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Call for patient organization input on secukinumab for moderate to severe plaque psoriasis

Megaphone GraphicDo you have moderate to severe plaque psoriasis or care for someone who does? If so, we need your valuable input.

The Common Drug Review (CDR) is now welcoming patients and their caregivers to provide input to patient organizations on the manufacturer’s submission for secukinumab (the medication’s generic name) for the treatment of moderate to severe plaque psoriasis. This medication has not yet been approved for use by Health Canada and therefore does not have a brand name. However, the Common Drug Review, in an effort to speed up the review process, is calling for patient input prior to Health Canada’s approval. Secukinumab is a fully human monoclonal antibody that targets IL-17A, a protein central to the development of inflammatory diseases. It is given by an injection. In two phase III clinical trials, it has been shown to be effective and well tolerated for treating plaque psoriasis. Continue reading

JointHealth™ mensuel – Notre mission : satisfaire notre clientèle arthritique

French October JHM Cover PageJointHealth™ mensuel – Notre mission : satisfaire notre clientèle arthritique

Toujours à la recherche de façons d’améliorer la satisfaction de notre clientèle arthritique, le comité ACE (Arthritis Consumer Experts) effectue chaque année des sondages sur le degré de satisfaction et d’intérêt envers les programmes JointHealth™. Et cette année n’a pas fait exception. Grâce à votre précieuse collaboration, nous avons été en mesure d’apprendre ce dont vous avez besoin et ce que vous attendez du comité ACE et de la série de programmes JointHealth™.

Aux nombreuses personnes de partout au Canada qui ont pris le temps de répondre au sondage, merci infiniment ! Dans ce numéro du Mensuel JointHealth™, nous traiterons des résultats de ce sondage.

Nous traiterons également de notre réponse à certains commentaires de nos abonnés, de personnes atteintes d’arthrite, de professionnels de la santé et de décideurs.

Free webinar: Manager Involvement in Work Re-Integration

Office workers overlooking plan

Picture from CIRPD event page

The Canadian Institute for the Relief of Pain and Disability (CIRPD), in collaboration with Work: A Journal of Prevention, Assessment and Rehabilitation, will be hosting a free webinar tomorrow at 11:00am PST, 2:00pm EST. The Manager Involvement in Work Re-Integration webinar will feature Dr. Karin Maiwald, who will be presenting a study into the managers’ experiences with return-to-work policy in a Canadian setting.  Continue reading

Marilyn Muldoon’s tips on living with Sjögren’s

The ROAR 2014 event saw a couple of great presentations, including a captivating one by Marilyn Muldoon, a patient living with Sjögren’s. Other presentations included:

  • Dr. Marie Westby – Hip and Knee Replacements in Canada: What does quality rehabilitation care look like?
  • Dr. Lynne Feehan – Well in Hand and Feet…Bone health and physical activity in early RA
  • Dr. Catherine Backman – Changing Shoes: The impact of arthritis on self identity and roles
  • Dr. Linda Li – Web, Apps and Wearables: Tools for joint health?
  • Dr. James Dunne – A beginner’s guide to Raynaud’s

The Arthritis Broadcast Network was onsite to capture the day’s best moments. One of our favourite moment from the event was the graphic representation of all the presentations drawn by graphic recorder artist Sam Bradd. Marilyn Muldoon captivated audience with her talk on “A beginner’s guide to Raynaud’s” or as we like to call it, her personal tips on how to live with Sjögren’s. We have enclosed the a raw video of her talk above for your viewing pleasure. Enjoy!

JointHealth™ monthly: Striving for arthritis customer satisfaction

JHM October coverJointHealth™ monthly: Striving for arthritis customer satisfaction

Always on the lookout for ways to improve arthritis consumer satisfaction, each year Arthritis Consumer Experts (ACE) runs JointHealth™ Program Satisfaction and Interest surveys. This year was no different. From your valuable input, we learned what you want and need from ACE and its JointHealth™ suite of programs.

To the many people from all over Canada who filled out the survey, thank you! In this issue of JointHealth™ monthly, we discuss the results of that survey.

We also highlight our response to selected feedback from our subscribers, including people living with arthritis, healthcare professionals, and decision-makers.

Your invitation to a Tweetchat on fibromyalgia

Human thinkingThe Cochrane Pain Palliative and Supportive Care Review Group is inviting adults aged 18 years and over, with fibromyalgia, to join in on a Tweetchat to discuss patient-preferred fibromyalgia outcomes.

The aim of the Tweetchat is to explore outcomes for use in patient-preferred outcomes, for use in template protocols for Cochrane systemic reviews on interventions for fibromyalgia in adults.

Below are the event details: Continue reading