Bienvenue au réseau de diffusion sur l'arthrite Arthritis Research Centre of Canada Arthritis Consumer Experts

Mobile health: Are you in?

Arthritis IDArthritis Consumer Experts (ACE) co-defended, with Arthritis Research Canada, a poster presentation related to mobile health at the Canadian Rheumatology Association Annual Scientific Meeting. The presentation involved a survey of Canadians’ priorities and views about using digital media in arthritis prevention and treatment. The findings from the survey showed that 24.2% did not know how digital media could be used, 22.4% felt that digital media could provide education material, monitor exercise (15.4%), and track symptoms (7.8%).

“Overall, this survey uncovered gaps in the awareness of arthritis prevention and treatment, and the perceived role of digital media, presenting opportunities for future work and collaboration between ACE and researchers to advance knowledge translation in this important area,” said Cheryl Koehn, Founder and President of ACE.

What do you think about mobile health? Would you use it? Continue reading

mensuel JointHealth™ – Guide annuel JointHealth™ sur les médicaments

Guide annuel JointHealth™ sur les médicaments

Le guide de référence rapide et fiable sur les médicaments contre l’arthrite qui sera d’une grande utilité pour vous et votre équipe de soins lorsqu’il s’agira de passer à l’étape « Parlons médicaments »

French March JHM Title PageCette année encore, le Guide des médicaments JointHealth™ vous offre, à vous, à nos membres, à nos abonnés et à nos visiteurs en ligne, de l’information factuelle et concise sur les médicaments les plus fréquemment prescrits dans le traitement des formes inflammatoires de l’arthrite et de l’arthrose. Des articles de fond sur de nouveaux médicaments, les progrès scientifiques permettant de mieux comprendre l’importance de l’initiation en temps opportun de la médication en dose appropriée et le point de vue du patient à l’étape « Parlons médicaments » sont des éléments essentiels qui ouvrent la voie à la « médecine personnalisée ».

Vous trouverez dans cette édition du Guide des médicaments les renseignements sur les médicaments utilisés dans le traitement des maladies suivantes : la polyarthrite rhumatoïde, la spondylarthrite ankylosante, l’arthrite juvénile idiopathique (systémique), l’arthrite psoriasique, le lupus érythémateux disséminé, la vascularite, l’arthrose et l’ostéoporose.

Dans ce numéro du mensuel JointHealth™, vous trouverez également :

  • Des précisions sur un nouveau médicament à petite molécule cible et un nouveau produit biologique ultérieur, approuvés au Canada en 2014.
  • Une entrevue avec Alison Hoens, atteinte de polyarthrite rhumatoïde, sur les choix des médicaments dans un plan de traitement.
  • Un historique de l’utilisation de la méthotrexate dans le traitement de l’arthrite.
  • La recherche émergente dans le domaine de la médecine personnalisée.

JointHealth™ monthly – The JointHealth™ Medications Guide issue

Annual JointHealth™ Medications Guide: A consumer’s guide to arthritis medications

The reliable, quick reference arthritis medications guide you need to assist you and your health care team with your therapy conversations 

Picture of JHM MarchThis year’s JointHealth™ Medications Guide gives you, our member, subscriber and on-line visitor concise, fact-based information on the most commonly prescribed medications for inflammatory types of arthritis and osteoarthritis. Feature articles about new medications and scientific advances that give a deeper understanding of the importance of timely initiation of medication therapy in appropriate doses, and a patient’s perspective on the therapy conversation, are key pieces that lead toward “personalized medicine”.

Medication information for the following diseases is included in this year’s guide: rheumatoid arthritis, spondyloarthritis, (systemic) juvenile idiopathic arthritis, psoriatic arthritis, systemic lupus erythematosus, vasculitis, osteoarthritis, and osteoporosis.

In this JointHealth™ monthly, you will also find:

  • An explanation of a new targeted small molecule medication and a subsequent entry biologic approved in Canada in 2014.
  • An interview with Alison Hoens, a woman living with rheumatoid arthritis, about therapy choices.
  • A history of methotrexate as an arthritis treatment.
  • Emerging research in the field of personalized medicine.

CRA Interview Series 2015 – Dr. Michael Vallis on Motivational Interviewing

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Michael Vallis on Motivational Interviewing

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Michael Vallis

Photo from: Behaviour Change InstituteDr. Vallis is a registered Psychologist at Capital Health and Dalhousie University in Halifax, Canada. He is an Associate Professor in Psychiatry and Adjunct Professor in Psychology. He has a Ph.D. from the University of Western Ontario, London and his main focus is in adult healthy psychology, with a clinical emphasis on diabetes, gastroenterology, cardiovascular risk and obesity. He developed the CDHA Behaviour Change Institute. The institute offers health care providers training and support in working with patients and clients who could benefit from assistance in changing unhealthy behaviour patterns. They have a training program for lifestyle counseling skills for physicians, nurses, dieticians and other healthcare providers.  Continue reading

CRA Interview Series 2015 – Linda Wilhelm on the Arthritis Patient Charter

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Linda Wilhelm on the Arthritis Patient Charter

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Linda Wilhelm

Picture of Linda

Linda Wilhelm is a mother, a grandmother, and an arthritis advocate who has lived with rheumatoid arthritis for over 30 years. Her advocacy work includes the following:

  • Atlantic Canada representative and Co-chair for the Consumer Advisory Council.
  • Operations committee member of the Best Medicines Coalition.
  • Frequent participation on Health Canada’s advisory panels and conferences on access and drug safety.
  • Two term member of The Expert Advisory Committee for Vigilance of Health Products.
  • Member of the Drug Safety and Effectiveness Network’s steering committee.
  • Active advocate for treatment access and quality of care both regionally and nationally.
  • Past board chair for the New Brunswick Division of The Arthritis Society.
  • President of the Canadian Arthritis Patient Alliance.

Continue reading

CRA Interview Series 2015 – Dr. Walter Maksymowych on spondyloarthritis

Canadian Rheumatology Association (CRA) and Allied Health Professions Association (AHPA) Interview Series 2015

Today’s feature interview – Dr. Walter Maksymowych on spondyloarthritis

ABN reporters from Canada’s arthritis consumer organizations interviewed leading health professionals and researchers during last month’s CRA and AHPA annual meetings.

Beginning March 9, feature interviews will be posted on the ABN YouTube channel http://bit.ly/ABNYouTube. Please help us raise awareness about the important work going on in Canada by sharing the interviews with your organizational and social networks.

About Dr. Walter Maksymowych (from CaRE Arthritis)

Picture of Walter Maksymowych

Photo from CaRE Arthritis

Dr. Maksymowych is a rheumatologist at the University of Alberta. He is a Professor in the Department of Medicine, Division of Rheumatology at the University of Alberta. He is also a Medical Scientist of the Alberta Heritage Foundation for Medical Research, Outcome Measures in Rheumatology (OMERACT) steering committee member and Chair of the International OMERACT Soluble Biomarker Working Group, a member of the Canadian Arthritis Network Centres of Excellence, executive member of the Assessments of Spondyloarthritis International Society (ASAS), the Scientific Chair of the Alberta Rheumatoid Arthritis and Pharmacovigilance Program and Outcomes Research in Therapeutics (RAPPORT) committee, and a Principal Investigator and Executive Board member of the Spondyloarthritis Research Consortium of Canada (SPARCC). He is past-Chair of the Scientific Committee of the Canadian Rheumatology Association. Continue reading