Join the “virtual” race to increase public awareness of autoimmune arthritis
May 20 is World Autoimmune Arthritis Day (WAAD). The International Foundation for Autoimmune Arthritis established this commemorative date back in 2012. The virtual event unites dozens of nonprofits, advocates, and experts from around the world to provide educational and awareness information to patients, their supporters, and the general public.
Participants and partner organizations will participate in a virtual global race where they will visit social media and organizational websites and resources. WAAD is hosted on May 20th for the duration of all Time Zones (May 19th 6am EST – May 21st 5am EST). You can participate online on Facebook and Twitter and follow the event’s hashtag #WAAD17. On race day, help Team ACEwin the race and spread awareness:
RA Matters is an international project aiming to explore what matters most to people living with RA. Using online crowdsourcing to invite participants, RA Matters asks questions about relationships, activities, work and aspirations, in order to reveal the most important aspects of day-to-day life. RA Matters aims to elevate a global conversation that sheds light on what those with RA really want and – ultimately – help them live the best life possible.
What does one do after the Olympics? That is the question of the day for the Arthritis Olympic Village. For Bulgarian fencer Hristo Etropolski, it’s about establishing your own fencing club and participating in meaningful fundraiser galas such as the ARThritis Soirée.
The ARThritis Soirée is an annual fundraising gala to attract Vancouver’s most prominent business and community leaders, philanthropists, doctors, scientists, healthcare professionals, and donors through an appreciation of art and a desire to support arthritis research. Continue reading
Being diagnosed with arthritis is tough, but the main challenge come when you try to get your friends to understand your arthritis. In an interview with the Arthritis Foundation, Mark Lumley, PhD, professor and director of clinical psychology training at Wayne State University in Detroit, Michigan, offers the following tips: Continue reading
ROAR 2015: Osteoarthritis and You – What you can do NOW!
Join us at an interactive public forum hosted by the Arthritis Patient Advisory Board of Arthritis Research Canada.
What do a rheumatologist, an orthopaedic surgeon, a clinical bio- mechanist, a clinical health researcher and an arthritis patient/consumer advocate have in common? They are all osteoarthritis (OA) experts, who will speak at ROAR 2015.
What do people with OA want to know? We are honoured to have six speakers share their research with us, guided by topics that represent the patient voice.
What is ROAR?
Dear ACE community members,
I’ve had rheumatoid arthritis for over a quarter century now, and I’m sick of it.
Canadians living with one of over 100 types of arthritis are told to understand that what they have is “just arthritis.” They are frustrated by the self-management routine they are supposed to be “in charge of” because they don’t have access to the very things they are supposed to self-manage with. They’re discouraged to read about other important diseases in the media spotlight, but not their own. They’re saddened that yet another Arthritis Month in Canada has begun without a cure for any type of arthritis. That’s how I feel, too. What about you?
Our community continues to face significant barriers to elevating arthritis with the public, governments and workplaces across the country where the havoc wreaked by the diseases is still underestimated and poorly understood.
Well, I’ve had enough. We can’t passively accept arthritis. It maims and kills, but people seem afraid to say that. I’m going to start saying it in my life and in my work.
I am rheumatoid arthritis. Who are you?
We need to break through the sound barrier. Please take a moment and tell me, tell your arthritis sisters and brothers, who you are. I want to know. Make millions know.