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Call for patient input on subsequent entry biologic infliximab (Remsima™ and Inflectra™)

Call for patient input on subsequent entry biologic infliximab (Remsima™ and Inflectra™) for ankylosing spondylitis, plaque psoriasis, psoriatic arthritis, and/or rheumatoid arthritis

Megaphone GraphicDo you have ankylosing spondylitis, plaque psoriasis, psoriatic arthritis, and/or rheumatoid arthritis or care for someone who does? We need your valuable input.

Health Canada defines subsequent entry biologics (SEBs) as biologic medicines that are similar to, and would enter the market after an approved innovator biologic (such as Remicade®). 

Unlike the more common small-molecule drugs, biologics generally exhibit high molecular complexity, and are sensitive to changes in manufacturing practices. SEBs are not identical to their innovator products because their chemical characteristics cannot be precisely duplicated during the manufacturing process. Therefore, SEBs may have unique efficacy, immunogenicity, and safety profiles that are different from their innovator products.
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Reminder: Patient input on treatment for rheumatoid arthritis and ankylosing spondylitis needed

Metal Alarm ClockDo you have rheumatoid arthritis or ankylosing spondylitis or care for someone who does? We want your valuable input.

In July, Arthritis Consumer Experts sent out the following JointHealth™ expresses announcing that we are gathering patient input to submit to the Common Drug Review (CDR). Follow the links below to view the questions for each patient input request.

The CDR is part of the Canadian Agency for Drugs and Technologies in Health (CADTH). The CDR conducts objective, rigorous reviews of the clinical and cost effectiveness of drugs, and provides formulary listing recommendations to the publicly funded drug plans in Canada (except Quebec). 

To help them make their recommendations, the CDR accepts input from patient groups, like Arthritis Consumer Experts (ACE). We would like to gather your views and share them with the CDR.

If you live with rheumatoid arthritis or ankylosing spondylitis or care for someone with the disease, please send us your input by Wednesday, August 20, 2014, so that we may submit a report by the August 28 deadline. Your input will be anonymous.

Please contact us at info@jointhealth.org to provide your input or arrange for a phone interview at 604-974-1366.

What has ACE done for you lately?

What has ACE done for you lately? Here’s what we’ve been up to this month!

In July’s roundup of ACE’s current projects, we highlight our campaigns in the workplace, promoting patient input, and arthritis research.

Flip CalendarLast week to apply for the “Canada’s Best Workplaces for Employees Living with Arthritis” awards!

The “Canada’s Best Workplaces for Employees Living with Arthritis Awards” is a national search to find and recognize small, medium and large companies or organizations who offer exceptional workplaces for their employees living with arthritis. 

We are interested in learning about your workplace. If you are an employer or employee, we encourage you to complete this survey to assess your company’s arthritis friendliness. By completing the application, you will reinforce practices you are already doing well and, at the same time, identify exciting new opportunities for improvement for your employees with arthritis. The Awards will look at organizational benefits, physical workplace, and employee education.

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Last week to apply for the “Canada’s Best Workplaces for Employees Living with Arthritis” awards!

Last week to apply for the “Canada’s Best Workplaces for Employees Living with Arthritis” awards! 

Canada Best Workplaces SlideWould your company qualify as a “best workplace for employees living with arthritis”? Arthritis Consumer Experts is looking to award three Canadian companies that provide a workplace and environment considerate of employees living with arthritis.

The Canada’s Best Workplaces for Employees Living with Arthritis Award is a coast-to-coast search to find and recognize three small, medium and large companies who offer exceptional workplaces for their employees living with arthritis. 

Download and complete an Application Form now. Both employer and employee can apply on behalf of their company. The application deadline is 11:59pm on August 15, 2014.

For more information, please visit http://bit.ly/BestWorkplacesArthritis , email info@jointhealth.org or call 604-974-1366.

Arthritis Alliance of Canada Newsletter – July 2014

We would like to share with you the July 2014 edition of the Arthritis Alliance of Canada Newsletter. Here you will find exciting events and updates from members of the Arthritis Alliance of Canada. Below is an excerpt from the newsletter:

Arthritis Alliance logoThe Arthritis Alliance of Canada

The Friday, October 31st Research Symposia Program, entitled “Arthritis Unmasked: Genetics, Treatments and Partnerships” was composed in partnership with the Gairdner Foundation and CIHR Institute of Musculoskeletal Health and Arthritis.

The Research Symposia Day will feature the recipients of the 2014 Canada Gairdner International Award, Drs. Ravinder N. Maini and Marc Feldmann, “For the discovery of anti-TNF therapy for the treatment of rheumatoid arthritis and other inflammatory diseases.”

The program will also open up the floor to the North-America’s most prominent researchers in the area of rheumatology, genomics, human and medical genetics. Among the speakers of the Research Symposia are Drs. Peter Gregersen, Dan Kastner, Sherine Gabriel, Lawrence Steinman, Laurie Glimcher, Aled Edwards, Alan Aderem, Claire Bombardier and Hani El-Gabalawy.

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How to support a loved one who is living with chronic pain

Couple The Canadian Institute for the Relief of Pain and Disability is hosting a free webinar on Thursday, August 14, 2014 at 11:00am PDT or 2:00pm EDT titled “How to Support a Loved One Who is Living with Chronic Pain”. The webinar is co-sponsored by Pain BC and The Canadian Pain Coalition. Register for the webinar now.

In the webinar, you will learn:

  1. Strategies for supporting a loved one who has chronic pain.
  2. Things to avoid when attempting to support your loved one.
  3. The ways in which chronic pain can impact family members, for better or worse.

Dr. Susan Holtzman, Assistant Professor of Psychology at the University of British Columbia (Okanagan campus) and registered psychologist, will draw from her experience and training and share the most effective strategies for supporting the people you love, as well as some of the patterns of support that can be damaging to your relationship and health.

Dr. Holtzman is especially interested in how social relationships can help or hinder people’s efforts to cope with their illness, and how chronic illness can impact the family. Her research has been supported by grants from the Canadian Institutes of Health Research, the Social Sciences and Humanities Research Council, and the National Institutes of Health.