Le Mois de sensibilisation à l’arthrite au Canada : #WhereIsArthritis, une campagne sur les réseaux sociaux du comité ACE
Le comité ACE (Arthritis Consumer Experts) souligne le Mois de sensibilisation à l’arthrite au Canada en lançant une campagne sur les réseaux sociaux dont le mot-clic est #WhereIsArthritis. La campagne #WhereIsArthritis est une façon amusante de vous familiariser avec les ressources offertes en ligne par le comité ACE, lesquelles sont conçues pour vous aider à mieux vivre avec l’arthrite. En y participant, vous suscitez l’intérêt envers l’arthrite tout en vous informant et en informant les autres autour de vous au sujet des différentes formes de cette maladie et en manifestant votre soutien à ceux et celles qui en souffrent.
Tous les jours, du samedi 1er septembre au dimanche 30 septembre 2018 :
Tweetez, publiez sur Facebook ou envoyez-nous la réponse par courriel – N’oubliez pas d’inclure le mot-clic #WhereIsArthritis !
Voici un exemple d’une question et réponse #WhereIsArthritis :
Question : Q1 : Quels sont les quatre traitements non médicamenteux mentionnés sur la page du site Web du comité ACE ? Indice : Voir l’onglet À propos de l’arthrite » http://bit.ly/2MZZaUB #WhereIsArthritis
Réponse : Hé @ACEJointHealth, la réponse est : vitamines et minéraux, régime alimentaire et nutrition, physiothérapie, ergothérapie ! #WhereIsArthritis
Pour participer, suivez #WhereIsArthritis sur notre compte Twitter @ACEJointHealth et notre page Facebook Arthritis Consumer Experts. En septembre, aidez-nous à promouvoir la sensibilisation à l’arthrite :
aimez, retweetez et répondez sur Twitter en utilisant le mot-clic #WhereIsArthritis; ou,
aimez, commentez et partagez sur Facebook en utilisant le mot-clic #WhereIsArthritis; ou,
Chaque fois que vous intervenez d’une des façons suggérées sur votre compte social personnel, votre nom sera inscrit au tirage d’une carte-cadeau Amazon d’une valeur de 50 $. Le tirage sera effectué le mercredi 3 octobre 2018 et le gagnant en sera avisé par message direct ou par courriel.
Découvrons ensemble où se cache l’arthrite (#WhereIsArthritis) et des ressources pour y faire face !
Arthritis Consumer Experts is celebrating Arthritis Awareness Month in Canada with the #WhereIsArthritis social media campaign. #WhereIsArthritis is a fun way for you to familiarize yourself with Arthritis Consumer Experts’ online resources, which are designed to help you live a better life with arthritis. By participating, you are creating awareness about arthritis while educating yourself and others about the many different types of diseases, and showing your support for people living with it.
Every day from Saturday, September 1 to Sunday, September 30, 2018, you will:
Find and tweet, Facebook post or email the answer to us – Be sure to include the #WhereIsArthritis hashtag!
Sample #WhereIsArthritis question and answer:
Question: Q1: What are four non-medication treatments listed on the ACE website? Hint: See “About Arthritis” http://bit.ly/2xs5Ik5 #WhereIsArthritis Answer: Hey @ACEJointHealth, the answer is: vitamins and minerals, diet and nutrition, physiotherapy, occupational therapy! #WhereIsArthritis
Each time you do any of the above from your personal social media account, your name will be entered into a draw for a $50 Amazon gift card. The draw will take place on Wednesday, October 3, 2018 and the winner will be notified by direct message or email.
Help raise awareness during Arthritis Awareness Month!
You can help increase awareness and understanding of arthritis by sending this pre-drafted letter to the editor of your local newspaper.
September is Arthritis Awareness Month! Help increase awareness and understanding of arthritis by sending a letter to the editor of your local newspaper. We encourage you to edit this template letter to reflect your own experiences. Remember: Letters under 200 words have a better chance of being published. If you are submitting a letter to your editor via email, remember to include your name, home address and telephone number.
Getting “Patient Satisfaction” from Arthritis Health Care
To celebrate Arthritis Awareness Month in Canada, in this issue of JointHealth™ insight, we highlight three international surveys that have helped identify gaps in arthritis models of care from the patient perspective. We want to know what you think. Please complete the three mini surveys in this month’s JointHealth™ insight. Your responses will help drive our 2018 information and education programs to support patients and improve the way health care is delivered by the rheumatologists, allied health professionals, health policy decision makers and others who provide care to Canadians with all types of arthritis.
In this issue, you will also:
Read about the model of care for rheumatoid arthritis
Find a Letter to the Editor template to increase awareness about arthritis in your community
Arthritis Consumer Experts (ACE) is celebrating Arthritis Awareness Month with the #ArthritisMadLibs Twitter Project. The goal is to help others understand the impact of arthritis and make informed decisions about the development of new arthritis programs that will benefit patients and their caregivers.
#ArthritisMadLibs is a chance to re-write the arthritis patient story during Arthritis Awareness Month – one word at a time. On the Labour Day long weekend, the #ArthritisMadLibs hashtag garnered 329.892K impressions, 135 Tweets, 24 participants – averaging 2 Tweets per hour and 6 Tweets per participant.
