF THIS STUDY:
Big Data, in health care, is large and complex sets of data that have information routinely collected on patients’ health and their use of health care systems.
The purpose of this study is to understand the public’s knowledge and opinions about the use of Big Data in Canadian health research. This includes:
- Current level of knowledge about Big Data;
- Willingness to participate in projects using Big Data;
- Major concerns about the use of Big Data;
- Interest in learning more about research using Big Data;
- Preferred modes of receiving more information about Big Data
RA Matters is an international project aiming to explore what matters most to people living with RA. Using online crowdsourcing to invite participants, RA Matters asks questions about relationships, activities, work and aspirations, in order to reveal the most important aspects of day-to-day life. RA Matters aims to elevate a global conversation that sheds light on what those with RA really want and – ultimately – help them live the best life possible.
JointHealth™ Survey on BC PharmaCare policy
Arthritis Consumer Experts (ACE) is asking for your valuable feedback on new BC PharmaCare policy.
Arthritis Consumer Experts (ACE) is asking for your valuable feedback on new BC PharmaCare policy. Gathering your views is very important to the advocacy work that we do on your behalf.
This survey includes 13 questions for people living with arthritis and will take approximately 10 minutes to complete. Your participation will be anonymous and the results will be pooled for analysis to assure your complete privacy. Your responses will in no way impact on your health care or public health insurance coverage.
Thank you for taking the time to participate in this important survey. Your feedback helps us to improve the quality and relevance of Arthritis Consumer Experts’ work.
If you have any questions or comments, please contact us at: email@example.com.
Do you have a burning question you would like to ask?
Arthritis Consumer Experts (ACE) asks Manitoba’s political leaders to share their plan on how to improve arthritis prevention, treatment and care.
Arthritis has devastating and debilitating effects on the lives of more than 180,000 Manitoba residents aged 15 years and above. Arthritis is the leading cause of disability and work disability in Manitoba. About a quarter of the population with arthritis between 20 and 54 years of age in Manitoba were not in the labour force because of their arthritis, costing Manitoba’s economy more than $600 million in productivity losses. Continue reading