Rarement, pour ne pas dire jamais, la polyarthrite rhumatoïde a-t-elle été illustrée dans un film. Mais vendredi dernier, « Words and Pictures », avec l’actrice Juliette Binoche en vedette, lauréate d’un Oscar, a fait précisément cela.
Words and Pictures raconte l’histoire d’une peintre, Dina Delsanto, incarnée par madame Binoche, qui, atteinte de polyarthrite rhumatoïde (PR), se voit contrainte de modifier sa façon de peindre et doit apprendre à composer avec les défis émotionnels que posent sa maladie. Fort probablement, c’est la première fois qu’un long métrage met ainsi l’accent sur la polyarthrite rhumatoïde, une maladie autoimmune aux symptômes particuliers d’inflammation causant beaucoup de douleur.
La fondatrice du comité ACE (Arthritis Consumer Experts), Cheryl Koehn, a été particulièrement ravie d’être appelée à titre de consultante pour aider madame Binoche dans sa préparation pour le rôle, et honorée qu’on lui demande d’examiner le scénario et de faire part de ses observations afin de s’assurer que le portrait émotionnel d’une personne atteinte de PR était aussi pertinent que possible, dans les limites posées par un long métrage. Chapeau au docteure Linda Li, physiothérapeute consultante pour le comité ACE, qui a assisté madame Binoche dans le rôle de composition physique de son personnage et à monsieur Otto Kamensek, chef de file de la collectivité arthritique et artiste lui-même, qui a partagé son processus artistique et ses œuvres.
Félicitations à toutes les personnes impliquées dans la réalisation de « Words and Pictures » et bravo pour la sensibilisation envers la PR que le film ne manquera pas d’accroître chez le public.
Rarely, if ever, have the movies depicted rheumatoid arthritis, but last Friday, the movie “Words and Pictures”, starring Academy Award-winning actress Juliette Binoche, did just that.
Words and Pictures tells the story of an artist – Dina Delsanto, Ms. Binoche’s character – who, challenged by advancing rheumatoid arthritis (RA), had to change the way she painted and deal with the emotional challenges brought on by the disease. This is perhaps the first time a feature film has focused attention on rheumatoid arthritis – an autoimmune disease with hallmark symptoms of inflammation and resulting pain.
Arthritis Consumer Experts (ACE) Founder, Cheryl Koehn, was thrilled to be called on to assist Ms. Binoche in her preparation for the role, and honoured to be asked to review the script and provide comment to ensure the emotional characterization of RA was as accurate as film would allow. Kudos go to ACE physiotherapy advisor, Dr. Linda Li, who assisted Ms. Binoche with the physical portrayal of her character, and Mr. Otto Kamensek, an arthritis community leader and artist himself, who shared his artistic process and art.
Congratulations to everyone involved in the making of Words and Pictures and the awareness it will raise for RA.
Regardless of who wins the FIFA World Cup™ championship game today in Estadio do Maracana Rio de Janeiro, Arthritis Broadcast Network expresses a big thank you to all of you who participated and shared your goals for arthritis. Today, we hope you enjoy the finals and crowning of a new World Cup champion.
Through a rigorous selection process using wide-ranging criteria, ACE will evaluate Canadian companies that apply best arthritis strategies and practices in the workplace. The application process will deliver insights to further strengthen Canadian companies’ approaches to creating a more productive and arthritis-friendly work environment. And it is an opportunity for employers and employees to assess their companies’ awareness of arthritis and their support systems for employees living with the disease, and be awarded recognition for doing so. To apply for Canada’s Best Workplaces for Employees Living with Arthritis Awards, click here.
Today’s #Goals4Arthritis is to nominate a company who you feel is a great arthritis champion, providing employees living with arthritis a healthy and positive workplace.
The day before the finals will see fans at the FIFA World Cup™ in Brazil enjoying the atmosphere to its fullest. Many fans will flock to Ipanema – a fashionable seaside neighbourhood located in the southern region of Rio de Janeiro.
You too can get into the mood by playing some Bossa Nova today in the summer sun and, if you are really feeling the Brazilian World Cup vibe, perform a karaoke version of one of Brazil’s most famous songs: The Girl from Ipanema. To help inspire you musically (the hairstyle and clothes may inspire as well), here is the original from Astrud Gilberto and Stan Getz.
And to help you rehearse, here are the lyrics:
Tall and tan and young and lovely
The girl from Ipanema goes walking
And when she passes, each one she passes
When she walks she’s like a samba
When she walks, she’s like a samba
That swings so cool and sways so gentle
That when she passes, each one she passes
Oh, but I watch her so sadly
How can I tell her I love her
Yes, I would give my heart gladly
But each day as she walks to the sea
She looks straight ahead, not at me
Tall and tan and young and lovely
The girl from Ipanema goes walking
And when she passes, I smile, but she
Doesn’t see. She just doesn’t see
No, she just doesn’t
In preparation for the FIFA World Cup™ in Brazil, USA Today reported on the steps the United States Men’s National Soccer team were taking to ensure their players were optimizing their recovery and rest time:
“Since the start of training camp last month, the players have been wearing wristbands that detect their sleep and wake periods, and characterize the quantity and quality of their sleep. That data are analyzed and applied practically.
If a player is struggling during training, was it because he woke up several times during the night? Or was it because he slept with his iPhone or TV on or used his laptop shortly before bed?
“It’s an interesting concept,” the team’s fitness director, Masa Sakihana, told USA TODAY Sports on Thursday. “Sleep can affect your reaction time and your performance.”
Sleep not only can affect an athlete’s reaction time and their performance, it can also affect the life of someone living with arthritis. For many people living with arthritis, “I’m so tired” is a common phrase – 80-100% of people living with certain types of inflammatory arthritis live with fatigue. Today’s #Goals4Arthritis is to combat fatigue and sleep for at least 8 hours.
Along with intense, high performance training and exercise, today’s players in the FIFA World Cup™ follow rigorous nutrition and diet regimes to maximize their performance. The coaching staff of the World Cup teams, with the guidance and direction of dieticians and nutritionists, provide their players carefully planned meals and snacks.
Maintaining a good diet is also good for your joint health. #Goals4Arthritis wants you to enhance your performance by eating well today. Cooking at home is a good way to ensure you get the healthy ingredients your body requires and a positive way to be active and get your joints moving.
Though no dietary miracles have yet been discovered in the fight against arthritis, scientists have made a number of recent research advancements on the role of diet and nutrition in arthritis treatment. Today, we understand much more about the connections between arthritis, diet, healthy bodyweight, immune function, and inflammation. We are learning more and more about the positive steps each of us can take to fight arthritis and encourage overall health.