Le Réseau de diffusion sur l’arthrite dans la liste Feedspot des 40 meilleurs blogues et sites Web sur l’arthrite pour les personnes atteintes de cette maladie.
Le Réseau de diffusion sur l’arthrite (RDA) géré par le comité ACE (Arthritis Consumer Experts) : Actualités et information sur l’arthrite. En tout temps. Grâce à nos supporteurs, notre plus récent événement en direct sur Facebook a rejoint plus de 23 000 personnes en seulement trois jours !
C’est un honneur pour le Réseau de diffusion sur l’arthrite de figurer à la liste Feedspot des 40 meilleurs blogues et sites Web sur l’arthrite pour les personnes atteintes de cette maladie. Ce classement se fonde sur les critères suivants : Continue reading →
Arthritis Broadcast Network (ABN) – powered by Arthritis Consumer Experts – All your arthritis news and information. All the time. Thanks to our fans, our most recent Facebook Live event reached over 23,000 people in just three days!
Arthritis Broadcast Network is honoured to be named one of the top 40 arthritis blogs and websites for people living with arthritis by Feedspot. Rankings are based on the following criteria: Continue reading →
Des soins de l’arthrite qui visent la « satisfaction du patient »
Dans ce numéro du JointHealth™ insight, pour souligner le mois de sensibilisation à l’arthrite au Canada, nous attirons votre attention sur trois études internationales qui ont contribué à identifier les lacunes des modèles de soins de l’arthrite, du point de vue du patient. Nous aimerions savoir ce que vous en pensez. Veuillez répondre à chacun des trois courts sondages proposés dans ce numéro du JointHealth™ insight. Vos réponses serviront à baliser l’information et les programmes éducatifs que nous proposerons en 2018 pour offrir un soutien aux patients et améliorer les soins qui leur sont administrés par les rhumatologues, les professionnels paramédicaux, les décideurs en santé et tous les autres fournisseurs de soins impliqués dans le traitement des Canadiennes et Canadiens atteints de toutes les formes d’arthrite.
Vous trouverez également dans ce numéro :
De l’information sur le modèle de soins de la polyarthrite rhumatoïde
Un modèle de Lettre à la rédaction visant à augmenter la sensibilisation de l’arthrite dans votre collectivité
Getting “Patient Satisfaction” from Arthritis Health Care
To celebrate Arthritis Awareness Month in Canada, in this issue of JointHealth™ insight, we highlight three international surveys that have helped identify gaps in arthritis models of care from the patient perspective. We want to know what you think. Please complete the three mini surveys in this month’s JointHealth™ insight. Your responses will help drive our 2018 information and education programs to support patients and improve the way health care is delivered by the rheumatologists, allied health professionals, health policy decision makers and others who provide care to Canadians with all types of arthritis.
In this issue, you will also:
Read about the model of care for rheumatoid arthritis
Find a Letter to the Editor template to increase awareness about arthritis in your community
What do the public and healthcare professionals think about the effects of running on knee joint health?
This online survey should take approximately 15 minutes to complete.
A research group co-led by Drs. Michael Hunt and Jean-Francois Esculier at the University of British Columbia is currently conducting a survey investigating how people perceive the appropriateness of running for maintaining knee joint health. This online survey should take approximately 15 minutes to complete.
You may be able to participate if you:
Are aged 40 years and older (except for healthcare professionals)
Have access to the Internet to complete the survey
Speak English or French
Participation is anonymous and no information will identify you. Should you have any questions, feel free to contact Dr. Jean-Francois Esculier at firstname.lastname@example.org.
Arthritis Consumer Experts (ACE) is celebrating Arthritis Awareness Month with the #ArthritisMadLibs Twitter Project. The goal is to help others understand the impact of arthritis and make informed decisions about the development of new arthritis programs that will benefit patients and their caregivers.
#ArthritisMadLibs is a chance to re-write the arthritis patient story during Arthritis Awareness Month – one word at a time. On the Labour Day long weekend, the #ArthritisMadLibs hashtag garnered 329.892K impressions, 135 Tweets, 24 participants – averaging 2 Tweets per hour and 6 Tweets per participant.
Since September 1, #ArthritisMadLibs had 910.103K impressions, 379 Tweets, 46 participants – averaging 1 Tweet per hour and 8 Tweets per participant. We thank the patients, health care professionals, patient groups, and researchers who have engaged with us thus far. Our engagement rate on @ACEJointHealth’s Twitter account is at an impressive rate of 2.8% engagement rate (34 link clicks, 179 retweets, 235 likes, 138 replies) – a significantly high engagement rate compared to the average Twitter engagement rate of .7% for the top 25 brands on Twitter. Social media is a tricky business and who you follow, who you have following you, and how many followers you have can affect these statistics but for a grassroot patient organization, we are pretty proud of the #ArthritisMadLibs and its participants and supporters!
Here is a summary of the #ArthritisMadLibs (thus far) and some of our favourite Twitter moments:
Working with your physiotherapist to treat your arthritis pain and symptoms
Physiotherapy is often part of a well-balanced treatment plan for many of the more than 100 types of arthritis. It focuses on maintaining, restoring or improving physical function as well as preventing and managing pain, through the use of non-medication treatments.
When choosing a physiotherapist, it is important to look for someone who has experience treating your type of arthritis, if possible. As well, it is important that you feel comfortable with your therapist, and that you relate well on a personal level.
A physiotherapist will examine your body, and assess things like joint range-of-motion, muscle strength, and swelling or instability in affected joints. A physiotherapist will also likely look at any diagnostic imaging-like x-rays-that you have had done, as well as results from any laboratory testing-for example, blood tests or joint aspirations. Finally, the therapist will want to hear from you about your symptoms, mobility, and changes in your body. Then, using the assessment above, the physiotherapist develops a treatment plan that is specifically tailored to the client’s needs. Some of the treatments used by physiotherapists include: Continue reading →
Innervoice.life is a website dedicated to telling the inspiring stories of athletes describing their journeys to health, discovery and personal victories. Below is an excerpt of the most recent “innervoice” story, featuring ACE President and Founder Cheryl Koehn.
Picture from Innervoice.life
EMOTIONALLY AND SPIRITUALLY
I no longer play competitive volleyball, or any other sport for that matter. But the inner high-performance athlete is alive and well inside of me, and helps me overcome challenges every minute of every day. Not long after I retired from competitive volleyball, I developed severe rheumatoid arthritis (RA), an autoimmune disease that leads to uncontrolled inflammation and joint swelling, immobility and eventual destruction. From the day I was diagnosed, something inside of me said “don’t stop moving, keep trying to do the things you love”. Little did I know, that perspective is what research would prove years later: high intensity exercise in the setting of moderate to severe rheumatoid arthritis is a good thing, as long as you protect your joints from improper movement or stress, or when they are actively inflamed.
I approach my life with rheumatoid arthritis the exact same way I did my competitive sporting life. Emotionally and spiritually, I can be tougher than the toughest times I face. I may not be able to do half of what I used to physically, but I have finely honed team skills that help me in the community development work I lead. I recognise that overcoming a challenge requires thoughtful planning and work, and then more work, before you can “win”. Nothing came easy for me on the volleyball court, and the same is true in life. I know that is very cliché, but clichés exist for a reason; they’re usually true!