The general election in Newfoundland and Labrador is scheduled for May 16, 2019. What changes would you like to see in arthritis models of care?
Arthritis is a chronic disease that has a devastating and debilitating effect on the lives of more than 115,000 Newfoundland and Labrador residents – approximately one in five. Within a generation, more than one in four residents are expected to have the most disabling and life-threatening types – osteoarthritis and rheumatoid arthritis.
Arthritis is also the leading cause of disability and work disability in Newfoundland and Labrador, with nearly three out of every five people with arthritis of working age.
Considering the prevalence of the disease and its significant cost to individuals and society, arthritis is an issue of great importance to candidates running for office. ACE sent an open letter and a survey to candidates running in the Newfoundland and Labrador election. As part of its core government outreach activities and in the spirit of non-partisanship, ACE asks each candidate to share how government can improve prevention, treatment and care in Newfoundland and Labrador.
Caregivers play an important role throughout the inflammatory arthritis models of care. The nurse at your doctor’s office serves as a first line of contact between you and your doctor. Your partner and family members at home provide physical and emotional support – be it helping you with groceries, taking you to your doctor’s appointment, or listening to your concerns about your treatment therapies. On Caregiver Day, we want to thank you to all the caregivers who are providing care worldwide. Thank you for making a difference in the lives of patients living with arthritis!
What is an inflammatory arthritis model of care?
“Models of care are very important for chronic diseases such as inflammatory arthritis because they facilitate early efficient diagnosis and delivery of holistic health care services, help in the realignment of existing resources to optimize health system efficiencies, and identify the need for new resources. Arthritis patients require an integrated team-based approach to care that includes a number of health care providers over a period of time.”
Dr. Diane Mosher, Professor of Medicine and the Chief of the Division of Rheumatology at the University of Calgary
The general election in Ontario is scheduled for June 7, 2018. What change would you like to see in models of arthritis care?
Arthritis is a chronic disease that has a devastating and debilitating effect on the lives of more than 6 million Canadians. In Ontario, 40% of people with arthritis require help with daily activities, compared to 13% of people with other chronic conditions.
More than 1.7 million people – or 1 in 8 Ontarians – are living with osteoarthritis (OA). Within a generation (30 years), it is anticipated that 1 in 4 or 4.28 million Ontarians will be living with OA and one person in Ontario will be diagnosed every 3 minutes.
Rheumatoid arthritis (RA) can occur at any age. More than 105,000 people in Ontario were living with RA. The prevalence of RA is expected to rise by 82% by 2030. In 2040, 225,000 – or 1 in 77 people in Ontario – will be living with RA; one person in Ontario will be diagnosed with RA every 53 minutes.
Ontario’s next government needs to listen and consider the needs of these constituents. Arthritis Consumer Experts (ACE) sent a questionnaire to the party leaders and candidates of the 2018 Ontario Provincial Election.
We had the privilege of chatting with Social Scientist Dr. Laura Nimmon at the Canadian Rheumatology Association (CRA) Annual Scientific Meeting and Arthritis Health Professions Association (AHPA) last month. Laura is an assistant professor in the Department of Occupational Science and Occupational Therapy, as well as a scientist at the Centre for Health Education Scholarship at the University of British Columbia. Laura shared her time with #CRArthritis and sat down with us to answer some questions we had. As patients, we find her research meaningful, and we think you will too! Below are some highlights of the in person interview.
What is a social scientist and what do they do?
Social science is a broad field but can generally be categorized by the study of human society and social relationships. Social scientists aim to understand how our society works and will often use the information they gather to create or promote change within the society.
As a social scientist, how did you become involved in rheumatology?
I entered into the field of rheumatology by being awarded The Arthritis Society Young Investigator Salary Award, which gave me an opportunity to do research in the area. My focus is on teamwork. I look at how healthcare teams coordinate patient centred care and some of the tensions and social dynamics that exist in these interactions. I am conducting this research alongside an incredible team of colleagues consisting of health professionals and patient partners; it is a wonderful combination of minds with different experiences and backgrounds.
Could you share with us the key messages from your presentation at the conference?
In honour of Lupus Awareness Month, the Arthritis Broadcast Network is doing a throwback coverage on lupus. The coverage highlights Arthritis Research Canada and Arthritis Consumer Experts’ coverage of the 9th International Congress on Systemic Lupus Erythematous, Vancouver 2010 (“Lupus 2010”).The event was held in Vancouver, British Columbia, Canada in June, 2010. Hundreds of world leading researchers, healthcare professionals, and individuals living with systemic lupus erythematosus (SLE) learned about the current state of the science in SLE and future opportunities in lupus research, education and care.
As part of an international network of RA patient organizations, Arthritis Consumer Experts invites you to participate in a global survey of RA patients to examine the diagnosis, treatment and care they receive for their RA. The goal of this survey is to understand, from the patient experience and perspective, how current “models of care” for rheumatoid arthritis compare between countries.
Your experience and perspective matter
As a person living with RA, sharing your experiences about the care you receive is vitally important. With your help, we can meet the study goals and develop education and information programs to improve patients’ understanding about RA models of care to enable the best treatment outcomes possible in Canada.
How you can participate
If you agree to participate, you will be asked to answer a survey questionnaire, which should take approximately 10 minutes to complete. All the information gathered during the survey will be combined to protect your privacy and anonymity.
To be eligible to participate in this survey, you must:
Be 18 years of age or older
Receive health care in Canada
Have access to the internet
Thank you for considering our request to participate in this survey. Your participation will help you and other people living with RA in your country know more about the health care they should be receiving.
September is Arthritis Awareness Month in Canada. In this issue of JointHealth™ monthly, Arthritis Consumer Experts (ACE) looks at Models of Care for Inflammatory Arthritis to improve the way healthcare is delivered to patients by the health policy decision makers, rheumatologists, allied health professionals and other health care providers who care for them.
Below are highlights from this month’s newsletter:
What is an inflammatory arthritis model of care
The foundation of modernizing IA care in Canada
The role of IA patients in the development of a pan-Canadian approach to inflammatory arthritis models of care
Attention: Are you a person living with osteoarthritis (OA)?
Here’s an opportunity to attend a free workshop on models of care for OA.
The Arthritis Alliance of Canada (AAC) is offering you an opportunity to participate in its upcoming Osteoarthritis Models of Care (OA MOC) workshop, as part of the AACs 2nd Annual Conference and Research Symposium. The two-hour, OA MOC workshop will take place in Toronto at the Toronto Marriott Downtown Eaton Centre Hotel, Saturday, November 1st, 10:30-am-12:30 pm. Space is limited and registrations will be taken on a “first come, first serve” basis. Continue reading →
Arthritis Broadcast Network’s “CRA Interview Series 2014”
Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). Starting March 14, feature interviews will be posted daily on the ABN YouTube channel at http://bit.ly/ABNYouTube. We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.
Today’s interview features Dr. Dianne Mosher, Division Head of Rheumatology at the University of Calgary. In this interview, she talks about the models of care development in Canada.