National Arthritis Awareness Program

Nunavut Election 2017: On election day, vote for improved arthritis care

Nunavut Election 2017: On election day, vote for improved arthritis care.

The next general election in Nunavut is scheduled for October 30, 2017. How can we improve arthritis care?
Nunavut elections vote for arthritis banner
Arthritis affects approximately 12,000 adults aged 15 or older in the Territories (Northwest Territory, Nunavut and Yukon). On behalf of Nunavut voters living with arthritis, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the 2017 Nunavut Election.

Please note that unlike most federal or provincial elections in Canada, elections to the Legislative Assembly of Nunavut are conducted on a non-partisan consensus government model, in which all candidates run as independents rather than being nominated by political parties.

The questionnaire asked the following questions: Continue reading

Help raise awareness during Arthritis Awareness Month!

pen and paper for letter to editor on arthritis Help raise awareness during Arthritis Awareness Month!

You can help increase awareness and understanding of arthritis by sending this pre-drafted letter to the editor of your local newspaper.

September is Arthritis Awareness Month! Help increase awareness and understanding of arthritis by sending a letter to the editor of your local newspaper. We encourage you to edit this template letter to reflect your own experiences. Remember: Letters under 200 words have a better chance of being published. If you are submitting a letter to your editor via email, remember to include your name, home address and telephone number.

Compose your letter Continue reading

World Autoimmune Arthritis Day – Race is on! #WAAD17

#WAAD17 Graphic and BannerJoin the “virtual” race to increase public awareness of autoimmune arthritis

May 20 is World Autoimmune Arthritis Day (WAAD). The International Foundation for Autoimmune Arthritis established this commemorative date back in 2012. The virtual event unites dozens of nonprofits, advocates, and experts from around the world to provide educational and awareness information to patients, their supporters, and the general public.

Participants and partner organizations will participate in a virtual global race where they will visit social media and organizational websites and resources. WAAD is hosted on May 20th for the duration of all Time Zones (May 19th 6am EST – May 21st 5am EST). You can participate online on Facebook and Twitter and follow the event’s hashtag #WAAD17. On race day, help Team ACEwin the race and spread awareness:

Continue reading

Tell us how RA Matters to you

RA Matters is an international project aiming to explore what matters most to people living with RA. Using online crowdsourcing to invite participants, RA Matters asks questions about relationships, activities, work and aspirations, in order to reveal the most important aspects of day-to-day life. RA Matters aims to elevate a global conversation that sheds light on what those with RA really want and – ultimately – help them  live the best life possible.

RA Matters Banner Continue reading

From the Olympics to the ARThritis Soirée

Hristo demonstrating fencing with his studentWhat does one do after the Olympics? That is the question of the day for the Arthritis Olympic Village. For Bulgarian fencer Hristo Etropolski, it’s about establishing your own fencing club and participating in meaningful fundraiser galas such as the ARThritis Soirée.

The ARThritis Soirée is an annual fundraising gala to attract Vancouver’s most prominent business and community leaders, philanthropists, doctors, scientists, healthcare professionals, and donors through an appreciation of art and a desire to support arthritis research. Continue reading

ROAR 2015: Osteoarthritis and You – What you can do NOW!

ROAR 2015 BannerROAR 2015: Osteoarthritis and You – What you can do NOW!

Join us at an interactive public forum hosted by the Arthritis Patient Advisory Board of Arthritis Research Canada.

What do a rheumatologist, an orthopaedic surgeon, a clinical bio- mechanist, a clinical health researcher and an arthritis patient/consumer advocate have in common? They are all osteoarthritis (OA) experts, who will speak at ROAR 2015.

What do people with OA want to know? We are honoured to have six speakers share their research with us, guided by topics that represent the patient voice.

What is ROAR?
Continue reading

“Suffering the Silence” during Arthritis Awareness Month

A picture of Cheryl Koehn

Dear ACE community members,

I’ve had rheumatoid arthritis for over a quarter century now, and I’m sick of it.

Canadians living with one of over 100 types of arthritis are told to understand that what they have is “just arthritis.” They are frustrated by the self-management routine they are supposed to be “in charge of” because they don’t have access to the very things they are supposed to self-manage with. They’re discouraged to read about other important diseases in the media spotlight, but not their own. They’re saddened that yet another Arthritis Month in Canada has begun without a cure for any type of arthritis. That’s how I feel, too. What about you?

Our community continues to face significant barriers to elevating arthritis with the public, governments and workplaces across the country where the havoc wreaked by the diseases is still underestimated and poorly understood.

Well, I’ve had enough. We can’t passively accept arthritis. It maims and kills, but people seem afraid to say that. I’m going to start saying it in my life and in my work.

I am rheumatoid arthritis. Who are you?

We need to break through the sound barrier. Please take a moment and tell me, tell your arthritis sisters and brothers, who you are. I want to know. Make millions know.
Continue reading

World Autoimmune Arthritis Day – Race is on!

 

WAAD2015 LogoJoin the “virtual” race to increase pubic awareness of autoimmune arthritis

May 20 is World Autoimmune Arthritis Day. The International Foundation for Autoimmune Arthritis established this commemorative date back in 2012. The virtual event unites dozen of nonprofits, advocates, and experts from around the world to provide educational and awareness information to patients, their supporters, and the general public.

In the past, the event was organized as an online convention. This year, participants and partner organizations will participate in a virtual global race where they will visit social media and organizational websites, join live “detours” (webinars and web chats), and access community resource and raise awareness for autoimmune arthritis. During the Call to Action LIVE Awareness “Crowd Rallies” program, participants can join the Autoimmune Sing-a-Long Detour or submit a video contest on the topic of “raising your glass to raise awareness about autoimmune arthritis. Continue reading

CRA Interview Series 2015 – Linda Wilhelm on the Arthritis Patient Charter

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Linda Wilhelm on the Arthritis Patient Charter

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Linda Wilhelm

Picture of Linda

Linda Wilhelm is a mother, a grandmother, and an arthritis advocate who has lived with rheumatoid arthritis for over 30 years. Her advocacy work includes the following:

  • Atlantic Canada representative and Co-chair for the Consumer Advisory Council.
  • Operations committee member of the Best Medicines Coalition.
  • Frequent participation on Health Canada’s advisory panels and conferences on access and drug safety.
  • Two term member of The Expert Advisory Committee for Vigilance of Health Products.
  • Member of the Drug Safety and Effectiveness Network’s steering committee.
  • Active advocate for treatment access and quality of care both regionally and nationally.
  • Past board chair for the New Brunswick Division of The Arthritis Society.
  • President of the Canadian Arthritis Patient Alliance.

Continue reading