Demande de rétroaction de patients sur le tocilizumab (Actemra®) dans le traitement de la maladie de Horton.

Stickman with megaphone calling for patient inputDemande de rétroaction de patients sur le tocilizumab (Actemra®) dans le traitement de la maladie de Horton.

Souffrez-vous de la maladie de Horton ? Vos commentaires seraient précieux.

Le Programme commun d’évaluation des médicaments (PCEM) demande actuellement que les patients et leurs fournisseurs de soins fassent parvenir aux organismes regroupant les patients leurs commentaires et suggestions sur la présentation par le fabricant du tocilizumab (Actemra®) dans le traitement de la maladie de Horton.

Partie intégrante de l’Agence canadienne des médicaments et des technologies de la santé, le PCEM examine avec objectivité et rigueur l’efficacité et la rentabilité des médicaments et fournit des recommandations aux régimes d’assurance-médicaments (à l’exception du Québec) quant à leur inscription sur la liste des médicaments assurés.

Afin de l’aider dans son processus de recommandation, le PCEM accepte la rétroaction d’organisations et de groupes de patients comme le comité ACE (Arthritis Consumer Experts). Parce que la rétroaction de patients est essentielle à la prise de décision du gouvernement sur les médicaments, nous désirons recueillir vos commentaires pour communication au PCEM.

Voici l’information que recherche le PCEM dans ce dossier particulier : Continue reading

Call for patient input on tocilizumab (Actemra®) for giant cell arteritis

Stickman with megaphone calling for patient inputCall for patient input on tocilizumab (Actemra®) for giant cell arteritis

Do you have giant cell arteritis? We need your valuable input.

The Common Drug Review (CDR) is currently welcoming patients and their caregivers to provide input to patient organizations on the manufacturer’s submission for tocilizumab (Actemra®) for the treatment of giant cell arteritis.

The CDR is part of the Canadian Agency for Drugs and Technologies in Health (CADTH). The CDR conducts objective, rigorous reviews of the clinical and cost effectiveness of drugs, and provides formulary listing recommendations to the publicly funded drug plans in Canada (except Quebec).

To help them make their recommendations, the CDR accepts input from patient organizations and groups, like Arthritis Consumer Experts (ACE). Because patient input is vitally important to government decision-making about medications, we would like to gather your views and share them with the CDR.

These are the questions they are asking: Continue reading

The benefits of massage therapy and how it may help those with arthritis

A young lady lying down preparing for massage therapy

Massage therapy for arthritis is conducted by a licensed massage therapist or physiotherapist. After consulting with your specialist, you can do self-massages at home. In a research study, Tiffany Field, PhD, director of the Touch Research Institute at the University of Miami School of Medicine, found that regular use of the simple therapy led to improvements in pain, stiffness, range of motion, hand grip strength and overall functions of the joints.

In another study, Field and her team found that massage also benefits people with painful hand or wrist arthritis. There were twenty-two adults, mostly women, in this study. The women have been diagnosed with either hand or wrist arthritis. Each participant was given four weekly massages from a therapist and taught to do their own massage to alleviate joint pain and soreness at home. Field concluded: “Just a 15-minute, moderate pressure massage per day, led to reduced pain and anxiety, and increased grip strength for the participants as measured on comparative pre- and post-therapy tests.”

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Pendant le mois de sensibilisation à l’arthrite, contribuez à faire connaître et comprendre davantage cette maladie !

pen and paper for letter to editor on arthritisPendant le mois de sensibilisation à l’arthrite, contribuez à faire connaître et comprendre davantage cette maladie !

Vous pouvez contribuer à augmenter la sensibilisation envers l’arthrite et à mieux faire connaître et comprendre cette maladie en adressant à votre journal local ce modèle de lettre à la rédaction.

Au Canada, septembre est le mois de sensibilisation à l’arthrite. Vous pouvez contribuer à augmenter la sensibilisation envers l’arthrite et à mieux faire connaître et comprendre cette maladie en adressant à votre journal local ce modèle de lettre à la rédaction. Nous vous invitons à modifier ce modèle de lettre afin de refléter votre propre expérience de l’arthite. Conseil : une lettre de moins de 200 mots a une meilleure chance d’être publiée. Si vous soumettez une lettre à la rédaction par courriel, n’oubliez pas d’y ajouter vos coordonnées : nom, adresse et numéro de téléphone.

Rédaction de votre lettre Continue reading

Help raise awareness during Arthritis Awareness Month!

pen and paper for letter to editor on arthritis Help raise awareness during Arthritis Awareness Month!

You can help increase awareness and understanding of arthritis by sending this pre-drafted letter to the editor of your local newspaper.

September is Arthritis Awareness Month! Help increase awareness and understanding of arthritis by sending a letter to the editor of your local newspaper. We encourage you to edit this template letter to reflect your own experiences. Remember: Letters under 200 words have a better chance of being published. If you are submitting a letter to your editor via email, remember to include your name, home address and telephone number.

Compose your letter Continue reading

Viruses transmitted by mosquitos are associated with infectious arthritis

Mosquito warning signage - infectious arthritisViral infections are responsible for approximately 1% of all cases of infectious arthritis. These infections include parvovirus B19, HIV, hepatitis B, hepatitis C, hepatitis E, human T-lymphotrophic virus type-1, and arboviruses. Infectious arthritis can last for hours or days and is marked by pain, heat, rash, redness, and swelling. Some people, particularly the elderly, will experience fever and chills. Most infectious arthritis cases involve only one joint and more than half of these affect the knee. It can also affect the wrists, ankles, shoulders, hips, and spine.

According to Everyday Health, infectious arthritis occurs when germs invade the joint due to:

  • animal or insect bites
  • skin infections
  • injury to the joint
  • bacterial infection during surgery
  • spread from a nearby infection
  • blood stream infection

People with an increased risk of getting infectious arthritis include people who: Continue reading