Canada’s leading National Arthritis Awareness Program (NAAP) delivers meaningful tools to initiate conversations about arthritis between you and your healthcare professionals. With the appropriate tools and knowledge you can discuss treatment, prevention and management to live your best life with arthritis.Arthritis Broadcast Network (ABN) is your daily source for arthritis news, information, and stories.Also available are two free, comprehensive arthritis apps for iPhone and iPod touch – ArthritisID (for the public) and ArthritisID PRO (for healthcare professionals). View the ArthritisID Feature Sheet and the ArthritisID PRO Feature Sheet. Joint exam videos from the apps are also available for viewing on the Arthritis Broadcast Network YouTube Channel.The program has provided resource materials, information and tools to help you get informed, get educated, and spread the word about arthritis. We encourage you to share these messages and materials about arthritis treatment and prevention with fellow consumers, patients and healthcare professionals.
In honour of Nelson Mandela, ABN wants to highlight an inspirational quote of his that we believe applies as much to perseverance as it does to people living with arthritis.
“I have walked that long road to freedom. I have tried not to falter; I have made missteps along the way. But I have discovered the secret that after climbing a great hill, one only finds that there are many more hills to climb. I have taken a moment here to rest, to steal a view of the glorious vista that surrounds me, to look back on the distance I have come. But I can only rest for a moment, for with freedom come responsibilities, and I dare not linger, for my long walk is not ended.” Continue reading
Only 20 more days to Christmas holiday! This is a great time to think back on the year and thank those who have helped the arthritis community. To list a few of many, we think the following organizations have made it to Santa’s “Nice List”. Do you know of any accomplishment(s) by an individual, community group, or organization that have shown great care and support to the arthritis community this year? If you do, please share with everyone in the comments section. Alternatively, you may share via our Facebook and Twitter channel with hashtag #ACESantaList.
Arthritis Consumer Experts’ “ACE Santa’s Nice List” Continue reading
On November 1, Arthritis Consumer Experts (ACE) asked for your views on subsequent-entry biologics (SEBs). Health Canada defines SEBS as a “biologic drug that enters the market subsequent to a version previously authorized in Canada, and with demonstrated similarity to a reference biologic drug.” Unlike generic medications, SEBs are not identical to their originator drugs. Since every biologic is made from living cells, even minor differences from the originator drug change the way a SEB acts in the body.
Today is the last day to complete this short survey to let us know how much you know about SEBs. Your feedback is vitally important to the work ACE conducts on behalf of the more than 622,000 British Columbians living with arthritis.
Please be assured that all responses will remain anonymous and confidential. Personal information will not be collected as part of this survey.
Arthritis Broadcast Network (ABN) attended ROAR: Does a Google a Day Keep the Doctor Away forum on electronic health this past Saturday. The forum was conveniently held at The Blusson Spinal Cord Centre in Vancouver and organizers hosted a live webcast for viewers who are unable to attend the session.
Topics covered include the following:
- Informed or Overwhelmed? The Patients’ View of Internet Health Resources, Apps, Devices, and Games
- Ethics in the Age of E-Health
- Patients’ use of Online Support Groups
- E-Health Research – Looking at Benefits and Burdens
- Online Tools to Help Self-Manage and Make Decisions
- Using E-Health with Patients
During the break, ABN took the opportunity to share some useful information with people attending the forum. Attendees were given a demonstration of how the app ArthritisID works. When people were questioned about e-health and what they thought about it at our speaker’s corner, here’s what they had to say:
Q: What are your favourite website and/or online tool?
A: One participant recommended RheumaTrack and another suggested Projects in Knowledge - a website dedicated to improving the knowledge, competencies, and skills of physicians, nurses, and other medical professionals.
Q: What do you hate about the internet?
A: Advertising pop-ups and information online can be misleading and deceptive
Dr. Diane Lacaille, a senior research scientist of rheumatology at the Arthritis Research Centre of Canada (ARC), introduced the Arthritis Health Journal tool – a treat to target approach to help patients living with rheumatoid arthritis. This online tool is currently in its research stage. Components of the tool include a symptoms and exercise log, disease activity assessment, mood assessment, medical information, goals and action plans, and health reports. ARC is currently looking for research participants. For more details, please visit ARC’s research page here.
ABN recommends the ROAR team for their surprise ending, which included a visit from a pirate and the presentation of a lovely graphic summary of the day’s forum by graphic recorder Sam Bradd.
Congratulations to Bone and Joint Canada (BJC) for receiving the 2013 CIHR-IMHA Knowledge Translation Award!
Ms. Eve Adams, Member of Parliament for Mississauga-Brampton South and Parliamentary Secretary to the Minister of Health presented the award at the opening reception of the Arthritis Alliance of Canada’s Conference and Research Symposium last week. Adams congratulated BJC with the following message: “On behalf of our Government, I congratulate Bone and Joint Canada for receiving this important honour. Your leadership has improved both the care and management of musculoskeletal conditions and enhanced the quality of life of many Canadians.”
BJC is the Canadian division of the Bone and Joint Decade launched by the World Health Organization in 2000 as a global partnership to reduce the impact of musculoskeletal health conditions. Since it formed in 2002, BJC has had many major accomplishments, including: Continue reading