Join the “virtual” race to increase public awareness of autoimmune arthritis
May 20 is World Autoimmune Arthritis Day (WAAD). The International Foundation for Autoimmune Arthritis established this commemorative date back in 2012. The virtual event unites dozens of nonprofits, advocates, and experts from around the world to provide educational and awareness information to patients, their supporters, and the general public.
Participants and partner organizations will participate in a virtual global race where they will visit social media and organizational websites and resources. WAAD is hosted on May 20th for the duration of all Time Zones (May 19th 6am EST – May 21st 5am EST). You can participate online on Facebook and Twitter and follow the event’s hashtag #WAAD17. On race day, help Team ACEwin the race and spread awareness:
The Michael Smith Foundation of Health Research and Arthritis Research Canada have partnered to co-develop and host a series of monthly expert-led, beginner-level KT training webinars with the goal of developing a sustainable resource for researchers and trainees to learn knowledge and skills that will enable them to develop KT practice in their work.
Topic: Citizen as KT Agent: Keeping the government informed about research
Speaker: Cheryl Koehn, Founder and President of Arthritis Consumer Experts
Date and time: Friday, April 28, 2017 from 12:00 pm-1:00 pm PDT
Register: Please click here to register for this free webinar
The next general election in British Columbia is scheduled for May 9, 2017. What change would you want to see?
Arthritis affects 1 in 5 British Columbia residents, so healthcare to treat the more than 100 different types of the disease is extremely important to the more than 600,000 British Columbians living with the disease. Any party that wishes to become government needs to consider these constituents. To help the parties understand this, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the 2017 BC Provincial Election.
The questionnaire asked the following questions: Continue reading
Each of us has the power to change arthritis—together, we can change the way arthritis is perceived by the public, portrayed in the media, and understood by government. As people with arthritis, and their family members and friends, the arthritis community is in a unique position to provide media, government, and healthcare decision-makers with the real story of arthritis.
But none of us can do this alone. One or two voices may be easy to ignore, but speaking together we are powerful. The voice of arthritis—the voices of all of the people who live with the disease, or care about someone who does—is strong and getting stronger every day.
Please take the time to view the interviews below on patient advocacy and learn what passionate people and patient organizations are doing to promote arthritis awareness. Learn the facts about arthritis, and about the discrimination that people with arthritis face every day. Think about your own story, or the story of someone you love. When you’re ready, join with us and take action.
Challenge the misperceptions. Speak up. Tell your story. Change arthritis.
The interviews below are conducted as part of the “CRA Interview Series 2017 – Facebook Live #CRArthritis Speaker’s Corner” event at the CRA Annual Scientific Meeting & AHPA Annual Meeting in Ottawa earlier this month. Continue reading
La Ville d’Ottawa et le Réseau de télévision des peuples autochtones récipiendaires des prix pour les meilleurs milieux de travail au Canada pour les employés atteints d’arthrite
Remise du Prix à la Ville d’Ottawa (de gauche à droite : Cheryl Koehn, ACE; Marianne Phillips, directrice des ressources humaines; Donna Gray, directrice générale du service de l’innovation et de la performance, monsieur le maire Jim Watson; Kelly Lendvoy, ACE)
(VANCOUVER) — Afin de souligner les meilleures pratiques au travail en matière d’arthrite au Canada, le comité ACE (Arthritis Consumer Experts) a révélé aujourd’hui les grands gagnants de sa recherche annuelle des Meilleurs milieux de travail au Canada pour les employés atteints d’arthrite.
De nombreux Canadiens s’efforcent de concilier travail, famille et responsabilités personnelles, et c’est particulièrement difficile pour les employés atteints d’une maladie chronique, l’arthrite arrivant en tête de liste, et qui forment une partie de plus en plus importante des effectifs en raison du vieillissement de la population. Les employeurs canadiens qui comprennent l’impact d’une maladie chronique, et tout particulièrement celui d’une maladie telle que l’arthrite, adoptent des mesures pour adapter les milieux de travail au bénéfice des employés. Selon les renseignements sur le milieu de travail fournis par les employés et les gestionnaires des entreprises ayant soumis leur candidature, le comité ACE a sélectionné la Ville d’Ottawa et le Réseau de télévision des peuples autochtones pour avoir mis de l’avant des pratiques de sensibilisation, de prévention et d’avantages sociaux en milieu de travail.
City of Ottawa and Aboriginal Peoples Television Network awarded for best arthritis workplaces in Canada
Award presentation to City of Ottawa (From left to right: Cheryl Koehn, ACE; Marianne Phillips, Director, Human Resources, Donna Gray, General Manager, Service Innovation and Performance Department, Mayor Jim Watson; Kelly Lendvoy, ACE)
(VANCOUVER) — To recognize the best arthritis workplace practices in Canada, Arthritis Consumer Experts (ACE) today announced the winners of its third annual search for Canada’s Best Workplaces for Employees Living with Arthritis.
Many Canadian workers struggle to find the right balance between work, family and personal responsibilities, particularly employees with chronic disease who are becoming an increasingly high proportion of the workforce due to aging, arthritis chief among them. Canadian employers who understand chronic disease, particularly the impact of a disease like arthritis, are implementing adaptations in their work environments to accommodate employees. Based on workplace insights shared by employees and company managers, ACE is awarding the City of Ottawa and Aboriginal Peoples Television Network for their arthritis awareness, prevention and benefits practices in the workplace.