Bienvenue au réseau de diffusion sur l'arthrite Arthritis Research Centre of Canada Arthritis Consumer Experts

Le Réseau de diffusion sur l’arthrite figure au 5e rang de la liste Feedspot des 20 meilleures chaînes YouTube sur l’arthrite

Grâce à notre public toujours plus nombreux, le Réseau de diffusion sur l’arthrite (RDA), généré par le comité ACE (Arthritis Consumer Experts), est la chaîne canadienne offrant le plus de vidéos et ayant obtenu le plus de visionnements !

Feedspot Top 20 Arthritis YouTube Channel to follow badgeLe Réseau de diffusion sur l’arthrite figure au 5e rang de la liste Feedspot des 20 meilleures chaînes YouTube sur l’arthrite (en anglais seulement). Le classement est établi en fonction des critères suivants :

  • Nombre total des abonnés de la chaîne YouTube, des visionnements vidéo et des téléchargements vidéo
  • Qualité et cohérence des vidéos
  • Classement de recherche YouTube
  • Examen objectif and subjectif de l’équipe de rédaction et de révision Feedspot

Sur la liste de Feedspot, le RDA est la chaîne canadienne offrant le plus de vidéos et ayant obtenu le plus de visionnements – un total de 200 vidéos et de 242 489 visionnements ! La chaîne du Réseau de diffusion sur l’arthrite fournit de l’information sur les différentes formes d’arthrite, la gestion de la douleur, l’autotraitement, l’exercice, l’alimentation, les modèles de soins, l’engagement patient, la recherche et bien d’autres questions importantes pour la collectivité arthritique. Nous vous invitons à manifester votre soutien et à aider les autres personnes atteintes d’arthrite par les actions suivantes :

Arthritis Broadcast Network ranked #5 on Feedspot’s Top 20 Arthritis YouTube channels to Follow

Arthritis Broadcast Network ranked #5 on Feedspot’s Top 20 Arthritis YouTube channels to Follow

Thanks to our growing audience, Arthritis Broadcast Network (ABN) – powered by Arthritis Consumer Experts – has the most videos and views on a Canadian channel!

Feedspot Top 20 Arthritis YouTube Channel to follow badge

Arthritis Broadcast Network has been ranked #5 on the top 20 arthritis YouTube channels to follow by Feedspot. Rankings are based on the following criteria:

  • Total YouTube channel subscribers, video views, and video uploads
  • Quality and consistency of videos
  • YouTube search ranking
  • Feedspot editorial team’s objective and subjective review

On Feedspot’s list, ABN has the most videos and views on a Canadian channel – a total of 200 videos and 242,489 views!

Arthritis Broadcast Network’s channel provides information about the different types of arthritis, pain management, self-care, exercise, nutrition, models of care, patient engagement, research, and many other topics valuable to the arthritis community. Please show your support and help others living with arthritis by doing the following:

JointHealth™ insight – numéro novembre 2018

Rapport spécial : l’arthrite dans la population active canadienne 

French JHI Slide
Dans le dernier numéro du JointHealth™ insight, le comité ACE (Arthritis Consumer Experts) livre un rapport sur l’arthrite chez la population active canadienne.

Au Canada, l’arthrite constitue la principale cause d’incapacité au travail, entraînant une piètre qualité de vie et des pertes d’emploi. Les membres ACE nous ont raconté leurs histoires émaillées d’efforts constants pour s’acquitter de leurs responsabilités au travail tout en gérant leur maladie, en particulier leurs symptômes tels que la douleur, la fatigue et la raideur, souvent accompagnés d’un déclin progressif des fonctions physiques.

Selon Statistique Canada, on estime à 13 milliards $ le coût annuel de l’incapacité de la population active due à l’arthrite et aux maladies musculosquelettiques. Les études ont démontré que plusieurs personnes ayant reçu un diagnostic de polyarthrite rhumatoïde (PR) sont contraintes de quitter la population active de façon prématurée et gagnent un salaire moins élevé que les personnes qui n’en sont pas atteintes.

Ce numéro du JointHealth™ insight couvre cet important sujet de l’arthrite au travail et traite également des sujets suivants :

  • Discussion sur les récipiendaires d’un prix Meilleurs milieux de travail au Canada pour les employés atteints d’arthrite : le Gouvernement du Yukon et l’Université de Montréal.
  • Regard sur l’impact de l’arthrite sur la population active au Canada et les défis les plus courants auxquels sont confrontés les employés qui en sont atteints.
  • Entrevue particulière avec Dre Lacaille à propos de son programme éducatif en ligne Making it Work™, conçu pour aider les personnes atteintes d’arthrite inflammatoire à gérer les défis liés à l’arthrite au travail.

JointHealth™ insight – November 2018

Special Report: Arthritis in the Canadian Workforce 

JHI Slide

 

In the latest issue of JointHealth™ insight, Arthritis Consumer Experts (ACE) reports on arthritis in the Canadian workforce.

