Living your best life with arthritis.

AS it Goes – Bridging the Patient-Doctor Divide

The doctor is listeningA checkup appointment at my rheumatologist (doctor who specializes in arthritis) always leads to some interesting discussions. Most of the time I try to “research” a topic beforehand, so that I am armed with the latest background information on whatever are my most pressing concerns at the time. When I launch into my questions (I always have a list written out), I have a better-than-even chance of holding a meaningful conversation with my rheumy. In turn, I get more out of the conversation instead of returning home with questions that even Google cannot answer. Understanding what he is really saying provides me with the sense that I am in control of my ankylosing spondylitis (AS), and not the other way around (AS controlling me?) Continue reading

CRA Interview Series 2015 – Mr. Michael Mallison: Thoughts from the CSA

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Mr. Michael Mallison: Thoughts from the Canadian Spondylitis Association (CSA)

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Mr. Michael Mallison

Michael MallisonMichael was diagnosed with Ankylosing Spondylitis ten years after onset. Looking for support, he joined the Ontario Spondylitis Association, becoming its Fundraising Chair and then President. Michael was elected the first President of the Canadian Spondylitis Association in 2007 and continues to fill that role. Continue reading

Mobile health: Are you in?

Arthritis IDArthritis Consumer Experts (ACE) co-defended, with Arthritis Research Canada, a poster presentation related to mobile health at the Canadian Rheumatology Association Annual Scientific Meeting. The presentation involved a survey of Canadians’ priorities and views about using digital media in arthritis prevention and treatment. The findings from the survey showed that 24.2% did not know how digital media could be used, 22.4% felt that digital media could provide education material, monitor exercise (15.4%), and track symptoms (7.8%).

“Overall, this survey uncovered gaps in the awareness of arthritis prevention and treatment, and the perceived role of digital media, presenting opportunities for future work and collaboration between ACE and researchers to advance knowledge translation in this important area,” said Cheryl Koehn, Founder and President of ACE.

What do you think about mobile health? Would you use it? Continue reading

CRA Interview Series 2015 – Ms. Anita Chan: Thoughts from ACE

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Ms. Anita Chan: Thoughts from Arthritis Consumer Experts (ACE)

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Ms. Anita Chan

Picture of Anita Anita is the Program Coordinator at ACE and iis responsible for research as part of the development and implementation of communications and public affair strategies. She plays a large role in media and social media outreach. She also coordinates special event plans and programs and is responsible for creative input into program design and implementation.

Continue reading

CRA Interview Series 2015 – Mr. Tristan Kerr on juvenile arthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Mr. Tristan Kerr – The risk of growth retardation and obesity in children with juvenile idiopathic arthritis (JIA) treated with contemporary treatments: Results from the ReACCh-OUT Cohort

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks. Continue reading

CRA Interview Series 2015 – Mr. Mark Warwas: Femoroacetabular Impingement

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Mr. Mark Warwas: Femoroacetabular Impingement (FAI) in Indigenous Population: Prevalence, Physical Functioning, Quality of Life, and Health Care Utilization

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks. Continue reading