Bienvenue au réseau de diffusion sur l'arthrite Arthritis Research Centre of Canada Arthritis Consumer Experts

Le Réseau de diffusion sur l’arthrite dans la liste Feedspot des 40 meilleurs…

Top 40 Arthritis Blog BadgeLe Réseau de diffusion sur l’arthrite dans la liste Feedspot des 40 meilleurs blogues et sites Web sur l’arthrite pour les personnes atteintes de cette maladie.

Le Réseau de diffusion sur l’arthrite (RDA) géré par le comité ACE (Arthritis Consumer Experts) : Actualités et information sur l’arthrite. En tout temps. Grâce à nos supporteurs, notre plus récent événement en direct sur Facebook a rejoint plus de 23 000 personnes en seulement trois jours !

C’est un honneur pour le Réseau de diffusion sur l’arthrite de figurer à la liste Feedspot des 40 meilleurs blogues et sites Web sur l’arthrite pour les personnes atteintes de cette maladie. Ce classement se fonde sur les critères suivants : Continue reading

Arthritis Broadcast Network named one of Feedspot’s Top 40 Arthritis Blogs

Top 40 Arthritis Blog BadgeArthritis Broadcast Network (ABN) – powered by Arthritis Consumer Experts – All your arthritis news and information. All the time. Thanks to our fans, our most recent Facebook Live event reached over 23,000 people in just three days!

Arthritis Broadcast Network is honoured to be named one of the top 40 arthritis blogs and websites for people living with arthritis by Feedspot. Rankings are based on the following criteria: Continue reading

Do you know if you have osteoporosis or osteoarthritis?

Osteoarthritis and osteoporosis are different diseases but often there is confusion between these two diseases. This is especially true among older adults. Research by Burgener et al. suggests that although many older adults have heard of osteoporosis, many know very little about it. This is important as having a good understanding of osteoporosis helps to prevent and treat the disease. Below is a chart highlighting the differences between osteoporosis and osteoarthritis.

Question Osteoporosis
(bone+thin=thin bones)
Osteoarthritis
(bone+joint pain=joint damage)
What is it?
  • thin fragile bones that can break easily
  • bone mass loss can occur without any symptoms
  • often a fracture is the first symptom OP is present. Typical fracture locations are the wrist, spine and the hip
  • a frequent cause of height loss and acquired spine curve ‘dowager’s lump’
  • early detection is important to prevent OP
  • a loss of cartilage in the joint, extra bone formation and reduced joint movement
  • most common form of arthritis
  • typical symptoms are pain, loss of movement, and stiffness
  • common joints affected: hands, base of thumbs, tips and middle joints of the fingers, neck, back hips, knees, feet, first toes (bunion) or spine
  • does not affect other organs
Who gets it?
  • 1.4 million Canadians have OP
  • 1 in 4 women over the age of 50
  • 1 in 8 men over the age of 50
  • however, the disease can strike at any age
  • 2.9 million Canadians have OA
  • women more than men (2 out of 3 women)
  • hip and knee OA usually occurs after age 50
  • affects 30% of people over age 75 but is not simply apart of getting old
  • genetic factors and obesity
Who is at risk?
  • being female
  • fracture with minimal trauma after the age of 40
  • small and thin body frames
  • anyone with rheumatoid arthritis speeds up the rate of OP
  • family history of OP
  • some medications including heparin (blood thinner), anti-seizure drugs and long term use of corticosteroids (such as Prednisone)
  • links to persons with obesity, diabetes and cartilage disorders
  • occupational trauma over time
  • sports injuries
Things that increase your risk.
  • loss of menstrual cycle in young women
  • lack of vitamin D and calcium
  • chronic diseases like rheumatoid arthritis and Hepatitis C
  • excessive intake of alcohol and caffeine
  • poor nutrition
  • lack of exercise
  • being Caucasian or Asian
  • obesity increases risk of OA of the hand 3 times
  • a weight gain of 10kg (22 lb) almost doubles one’s risk of OA of the knee

 

 

 

Below is a infographic on the Global Impact of Osteoporosis from Cigna.

osteoporosis infographic

Living well with osteoporosis in Canada

It is normal to feel anxious when first diagnosed with osteoporosis. Some patients are concerned they may break their bones again (or fracture a second time if a broken bone was part of the initial diagnosis). As a result, some may stop participating in social and physical activities. This can lead to feelings of loneliness, depression and helplessness. It is important to know that you are not alone. With the help of medications, your health care team, and lifestyle changes, and others living with osteoporosis, you can reduce your risk of fracture and, in some cases, improve bone mass.

Osteoporosis Canada provides helpful resources on how to manage osteoporosis. They also operate a toll-free information line (English: 1-800-463-6842/French: 1-800-977-1778). Information counsellors discuss your concerns, send appropriate information and, if there is one, refer you to a Chapter or support group near you. To learn more about living well with osteoporosis, please click here. To learn more about osteoarthritis, please click here.

Global RA Network launches website #GlobalRANetwork

Arthritis Consumer Experts leads formation of world’s first international network of RA patient organizations.

