Join the “virtual” race to increase pubic awareness of autoimmune arthritis
May 20 is World Autoimmune Arthritis Day. The International Foundation for Autoimmune Arthritis established this commemorative date back in 2012. The virtual event unites dozen of nonprofits, advocates, and experts from around the world to provide educational and awareness information to patients, their supporters, and the general public.
In the past, the event was organized as an online convention. This year, participants and partner organizations will participate in a virtual global race where they will visit social media and organizational websites, join live “detours” (webinars and web chats), and access community resource and raise awareness for autoimmune arthritis. During the Call to Action LIVE Awareness “Crowd Rallies” program, participants can join the Autoimmune Sing-a-Long Detour or submit a video contest on the topic of “raising your glass to raise awareness about autoimmune arthritis. Continue reading
Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015
Today’s feature interview – Linda Wilhelm on the Arthritis Patient Charter
ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.
Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.
About Linda Wilhelm
Linda Wilhelm is a mother, a grandmother, and an arthritis advocate who has lived with rheumatoid arthritis for over 30 years. Her advocacy work includes the following:
- Atlantic Canada representative and Co-chair for the Consumer Advisory Council.
- Operations committee member of the Best Medicines Coalition.
- Frequent participation on Health Canada’s advisory panels and conferences on access and drug safety.
- Two term member of The Expert Advisory Committee for Vigilance of Health Products.
- Member of the Drug Safety and Effectiveness Network’s steering committee.
- Active advocate for treatment access and quality of care both regionally and nationally.
- Past board chair for the New Brunswick Division of The Arthritis Society.
- President of the Canadian Arthritis Patient Alliance.
In their Fall issue, The Open Journal of Occupational Therapy featured an article titled “Occupation and the Artist: Sculpting the Illness Experience” on a person that is a favourite in the arthritis and art community – Otto Kamensek. In the article, Otto shares what his exhibit “Glimmer of Hope” means to him.
“Glimmer of Hope” is a visual journal of the pain Otto has experienced throughout his life with Juvenile Rheumatoid Arthritis (JRA). It illustrates the changes and sensations that have occurred in his body. Throughout his work, he uses symbolism to represent the types of pain he experiences and where it occurs in his joints. Lightning bolts represent flashes of pain, needles represent sharp pain, melted down nails represent festering pain, and elongated pyramids represent monumental pain. His sculpture also depicts scars from hip and knee replacements, muscle wasting, and physical changes in the feet and hands.
The 2014 Walk to Fight Arthritis is happening this Sunday, June 8 at a location near you! Come show support for the 4.6 million Canadians who live with arthritis by participating in this annual fundraising event. Participants can choose between a 1km or 5km walk. People of all ages are encouraged to participate.
The fundraising event will be held in 25 cities from coast-to-coast on Sunday, June 8. Below (except for Sydney, Nova Scotia) is a list for your reference:
The Canadian Arthritis Patience Alliance is seeking your input for an Arthritis Patient Charter.
The Canadian Arthritis Patient Alliance (CAPA), with support from the Ontario Rheumatology Association, is seeking input from you and partner organizations like Arthritis Consumer Experts (ACE) to develop an Arthritis Patient Charter. Help CAPA create the most valuable and relevant information by completing the Patient Charter survey here. The survey will take 5-10 minutes to complete. Survey responses will be anonymous and confidential; personal information will not be collected. This Patient Charter survey is available in English only.
We hope this post will help others understand your loved one’s daily life with arthritis. May is National Arthritis Awareness Month in the United States. The Arthritis Foundation indicates that 50 million Americans are living with arthritis today – half of those are having difficulty or unable to perform daily activities like buttoning a shirt and bending down to pick up items.
There are more than 100 different types of arthritis – a degenerative disease of the joints that affects people of all ages, from babies to older people. Contrary to popular belief, it is not a disease of the elderly; in fact, more than three in five people diagnosed with arthritis are under the age of 65.
Although arthritis can be hereditary or caused by an infection, the more than 100 types of arthritis fall into two major groups: Continue reading