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Fibromyalgia: Myths, Facts, and Future Hopes

Woman with hand on faceThe Canadian Institute for the Relief of Pain and Disability (CIRPD) will be conducting a webinar tomorrow (April 16) at 11:00am PDT/2:00pm EDT on fibromyalgia. The webinar will feature Connie Leudtke, MA, RN-BC, Assistant Professor at Mayo Clinic College of Medicine and Nursing Supervisor at the Mayo Clinic Pain Rehabilitation Center and Mayo Fibromyalgia and Chronic Fatigue Clinic. Drawing from 25 years of experience, Leudtke will dispel some common myths about fibromyalgia. She will also provide up-to-date information on diagnosis and treatment.

At the end of the webinar, attendees will be able to:  Continue reading

Study on medical cannabis by UBC and the Arthritis Research Centre of Canada

Study on medical cannabis

The University of British Columbia and the Arthritis Research Centre of Canada are conducting a research study and gathering your input on your experiences, behaviours, and attitudes towards arthritis and medical cannabis.

Dear arthritis patient,

On behalf of the University of British Columbia, Arthritis Research Center of Canada (ARC), and the Arthritis Consumer Experts (ACE), we would like to invite you to participate in a study titled “Medical Cannabis and Arthritis: Barriers and Pathways.” You are being asked to participate in this study because you are someone who has arthritis or other rheumatological conditions; conditions that some people treat with cannabis. Continue reading

Ms. Cheryl Koehn: Arthritis Consumer Experts-Thoughts from the President

Arthritis Broadcast Network’s “CRA Interview Series 2014″ – Ms. Cheryl Koehn: Arthritis Consumer Experts – Thoughts from the President

Today’s interview features Ms. Cheryl Koehn, the President of Arthritis Consumer Experts. Ms. Koehn comments on what she learned from the Canadian Rheumatology Association meeting and how everyone plays a role in improving the lives of those living with arthritis.

Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). As of March 14, feature interviews are posted daily on the ABN YouTube channel at http://bit.ly/ABNYouTube. We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.

CRA Interview Series 2014 – Dr. Nigil Haroon: Making Sense of Spondyloarthritis

Arthritis Broadcast Network’s “CRA Interview Series 2014″ – Dr. Nigil Haroon: Making Sense of Spondyloarthritis

Today’s interview features Dr. Nigil Haroon, Affiliate Scientist, Division of Genetics and Development, Toronto Western Hospital. Dr. Haroon share information from his workshop “Making Sense of Spondyloarthritis.”

Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). As of March 14, feature interviews are posted daily on the ABN YouTube channel at http://bit.ly/ABNYouTube. We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.

CRA Interview Serie 2014 – Ms. Erin Carruthers: Venous Thromboembolism & Arthritis

Arthritis Broadcast Network’s “CRA Interview Series 2014″ – Ms. Erin Carruthers: Risk of Venous Thromboembolism in individuals with Dermatomyositis and Polymyositits

Today’s interview features Ms. Erin Carruthers, Research Assistant at the Arthritis Research Centre of Canada. She did a poster presentation at the CRA Meeting titled “Risk of Venous Thromboembolism in Individuals with Dermatomyositis and Polymyositis.”

Studies have shown that people with inflammatory forms of arthritis may have a higher risk of developing cardiovascular complications, such as heart attacks and strokes, than the general population. However, very little research has been done on the risk of venous thromboembolism (VTE), including deep venous thrombosis (blood clots in the legs) and pulmonary embolism (blood clots in the lungs). Using administrative data from the province of British Columbia, this study evaluated this risk in a cohort of people with polymyositis and dermatomyositis. After adjusting for relevant confounders, the risk of VTE was found to be 8.4 times higher in people with dermatomyositis and 7.0 times higher in people with polymyositis, than in the general population. These findings call for increased vigilance in monitoring VTE, a potentially fatal complication in people with these conditions.

Consumer “reporters” interviewed more than 30 leading professionals at the Arthritis Broadcast Network Booth (ABN) during last month’s Canadian Rheumatology Association and Arthritis Health Professions annual meetings (CRA). As of March 14, feature interviews are posted daily on the ABN YouTube channel at http://bit.ly/ABNYouTube. We invite everyone to share the interviews with their networks to strengthen the public profile of arthritis leaders in Canada.

Arthritis Consumer Experts (ACE) at the 2014 CADTH Symposium

Snow over QuebecCheryl Koehn, President of Arthritis Consumer Experts (ACE), spoke in today’s session at the 2014 CADTH Symposium held at the Hilton Lac-Leamy, Gaitneu, Quebec. The 2014 CADTH Symposium is the tenth pan-Canadian forum organized by the Canadian Agency for Drugs and Technologies in Health for producers and users of evidenced-based information on drugs and other health technologies in Canada. This year’s Symposium is titled The Realities of Health Care Decision-Making: Evidence, Values, and Collaboration and comprises of 3 plenary sessions, 22 panel discussions, 9 oral sessions, 13 workshops and more than 40 scientific posters – all helping to enhance decision-making, reduce uncertainty, improve health outcomes and increase the value and sustainability of health care in Canada and around the world.

ACE is proud to be a part of the Symposium. Cheryl was one of the panellists today at “Session D2 – Panel Discussion: Health Technology Assessment of Biosimiliars (Subsequent Entry Biologics): A Canadian Perspective.” She spoke alongside the following panellists: Continue reading