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JointHealth™ insight – Summer 2018

English JointHealth insight front cover pageSmart Design for People Living with Arthritis

In this issue of JointHealth™ insight, we look at how smart choices in our living environments can make your arthritis experience easier, safer, and less painful, providing you solutions on how to modify your home or work environment.

In this issue, you will learn about:

  • Smart design solutions for home: Around the house, bedroom, dressing, kitchen, bathroom, laundry room, dining room, living room, and foyer
  • Smart design solutions for work: Desk and work schedule
  • The importance of educating co-workers and employers about arthritis

Continue reading

Participants needed for research in quality of care for hip and knee replacement rehabilitation

Have you had a hip or knee replacement in the last 4 months? Are you interested in being able to give feedback on the quality of rehabilitation care you received?

Picture of health care professional assessing hip and kneeYou are invited to take part in a study to pilot test a new questionnaire on the quality of rehabilitation care after joint replacement surgery.

Your feedback will help us to develop a patient-friendly questionnaire that will be included in an online toolkit of print and web-based resources that help people having joint replacement surgery participate in their own care and track the quality of rehab received.

You can participate if you:

  • Had a primary (first time) total hip or knee replacement surgery for osteoarthritis (OA) in the past 4 months
  • Have almost finished or just finished your supervised rehabilitation
  • Are 19 years of age or older
  • Speak and read English
  • Are comfortable using a computer

What does participation involve?

  • Complete a series of short online questionnaires and “think aloud” so a researcher can note any questions or issues you experience
  • Share your views about the online questionnaires during a short (45-minute) small group discussion immediately afterwards. Group discussions are currently planned for:
    • Thursday, August 23rd 10-11: 30 am and 1-2: 30 pm
    • Thursday, August 30th 10-11: 30 am

For more information about this Study please contact:
Paul Drexler

Centre for Hip Health and Mobility
2635 Laurel Street, Vancouver
Phone: 604-675-2578 or
E-mail: equip@hiphealth.ca

Honorarium, refreshments & parking provided!

Please take the development survey for an “Osteoarthritis (OA) Information Tool for Patients”

The Osteoarthritis (OA) Information Tool for Patients will be a valuable information and education resource for people experiencing early or established hand, knee and/or hip OA.

The Arthritis Alliance of Canada, The College of Family Physicians of Canada and the Centre for Effective Practice need your help to inform the development of a new and valuable information and education resource for people experiencing early or established hand, knee and/or hip osteoarthritis. The Osteoarthritis (OA) Information Tool for Patients will assist patients in having better conversations with their doctor or other health care professional(s) by informing them about the care they can expect to receive.

The survey will take approximately 10 minutes to complete. Your participation will be anonymous. The deadline to complete the survey is Wednesday, July 25, 2018 at 5pm Pacific Standard Time.

Thank you for your time and help!

Sincerely,

Arthritis Consumer Experts

Call for nominations: Help us celebrate community leaders living with arthritis!

Do you know a person with arthritis who has, or is, providing leadership in the community and deserves recognition for their valuable volunteer work? We encourage you to help us celebrate their contributions by nominating them for the Qualman-Davies Arthritis Consumer Community Leadership Award.

Qualman-Davies Award Slide

The Qualman-Davies Arthritis Consumer Community Leadership Award was created in 2014 to recognize one person’s contributions to helping Canadians living with the disease to be heard in decision-making processes that affect millions. That’s what Ann Qualman and Jim Davies did as early pioneers in arthritis advocacy in Canada. Their tireless and selfless efforts helped millions of Canadians.

To submit a nomination, please follow the steps listed below:

  1. Obtain the prospective nominee’s consent to be nominated prior to submitting this form
  2. Click here for the nomination form. If you create a separate nomination document, please use the headings provided on the Nomination Form PDF for ease of review by the award adjudication committee.
  3. Provide the completed nomination form to the nominee for their review for accuracy and obtain their signature on the document
  4. Submit the form to feedback@jointhealth.org

The application deadline is September 20, 2018. Each submission will be reviewed by the award adjudication committee and scored using a points system. The winner and their nominator will be notified by October 2, 2018. The award will be announced at the Arthritis Alliance of Canada’s 2018 Annual Meeting Reception taking place on Wednesday, November 21, 2018 in Toronto, Ontario.

EULAR News – June 22, 2018: A final observation from this year’s EULAR meeting

EULAR News – June 22, 2018

A final observation from this year’s EULAR meeting
newspaper in mail slot

A final observation from this year’s EULAR meeting encouraging to all patients is the emphasis many sessions had on the importance of patient participation and partnerships for achieving research outcomes that are relevant to the actual patients. Many presentations clearly communicated that no matter how complicated the research or how brilliant the researcher, patients can always offer unique, invaluable insights.

Experience in Europe and North America has shown that patient advice when designing, implementing and disseminating research outcomes makes studies more effective, more credible and possibly even more cost efficient.
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EULAR News – June 16, 2018

newspaper in mail slot

The benefits of exercise in inflammatory arthritis and osteoarthritis

ACE has frequently written about the benefits of exercise in inflammatory arthritis (IA) and osteoarthritis (OA). During a series of EULAR presentations, speakers provided evidence for regular physical activity for IA and OA patients.

