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AS it Goes – Jackpot! Winner of the Rheumy Lottery


Photo Courtesy of Stuart Miles via

Reflecting on how few rheumatologists there are in Canada and how many people live with arthritis, Fran counts herself among the select few—a jackpot winner, in a way—for having a rheumy.

I am one of the fortunate ones. There have been many days of late when I didn’t feel so lucky with an inflammatory disease that likes to highjack my life. But apparently I should count myself among the select few because I have a rheumatologist I am able to see for regular checkups or call on in crisis (depending what’s brewing with my ankylosing spondylitis). Continue reading

Faites entendre votre voix sur la création de soins de santé « axés sur le patient »

Summit Report FRL’Association médicale canadienne (AMC), l’Association des infirmières et infirmiers du Canada (AIIC) et le Groupe d’intervention en santé (HEAL) ont convoqué un Comité directeur des fournisseurs de soins de santé afin d’examiner la manière dont les soins de santé sont actuellement prodigués au Canada. Parmi les critiques de notre système de santé figure le fait que le système est pensé en fonction du point de vue du fournisseur de soins. Autre élément à reprocher au système, au niveau national, la prestation des soins manque de coordination et d’intégration entre les gouvernements fédéral, provinciaux, territoriaux et municipaux.

Pendant les deux sommets (mai 2012 et février 2013), l’AMC, l’AIIC et HEAL, de concert avec avec les patients, ont élaboré une stratégie à cinq piliers pour assurer des soins de santé efficaces et intégrés pour les patients. Voici ces cinq piliers : Continue reading

Have your voice heard to create “patient centred” health care

Summit Report Title PageThe Canadian Medical Association (CMA), the Canadian Nurses Association (CNA) and the Health Action Lobby (HEAL) have convened a Health Providers Steering Committee to review the way health care is delivered in Canada. Among the criticisms of our health care system is that health care is designed from the provider’s point of view. Another critique is that nationally, delivery of care lacks coordination and integration between federal government, provinces, territories, and municipalities.

During the two summits (May 2012 and February 2013), the CMA, the CNA, and HEAL, together with patients, developed five foundations for integrated and effective health care for patients. They are: Continue reading

Maestro of rheumatology celebrates his 103rd birthday

ViolinDr. Ephraim Engleman, nicknamed the “Maestro of Rheumatology” by his peers at the Rosalind Russell Medical Research Center for Arthritis, celebrated his 103rd birthday on March 24. He has three passions in life – music, medicine, and his wife, Jean.

In his recently self-published autobiography titled “My Century”, he recounts his early love of music, specifically the violin, struggles to get into medical school, a career as a rheumatologist, involvement with the San Andreas Quartet, and life with Jean. Continue reading

Fibromyalgia: Myths, Facts, and Future Hopes

Woman with hand on faceThe Canadian Institute for the Relief of Pain and Disability (CIRPD) will be conducting a webinar tomorrow (April 16) at 11:00am PDT/2:00pm EDT on fibromyalgia. The webinar will feature Connie Leudtke, MA, RN-BC, Assistant Professor at Mayo Clinic College of Medicine and Nursing Supervisor at the Mayo Clinic Pain Rehabilitation Center and Mayo Fibromyalgia and Chronic Fatigue Clinic. Drawing from 25 years of experience, Leudtke will dispel some common myths about fibromyalgia. She will also provide up-to-date information on diagnosis and treatment.

At the end of the webinar, attendees will be able to:  Continue reading

Study on medical cannabis by UBC and the Arthritis Research Centre of Canada

Study on medical cannabis

The University of British Columbia and the Arthritis Research Centre of Canada are conducting a research study and gathering your input on your experiences, behaviours, and attitudes towards arthritis and medical cannabis.

Dear arthritis patient,

On behalf of the University of British Columbia, Arthritis Research Center of Canada (ARC), and the Arthritis Consumer Experts (ACE), we would like to invite you to participate in a study titled “Medical Cannabis and Arthritis: Barriers and Pathways.” You are being asked to participate in this study because you are someone who has arthritis or other rheumatological conditions; conditions that some people treat with cannabis. Continue reading