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Call for patient input on tofacitinib (Xeljanz®) for the treatment of rheumatoid arthritis

Do you have rheumatoid arthritis or care for someone who does? We need your valuable input.

Megaphone GraphicThe Common Drug Review (CDR) is currently welcoming patients and their caregivers to provide input on the manufacturer’s submission for tofacitinib (Xeljanz®) for the treatment of rheumatoid arthritis (RA). Tofacitinib is an oral disease-modifying anti-rheumatic drug (DMARD) that was issued a Notice of Compliance (NOC) from Health Canada on April 17, 2014. Tofacitinib in combination with methotrexate (MTX), is indicated for reducing the signs and symptoms of RA, in adult patients with moderately to severely active RA who have had an inadequate response to MTX. In cases of intolerance to MTX, physicians may consider the use of tofacitinib as monotherapy.

The CDR is part of the Canadian Agency for Drugs and Technologies in Health (CADTH). The CDR conducts objective, rigorous reviews of the clinical and cost effectiveness of drugs, and provides formulary listing recommendations to the publicly funded drug plans in Canada (except Quebec). 

To help them make their recommendations, the CDR accepts input from patient groups, like Arthritis Consumer Experts (ACE). We would like to gather your views and share them with the CDR.

These are the questions they are asking:

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#Goals4Arthritis – Goal 31: You are the champion!

#Goals4Arthritis – Goal 31: You are the champion!

Regardless of who wins the FIFA World Cup championship game today in Estadio do Maracana Rio de Janeiro, Arthritis Broadcast Network expresses a big thank you to all of you who participated and shared your goals for arthritis. Today, we hope you enjoy the finals and crowning of a new World Cup champion.

As an organization passionate about the health and wellness of people living with arthritis, Arthritis Consumer Experts (ACE) is seeking its own champions in the community through our program – Canada’s Best Workplaces for Employees Living with Arthritis Awards.

#Goals4Arthritis BannerThrough a rigorous selection process using wide-ranging criteria, ACE will evaluate Canadian companies that apply best arthritis strategies and practices in the workplace. The application process will deliver insights to further strengthen Canadian companies’ approaches to creating a more productive and arthritis-friendly work environment. And it is an opportunity for employers and employees to assess their companies’ awareness of arthritis and their support systems for employees living with the disease, and be awarded recognition for doing so. To apply for Canada’s Best Workplaces for Employees Living with Arthritis Awards, click here.

Today’s #Goals4Arthritis is to nominate a company who you feel is a great arthritis champion, providing employees living with arthritis a healthy and positive workplace.

#Goals4Arthritis – Goal 18: Sunday Funday

#Goals4Arthritis – Goal 18: Sunday Funday

Happy Sunday!

Today’s #Goals4Arthritis is to have some Sunday fun with your kids, friends, or loved ones. Whether you are watching the FIFA World Cup or enjoying the sunshine outdoor, we hope you get some much needed rest, relaxation, and pleasure from your day’s activities.

#Goals4Arthritis Banner

For our friends in the community who are over 50 years old and have osteoarthritis, here are some activities you can do with your children:

  • Share a hobby or class. This can be dancing, golfing, gardening or swimming. Participating in low-impact exercises can keep joints flexible and muscles strong.
  • Go running or jogging with your loved ones. Determine a routine that can cater to your own flexibility, strength, and ability.
  • Play some table top games like billiards, air hockey, foosball, or table tennis. These activities help keep you active and prevent stiffness in your joints.
  • Cook with your loved ones. Cooking up a hearty meal at home can reduce your intake of added calories and fat as you have total control of which ingredients to use. Every pound of extra weight you lose takes four pounds of pressure off your knees.
  • Do some arts and crafts to keep the small muscles of your joints in motion. It will also alter your focus and concentration to something other than your arthritis pain.

#Goals4Arthritis – Goal 10: Celebrate National Aboriginal Day

#Goals4Arthritis – Goal 10: Celebrate National Aboriginal Day

Soccer players in the FIFA World Cup come from all backgrounds – some of which are of Aboriginal descent.

Here is a partial list of famous Aboriginal soccer players over the years:

  • Bridgette Starr – The first Aboriginal woman to play at the World Cup final in 1999.
  • Charles Perkins – A former Manchester United soccer player who became a national figure in Aboriginal politics.
  • Harry Williams – The first recognised Aboriginal Australian to play for the senior Australian national soccer team in the 1970s. In total, Williams played 6 World Cup matches and represented Australian 17 times between 1970 and 1978.
  • John Moriaty – The first Aboriginal person to represent Australia in soccer. He is currently the ambassador for Football Federation Australia’s Indigenous Football Development Program.
  • Kyah Simon – A female soccer player who led the Matildas into the knockout stage in the 2011 FIFA Women’s World Cup in Germany. She is the first Aboriginal Australian to score a goal in a World Cup tournament.

Today, Canadians from all walks of life will be celebrating National Aboriginal Day.

Today’s #Goals4Arthritis is to celebrate the unique heritage, diverse cultures and outstanding achievements of First Nations, Inuit and Métis peoples in Canada and around the world. Click here to see a list of celebrations happening across Canada.

#Goals4Arthritis BannerOn this occasion, Arthritis Broadcast Network is also pointing out the need to for better arthritis healthcare in the Aboriginal community. Rheumatoid arthritis affects about 1% of the Canadian population or 1 out of every 100 people. This increases to 5% for aboriginal Canadians. This population not only is at greater risk for getting RA but the disease is more severe than with other populations. For aboriginal people, rheumatoid arthritis is one of the five top five chronic diseases reported. More Canadian women get RA then men (3:1), however, this figure almost doubles for aboriginal women.

When asked about arthritis in Aboriginal communities, rheumatologist and Manitoba Metis native Dr. Cheryl Barnabe told ABN: “One major reason individuals may not seek out care when they start to have arthritis symptoms comes from misconceptions and stereotypes that people in healthcare often have about aboriginal people. Another reason is that in the context of social or psychological trauma, or other diseases, their coping strategy has become “toughing it out”. Finally, since arthritis is common—everyone in their family may have it—it is normal to have arthritis, so it may seem to some people that medical care is unnecessary.”

With the proper support system, improving arthritis healthcare is possible in these communities, visit for more information on aboriginals and arthritis.

Goalll!!! #Goals4Arthritis – Celebrating arthritis victories during the #FIFA World Cup™

#Goals4Arthritis – Celebrating arthritis victories during the 2014 FIFA World Cup™

Chris Statue Image-#Goals4ArthritisArthritis Consumer Experts (ACE) is launching #Goals4Arthritis to celebrate the “beautiful game” and encourage Canadians living with or without arthritis to follow our daily “goal” over the next four weeks of the World Cup to learn ways how you can remain able bodied and perform your best while living with disease.

#Goals4Arthritis will set a new ACE “arthritis goal” each day to promote exercise as a means to increase strength and flexibility, reduce joint pain, and help combat fatigue. We invite you to share your progress reaching ACE’s “arthritis goals” by uploading and sending us pictures and stories of your accomplishments on our social media networks:

The arthritis community appreciates your love and support. Please feel free to invite your friends, family, and colleagues to participate, whether they have arthritis or not. Alternatively, you may post your own goals for others. The goal should help others achieve a balanced lifestyle and related to sports, the FIFA World Cup™, injury prevention, and healthy living.

Please note that the daily goals vary and may not be physically suitable for everyone. Always consult your doctor before trying a new activity or form of exercise or treatment plan.