Transitioning from pediatric to adult arthritis care is a big milestone. It can feel exciting, uncertain, empowering, and overwhelming. Sometimes all at once. Whether you’re a teen getting ready to take charge of your health, a young adult navigating adult rheumatology for the first time, or a parent/caregiver learning how to step back while staying connected, support makes all the difference.
Leading Canadian researchers from McMaster University have launched a new online resource – the Road to Adult Arthritis Care website – co-created with youth, parents, and caregivers, to help young people living with arthritis confidently prepare for adult arthritis care.
A Toolkit built for real-life transition
The Road to Adult Arthritis Care website offers practical tools, expert information, and real-life perspectives, including:
- Youth Transition Road Map
For teens aged 15–18 and young adults aged 18–25, this visual guide walks through what to expect, how to prepare, and how to take the lead in your care, from managing medications and appointments to planning for school, work, and relationships. - Helping You Reach Your Transition Goals
This tip- and hack-filled guide is packed with personal advice from youth who’ve already made the move to adult care. It offers ways to build confidence, learn new skills, and get organized. - Parent & Caregiver Reference Guide
Created with input from diverse families across Canada, this guide helps parents and caregivers know when and how to support and when to step back, while staying connected as their young person becomes a more independent healthcare advocate.
Research-based and experience-informed
Every tool is grounded in research and shaped by lived experience. The website reflects years of collaborative work with youth and families to understand what young people with arthritis need to successfully transition from pediatric to adult care. This research informs every tool in the Tool Kit, ensuring they are practical, relevant, and grounded in real-world experience.
Visit the new website now at: www.roadtoadultarthritiscare.ca
If you're a health care provider, educator, community leader, or advocate, we encourage you to share this resource with your networks and help promote smoother, more supported transitions for youth living with arthritis.
Let’s help ensure no one walks this road alone. Join the conversation online with the hashtag #RoadtoAdultArthritisCare