Since September 1, #ArthritisMadLibs had 910.103K impressions, 379 Tweets, 46 participants – averaging 1 Tweet per hour and 8 Tweets per participant. We thank the patients, health care professionals, patient groups, and researchers who have engaged with us thus far. Our engagement rate on @ACEJointHealth’s Twitter account is at an impressive rate of 2.8% engagement rate (34 link clicks, 179 retweets, 235 likes, 138 replies) – a significantly high engagement rate compared to the average Twitter engagement rate of .7% for the top 25 brands on Twitter. Social media is a tricky business and who you follow, who you have following you, and how many followers you have can affect these statistics but for a grassroot patient organization, we are pretty proud of the #ArthritisMadLibs and its participants and supporters!
Here is a summary of the #ArthritisMadLibs (thus far) and some of our favourite Twitter moments:
#ArthritisMadLibs is a chance to re-write the arthritis patient story during Arthritis Awareness Month – one word at a time.
Arthritis Consumer Experts (ACE) is celebrating Arthritis Awareness Month with the #ArthritisMadLibs Twitter Campaign. The goal is to help others understand the impact of arthritis and make informed decisions about the development of new arthritis programs that will benefit patients and their caregivers.
Mad Libs is a word game where key words in a sentence are left intentionally blank for others to substitute with their own words. As we continue to learn from the global arthritis patient surveys, communications is critical between patients and their doctors, rheumatologists, nurses, pharmacists, friends, colleagues and researchers. #ArthritisMadLibs is a chance to re-write the arthritis patient story – one word at a time.
During Arthritis Awareness Month, ACE will be tweeting daily with 5 themed Mad Libs. The themes are patients, work, family and friends, healthcare professionals, and animals. To participate, please follow hashtag #ArthritisMadLibs on our Twitter account @ACEJointHealth. If you do not have a Twitter account but would like to participate, you can follow our Twitter feed on the Arthritis Consumer Experts website (www.jointhealth.org) and email your answers to firstname.lastname@example.org. To drive the campaign, please like, retweet, and reply on Twitter. Arthritis Broadcast Network will be providing a weekly summary of the Mad Libs.
Roughly one in five Canadians live with arthritis. Where is our social movement?
Cheryl Koehn, Founder and President of Arthritis Consumer Experts (ACE) wants to start a movement for arthritis. In this issue of JointHealth™ insight, she comments about the myth of arthritis:
At a recent dinner party, a good friend of mine said something revealing to me: “I don’t think of you as disabled.” My friend’s comment was meant as a compliment but also reflected the still common misperception of arthritis pain as a “condition” associated with getting old and that can’t really be treated. It also reminded me how people with arthritis are often embarrassed about it and live in silence. This in spite of the fact that arthritis affects more than 4.6 million Canadians, is a debilitating disease and the leading cause of work disability in Canada and limits the activities of nearly 20% of Canadians.
To celebrate Arthritis Awareness Month in Canada, this issue of JointHealth™ insight will also highlight two of ACE’s programs:
Canada’s Best Workplaces for Employees Living with Arthritis Award
This year’s program will recognize workplaces who provide an environment that meets the needs of employees living with arthritis to manage their disease and work with symptoms such as pain, fatigue, joint dysfunction or immobility
A reader-friendly information hub for consumers and health care professionals to get the latest biosimilars news.
An arthritis ‘pacemaker’ is on the horizon. The device is a tiny electronic implant fitted under the skin near the collarbone. It works by sending electrical pulses to the vagus nerve. When the vagus nerve is stimulated by the electric pulse, it sends a signal from the brain to key organs such as the spleen and triggers a decrease in the production of cytokines. Cytokines are proteins that help regulate the immune system and can cause inflammation in joints.
The arthritis ‘pacemaker’ is currently being tested in the Netherlands with people who live with rheumatoid arthritis (RA). Scientists found that the use of electrical pulse can have a similar positive effect on RA without the side effects of medications. The medical device should be available in the United Kingdom by 2020. A patient who took part in the pilot study said: “I have my life back, like before I got arthritis.”
In an interview with the Daily Mail, Clare Jacklin of the National Rheumatoid Arthritis Society cautions: “The disease is different in different people. This new device may well be impactful for some patients dependent on their disease profile.”
ACE is searching for Canada’s Best Workplaces for Employees Living with Arthritis
To help kick off Arthritis Awareness Month in Canada, Arthritis Consumer Experts ACE) today announced the launch of the third annual Canada’s Best Workplaces for Employees Living with Arthritis. The judging criteria this year will particularly value those organizations providing an environment that meets the needs of employees living with arthritis to manage their disease and work with symptoms such as pain, fatigue, joint dysfunction or immobility.
“Smart employers know committed, productive teams require an environment where employees know they can balance work, family and personal responsibilities. In this third year of our award, we are looking closely at the availability of flexible work benefits and policies, as well as employees’ comments on their effectiveness,” said Cheryl Koehn, President and Founder, Arthritis Consumer Experts. “We want to recognize companies providing innovative flexible work arrangements to help employees with arthritis, and other chronic diseases, take better care of themselves, and in turn report less pain, fatigue, and disruption at work, allowing them to remain employed for longer.” Continue reading →
What has ACE done for you lately? Here’s a few highlights during Arthritis Awareness Month in Canada.
The delivery of healthcare may be a provincial responsibility, but the federal government also plays a significant role in funding healthcare and shaping healthcare policies.
To help our members and subscribers compare healthcare platforms, we asked the Conservative Party of Canada, the New Democratic Party of Canada, the Liberal Party of Canada and the Green Party of Canada the same four questionsabout top healthcare issues for Canadians living with arthritis. ACE is posting responses on our website. Continue reading →