Arthritis is the most common cause of work disability in Canada, resulting in both poor quality of life and workplace limitations. ACE members have told us about the challenge of managing workplace responsibilities while managing their disease, including symptoms such as pain, fatigue, and stiffness, often with a gradual loss of physical function.

According to Statistics Canada, the estimated annual cost of workplace disability from arthritis and musculoskeletal conditions is $13.6 billion. Studies have also shown that many people diagnosed with rheumatoid arthritis (RA) are forced to leave the workforce prematurely and earn less than those living without the disease.

This issue of JointHealth™ insight covers the important topic of arthritis in the workplace, and includes:

  • A discussion on the 2018 winners of Canada’s Best Workplaces for Employees Living with Arthritis award: The Government of Yukon and Université de Montréal.
  • A look at the impact of arthritis on the Canadian work force, and common challenges faced by employees with arthritis.
  • A special interview with Dr. Lacaille about her online education program, Making it Work™. The program is designed to help people with inflammatory arthritis deal with employment issues related to their disease.

Join Canadian Olympic snowboarder Spencer O’Brien and Dr. Diane Lacaille at the “Women in Biz Network: RA Matters at Work Event” on November 26

Picture of women at work

 

RSVP by November 23! Register for this free event to hear and learn from inspirational women living with arthritis and leading health professionals! 

Event date: November 26, 2018
Location:
The Westin Bayshore (Salon Ballroom D&E)
1601 Bayshore Drive,
Vancouver V6G 2V4
Free Registration: ramattersatwork.eventbrite.com
Please RSVP by November 23, 2018.

300,000 Canadians live with rheumatoid arthritis (RA), and women are affected two to three times more often than men. For many people living with RA, career continuation and advancement can seem out of reach.

To help illuminate the accessibility of career progression for people with chronic diseases like RA, Women in Biz Network and Eli Lily Canada are launching a nationwide series of empowering events called RA Matters at Work.

Join them in an evening of lively discussion among a community of inspirational women living with arthritis. Speakers will share stories of difficulty and triumph while thriving in the workplace, and challenge the negative beliefs and self-doubt associated with living and working with a chronic disease.

Come learn from experts in rheumatology about advances in preventing work disability for people with inflammatory arthritis. The event will be moderated by ACE founder and president, Cheryl Koehn. Panelists include:

  • Dr. Diane Lacaille – Associate Scientific Director and Senior Research Scientist of Rheumatology, Arthritis Research Canada
  • Ms. Spencer O’Brien – Canadian Olympic Snowboarder, 2016 X Games Gold Medalist, 2 x World Champion, Olympian, person living with RA
  • Ms. Maya Joshi – Program coordinator, Arthritis Consumer Experts
  • Ms. Flora To-Miles – Managing Editor of Occupational Therapy Now, The Canadian Association of Occupational Therapists
  • Ms. Alison Stewart – Registered Rehabilitation Professional, Arthritis Research Canada Making It Work Research-Practice Program
  • Ms. Julia Chayko – Actor and Writer

Join us and the conversation at #RAMATTERSATWORK

Women in Biz Network: RA Matters at Work Event on November 26 in Vancouver, BC

Picture of women at work

 

Register for this free event to hear and learn from inspirational women living with arthritis and leading health professionals!

Event date: November 26, 2018, from 5:45 PM to 8:30 PM
Location:
The Westin Bayshore (Salon Ballroom D&E)
1601 Bayshore Drive,
Vancouver V6G 2V4
Free Registration: ramattersatwork.eventbrite.com

300,000 Canadians live with rheumatoid arthritis (RA), and women are affected two to three times more often than men. For many people living with RA, career continuation and advancement can seem out of reach.

To help illuminate the accessibility of career progression for people with chronic diseases like RA, Women in Biz Network and Eli Lily Canada are launching a nationwide series of empowering events called RA Matters at Work.
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What is pain? What are EULAR’s guidelines for pain management?

Close up of a person's face wincing in painWhat is pain?

The International Association for the Study of Pain defines pain as “an unpleasant sensory and emotional experience associated with actual or potential tissue damage, or described in terms of such damage”.

Pain is your body’s warning signal, letting you know that something is wrong in your body. When part of your body is injured or damaged, chemical signals are released that travel from nerve system cells (called neurons) to your brain where they are recognized as pain.

Most forms of pain can be divided into two general categories: Continue reading

Pain is one of the causes of arthritis-related fatigue

“I’m so tired”: arthritis and fatigue

For many people living with arthritis, “I’m so tired” is an often spoken phrase. Fatigue is their constant, very unpleasant companion. It is a symptom which is often overlooked or overshadowed by other concerns when treating arthritis, but it can be life-altering to people living with the disease.

Often, research into treatments for arthritis has focussed on other disease symptoms, sometimes leaving out the importance of managing fatigue. Some recent research, however, has focussed on fatigue, why it is harmful, and how it can be better treated.

