Bienvenue au réseau de diffusion sur l'arthrite Arthritis Research Centre of Canada Arthritis Consumer Experts

Kids on the Block puppets talk juvenile arthritis in Vernon

A picture of puppets Leslie, a puppet with juvenile arthritis, and JenniferJuvenile arthritis strikes up to three in 1000 children in B.C. and is one of the most common chronic diseases among children. Cassie and Friends’ Kids on the Block, an educational puppet troupe, is spreading awareness about juvenile arthritis at elementary schools like the one Sarika Adriaanse attends in Vernon. The aim is to help children understand arthritis. With the aid of a $2,500 grant from Telus’ Community Board, the performance will visit several other interior school boards.

Continue reading

Parlez-nous de votre PR

Pleins feux sur la PR est un projet d’envergure internationale visant à explorer ce qui importe le plus aux personnes atteintes de PR. Tirant parti de l’externalisation à grande échelle, RA Matters invite les participants à répondre à des questions sur les relations, les activités, le travail et les aspirations afin de faire ressortir les aspects les plus importants de la vie quotidienne. RA Matters vise à susciter une discussion à l’échelle mondiale qui mette en lumière ce que veulent vraiment les personnes atteintes de PR et, en définitive, à aider ces dernières à vivre la meilleure vie possible.

RA Matters Banner French Continue reading

Tell us how RA Matters to you

RA Matters is an international project aiming to explore what matters most to people living with RA. Using online crowdsourcing to invite participants, RA Matters asks questions about relationships, activities, work and aspirations, in order to reveal the most important aspects of day-to-day life. RA Matters aims to elevate a global conversation that sheds light on what those with RA really want and – ultimately – help them  live the best life possible.

RA Matters Banner Continue reading

Have you started talking about biologic medications for Rheumatoid Arthritis with your doctor?

Super Study bannerThe latest online tool to help make your treatment decisions.

We are looking for people to participate in a study to determine the usefulness of a web-based program designed to aid people with rheumatoid arthritis in making decisions to start or switch biologics.

If you have started discussing STARTING OR SWITCHING BIOLOGICS with your doctor, we invite you to participate in this study.

You may be eligible if you:

  1. Have a diagnosis of rheumatoid arthritis
  2. See a rheumatologist
  3. Have started discussing switching or starting biologic medication with your doctor
  4. Have a valid email and internet access

This study can be completed from home or anywhere with internet access. Any information you provide will be completely confidential. An honorarium will be provided for your time.

If you would like more information, please contact Jasmina Geldman, Research Coordinator by phone at 604-207-4007, toll free 1-877-871-4575, or email jgeldman@arthritisresearch.ca. Please also visit our UBC Study Website for more information.

Indigenous children expresses pain through art

The Aboriginal Children’s Hurt and Healing Initiative wanted to answer one simple question: What does pain look like? Not what it feels like, but what pain would look it if you had to express it on paper, or in this case, canvas.

In an interview with CBC News, John Sylliboy, community research co-ordinator with the Aboriginal Children’s Hurt and Healing Initiative, said: “Aboriginal children feel and experience pain just like anyone else. It’s just that they express their pain very differently. They don’t necessarily verbalize their pain, or they don’t express it outwardly through crying or through pain grimaces. A lot of kids, they just suck it up. That’s what they say all the time. ‘We just suck it up.'”

The research study spawned in 2008 when Margot Latimer, a clinical scientist at the Centre for Pediatric Pain Research at the IWK Health Centre in Halifax, observed there was no First Nations youth being referred to their pain clinic at the IWK hospital.

One of the paintings from the children

“My painting is about pain and the black represents how she feels inside. But she has like this white kind of atmosphere and it separates it from her pain.” – Artist, 16-year-old
Source: http://www.cbc.ca/news/health/aboriginal-youth-art-pain-hurt-healing-1.3852646?cmp=rss

Continue reading

Des Canadiens honorés dans le cadre du Colloque annuel 2016 de l’ACR-APSA

Des Canadiens honorés dans le cadre du Colloque annuel 2016 de l’ACR-APSA 

Toutes nos félicitations aux docteurs Carter Thorne et Claire Bombardier !

L’American College of Rheumatology (ACR) a dévoilé le nom des récipiendaires 2016 du titre de Master de l’ACR et de la Distinction pour membre émérite dans le cadre du Colloque annuel 2016 de l’ACR-APSA, tenu à Washington D.C. Ces distinctions sont remises chaque année pour souligner la contribution exceptionnelle de certains membres dans le domaine de la rhumatologie.

A picture of Dr. Carter ThorneDocteur Carter Thorne reçoit le titre de Master de l’ACR
Le comité ACE tient à féliciter le docteur Carter Thorne, MD, FRCPC, FACP, Centre de santé régional Southlake, à Newmarket, Ontario, Canada et Université de Toronto, pour avoir reçu le titre de Master – l’un des plus grands honneurs accordés par l’ACR à l’un de ses membres. Attribué aux membres ACR de 65 ans et plus, le titre de Master se veut une reconnaissance de leur contribution exceptionnelle dans le domaine de la rhumatologie via leurs réalisations comme chercheurs et (ou) leur rôle auprès de leurs patients, étudiants et confrères. Les récipiendaires ainsi honorés ont consacré leur longue et brillante carrière à faire avancer la recherche dans le domaine de la rhumatologie et à améliorer les normes cliniques dans le traitement des maladies rhumatismales. Continue reading