ACE has carefully monitored the research on biologic use during pregnancy in response to the many ACE members who are thinking of starting a family and have concerns about continuing their medications.
We have previously reported on the study by Dr. Mary De Vera, Assistant Professor at the University of British Columbia’s Faculty of Pharmaceutical Sciences, and her team on “Patterns of medication use before, during, and after pregnancy among women with systemic lupus erythematosus: A population-based study”.
Dr. De Vera’s team assessed the use of medications in pregnant women with lupus in British Columbia. Most pregnancy trimesters in the study were exposed to hydroxychloroquine and/or chloroquine (41 to 45% of exposed pregnancy trimesters). The research observed an increase in glucocorticosteroid (like prednisone) exposures during pregnancy, as well as post-delivery. Findings emphasized the importance of counseling women regarding childbearing decisions as well as the need for evaluation of the risk-benefit profiles of medications in pregnancy. Continue reading →
Findings from a recent study published in the European Journal of Pharmacology may explain why Raynaud’s is more common in women of childbearing age. The study examined the relationship between palm blood flow and estrogen in mice. According to researchers, “estrogen may contribute to the development of Raynaud’s phenomenon in women”.
Estrogen is a one of two main sex hormones that women have. It is responsible for female physical features and reproduction. Estrogen creates the changes common in puberty, such as growth of the breasts, hair in the pubic area and under the arms and the beginning of menstruation. The hormone helps control the menstrual cycle, protect bone health and keep cholesterol in control. Below is a helpful infographic Hormone Health Network to help you understand what estrogen is.
The European League Against Rheumatism (EULAR) has published updated recommendations on the management of fibromyalgia. The detailed recommendations can be found in the Annals of the Rheumatic Diseases.
Fibromyalgia is a condition characterized primarily by chronic widespread pain (CWP) in the muscles, ligaments and tendons, and a heightened sensitivity to touch resulting in pain that can last for months.
Since 1984, the YWCA Women of Distinction Awards have honoured over 250 award recipients and more than 1,450 nominees. The award honours individuals and organizations whose outstanding activities and achievements contribute to the well-being and future of our community. There are twelve possible categories for nomination:
Arts, culture & design
Business & the professions
Education, training & development
Entrepreneurship & innovation
Health & wellness
Research & the sciences
Young woman of distinction
Arthritis Consumer Expert’s very own Cheryl Koehn has been nominated under the health and wellness category. Anyone who has been nominated is described as:
A woman who has an unwavering commitment to delivering, promoting and advocating for healthy lives and communities. She has made a significant and sustained difference in Metro Vancouver while empowering her community to change or better their lives through improved health and wellness practices. She may be a physician, practitioner, nurse or other woman committed to health and wellness.Continue reading →
The information obtained through this survey will be analyzed and used to develop an educational resource for pregnancy and parenting with arthritis.
Arthritis affects individuals in many aspects of their life, including decisions regarding pregnancy and in carrying out their role as a parent. As a result, the Canadian Arthritis Patient Alliance has launched a project to identify patient information needs as it relates to pregnancy and parenting.
The survey is intended for individuals living with arthritis and for people in their social support network. The information obtained through this survey will be analyzed and used to develop an educational resource for pregnancy and parenting with arthritis.
Share your perspective by taking the survey and help shape the development of this important resource! The survey will take approximately 10 minutes to complete.
Would you like to provide input to inform CADTH’s report and CDEC’s advice?
The Canadian Agency for Drugs and Technologies in Health (CADTH) has received a request for advice for denosumab (Prolia®). The request for advice comes from their participating drug plans, and can result in a revised Canadian Drug Expert Committee (CDEC) recommendation or a CDEC Record of Advice.
CADTH is interested in learning:
How should fracture risk be best described?
Is there a place for age (>75 years) or bone density scores, or are these adequately captured within fracture risk?
How should bisphosphonate failure be best described?
How should bisphosphonate intolerance be best described?
Image courtesy of Naypong at FreeDigitalPhotos.net
I can hear the sound of the spill even before it happens. Why? Because it’s a predictable outcome and it’s an oft-repeated event in our household. The noise I am referring to is the sound of a plastic pill bottle with 250 capsules hitting a tile floor and bouncing…. everywhere. The scattershot is usually followed by a few select curses and my name.
The issue is that I don’t put the childproof caps back on bottles (or any other hard-to-open bottle top, for that matter). The osteoarthritis in my thumbs and other finger joints make it a struggle-and-a-half to twist and line-up the arrows and then press down sufficiently hard while turning in the slim hope that I will actually succeed in freeing a childproof cap. Once I manage to get those dang tops off, I simply leave them off. Sometimes I rest the cover on top of the bottle, which is a deceptive practice because it appears that the top is securely closed (my bad), which leads to unfortunate incidents, such as the spill situ described above. Continue reading →
As we celebrate the FIFA Women’s World Cup™, Team Arthritis wants to pay tribute to team USA’s midfielder Shannon Boxx, who, living with lupus, is all too familiar with life with arthritis. This year’s World Cup™ marks Boxx’s fourth Women’s World Cup™.
Fun Fact: Midfielders run a distance of 120-yard across the field to play offense and sprints back to play defense, running about 7 miles in a 90-minute game and engaging in close combat to gain possession of the ball. Continue reading →
Join Team Arthritis and celebrate the FIFA Women’s World Cup™
Arthritis Consumer Experts (ACE) has created Team Arthritis to celebrate the athletes in the 2015 FIFA Women’s World Cup™. Our goal is to raise awareness of how women living with arthritis can remain active and achieve high performance in their lives.
We encourage women living with arthritis, their friends and family, and members of the public to join Team Arthritis and share their stories. During the FIFA Women’s World Cup™, from June 6-July 5, ACE will share news and stories from the FIFA World Cup™. We will also share the latest information related to sports and injury and pose a series of challenges on Facebook that will stimulate your muscle and mind. Inspired by the World Cup ™, these challenges will be related to safe exercise, injury prevention, and living a balanced lifestyle. Please share your progress with us by posting and sending us pictures and stories of your accomplishments on our social media networks: Continue reading →
Researchers from the Karolinska Institutet in Stockholm say that exercise and physical activity may protect against the development of rheumatoid arthritis in women. The researchers studied 30,112 women enrolled in the Swedish Mammography Cohort who responded to a questionnaire in 1997 regarding physical activity. Participants were asked questions that assess daily energy use at home and wok and during leisure time. Researchers calculated the metabolic equivalent score based on duration, intensity and inactivity.
According to the research findings, 201 out of 30,112 women developed rheumatoid arthritis (RA) during the average follow-up time of 7.5 years, totalling 226, 477 person-years. Other findings include:
The women who developed RA expended less energy per week;
Women who spent more hours performing home or household chore had a 35% decreased risk of developing RA;
Women who spent 2 hours or more per week exercising had a 20% decreased; and,
Women who were inactive during their leisure time had a 27% increased risk for developing RA.