In an article published in Clinical Care in the Rheumatic Diseases, Basia Belza and Kori Dewing examined fatigue in arthritis and described some strategies for dealing with fatigue and minimizing its impact.
A person who fell asleep on the couch and is covered in a blanketThis article cites other research to conclude that 80 – 100% of people living with certain types of inflammatory arthritis, including rheumatoid arthritis, lupus, and fibromyalgia, live with fatigue. Most types of arthritis are associated with some fatigue, and it can be one of the most difficult symptoms to live with, and treat.

Fatigue has been defined as “usually or always being too tired to do what you want” (Wolf et al). For people living with extreme fatigue, completing even the simplest tasks, or participating in normal day to day activities, can feel nearly impossible. People who face fatigue as a symptom of their disease can simply feel “too tired” to do the things they want or need to do in their lives.

Causes of fatigue

There are several causes of arthritis-related fatigue, which very often occur together. Belza and Dewing note several causes of arthritis-related fatigue, including: Continue reading

Patient-Centred Care: training the next generation of health-care providers

Over the last decade, patient-centred care (PCC) has become a focus within rheumatology and in the broader healthcare community. Patient-centred care puts patients and their families at the forefront of the care that they receive. According to the British Columbia Patient-Centred Care Framework, patient-centred care incorporates the following key components:

  • Self-management;
  • Shared and informed decision-making;
  • An enhanced experience of health care;
  • Improved information and understand; and,
  • The advancement of prevention and health promotion activities.

This approach emphasizes patient-voice, information sharing and shared decision making – ensuring there is a collaboration between the patient, their family, and their health care provider(s). There should be a balance between the health professional’s knowledge and the patient’s personal knowledge, experiences and preferences. PCC is based around team work rather than a potentially unbalanced healthcare provider-patient relationship. PCC has been shown to increase patient satisfaction, improve self-management, and ultimately lead to better health outcomes. Health authorities, patient advocate groups, and researchers throughout Canada are working to make patient centred care a priority.

There are several challenges to delivering PCC on a systemic level. It requires a significant shift to the way in which the healthcare system operates, and perhaps more importantly, a significant shift in the culture of health care. An effective way of transitioning to PCC is to ensure that the next generation of health professionals have sufficient training in the area. An effective way to achieve this is to have students learn directly from patient advocates and patient educators. In October, the Pharmacy School at the University of British Columbia (UBC) led by example by doing exactly that.

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November 14: Osteoarthritis Action Alliance Lunch and Learn Webinar

EQUIP-ing OA Patients and Health Care Providers Through Patient Engagement in Research with Marie Westby and Cheryl Koehn

The OA Action Alliance Lunch & Learn webinars keep you up-to-date on the latest osteoarthritis research, news and activities. This particular webinar will feature Marie Westby and Cheryl Koehn and will take place on November 14, 2018 at 12:00 pm ET. Webinars are free and open to the public. Webinars are archived on the events page on the OA Action Alliance’s website and on their YouTube channel in case you missed one or can’t get enough!

Please click here to register for the webinar. Osteoarthritis Action Alliance webinar

Marie Westby, PT, PhD is the Physical Therapy Teaching Supervisor in the Mary Pack Arthritis Program in Vancouver, BC and holds a Clinician Scientist position in the Centre for Hip Health and Mobility, Vancouver.
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Yoga & Arthritis

The most recent EULAR recommendations for pain management in inflammatory arthritis and osteoarthritis (OA) include physical activity and exercise as a part of a patient’s treatment plan. Physical activity has been shown to significantly ease joint pain and increase mobility, for this reason, exercise is increasingly being prescribed by physicians and other healthcare providers.

Some examples of well-known and effective exercises for people with arthritis include walking, biking and swimming. These are low-impact aerobic exercises, meaning they will generally be easier on the joints and cause your heart rate to increase. Are there other activities that could also benefit people living with arthritis, such as yoga?

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Arthritis Research Canada is exploring the health benefits of everyday activities and needs your participation!

Researchers are recruiting individuals with and without inflammatory arthritis for a study that will explore the health benefits of everyday activities. While the main goal of this study is to explore the relationship between everyday activities and health outcomes of those with inflammatory arthritis, we are also asking people without arthritis to participate in order to determine how the relationship between everyday activities and health differs between groups. The research is conducted by a PhD trainee who is affiliated with Arthritis Research Canada and the University of British Columbia.
Clock image with daily activities icon
You are eligible if you:

  • Have inflammatory arthritis (with no other major health conditions) OR do not have inflammatory arthritis and are generally healthy
  • Are 19 years of age or older
  • Do not currently smoke

What’s involved?
Participants will attend a two-hour group session in British Columbia to fill out health and activity questionnaires, and provide blood samples using a pinprick blood test (five blood spots). Participants will receive a monetary honorarium in appreciation for their time, as well as reimbursement for any parking or transit expenses.

Why do this research?
Other than physical activity, there is little evidence regarding the types of activities or occupations that support living well with inflammatory arthritis. We aim to study the health benefits of people’s everyday activities, with an emphasis on social and creative characteristics of activities, among adults with and without inflammatory arthritis.

Interested? Have questions?
Contact Flora To-Miles
604.364.6223
fto-miles@arthritisresearch.ca