Grâce à notre public toujours plus nombreux, le Réseau de diffusion sur l’arthrite (RDA), généré par le comité ACE (Arthritis Consumer Experts), est la chaîne canadienne offrant le plus de vidéos et ayant obtenu le plus de visionnements !
Nombre total des abonnés de la chaîne YouTube, des visionnements vidéo et des téléchargements vidéo
Qualité et cohérence des vidéos
Classement de recherche YouTube
Examen objectif and subjectif de l’équipe de rédaction et de révision Feedspot
Sur la liste de Feedspot, le RDA est la chaîne canadienne offrant le plus de vidéos et ayant obtenu le plus de visionnements – un total de 200 vidéos et de 242 489 visionnements ! La chaîne du Réseau de diffusion sur l’arthrite fournit de l’information sur les différentes formes d’arthrite, la gestion de la douleur, l’autotraitement, l’exercice, l’alimentation, les modèles de soins, l’engagement patient, la recherche et bien d’autres questions importantes pour la collectivité arthritique. Nous vous invitons à manifester votre soutien et à aider les autres personnes atteintes d’arthrite par les actions suivantes :
Arthritis Broadcast Network ranked #5 on Feedspot’s Top 20 Arthritis YouTube channels to Follow
Thanks to our growing audience, Arthritis Broadcast Network (ABN) – powered by Arthritis Consumer Experts – has the most videos and views on a Canadian channel!
Total YouTube channel subscribers, video views, and video uploads
Quality and consistency of videos
YouTube search ranking
Feedspot editorial team’s objective and subjective review
On Feedspot’s list, ABN has the most videos and views on a Canadian channel – a total of 200 videos and 242,489 views!
Arthritis Broadcast Network’s channel provides information about the different types of arthritis, pain management, self-care, exercise, nutrition, models of care, patient engagement, research, and many other topics valuable to the arthritis community. Please show your support and help others living with arthritis by doing the following:
Vote4Arthritis: Responses to ACE’s arthritis survey
What changes would you like to see in models of arthritis care?
ACE sent an open letter and a survey to candidates running in the Newfoundland and Labrador election. As part of its core government outreach activities and in the spirit of non-partisanship, ACE outlines the impact of arthritis in Newfoundland and Labrador and asks each candidate to share how government can improve prevention, treatment and care in Newfoundland and Labrador.
Please continue checking our Newfoundland and Labrador 2019 page as responses will be posted as we receive them. If you have comments, questions, or concerns about any of the answers provided, please take the time to contact the parties.
The general election in Newfoundland and Labrador is scheduled for May 16, 2019. What changes would you like to see in arthritis models of care?
Arthritis is a chronic disease that has a devastating and debilitating effect on the lives of more than 115,000 Newfoundland and Labrador residents – approximately one in five. Within a generation, more than one in four residents are expected to have the most disabling and life-threatening types – osteoarthritis and rheumatoid arthritis.
Arthritis is also the leading cause of disability and work disability in Newfoundland and Labrador, with nearly three out of every five people with arthritis of working age.
Considering the prevalence of the disease and its significant cost to individuals and society, arthritis is an issue of great importance to candidates running for office. ACE sent an open letter and a survey to candidates running in the Newfoundland and Labrador election. As part of its core government outreach activities and in the spirit of non-partisanship, ACE asks each candidate to share how government can improve prevention, treatment and care in Newfoundland and Labrador.
May 10 is World Lupus Day. Do you know that lupus and rheumatoid arthritis (RA) share similar symptoms? Both can cause joint pain, swelling, and stiffness. The joints that are most commonly affected – the small joints in the fingers, knees, ankles, and toes – are the same. Both lupus and RA can cause morning stiffness lasting for at least an hour and symptoms usually appear symmetrical (i.e., both wrists are in pain).
Below are symptoms that people with lupus experience and are rare in those with RA:
BC PharmaCare has recently added biologic biosimilar etanercept (Erelzi®) to their provincial formularies for the treatment of psoriatic arthritis.
Erelzi is approved for the treatment of psoriatic arthritis according to criteria detailed in HLTH 5360 (initial/switch) or HLTH 5361 (renewal) and when prescribed by a rheumatologist. Erelzi is approved for patients granted special authority (SA) as of April 9, 2019. The biologic originator (Enbrel) is only available to patients granted SA prior to April 9, 2019.
Please note pediatric rheumatologists do not have to complete an SA request for pediatric patients diagnosed with common pediatric rheumatology indications when using up to 50 mg of etanercept weekly. ParmaCare covers a maximum 28-day supply of etanercept per fill. Click here to read the limited coverage drugs listing.
The College of Physicians and Surgeons of British Columbia is accepting feedback on developing standards for procedural pain management that may affect how you receive joint injections
The College of Physicians and Surgeons of British Columbia announced in 2016 an initiative to develop standards for the accreditation of procedural pain management (PPM) procedures performed in community-based physician offices, practices, and clinics. The College is inviting your feedback on the new PPM accreditation standards.
