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Steroid use associated with fractures in early RA

A recent study suggest that steroid use may be associated with fractures in early rheumatoid arthritis (RA). Researchers looked at the impact of systemic glucocorticoid exposure on fracture risk among new-onset rheumatoid arthritis by looking at administrative claims data between 2005-2012. The data provided detailed information about the treatments and outcomes of 42, 127 newly diagnosed RA patients.

Pill bottom with pills spilling outFrom the data, researchers concluded that 85% of RA patients were exposed to steroids. Rheum Now summarised the research findings as follow: “Although exposed and unexposed patients were demographically similar, fracture risk was significantly higher at doses <15mg/day (5 to 9 per 1000 person-years), ≥15 mg/day (16 per 1000 PY), and with cumulative doses ≥5400 mg (13.4 per 1000 PY). Adjusted fracture risk was approximately 2-fold higher at highest dose levels compared with 0 mg/day current daily dose and <675 mg cumulative dose, respectively.” Continue reading

Let BC PharmaCare hear “Your Voice” on secukinumab

Stickman with megaphone calling for patient inputBC PharmaCare is looking for your input on secukinumab for the treatment of ankylosing spondylitis and psoriatic arthritis

Secukinumab is a fully human monoclonal antibody that targets IL-17A, a protein central to the development of inflammatory diseases. It is given by an injection. The drug is now being considered for coverage under the British Columbia Ministry of Health’s PharmaCare program. By filling out a questionnaire on a website called Your Voice, you can provide feedback about secukinumab for the treatment of ankylosing spondylitis (AS) and psoriatic arthritis (PsA).

You can give input if you are a B.C. resident and have AS or PsA, a caregiver to someone with AS or PsA, or if your group represents people who live with AS or PsA.

The submission deadline is midnight on July 21, 2016. Patients and caregivers may give their input directly through the links below.
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Last day to register! Run/Walk for kids with arthritis

Do it for the kids! Participate with your family and friends in the Scotiabank Charity Challenge 5K or Half Marathon with Team Cassie & Friends! Proceeds support research and programs for kids with juvenile arthritis and other rheumatic diseases and their families. Free kid registrations, activities and prizes. If you are unable to make the run, you can still participate by cheering for the team on along the run/walk route!

Post card for run walk with kids announcementToday is the last day to register online! For more information about the event and to register online, please visit www.canadarunningseries.com and register with the charity code 16VCASSIE.

About Juvenile Arthritis

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Increased risk of attempted suicide in patients with arthritis

Two people sitting with backs to each otherA new study from the University of Toronto found that people living with arthritis are 46 percent more likely to attempt suicide than those living without arthritis.

In the study, researchers looked at factors associated with ever having attempted suicide in a sample of 4,885 patients with arthritis across Canada and 16,859 patients without arthritis. All the data were collected from the 2012 Canadian Health Survey-Mental Health. The research found that: Continue reading

EULAR Press interviews Cheryl Koehn on patient satisfaction

EULAR Press interviews Cheryl Koehn on patient satisfaction and RA treatment

Cheryl Koehn discusses the importance of treatment conversations between patients and healthcare professionals.

This year’s European League Against Rheumatism Annual Congress (EULAR2016) highlighted patient-focused initiatives that aimed to:

  • Improve the understanding of the patient perspective
  • Encourage patient participation
  • Optimize care of rheumatic diseases

One of the initiatives is the RA NarRAtive initiative – a patient survey fielded in 15 countries around the world and designed to evaluate the patient/healthcare professional relationship and communication and patients’ experience and satisfaction with treatment and disease management. To view the interview with Cheryl Koehn, please click here.

“Further understanding the responses from this survey will be important to facilitate communication between patients and healthcare professionals, with the ultimate aim of improving treatment outcomes,” said Ms. Cheryl Koehn, President of Arthritis Consumer Experts and member of the RA NarRAtive global advisory panel.

To learn more about the study, please click here to view the press release.

Sexual challenges linked to rheumatoid arthritis

Today’s European League Against Rheumatism Annual Congress press conference profiled a study that looked at the connection between sexual dysfunction and rheumatoid arthritis. Below is a copy of the press release:

EULAR Press Conference slide

EULAR 2016

European League Against Rheumatism Annual Congress

London, United Kingdom, 8-11 June 2016

ONE-THIRD OF RHEUMATOID ARTHRITIS PATIENTS EXPERIENCE SEXUAL DYSFUNCTION
New insights into sexual problems linked to rheumatoid arthritis

London, United Kingdom, 10 June 2016: The results of a study presented today at the European League Against Rheumatism Annual Congress (EULAR 2016) showed that sexual dysfunction is present in more than one-third of patients with rheumatoid arthritis (RA) who are still sexually active, both men and women. A variety of difficulties may affect RA patients, including lack of libido, painful intercourse, orgasmic dysfunction, premature ejaculation and a non-satisfactory sexual life.

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