World Autoimmune Arthritis Day is an annual online virtual convention that runs for 47 straight hours, or the length of May 20 in every time zone around the world.
Join in on this two day, around the clock, live community event!
Cheryl Koehn, founder and President of Arthritis Consumer Experts, will be dropping in as a Lounge Guest during the World Arthritis Autoimmune Day
At noon ET (9 a.m. PT), Sunday May 19th, just hours after the online event kicks off, Cheryl will be stopping by for 15 minutes visit in the LIVE LOUNGE to say hello to everyone who happens to be in the Lounge at that time.
Cheryl Koehn is a 23-year RA survivor and CEO of Arthritis Consumer Experts (ACE) and its JointHealth™ family of programs. Make sure you are there to meet Cheryl and learn a little bit more about what advocacy she has in the works!
What is JointHealth?
Cheryl developed JointHealth™ programs to empower arthritis consumers through education, helping you take control of your disease, and change your experience with arthritis. As far as Arthritis Consumer Experts, Cheryl brings the arthritis consumer’s perspective to ACE, and to decision-making processes at government, research institutions, not-for-profit and for-profit organizations across Canada and internationally.
In addition to stopping by as a Lounge Guest to ‘meet’ you all, Cheryl will have a bio in the Presentation portion of WAAD13, which will link to podcasts, educational workshops, surveys and more!
To register for WAAD13 please visit www.WAAD13.com
Accomplishing simple life’s milestones is no easy task when you have a chronic illness. We admire those who inspire others by taking charge of their disease.
In the January 2012 issue of JointHealth™ monthly, we featured “heroes” of arthritis. Below is another inspirational story we would like to share with you. May it spark some warmth to your marriage.
The following interview is an excerpt from Chronic Marriage’s “Stepping into My Husband’s Shoes”. Helena lives with muscular dystrophy and wanted to understand her supportive husband as a caregiver’s point of view.
When we first met and I told you I had muscular dystrophy, what were your initial thoughts?
I was certainly familiar with the term muscular dystrophy but I didn’t understand what it meant to be honest. Because I was attracted to you, I had a curiosity to find out more. The disease definitely didn’t diminish my interest in you. I remember thinking that whatever this disease is, I’m not afraid of it. The way I’m going to tackle it is to find out more about it.
Once we married, what surprised you or caught you off guard about living with someone with chronic illness? Continue reading
Amit Bhatnagar of New Delhi has designed a medical lab-in-a-suitcase that helps to diagnose arthritis. Bhatnagar is a former business consultant at Universal Studio’s IIT-Roorkee.
“It is a complete compact lab in a suitcase with power backup. It has been designed to perform 23 vital blood tests for kidney, liver, heart, anaemia, diabetes and arthritis accurately, cost-effectively and timely,” Bhatnagar said in an interview with a reporter from The Times of India. Continue reading
Molly, Arthritis Consumer Experts’ (ACE) own Australian labradoodle, expressed her joy in visiting a BC election polling station by showcasing an “I Voted” sticker.
The results are in and BC Liberals secure a majority government. Below is the response from the BC Liberal Party to ACE’s questionnaire. We could all take action to ensure arthritis remains a priority for our government. Visit JointHealth™: Taking Action for samples and tips. Continue reading
The biologic drug tocilizumab (Actemra®) has recently been approved by the U.S. Food and Drug Administration (FDA). The drug helps to treat polyarticular juvenile idiopathic arthritis (JIA) in adults and now, children age 2 and older.
Research shows that 65 percent of children treated on tocilizumab had a 70 percent improvement. For the placebo group, there was only 30 percent improvement.Tocilizumab works by targetting a protein called interleukin-6 (IL-6). Continue reading
Arthritis affects 1 in 5 British Columbia residents, so healthcare to treat the more than 100 different types of the disease is extremely important to the more than 600,000 British Columbians living with the disease. Any party that wishes to become government needs to consider these constituents. To help the parties understand this, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the BC Liberal Party and the New Democratic Party.
Leading in with background information about the high number of people who undergo joint replacement surgeries due to arthritis, the questionnaire asked the following: Continue reading