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Your invitation to a Tweetchat on fibromyalgia

Human thinkingThe Cochrane Pain Palliative and Supportive Care Review Group is inviting adults aged 18 years and over, with fibromyalgia, to join in on a Tweetchat to discuss patient-preferred fibromyalgia outcomes.

The aim of the Tweetchat is to explore outcomes for use in patient-preferred outcomes, for use in template protocols for Cochrane systemic reviews on interventions for fibromyalgia in adults.

Below are the event details: Continue reading

AS it Goes – My Donation is in the Mail

It’s that time of year again . . .

Donate: donation is in the mail

Image courtesy of Winnond | FreeDigitalPhotos.net

when the soliciting machine cranks up its fundraising pleas for donations to worthy or charitable causes. I regularly receive solicitations from university alumni associations, hospital foundations and non-profit organizations asking me for a contribution. Sometimes these groups ratchet up their fundraising appeals with personal telephone calls, asking me to renew an earlier pledge or to make a one-time “special” donation for an especially critical need. Continue reading

JointHealth™ express – Staying Active with Arthritis in the Digital Age

Be heard

Image courtesy of Ambro at FreeDigitalPhotos.net

Staying Active with Arthritis in the Digital Age

How can online physical activity trackers affect your arthritis care?

Heard of Apple’s new Apple Watch – a wearable device that serves as a fitness and health tracker? Devices like this are fast becoming the most popular new aid to support people to stay active.

An ongoing study at the Arthritis Research Centre of Canada is asking whether there is a use for these devices in arthritis care – what do you think?

If you live in Alberta or Ontario, you are invited to take part in a focus group to share your views. During the focus group, the research team led by Dr. Linda Li will be presenting on a selection of physical activity trackers.

No experience with the devices is necessary to participate.

Focus groups will be held at a time and location that are convenient for participants. A small honorarium will be offered to all participants.

If you would like more information, please contact Jenny Leese, Research Assistant by phone (toll-free) at 1-877-871-4575, or email jleese@arthritisresearch.ca.

ACR News – Happiness from the Inside Out: A patient’s perspective

Picture of a butterflyCynthia Coney, MEd, CAPP, was the keynote speaker, and spoke as a patient living with lupus, at ACR’s ARHP Keynote Address: Happiness from the Inside Out. Coney is a nationally recognized speaker, trainer, and author. She holds a Master’s Degree in Educational Leadership and is a Master Trainer for the Centers for Disease Control and Prevention (CDC) and The Center for Prevention Workforce Development. Her publications include: Earned Income: A Critical Resource for Sustainable Nonprofit Health Organizations, Intellectual Property for Nonprofit Organizations, and The Wild Woman’s Guide to Living with Chronic Illness.

As a patient who’s been diagnosed with lupus in 1980, she shared her experience as a patient receiving care and support for more than 30 years. She had one advice to offer health professionals, that is: offer empathy, not sympathy.

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ACR News – New frontiers in osteoarthritis treatment

What to doA clinical symposium yesterday at the ACR called New Frontiers in Osteoarthritis Treatment: The Role of Weight Loss, Surgery and Current Treatment Guidelines looked at the management of osteoarthritis (OA) patients through weight loss and exercise, surgery, and medications. The session also looked at the differences in treatment recommendations for OA.

Osteoarthritis and weight loss and exercise

In an interview with ACR Daily News, Stephen P. Messier, PhD, Professor of Health and Exercise Science at Wake Forest University, said: “When combined with exercise, weight loss is a level 1 method of treatment for knee osteoarthritis, and there’s strong support for both weight loss and exercise as the first-line treatment for knee osteoarthritis. I think the problem is that patients don’t know how to do it.”

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ACR News – Dr. Glimcher presents “Bone Biology”

picture of spinal boneThere are many exciting presentations scheduled for today at the ACR Meeting – one of them is Dr. Laurie Glimcher’s Bone Biology. Dr. Glimcher is a medical doctor at the Stephen & Suzanne Weiss Dean and Provost for Medical College. The topic of Bone Biology will be “Close to the Bone: Novel Genes that Remodel the Skeleton” and will explore the latest findings in genes and associated proteins that are leading toward a new generation of treatment for bone loss.

Bone loss is associated with osteoporosis, old age, and rheumatic disease. Research shows that as the population ages, the prevalence of chronic bone loss increases. Osteoporosis is the most common disease in the world. Rheumatic disease and many of the treatments used to treat rheumatic disease have bone loss as a side effect.

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