Cheryl Koehn is the woman behind Arthritis Broadcast Network. She is a national arthritis advocate, a community leader and a published author. In November 2000, Cheryl founded Arthritis Consumer Experts (ACE) and its JointHealth™ family of programs.
As a 23-year survivor of rheumatoid arthritis (RA), Cheryl brings the arthritis consumer’s perspective to ACE, and to decision-making processes at government, research institutions, not-for-profit and for-profit organizations across Canada and internationally. With her dedication, Cheryl developed the JointHealth™ Report Card and Medications Guide – an important tool and reference guide for industry partners, government officials, and people living with arthritis. Along with co-authors Dr. John Esdaile and Taysha Palmer, Cheryl Koehn authored Rheumatoid Arthritis: PLAN TO WIN, published by Oxford University Press and in bookstores in January 2002.
Cheryl’s recent activities include presenting at the Canadian Rheumatology Association 69th Annual Scientific Meeting & Arthritis Health Professions Association Meeting (CRA Meeting), meeting with government leaders, and providing support for research activities at the Arthritis Research Centre of Canada.
Dr. Linda Li - Associate Professor in the Department of Physical Therapy at the University of British Columbia and Senior Research Scientist at the Arthritis Research Centre of Canada
Linda specializes in physical therapy and knowledge translation. Her most recent research project at the Arthritis Research Centre of Canada is “Arthritis Care in the Digital Age”. The study aims to understand how online physical activity monitoring tools may be used to support Canadians with arthritis in managing their disease.
Linda plays a crucial role in recognizing that being physically active can reduce pain, improve mobility and enhance quality of life. People with arthritis should not remain sedentary. She wants to make sure that people with arthritis have access to health professionals to learn how to stay active safely.
Cathy Hofstetter recently presented the patient’s perspective at a satellite symposium at the CRA Meeting. She captivated the audience with her biographical speech about living with rheumatoid arthritis and how the disease has impacted her life. Her speech touched the hearts of those who lives with arthritis by highlighting the moments leading to diagnosis, seeking medical help, managing the disease and disease-related side effects (both direct and indirect), adjusting her lifestyle to her RA and living better with her RA. Her speech encourages those who live with arthritis to speak out.
A recent study published in The Journal of Hand Therapy suggest that having patients perform magic tricks can help heal damaged or weakened hands after surgery, strokes, and even arthritis. According to an article published in the Daily Mail UK, “the goal of magic therapy is that the skills and movement gained from practicing the tricks will translate into improvement in their everyday activities”.
A study presented at the Canadian Rheumatology Association 69th Annual Scientific Meeting showed that smoking appears to worsen disease activity in people living with rheumatoid arthritis (RA). Disease activity in this study are defined by swollen and tender joint counts and patient-reported measures of diseases activity. Researcher Binu Jacob, PhD, from the Toronto Hospital Research Institute of Ontario, found that disease activity worsened regardless of background therapy and is higher in current smokers than in people who have never smoked. The study adjusted for age, sex, and rheumatoid factor.
The University of British Columbia and the Arthritis Research Centre of Canada are conducting a research study and gathering your input on your experiences, behaviours, and attitudes towards arthritis and medical cannabis.
Dear arthritis patient,
On behalf of the University of British Columbia, Arthritis Research Center of Canada (ARC), and the Arthritis Consumer Experts (ACE), we would like to invite you to participate in a study titled “Medical Cannabis and Arthritis: Barriers and Pathways.” You are being asked to participate in this study because you are someone who has arthritis or other rheumatological conditions; conditions that some people treat with cannabis.
We are interested in knowing more about your experiences, behaviours, and attitudes related to arthritis and medical cannabis. Your participation in this research will help us to improve upon current health care and support related to patients with arthritis and medical cannabis use.
You will be asked to complete a brief online survey that will require approximately 20-30 minutes of your time. The survey asks a variety of questions related to arthritis, pain, medications and treatments, and medical cannabis use. We encourage you complete the survey in a comfortable and private location. You do not have to use cannabis to treat your symptoms to participate in the survey. In exchange for participating, you will be reimbursed $15.00.
Le comité ACE sera sur à Whistler, C.-B., pour assister à la rencontre scientifique annuelle 2014 de la SCR et de l’APSA. Les deux rencontres, qui débutent aujourd’hui et se terminent le samedi 1er mars, rassemblent des professionnels de la santé de partout au Canada œuvrant dans les domaines de la rhumatologie et de l’arthrite (comme les physiothérapeutes) pour découvrir et partager les derniers progrès dans la recherche et les soins de l’arthrite.
Sur place, le comité ACE et les représentants des associations de consommateurs réaliseront des entrevues avec des rhumatologues (des médecins spécialisés dans le traitement de l’arthrite) et d’autres présentateurs des rencontres à propos de leur opinion sur la situation de l’arthrite au Canada. Parmi les thèmes abordés, mentionnons :
Points forts de la rencontre de la SCR de cette année et dont les patients pourraient le plus tirer avantage;
Utilisation des médias sociaux en lien avec les soins aux patients et la recherche médicale;
Avancées dans le traitement de l’arthrite; et,
Autres sujets importants liés à la santé arthritique.
Si vous avez des questions que vous aimeriez voir poser par le comité ACE aux rhumatologues concernant la situation des soins de l’arthrite au Canada, veuillez les soumettre par courriel à firstname.lastname@example.org et nous les incluront aux entrevues. Pour de plus amples renseignements sur les rencontres annuelles, cliquez ici.
Arthritis Consumer Experts (ACE) will be in Whistler, BC to attend the 2014 CRA Annual Scientific Meeting & AHPA Annual Meeting. The meetings, which begin today and end on Saturday March 1, brings rheumatologist and arthritis health professionals (like physiotherapists) from all over Canada together to learn about and share the latest advances in arthritis research and care.
While there, ACE and representatives will be interviewing rheumatologists (doctors who specialize in treating arthritis) and other arthritis-health related topic presenters about their views on the state of arthritis in Canada. The issues we will be talking to the meeting participants about will include:
The highlights of this year’s CRA meeting that would benefit patients most;
The use of social media in relation to patient care and medical research;
Advances in the treatment of arthritis; and,
Other important topics related to arthritis health.
If you have any questions you would like ACE to ask the rheumatologist regarding the state of arthritis healthcare in Canada, please send your questions to email@example.com and we will include them in the interviews. For more information regarding the meeting, please click here.