Bienvenue au réseau de diffusion sur l'arthrite Arthritis Research Centre of Canada Arthritis Consumer Experts

February 21-23: Join us for our #CRArthritis Facebook and Twitter Live event!

#CRArthritis Facebook and Twitter Live BannerWant to know what Canada’s leading rheumatologists are thinking? Join us for our #CRArthritis Facebook and Twitter Live event! 

Arthritis Consumer Experts hosts the #CRArthritis Facebook and Twitter Live event

Powered by ACE and supported by representatives from the Arthritis Patient Advisory Board of Arthritis Research Canada and the Canadian Spondylitis Association, Arthritis Broadcast Network (ABN) will be interviewing keynote speakers, meeting attendees, patients living with arthritis, and disease experts. We invite you to participate in the Facebook and Twitter Live event. Like, share and retweet the live interviews, send us your comments or questions through Facebook and Twitter during the interviews.

Join the conversation at the Arthritis Broadcast Network Facebook page or Twitter (@ArthritisNetwrk) feed using #CRArthritis. Interviews will take place from Wednesday, February 21st until Friday, February 23rd.

Discussion topics include:

  • Latest advances in the treatment and care of rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis, osteoarthritis and much more;
  • Personalized medicine and arthritis;
  • Discussions with leading physiotherapists and occupational therapists;
  • Use of social media in arthritis patient care and medical research;
  • Getting to know your arthritis consumer-patient community;
  • And much more!

Email your questions in advance to or ask them “live” during the event – we look forward to your participation!

Demande de rétroaction de patients sur l’ixekizumab (Taltz) dans le traitement de l’arthrite psoriasique

Stick man holding megaphoneSouffrez-vous d’arthrite psoriasique ? Vos commentaires seraient précieux.

Le programme commun d’évaluation des médicaments (PCEM) invite actuellement les patients et leurs fournisseurs de soins à faire parvenir aux organismes représentant les patients leurs suggestions et commentaires sur la présentation par le fabricant de l’ixekizumab (Taltz) dans le traitement de l’arthrite psoriasique.

Le PCEM fait partie de l’Agence canadienne des médicaments et des technologies de la santé. Le PCEM examine avec objectivité et rigueur l’efficacité et la rentabilité des médicaments et fournit des recommandations aux régimes d’assurance-médicaments publics du Canada (à l’exception du Québec) quant à leur inscription sur la liste des médicaments assurés.

Afin de l’aider dans son processus de recommandation, le PCEM accepte la rétroaction de groupe de patients comme le comité ACE (Arthritis Consumer Experts). Parce que la rétroaction de patients est essentielle à la prise de décision du gouvernement sur les médicaments, nous désirons recueillir vos commentaires pour communication au PCEM.

Voici l’information que recherche le PCEM dans ce dossier particulier : Continue reading

Call for patient input on ixekizumab (Taltz) for the treatment of psoriatic arthritis

Stickman with megaphone calling for patient inputDo you have psoriatic arthritis? We need your valuable input.

The Common Drug Review (CDR) is currently welcoming patients and their caregivers to provide input to patient organizations on the manufacturer’s submission for ixekizumab (Taltz) for the treatment of psoriatic arthritis.

The CDR is part of the Canadian Agency for Drugs and Technologies in Health (CADTH). The CDR conducts objective, rigorous reviews of the clinical and cost effectiveness of drugs, and provides formulary listing recommendations to the publicly funded drug plans in Canada (except Quebec).

To help them make their recommendations, the CDR accepts input from patient organizations and groups, like Arthritis Consumer Experts (ACE). Because patient input is vitally important to government decision-making about medications, we would like to gather your views and share them with the CDR.

These are the questions they are asking: Continue reading

Making Valentine’s Day special for someone living with arthritis

Valentines Day image

Research has shown that people in relationships in which they feel positive, connected, and comfortable sharing feelings may experience a reduction in their physical disability and pain, and fewer symptoms of depression and anxiety. Do you know how to make Valentine’s Day special for someone living with arthritis?

Below are some ways to impress your sweetheart:

