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Correction to July 12’s JointHealth™ insight

Correction for apremilast (Otezla®) listing in the Ontario drug formulary

A reference in the July 12, 2016 online publication of JointHealth™ insight referred incorrectly to the listing of apremilast (Otezla®) for the treatment of psoriatic arthritis in the Ontario drug formulary as “declined.” The medication should be listed as “under review” as it is still under consideration for reimbursement.

Click here to see the updated Report Card.

We want to hear from you. If you have been affected by the delayed review of apremilast (Otezla®), please contact us at feedback@jointhealth.org.

Researchers, patients and government come together

Researchers, patients and government come together

The conversation on new reform from the Canadian Institutes of Health Research that impacts federal research funding continues.

Picture of pen and paperWe commend Minister Philpott for her request for the Canadian Institutes of Health Research (CIHR) to convene a working meeting with key representatives of the research community to find common ground and move forward with solutions that address the issues around the quality and integrity of CIHR’s peer review system.

Minister Philpott’s actions are in response to views expressed within the health research community, and from patient organizations like Arthritis Consumer Experts (ACE).

All stakeholders in healthcare – governments, researchers, clinicians and patients – have an obligation to consider the impact of changes to the CIHR and Canada’s world-class standing in the scientific community and the benefits of health research for all Canadians.

Below is the message from Minister Philpott to Canada’s health research community: Continue reading

Last day to register! Run/Walk for kids with arthritis

Do it for the kids! Participate with your family and friends in the Scotiabank Charity Challenge 5K or Half Marathon with Team Cassie & Friends! Proceeds support research and programs for kids with juvenile arthritis and other rheumatic diseases and their families. Free kid registrations, activities and prizes. If you are unable to make the run, you can still participate by cheering for the team on along the run/walk route!

Post card for run walk with kids announcementToday is the last day to register online! For more information about the event and to register online, please visit www.canadarunningseries.com and register with the charity code 16VCASSIE.

About Juvenile Arthritis

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EULAR Press interviews Cheryl Koehn on patient satisfaction

EULAR Press interviews Cheryl Koehn on patient satisfaction and RA treatment

Cheryl Koehn discusses the importance of treatment conversations between patients and healthcare professionals.

This year’s European League Against Rheumatism Annual Congress (EULAR2016) highlighted patient-focused initiatives that aimed to:

  • Improve the understanding of the patient perspective
  • Encourage patient participation
  • Optimize care of rheumatic diseases

One of the initiatives is the RA NarRAtive initiative – a patient survey fielded in 15 countries around the world and designed to evaluate the patient/healthcare professional relationship and communication and patients’ experience and satisfaction with treatment and disease management. To view the interview with Cheryl Koehn, please click here.

“Further understanding the responses from this survey will be important to facilitate communication between patients and healthcare professionals, with the ultimate aim of improving treatment outcomes,” said Ms. Cheryl Koehn, President of Arthritis Consumer Experts and member of the RA NarRAtive global advisory panel.

To learn more about the study, please click here to view the press release.

JointHealth™ insight – Arthritis Research Update: The ACE Report

Picture of man addressing a crowdArthritis Consumer Experts is excited to unveil a new look and proud to announce a new name for our JointHealth™ newsletter: JointHealth™ insight.

For 17 years, our mission has been to bring valuable, unbiased, evidence-based and consumer-focused information and education programs in both official languages to people living with arthritis. This hasn’t changed. What is changing is the look and feel of our newsletter through a redesign and name change. Our new look reflects what our readers have told us in multiple surveys. Many of you have commented on how treatment options and reimbursement access are evolving and changing quickly. Readers living with inflammatory arthritis and osteoarthritis have also told us about unmet information needs, particularly regarding working with their rheumatologist, disease management and the importance of learning from other consumers’ personal experiences. Continue reading

ARThritis Soiree 2016: Join us for an evening of fun!

Arthritis Soiree Banner

Arthritis Research Canada will be hosting its annual ARThritis Soirée on Thursday, May 26 at 7pm. The Soirée will take place at the Vancouver Club, located at 915 W. Hastings Street, Vancouver. This gala will raise money for arthritis research, awareness, and advocacy. The concept behind the gala is that research has shown that art adds to one’s well-being. For many, it is a key element of managing chronic pain. Each year, the Soirée features one form of art. This year’s feature is the Art of Fencing with Olympic and World Champions.

The ARThritis Soirée is an evening designed to attract the city’s most prominent business and community leaders, philanthropists, doctors, scientists, healthcare professionals, and donors through an appreciation of art and a desire to support arthritis research.

The evening’s event will be emceed by Fred Lee, CBC, Vancouver Courier and The Province’s Man About Town. Guests can enjoy hors d’oeuvres, champagne, premium spirits and exquisite BC wines from LaStella and Le Vieux Pin wineries and indulge in legendary Joe Fortes oysters and Northern Divine Caviar.

There will be a live and silent auction, with items such as a chef’s table experience at Joe Fortes, photo sessions, paintings, and entertainment, vacation, spa and lifestyle packages. Buy your raffle ticket for a chance to win a beautiful Birk’s diamond necklace. Please note guests will have complimentary valet parking. Tickets to The 2016 ARThritis Soirée is available for $245.00 and includes complementary valet parking and a partial tax receipt. To learn more about the event, please click here.

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