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Spotlight on Arthritis Superheroes

 

Today, the Spotlight on Arthritis Superheroes is shining on Zandrea Bailey, sixth finisher in the Miss Universe Jamaica (MUJ) 2014 pageant.

Picture of Zandrea Bailey

From: https://www.facebook.com/zandreaformissuniverseja2014

 

When the 24-year-old graced the stage of MUJ 2014, nobody would have guessed she was battling a form of lupus called Systematic Lupus Erythematosus.

Systemic lupus erythematosus (SLE) occurs when the body’s immune system begins to malfunction and attack healthy tissue in various parts of the body, causing inflammation and damage. Tissues affected can include the skin, joints, muscles, kidneys, lungs, heart, blood vessels, and brain.

Zandrea’s introduction to lupus was at an early age, through her mother. Her mother has been living with Discoid Lupus for 23 years.

In 2011, Zandrea’s friends and family encouraged her to join the Miss Jamaica World Beauty Pageant; however, she failed to make the final that year. Determined, she said:

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Spotlight on Arthritis Superheroes

Today, the Spotlight on Arthritis Superheroes is shining on an organization called Lupus Canada.

October Lupus Awareness MonthLupus Canada is a website that offers resources and information about lupus to people living with lupus, their family and friends, health care professionals and the general public.

Lupus is the name given to a group of chronic immune diseases. It affects about 15,000 Canadians-approximately one in 2000. Lupus Canada wants to ensure that people living with lupus are living well. Like many other forms of arthritis, lupus occurs more commonly in women than in men-women develop lupus approximately ten times more often than men do. While it can strike at any age, it tends to occur most often between the ages of 15 and 45.
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Arthritis Consumer Experts Recognizes Canada’s Best Workplaces for Employees Living with Arthritis

TELUS, Agricultural Financial Services Corporation and cfactor Works recognized for best arthritis practices in the workplace

Best Arthritis Workplace bannerVANCOUVERSept. 25, 2014 /CNW/ – The results are in. Arthritis Consumer Experts (ACE) today announced the three companies awarded Canada’s Best Workplaces for Employees Living with Arthritis for their efforts to make the work environments great for everyone, including employees living with arthritis.

Based on workplace insights shared by employees and company managers, the following companies stand out for best practices that take into account the unique concerns of employees living with the most common chronic disease in the workplace – arthritis:

Commenting on the arthritis in the workplace award, ACE President, Cheryl Koehn said: “As we hoped, the application process delivered insights to further strengthen Canadian companies’ approaches to creating a more productive and arthritis sensitive workplace. During our exchanges with employees and employers, we also created opportunities for companies to assess their awareness of arthritis and support systems for employees living with the disease.”

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AS it Goes – Bike Seat Blues

Fran posing beside her bikeTo help her keep fit, Fran rides her bike, but she is finding it a bit of a pain in the . . .

I’ve written ABN posts about cycling and how my bike-savvy son has outfitted me to maximize my comfort and protect my various body parts (hands, arms, back) affected by osteoarthritis and/or ankylosing spondylitis. But what I failed to take into account as I became more proficient on the bike and my excursions extended beyond a few kilometers, was the effect that biking would have on other ‘lower’ body parts, such as the end of the tailbone and other adjacent posterior bits.

True, I have a high-tech, ergonomic and nicely padded bike seat, but it turns out that my sit-upon region appears to need additional cushioning against uneven road surfaces and the jarring effect of the constant bouncing up and down as you ride along. I know that professional cyclists suffer from numbness and discomfort in the buttocks, but as a recreational (and occasional) rider I never expected to have similar issues. But sure enough, after an hour or so in the saddle, the pain in my hands or arms is secondary to the pain in my butt. Continue reading

Spotlight on Arthritis Superheroes

Today, the Spotlight on Arthritis Superheroes is shining on an organization called Cassie and Friends Society for Children with Juvenile Arthritis and Other Rheumatic Diseases.

Cassie and Friends started with a little girl named Cassie. Juvenile arthritis became a part of Cassie’s family in September of 2006 when Cassie, then 20 months old, wouldn’t walk when her parents took her out of the crib. Eventually, Cassie was diagnosed with juvenile idiopathic arthritis. Her parents were shocked with the diagnosis, as they believed arthritis was only a disease for the elderly. They soon learned how common arthritis is in children.

Cassie and Friends

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Demande de rétroaction d’organisations de patients sur l’utilisation de l’apremilast dans le traitement du psoriasis en plaques de modéré à sévère

Megaphone GraphicDemande de rétroaction d’organisations de patients sur l’utilisation de l’apremilast (Otezla®) dans le traitement du psoriasis en plaques de modéré à sévère

Souffrez-vous de psoriasis en plaques de modéré à sévère ou prodiguez-vous des soins à quelqu’un qui en souffre ? Vos commentaires seraient précieux.

Le Programme commun d’évaluation des médicaments (PCEM) invite actuellement les patients et leurs fournisseurs de soins à faire parvenir aux organismes représentant les patients leurs suggestions et commentaires sur la présentation par le fabricant de l’apremilast (Otezla®) dans le traitement du psoriasis en plaques, de modéré à sévère. L’apremilast est un composé à petite molécule administrable par voie orale, à raison d’un comprimé deux fois par jour. Dans les phases II et III des essais cliniques, l’apremilast a démontré son efficacité dans le traitement du psoriasis en plaques, tout en étant bien toléré. Le médicament agit en bloquant l’action de la phosphodiestérase de type 4, un enzyme que l’on retrouve dans les cellules immunitaires. 
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