Living your best life with arthritis.

AS it Goes – My Donation is in the Mail

It’s that time of year again . . .

Donate: donation is in the mail

Image courtesy of Winnond | FreeDigitalPhotos.net

when the soliciting machine cranks up its fundraising pleas for donations to worthy or charitable causes. I regularly receive solicitations from university alumni associations, hospital foundations and non-profit organizations asking me for a contribution. Sometimes these groups ratchet up their fundraising appeals with personal telephone calls, asking me to renew an earlier pledge or to make a one-time “special” donation for an especially critical need. Continue reading

ACR News – Happiness from the Inside Out: A patient’s perspective

Picture of a butterflyCynthia Coney, MEd, CAPP, was the keynote speaker, and spoke as a patient living with lupus, at ACR’s ARHP Keynote Address: Happiness from the Inside Out. Coney is a nationally recognized speaker, trainer, and author. She holds a Master’s Degree in Educational Leadership and is a Master Trainer for the Centers for Disease Control and Prevention (CDC) and The Center for Prevention Workforce Development. Her publications include: Earned Income: A Critical Resource for Sustainable Nonprofit Health Organizations, Intellectual Property for Nonprofit Organizations, and The Wild Woman’s Guide to Living with Chronic Illness.

As a patient who’s been diagnosed with lupus in 1980, she shared her experience as a patient receiving care and support for more than 30 years. She had one advice to offer health professionals, that is: offer empathy, not sympathy.

Continue reading

Chronic Pain Webinar Series – CPSMP: The international perspectives

Presentation stickmanThe Canadian Institute for the Relief of Pain and Disability will be hosting, as part of their Chronic Pain Webinar Series, The Stanford Chronic Pain Self-Management Program (CPSMP): International Perspectives on Thursday, November 20 at 8:30am PST.

The CPSMP is a two-and-a-half hour workshop given once a week, for six weeks, in community settings such as senior centers, churches, libraries and hospitals. The workshop covers the following topics: Continue reading

AS it Goes – Participation: A Way to Be Heard

Participation: A Way to Be Heard

Image courtesy of Ambro at FreeDigitalPhotos.net

I am not an Arthritis Superhero. I don’t work at one of Canada’s best workplaces for employees living with arthritis. I didn’t participate the annual World Arthritis Day in any special way other than my daily dog walk. I don’t produce videos on living with arthritis to win international acclaim. Nor have I ever been nominated or honoured for any outstanding community leadership in the arthritis field—nor do I expect to be recognized.

What I am is one of the 4.6 million men, women and children diagnosed with arthritis, who soldier along as we cope with our maladies and pains as best as we can. While all of the above mentioned “happenings” connected with increasing arthritis awareness create an all-important public buzz, the rest of us mortals are left trying to figure how to climb a flight of stairs, or twist off the top from a jam jar, or find a comfortable sleeping position. In other words, it’s all about our personal struggle on a daily basis to get through the day (and night) in a positive way, and then try to repeat it over and over again . . . Continue reading

ACE joins forces with One & Only Campaign to promote safe injection practices

One and Only Campaign LogoACE joins forces with the USA’s Centers for Disease Control and Prevention’s One & Only Campaign

We are proud to announce that Arthritis Consumer Experts (ACE) has recently become a member of the One & Only Campaign, a public safety campaign to promote safe injection practices in all healthcare settings. By teaming up with the Safe Injection Practices Coalition, we’re joining professional groups, healthcare systems, provider groups, private companies and others dedicated to raising awareness of the importance of injection safety.

Continue reading

Life hacks for rheumatoid arthritis

Multi talk bubblesAccording to the results from the JointHealth™ Program Satisfaction and Interest survey, people living with arthritis want to learn about natural ways to help treat or ease the pain from arthritis, including rheumatoid arthritis (RA). Below are some life hacks for rheumatoid arthritis that you can consider. Please note that this article is for information purposes only and not intended to be medical advice. Talk to your healthcare provider before changing or starting a new treatment plan.

Continue reading