Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015
Today’s feature interview – Linda Wilhelm on the Arthritis Patient Charter
ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.
Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.
About Linda Wilhelm
Linda Wilhelm is a mother, a grandmother, and an arthritis advocate who has lived with rheumatoid arthritis for over 30 years. Her advocacy work includes the following:
Atlantic Canada representative and Co-chair for the Consumer Advisory Council.
Operations committee member of the Best Medicines Coalition.
Frequent participation on Health Canada’s advisory panels and conferences on access and drug safety.
Two term member of The Expert Advisory Committee for Vigilance of Health Products.
Member of the Drug Safety and Effectiveness Network’s steering committee.
Active advocate for treatment access and quality of care both regionally and nationally.
Past board chair for the New Brunswick Division of The Arthritis Society.
President of the Canadian Arthritis Patient Alliance.
In their Fall issue, The Open Journal of Occupational Therapy featured an article titled “Occupation and the Artist: Sculpting the Illness Experience” on a person that is a favourite in the arthritis and art community – Otto Kamensek. In the article, Otto shares what his exhibit “Glimmer of Hope” means to him.
“Glimmer of Hope” is a visual journal of the pain Otto has experienced throughout his life with Juvenile Rheumatoid Arthritis (JRA). It illustrates the changes and sensations that have occurred in his body. Throughout his work, he uses symbolism to represent the types of pain he experiences and where it occurs in his joints. Lightning bolts represent flashes of pain, needles represent sharp pain, melted down nails represent festering pain, and elongated pyramids represent monumental pain. His sculpture also depicts scars from hip and knee replacements, muscle wasting, and physical changes in the feet and hands.
The 2014 Walk to Fight Arthritis is happening this Sunday, June 8 at a location near you! Come show support for the 4.6 million Canadians who live with arthritis by participating in this annual fundraising event. Participants can choose between a 1km or 5km walk. People of all ages are encouraged to participate.
The fundraising event will be held in 25 cities from coast-to-coast on Sunday, June 8. Below (except for Sydney, Nova Scotia) is a list for your reference:
The Canadian Arthritis Patience Alliance is seeking your input for an Arthritis Patient Charter.
The Canadian Arthritis Patient Alliance (CAPA), with support from the Ontario Rheumatology Association, is seeking input from you and partner organizations like Arthritis Consumer Experts (ACE) to develop an Arthritis Patient Charter. Help CAPA create the most valuable and relevant information by completing the Patient Charter survey here. The survey will take 5-10 minutes to complete. Survey responses will be anonymous and confidential; personal information will not be collected. This Patient Charter survey is available in English only. Continue reading →
We hope this post will help others understand your loved one’s daily life with arthritis. May is National Arthritis Awareness Month in the United States. The Arthritis Foundation indicates that 50 million Americans are living with arthritis today – half of those are having difficulty or unable to perform daily activities like buttoning a shirt and bending down to pick up items.
There are more than 100 different types of arthritis – a degenerative disease of the joints that affects people of all ages, from babies to older people. Contrary to popular belief, it is not a disease of the elderly; in fact, more than three in five people diagnosed with arthritis are under the age of 65.
Although arthritis can be hereditary or caused by an infection, the more than 100 types of arthritis fall into two major groups: Continue reading →
Reminder: Patient input on treatment for psoriatic arthritis needed
Do you have psoriatic arthritis or care for someone who does? We want your valuable input.
On February 28, Arthritis Consumer Experts sent out a JointHealth™ expressannouncing that we are gathering patient input to submit to the Common Drug Review (CDR).
There is still time to get involved. The CDR continues to accept input on the manufacturer’s submission of ustekinumab (Stelara®) for the treatment of psoriatic arthritis from patients and their caregivers.
If you live with psoriatic arthritis or care for someone with the disease, please send us your input. Please provide your input by Friday, March 28, 2014, so that we may submit a report by the April 1 deadline.
Today’s Arthritis Olympics Challenge is to do some water aerobics. Walking, bicycling, yoga, tai chi, Pilates, low-impact aerobics, swimming, and water aerobics are types of low-impact exercises. Regardless of their age, those living with long-term arthritis and its associated pain can participate in low-impact exercises. A bonus, is that low-impact exercise decreases stress levels and helps to improve the way you feel.
Arthritis Broadcast Network’s “CRA Interview Series 2014”
Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). Starting March 14, feature interviews will be posted daily on the ABN YouTube channel. We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.
Canada’s leading National Arthritis Awareness Program (NAAP) delivers meaningful tools to initiate conversations about arthritis between you and your healthcare professionals. With the appropriate tools and knowledge you can discuss treatment, prevention and management to live your best life with arthritis.Arthritis Broadcast Network (ABN) is your daily source for arthritis news, information, and stories.Also available are two free, comprehensive arthritis apps for iPhone and iPod touch – ArthritisID (for the public) and ArthritisID PRO (for healthcare professionals). View the ArthritisID Feature Sheet and the ArthritisID PROFeature Sheet. Joint exam videos from the apps are also available for viewing on the Arthritis Broadcast Network YouTube Channel.The program has provided resource materials, information and tools to help you get informed, get educated, and spread the word about arthritis. We encourage you to share these messages and materials about arthritis treatment and prevention with fellow consumers, patients and healthcare professionals.
At the recent Canadian Rheumatology Association and Arthritis Health Professions Association annual conferences held at Whistler, B.C., Kelly Lendvoy, Vice President, Communications and Public Affairs and Cheryl Koehn, President, Arthritis Consumer Experts, conducted workshop presentations on “Advocacy”.
ACE (Arthritis Consumer Experts) shared its Advocacy Cycle model and provided case studies of national and provincial campaigns it has recently conducted.
If you want to learn more about or become part of ACE Advocacy in Action, please contact Kelly at firstname.lastname@example.org.