Anne- Kathryn Rausch, an academic from Zurich University, spoke about how general recommendations for physical activity are effective, safe and feasible for patients with ankylosing spondylitis, rheumatoid arthritis, and osteoarthritis.
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JointHealth™ insight – June 2018

JointHealth™ Education Advanced Therapies for Inflammatory Arthritis – “Knowledge is power!”

JointHealth insight title page
In Arthritis Consumer Experts’ (ACE) June JointHealth™ insight, they introduce their newest JointHealth™ education course, Advanced Therapies for Inflammatory Arthritis.

This edition of JointHealth™ insight covers the following topics:

  • The inspiration behind JointHealth™ education, and other courses offered through the program
  • Conventional and advanced therapies for inflammatory arthritis
  • The importance of understanding therapy choices
  • A lesson plan for JointHealth™ Education Advanced Therapies for Inflammatory Arthritis
  • A rheumatologist’s perspective on the new course
  • A patient “graduate’s” perspective on the new course
  • Other resources related to advanced medications and therapy changes in Canada

To sign up for the JointHealth™ Education Advanced Therapies for Inflammatory Arthritis course, please click here.

Call for patient input on tofacitinib (Xeljanz®) for psoriatic arthritis

Megaphone GraphicDo you have psoriatic arthritis or care for someone who does? We need your valuable input.

The Common Drug Review (CDR) is currently welcoming patients and their caregivers to provide input on the manufacturer’s submission for tofacitinib (Xeljanz®) for the treatment of psoriatic arthritis (PsA) when the response to previous disease-modifying anti-rheumatic drug (DMARD) therapy has been inadequate.

The CDR is part of the Canadian Agency for Drugs and Technologies in Health (CADTH). The CDR conducts objective, rigorous reviews of the clinical and cost effectiveness of drugs, and provides formulary listing recommendations to the publicly funded drug plans in Canada (except Quebec).

To help them make their recommendations, the CDR accepts input from patient groups, like Arthritis Consumer Experts (ACE). We would like to gather your views and share them with the CDR.

These are the questions they are asking: Continue reading

“KT” = knowledge transfer, right to your Facebook and Twitter Live feeds!

Arthritis Consumer Experts (ACE) is excited to host its inaugural ABN #Greek2Street Facebook and Twitter Live event at this year’s KT Canada Scientific Meeting being held in Vancouver, BC. 

KT Canada Scientific Meeting Banner

 

Knowledge Translation (KT) is the umbrella term for all of the activities involved in moving research from the laboratory, research journal, and the academic conference into the minds of organizations and people who can put it to practical use in the clinical office to improve health outcomes.

Cheryl Koehn explains: “#Greek2Street is the magic behind good Knowledge Translation: getting language and ideas that sound like “Greek” out to the “street” so people can put scientific knowledge into action in our everyday lives.”

Using the latest social media technology, consumer-patient “reporters” will help us de-mystify the world of KT through live interviews with conference presenters and attendees that will be broadcast to the public through Facebook and Twitter. Arthritis Consumer Experts has successfully run a similar event called #CRArthritis at the Canadian Rheumatology Association and Arthritis Health Professions Annual Meetings.

Join the KT conversation online at the Arthritis Broadcast Network (ABN) Facebook page or Twitter (@ArthritisNetwrk) feed using #Greek2Street. Interviews will take place from Thursday, June 7th until Friday, June 8th. Like, share and retweet the live interviews, send us your comments or questions through Facebook and Twitter during the interviews. A reminder that the interviews remain on the ABN Facebook Page and will be made available on the ABN YouTube channel under “KT Canada: ABN #Greek2Street Facebook and Twitter Live 2018“.

Please note the KT Canada Scientific Meeting is presented in English.

Election day is tomorrow. Make your voice count.

The general election in Ontario is scheduled for June 7, 2018. What have party leaders and candidates said about arthritis care in Ontario? 

Ontario Election BannerArthritis is a chronic disease that has a devastating and debilitating effect on the lives of more than 6 million Canadians and more than two million Ontario residents. Provincial policy directly impacts the lives of those living with arthritis and their families. The next Ontario provincial government must acknowledge the gaps in arthritis care and offer some solutions to the pressing issues facing people living with arthritis. To learn more about arthritis in Ontario visit our ON Election 2018 page.

On June 7th make your voice count. Arthritis needs to be heard and this can only be achieved through individuals exercising their right to vote to make positive changes in provincial arthritis care.

Arthritis Consumer Experts (ACE) sent a questionnaire to the party leaders and candidates of the 2018 Ontario Provincial Election, asking for their comments and promises on the following subjects:

  • models of care
  • arthritis education
  • Aboriginal arthritis care
  • reimbursement for inflammatory arthritis medications
  • flexible work arrangements

Over the past month, ACE collected Party and individual candidate’s responses. Responses have been posted on the ON Election 2018 section of ACE’s website, and we will continue to post responses as we receive them, up until the day of the election.

See what party leaders and candidates have said about issues related to arthritis in Ontario in order to make an informed vote for improving arthritis prevention, treatment, and care in Ontario.

If you have comments, questions, or concerns about any of the answers provided by candidates or party leaders, please take the time to contact the parties directly. Please click here to view the contact information for the registered political parties in Ontario.

Did their responses help you decide how you will vote? Tell us what you think of their answers. Please contact us by email.