  1. Take the time to learn your partner’s disease. Learning about your partner’s disease will show that you care, understand and want to share their struggles and celebrate their accomplishments with them. You will also reduce the feelings of stress and frustration that sometimes come with explaining one’s arthritis to a friend or loved one.
  2. Pace your Valentine’s Day activities. Pace yourself to conserve your energy. Look at what you can realistically do and ask your partner for their feedback on your Valentine’s Day plan(s). You will both feel more relaxed and controlled.
  3. Ask others to help. Put certain tasks on hold or delegate others to complete the tasks for you while you take the night off with your loved one. If you have children or pets, ask a relative or friend if they can look after them for you.
  4. Avoid long commute. There are health risks associated with activities that require you to be in the same position for long periods of time, such as getting stiff or swollen joints. If you must commute a long way, ensure the car seat is comfortable and to take short standing breaks every 15 minutes or so.
  5. Avoid smoking and limit the amount of alcohol you drink before anticipated sexual activity. Both reduce sexual functioning. Furthermore, some of the medicines your doctor prescribes to relieve sore joints don’t mix well with alcohol – including nonsteroidal anti-inflammatory drugs (NSAIDs) such as ibuprofen (Motrin) or naproxen (Aleve), which carry a greater risk for stomach bleeding and ulcers when you drink. Taken with acetaminophen, methotrexate or leflunomide, alcohol can make you more susceptible to liver damage.
  6. Start the night with a warm shower or bubble bath to warm up the joints, to help with sore muscles, and to relax.
  7. Talk to your partner about what you like and don’t like, what hurts and what doesn’t hurt. You may find the honesty will enhance your relationship, and you will likely be more comfortable during sexual activity because of communicating what works for you. If you are finding these conversations difficult, you may benefit from seeing a sex therapist.
  8. Incorporate sexual activity and physical contact (like hugging) into your Valentine’s Day activities. Both can improve bonds between people and help build trust, reduce pain, promote sleep, reduce stress, boost immunity, burn calories, improve self-esteem, and improve heart health.

If you have any other ideas, please leave us a comment on Facebook or Twitter. On behalf of the team at Arthritis Broadcast Network, I hope you will have a wonderful Valentine’s Day!

Let BC PharmaCare hear “Your Voice” on tocilizumab (Actemra™) 

Stick Man figure holding MegaphoneBC PharmaCare is looking for your input on tocilizumab (Actemra™) for the treatment of giant cell arteritis

Tocilizumab (Actemra®) for giant cell arteritis (GCA) is now being considered for coverage under the British Columbia Ministry of Health’s PharmaCare program. By filling out a questionnaire on a website called Your Voice, you can provide feedback about tocilizumab for the treatment of GCA.

You can give input if you are a B.C. resident and have giant cell arteritis, a caregiver to someone with giant cell arteritis, or if your group represents people who live with giant cell arteritis.

If you would like our help in providing your input, you can email us your input at or call us at 604-974-1366. We can send it as a patient organization on your behalf. Please provide your input to us by Monday, February 19 so that we may submit the questionnaire in time for the deadline.

The submission deadline is midnight on February 21, 2018. Patients and caregivers may give their input directly through the links below.

Please click here to let BC PharmaCare hear Your Voice. Or, go to the following links:

  • To view the information sheet for tocilizumab for giant cell arteritis: click here
  • For the Patient Questionnaire: click here
  • For the Caregiver Questionnaire: click here
  • For the Patient Group Questionnaire: click here (Patient groups are required to register their name with the Ministry of Health before making their submission.)

Nous sommes les #ArthritisOlympians – Que les Jeux d’hiver commencent !

Participez aux Jeux olympiques et paralympiques d’hiver 2018 à titre de #ArthritisOlympians

Le comité ACE (Arthritis Consumer Experts) a mis sur pied la campagne #ArthritisOlympians afin de soutenir les athlètes des Jeux olympiques et paralympiques d’hiver 2018 et de souligner le caractère « olympique » des efforts que doivent fournir quotidiennement toutes les personnes atteintes d’arthrite.

#ArthritisOlympians BannerL’entraînement rigoureux fait partie de la préparation aux Jeux pour les athlètes olympiques, mais au-delà de l’entraînement pour un événement particulier, tout, du régime alimentaire au repos en passant par une bonne santé mentale, est un élément important du succès anticipé. Les Olympiens comptent sur le soutien de leur équipe, sur les soins du personnel médical et sur les conseils de leur entraîneur pour s’assurer d’être bien préparés pour tous les défis qui les attendent. Les patients arthritiques passent par des pratiques similaires toute leur vie. Nous sommes les #ArthritisOlympians, faisant face à la douleur et la fatigue et comptant sur le soutien de notre équipe de soins pour surmonter nos défis quotidiens.

La campagne #ArthritisOlympians se poursuivra pendant toute la période des Jeux olympiques et paralympiques d’hiver 2018, soit du 9 février au 9 mars 2018. Tout au long de cette campagne, nous ferons un parallèle entre la façon dont les athlètes olympiques et les #ArthritisOlympians gèrent leur santé pour atteindre le meilleur d’eux-mêmes.

Avez-vous des moments #ArthritisOlympians à partager avec nous ? Nous serions enchantés de vous lire ! Communiquez avec nous :

N’hésitez pas à passer le mot aux amis, à la famille et aux collègues et invitez-les à participer et à commenter les moments #ArthritisOlympians.

We are #ArthritisOlympians – Let the Winter Games begin!

Participate in the 2018 Winter Olympics and Paralympics as #ArthritisOlympians

Arthritis Consumer Experts (ACE) has created the #ArthritisOlympians campaign to support athletes in the 2018 Winter Olympics and Paralympics games and recognize that people living with arthritis are Olympians in their own sense.

