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Canadian Rheumatology Research Consortium Arthritis Research Centre of Canada Arthritis Consumer Experts

What resources do you want to see in the EQUIP-TJR toolkit?

EQUIP banner for research studyHere’s your chance to take a Canada-wide survey on the patient’s views on quality indicator resources for hip and knee replacement rehabilitation.

Researchers at the Centre for Hip Health and Mobility in Vancouver have developed quality indicators (QIs) for hip and knee replacement rehabilitation. Quality indicators state the quality of rehabilitation care that all patients having a joint replacement for hip or knee osteoarthritis (OA) should expect to receive. They are currently creating a ‘toolkit’ to help people like you and your families learn about these QIs and use them to: Continue reading

Forty percent of people will be affected by symptomatic hand osteoarthritis

picture of a hand over grassAccording to a recent study published in Arthritis & Rheumatology, forty percent of people will be affected by symptomatic osteoarthritis in at least one hand.

The study was conducted by the Arthritis Program at the U.S. Renters for Disease Control and Prevention in Atlanta. Lead researcher Jin Qin, Sc.D, and his team looked at 1999 to 2010 data on 2,218 individuals from North Carolina, ages 45 or older. Data collected include participant reported symptoms and hand X-rays.

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“Preventing Rheumatoid Arthritis (Pre-RA): perspectives of people with RA, people at risk and of rheumatologists” study

Logos for pre-ra rheumatoid arthritis study“Preventing Rheumatoid Arthritis (Pre-RA): perspectives of people with RA, people at risk and of rheumatologists” study

Join the study as a patient with RA or first-degree relative

A research study funded by the Canadian Rheumatology Association’s Initiative for Outcomes in Rheumatology cAre (CIORA) wants to understand the perspectives of people with RA, those at risk of RA and health care providers about potential treatments aimed at preventing rheumatoid arthritis. Arthritis Consumer Experts is a partner organization on the project.

Are you:

  • Aged over 18?
  • Someone with rheumatoid arthritis OR you have a first degree relative (parent, sibling, adult child) with rheumatoid arthritis?
    AND,
  • Someone with access to a computer and the internet?

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Free webinar – Citizen as KT agent: Keeping the government informed about research

KT Connect Free Webinar BannerThe Michael Smith Foundation of Health Research and Arthritis Research Canada have partnered to co-develop and host a series of monthly expert-led, beginner-level KT training webinars with the goal of developing a sustainable resource for researchers and trainees to learn knowledge and skills that will enable them to develop KT practice in their work.

Webinar details

Topic: Citizen as KT Agent: Keeping the government informed about research
Speaker: Cheryl Koehn, Founder and President of Arthritis Consumer Experts
Date and time: Friday, April 28, 2017 from 12:00 pm-1:00 pm PDT
Register: Please click here to register for this free webinar
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Do you have Rheumatoid Arthritis or Lupus? Join the OPAM-IA study and get active!

FitBit Tracker for Active livingParticipate in a new study that will use wearable activity trackers, paired with a new web application, and physical activity counselling to help you get more active!

Rheumatoid arthritis (RA) and systemic lupus erythematosus (SLE) are types of inflammatory arthritis that causes inflammation and deformity of the joints, and affects your immune system. Physical activity can help to decrease pain and disability in joints affected by RA and SLE while benefiting your overall health.

If you are a person living with RA or SLE, and are interested in getting more active, we invite YOU to participate in the OPAM-IA study. Through participating in the OPAM-IA study, you will learn how to get active with RA or SLE. You will be asked to attend an education session, use a Fitbit Flex activity tracker with the new web application, and receive counselling from a registered physiotherapist. The total time commitment for the study is 6 months.

If you are interested, please fill out a 2-minute screening questionnaire.All responses will remain confidential, and you will be contacted by a research staff member within 48 hours to discuss your eligibility further.

Survey Link:
http://open.arthritisresearch.ca/survey/index.php?r=survey/index/sid/455398/lang/en

For more information, contact Navi Grewal, study coordinator at 604-207-4053 or 1-844-707-4053 (toll free), or via email at opam.activity@arthritisresearch.ca.

Young generations reporting arthritis at an earlier age

Picture of youths in the park for arthritis articleA Canadian Study in Arthritis Care & Research concludes that young generations are reporting arthritis at an earlier age. The authors of the study believed it is linked to rising obesity rates.

The study looked at arthritis incidence in four different groups:

  • The World War II group (1935-1944) is the benchmark group.
  • The generation Xers (1965-1972), where the odds ratio for arthritis was 3.20.
  • The younger baby boomers (1955-1964), where the odds ratio for arthritis was 2.14.
  • The older baby boomers (1945-1954), where the odds ratio for arthritis was 1.48.

The study was conducted by Elizabeth Badley, PhD, of the Dalla Lana School of Public Health at the University of Toronto, and her colleagues. Bailey and her team found that severely obese people were 2.5 times more likely than people with a normal body mass index (BMI). Continue reading