For patients living with arthritis, these standards would prevent shoulder and biceps tendon injections from being performed in an office setting and only in an intermediate level facility requiring higher standards (special hospital clinics). Your physician would have to give you a referral for such injections. When providing feedback, please consider the following:
You may experience a delay for the injections due to long waitlists or wait times
You may have to take more time off work to travel farther to get to these special hospital clinics
You may have to go through more administration work just to get an appointment for your injections
The proposed changes for these injections are not backed by evidence collected from studies conducted by accredited institutions
Please note the British Columbia Society of Rheumatologists strongly supports maintaining access to shoulder and biceps tendon injections in all outpatient clinical settings. These injections have a long proven record of safety. Restricting access will be detrimental to patients with inflammatory diseases.
The College of Physicians and Surgeons of British Columbia is accepting feedback on this consultation via this survey. The deadline for feedback is Monday, May 27th 2019.
In a recent study published in Sleep Health, researchers from the New York University School of Medicine in New York City identified 20 common sleep myths and found little or no evidence in support of these beliefs. These myths could potentially be affecting your overall health.
These sleep myths underwent an internet and literature review and a Delphi process (a systematic protocol for collecting expert opinions) with 10 sleep experts from the field of sleep medicine and research. The goal of the study was to change the general mindset about sleep, especially the belief that getting by on less sleep is desirable. The research occurred in 3 phases:
Phase 1 – focus groups
Phase 2 – email-based feedback to edit, add, or remove myths
Phase 3 – sleep experts rated myths based on falseness and public health significance, using a 5-point scale (1 being “not at all” and 5 being “extremely false”)
Below are some of the common myths mentioned in the study:
Des effets indésirables graves de dépression, d’idées et de comportements suicidaires ou d’automutilation ont été rapportés plus fréquemment chez des patients atteints de lupus érythémateux disséminé recevant Benlysta plutôt qu’un placebo dans le cadre d’une étude réalisée après la commercialisation.
BENLYSTA est utilisé en association avec d’autres médicaments pour traiter les adultes atteints de lupus (lupus érythémateux disséminé).
Un risque accru de signes ou de symptômes de maladie mentale comme la dépression, des idées ou des comportements suicidaires et des changements de l’humeur a été observé chez les patients qui reçoivent BENLYSTA.
Serious adverse events of depression, suicidal ideation or behaviour, or self-injury were reported more frequently in patients with systemic lupus erythematosus receiving Benlysta than in patients receiving placebo during a post-marketing study
Below is an excerpt from the safety alert published by Health Canada
Information for consumers
Benlysta is used in combination with other medicines to treat adults with lupus (systemic lupus erythematosus).
Dans le numéro d’avril du JointHealth™ insight, insight publié par le comité ACE (Arthritis Consumer Experts), nous explorons le concept de « Bâtir des ponts », thème de l’Assemblée scientifique annuelle de cette année de l’Association canadienne de rhumatologie (ACR) et de l’Association des professionnels de la santé pour l’arthrite (APSA), et cherchons à savoir ce qu’il signifie pour les patients arthritiques et les fournisseurs de soins de santé. Pour clarifier ce concept, nous avons préparé un guide d’orientation sur les entrevues réalisées dans le cadre de l’événement #CRArthritis de cette année, soulignant les points essentiels abordés pendant l’événement.
En plus des sujets d’intérêt pour les patients, les entrevues fournissent de l’information sur :
Bâtir des ponts entre les patients, les fournisseurs de soins de santé, les chercheurs et les professionnels paramédicaux
Juste de l’arthrose ?
Les enfants et l’arthrite
Travailler quand on souffre d’arthrite
Recherche spécifique ciblée
Quoi de neuf avec les médicaments contre l’arthrite ?
L’arthrite en tête
Sujets d’actualité chez les organisations de patients arthritiques
Modèles de soins de l’arthrite
Toutes les entrevues sont accessibles sur YouTube, Twitter et Facebook.
Pour obtenir les sous-titres en français, veuillez régler les paramètres YouTube pour chaque entrevue.
In Arthritis Consumer Experts’ (ACE) latest issue of JointHealth™ insight, we explore what “building bridges” – the theme to this year’s Canadian Rheumatology Association and Arthritis Health Professions Association Annual Scientific Meeting – means to arthritis patients and health care providers. To help you, we have prepared a curated guide to a selection of #CRArthritis interviews, outlining key points covered during the event.
Among the topics of interest to patients, the interviews provide information on:
Building bridges between patients, healthcare providers, researchers, and allied health professionals
Osteoarthritis
Kids and arthritis
Working with arthritis
Targeted specific research
Medications
Mental health and arthritis
Hot topics from arthritis patient organizations
Models of arthritis care
All interviews can be accessed through YouTube, Twitter, and Facebook. To turn on French subtitles, please adjust the YouTube settings for each interview.
Le Réseau de diffusion sur l’arthrite figure au 5e rang de la liste Feedspot des 20 meilleures chaînes YouTube sur l’arthrite (en anglais seulement). Le classement est établi en fonction des critères suivants :