#ArthritisOlympians BannerOlympic athletes must train rigorously in preparation for the Games. Beyond training for their specific event, everything from diet, rest and mental health are keys to success. Olympians rely on support from their team, care from medical staff and guidance from coaches to ensure they are prepared for all challenges that may come their way. Arthritis patients use similar practices in their lives. We are #ArthritisOlympians – confronting pain and fatigue with the support of our healthcare team to overcome daily challenges.

The #ArthritisOlympians campaign runs during the 2018 Winter Olympics and Paralympics games from February 9-March 18. Throughout the campaign, we will highlight the parallel ways Olympians, and #ArthritisOlympians manage their health to achieve their personal bests.

Do you have #ArthritisOlympians moments you would like to share? We’d love to hear from you! Connect with us by:

Please feel free to invite your friends, family, and colleagues to participate and provide comments on #ArthritisOlympians moments.

Study Review: the power of prehabilitation when undergoing joint replacement

Total hip arthroplasty (THA) and total knee arthroplasty (TKA), also known as hip/ knee replacements, are surgical procedures in which parts of the joint are replaced with artificial material to restore function and ultimately reduce pain. As an arthritis patient, if other forms of treatment have not improved the joint’s ability to function or been able to prevent additional damage, your rheumatologist may recommend arthroplasty.

A recent study conducted by a team of Canadian Physiotherapists at The University of Western Ontario has discovered valuable information regarding the impact of prehabilitative care prior to arthroplasty. The team wanted to see if education and exercises for patients before surgery (prehabilitation) impacts pain, function, strength, anxiety and length of hospital stay after surgery (post-operative outcomes).

Continue reading

Vous avez une question brûlante au sujet de l’arthrite à poser à un physiothérapeute, un ergothérapeute ou un rhumatologue reconnus mondialement ?

#CRArthritis Facebook and Twitter Live BannerVoici l’occasion de le faire ! Dans le cadre de l’Assemblée scientifique annuelle de la Société canadienne de rhumatologie (SCR) et de l’Association des professionnels de la santé pour l’arthrite (APSA), le comité ACE tiendra encore une fois sur le Réseau de diffusion sur l’arthrite sa tribune libre en direct sur Facebook et Twitter #CRArthritis. 

D’ici le 15 février, envoyez-nous ces questions qui vous brûlent les lèvres au sujet de l’arthrite et nous les poserons pour vous aux spécialistes pendant la diffusion en direct de la tribune libre #CRArthritis du 21 au 23 février. Parmi les spécialistes qui seront interviewés figurent des rhumatologues, physiothérapeutes, ergothérapeutes, chercheurs et leaders d’organisations de patients et d’organismes de bienfaisance en santé les plus importants au Canada.

Cliquez ici pour nous envoyer vos questions.

Pour en savoir plus sur #CRArthritis

La tribune libre en direct sur Facebook et Twitter #CRArthritis du Arthritis Broadcast Network’s est générée par le comité ACE et appuyée par des représentants du Conseil consultatif des patients arthritiques du centre Arthrite-recherche Canada, de l’Alliance canadienne des arthritiques et de l’Association Spondylitis canadienne. Principal et plus important organe d’information sur l’arthrite au Canada et géré par des patients, le Réseau de diffusion sur l’arthrite offre l’information la plus récente sur l’arthrite, passant des résultats de la recherche en santé aux histoires et tranches de vie les plus inspirantes.

Nous remercions de façon particulière la SCR et l’APSA d’avoir inclus notre tribune libre à leurs rencontres annuelles.

Want to ask a world leading rheumatologist or physical or occupational therapist your burning arthritis question?

#CRArthritis Facebook and Twitter Live BannerHere’s your chance! ACE will once again be hosting the Arthritis Broadcast Network’s #CRArthritis Facebook and Twitter Live event at the 2018 Canadian Rheumatology Association (CRA) Annual Scientific Meeting and Arthritis Health Professions Association (AHPA) Annual Meeting.

Send us your burning arthritis questions by February 15th so we can ask the experts during the #CRArthritis live broadcast on February 21st to February 23rd. Experts to be interviewed include Canada’s leading rheumatologists, physio and occupational therapists, researchers and patient organization and health charity leaders.

Click here to send your questions.

More about #CRArthritis

The Arthritis Broadcast Network’s #CRArthritis Facebook and Twitter Live event is powered by ACE and supported by representatives from the Arthritis Patient Advisory Board of Arthritis Research Canada, Canadian Arthritis Patient Alliance, and Canadian Spondylitis Association. Arthritis Broadcast Network is the world’s largest patient-led arthritis news outlet, bringing you the latest information on medical research findings to inspirational stories and life hacks.

Special thanks to the CRA and AHPA for including our event at their annual meetings.