Global RA Network BannerACE has helped lead the formation of the world’s first international network of RA patient organizations. Founded in 2016 by RA patient organizations and leaders from 18 countries, the Global RA Network builds international relationships and identifies and works on common goals and initiatives to improve the lives of people living with RA around the world.

The Global RA Network today launched its website – http://globalranetwork.org/– that represents an on-line meeting ground and a place to share its ongoing work and educational and informational resources with RA patients, care providers and governments.

The Global RA Network’s first initiative was to conduct a survey on patient experiences of RA models of care. The survey findings will be presented at the upcoming American College of Rheumatology Annual Scientific Meeting on November 5, 2017.

Based on survey findings, the Global RA Network will develop education, information and advocacy initiatives to improve RA patients’ understanding about the kind and quality of care they should be receiving to enable the best outcomes possible in member countries.

Le Réseau PR mondial lance son site Web

Le comité ACE (Arthritis Consumer Experts) dirige la création du premier réseau mondial regroupant les organisations de patients atteints de PR.
Global RA Network Banner
Le comité ACE a collaboré à la création du premier réseau mondial regroupant les organisations de patients atteints de polyarthrite rhumatoïde. Fondé en 2016 par des organisations de patients souffrant de PR et des leaders de 18 pays, le Réseau PR mondial tisse des relations internationales, identifie des initiatives et des objectifs communs et travaille à les réaliser afin d’améliorer la qualité de vie des personnes atteintes de PR partout dans le monde.

Le Réseau PR mondial lance aujourd’hui son propre site Web : http://globalranetwork.org/. Ce site constitue, pour les personnes atteintes de PR, les fournisseurs de soins et les gouvernements, un point de rencontre en ligne de même qu’une plateforme d’échanges sur le travail en cours et les ressources en matière d’information et d’éducation.

La première initiative du Réseau PR mondial aura été de mener à bien une enquête auprès de patients quant à leur propre expérience des modèles de soins de la PR. Les conclusions de cette enquête seront présentées au cours de la prochaine rencontre scientifique annuelle de l’American College of Rheumatology, qui se tiendra le 5 novembre 2017.

À la lumière des constats de l’enquête, le Réseau PR mondial élaborera des programmes d’information et d’éducation qui comprendront également des initiatives de défense du dossier de la PR susceptibles d’améliorer la perception des patients du type et de la qualité des soins qu’ils devraient recevoir et permettre ainsi, à tous les pays membres, d’obtenir les meilleurs résultats de traitement possibles.

Arthritis community leaders launch new patient portal to improve patient care in BC

Arthritis community leaders launch new patient portal to improve patient care in BC

ArthritisBC+Me Portal helps BC patients learn about arthritis programs and resources

ArthritisBC+Me Portal banner for arthritis in bc

 

A group of BC’s leading arthritis specialists, researchers and patient groups are pleased to announce the launch of the ArthritisBC+Me portal designed to help BC patients learn about arthritis and local programs best suited to their needs. The first of its kind in Canada, the portal represents the commitment of the community partners – Arthritis Consumer Experts, Arthritis Research Canada, Mary Pack Arthritis Program, The Arthritis Society and the BC Society of Rheumatologists – to making arthritis information and services more accessible to the estimated 1 in 5 British Columbians who are living with arthritis.
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Élections 2017 au Nunavut : le jour du scrutin, votez pour l’amélioration des soins de l’arthrite

Élections 2017 au Nunavut : le jour du scrutin, votez pour l’amélioration des soins de l’arthrite.

Les prochaines élections générales au Nunavut auront lieu le 30 octobre 2017. Comment peut-on améliorer les soins de l’arthrite ?
Nunavut elections vote for arthritis banner
L’arthrite affecte environ 12 000 adultes de 15 ans et plus dans les Territoires (Territoires du Nord-Ouest, Nunavut et Yukon). Au nom des électeurs du Nunavut atteints d’arthrite, le comité ACE (Arthritis Consumer Experts) a expédié un questionnaire aux candidats se présentant aux élections de 2017 au Nunavut.

Veuillez noter que contrairement à la plupart des élections fédérales et provinciales au Canada, les élections pour l’Assemblée législative du Nunavut se déroulent selon un modèle de gouvernement de consensus non partisan dans lequel les candidats se présentent comme indépendants plutôt que comme candidat officiel nommé par un parti politique.

Ce questionnaire comportait les questions suivantes : Continue reading

Nunavut Election 2017: On election day, vote for improved arthritis care

Nunavut Election 2017: On election day, vote for improved arthritis care.

The next general election in Nunavut is scheduled for October 30, 2017. How can we improve arthritis care?
Nunavut elections vote for arthritis banner
Arthritis affects approximately 12,000 adults aged 15 or older in the Territories (Northwest Territory, Nunavut and Yukon). On behalf of Nunavut voters living with arthritis, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the 2017 Nunavut Election.

Please note that unlike most federal or provincial elections in Canada, elections to the Legislative Assembly of Nunavut are conducted on a non-partisan consensus government model, in which all candidates run as independents rather than being nominated by political parties.

The questionnaire asked the following questions: Continue reading