All posts related to "ACE"

#CRArthritis Speaker’s Corner – Interviews on patient advocacy

Each of us has the power to change arthritis—together, we can change the way arthritis is perceived by the public, portrayed in the media, and understood by government. As people with arthritis, and their family members and friends, the arthritis community is in a unique position to provide media, government, and healthcare decision-makers with the real story of arthritis.

But none of us can do this alone. One or two voices may be easy to ignore, but speaking together we are powerful. The voice of arthritis—the voices of all of the people who live with the disease, or care about someone who does—is strong and getting stronger every day.

Please take the time to view the interviews below on patient advocacy and learn what passionate people and patient organizations are doing to promote arthritis awareness. Learn the facts about arthritis, and about the discrimination that people with arthritis face every day. Think about your own story, or the story of someone you love. When you’re ready, join with us and take action.

Challenge the misperceptions. Speak up. Tell your story. Change arthritis.

The interviews below are conducted as part of the “CRA Interview Series 2017 – Facebook Live #CRArthritis Speaker’s Corner” event at the CRA Annual Scientific Meeting & AHPA Annual Meeting in Ottawa earlier this month.  Continue reading

Le comité ACE (Arthritis Consumer Experts) souligne les meilleurs milieux de travail au Canada pour les employés atteints d’arthrite

La Ville d’Ottawa et le Réseau de télévision des peuples autochtones récipiendaires des prix pour les meilleurs milieux de travail au Canada pour les employés atteints d’arthrite

Group photo with Mayor Jim Watson receiving best workplaces award

Remise du Prix à la Ville d’Ottawa (de gauche à droite : Cheryl Koehn, ACE; Marianne Phillips, directrice des ressources humaines; Donna Gray, directrice générale du service de l’innovation et de la performance, monsieur le maire Jim Watson; Kelly Lendvoy, ACE)

(VANCOUVER) — Afin de souligner les meilleures pratiques au travail en matière d’arthrite au Canada, le comité ACE (Arthritis Consumer Experts) a révélé aujourd’hui les grands gagnants de sa recherche annuelle des Meilleurs milieux de travail au Canada pour les employés atteints d’arthrite.

De nombreux Canadiens s’efforcent de concilier travail, famille et responsabilités personnelles, et c’est particulièrement difficile pour les employés atteints d’une maladie chronique, l’arthrite arrivant en tête de liste, et qui forment une partie de plus en plus importante des effectifs en raison du vieillissement de la population. Les employeurs canadiens qui comprennent l’impact d’une maladie chronique, et tout particulièrement celui d’une maladie telle que l’arthrite, adoptent des mesures pour adapter les milieux de travail au bénéfice des employés. Selon les renseignements sur le milieu de travail fournis par les employés et les gestionnaires des entreprises ayant soumis leur candidature, le comité ACE a sélectionné la Ville d’Ottawa et le Réseau de télévision des peuples autochtones pour avoir mis de l’avant des pratiques de sensibilisation, de prévention et d’avantages sociaux en milieu de travail.
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Arthritis Consumer Experts Recognizes Canada’s best workplaces for employees living with arthritis

City of Ottawa and Aboriginal Peoples Television Network awarded for best arthritis workplaces in Canada

Group photo with Mayor Jim Watson receiving best workplaces award

Award presentation to City of Ottawa (From left to right: Cheryl Koehn, ACE; Marianne Phillips, Director, Human Resources, Donna Gray, General Manager, Service Innovation and Performance Department, Mayor Jim Watson; Kelly Lendvoy, ACE)

 

(VANCOUVER) — To recognize the best arthritis workplace practices in Canada, Arthritis Consumer Experts (ACE) today announced the winners of its third annual search for Canada’s Best Workplaces for Employees Living with Arthritis.

Many Canadian workers struggle to find the right balance between work, family and personal responsibilities, particularly employees with chronic disease who are becoming an increasingly high proportion of the workforce due to aging, arthritis chief among them. Canadian employers who understand chronic disease, particularly the impact of a disease like arthritis, are implementing adaptations in their work environments to accommodate employees. Based on workplace insights shared by employees and company managers, ACE is awarding the City of Ottawa and Aboriginal Peoples Television Network for their arthritis awareness, prevention and benefits practices in the workplace.
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Walk10Blocks helps get sedentary people moving

The Vancouver Coastal Health Research Institute published a news article about the Walk10Blocks app, commenting how researcher-consumer-patient group collaboration can facilitate knowledge translation. The Walk10Blocks team thanks the Vancouver Coastal Health Research Institute and other groups for sharing the Walk10Blocks app with their network.

Below is an excerpt of the article:

Researcher-consumer-patient Group Collaboration Facilitates Knowledge Translation

Two people walking with Walk10Blocks app on mobile phoneWalk10Blocks helps get sedentary people moving.

The development process behind a new app to help sedentary people get moving shows how unique partnerships between researchers, consumers, and patient groups can lead to innovative health research. Vancouver Coastal Health Research Institute (VCHRI) scientists Dr. Linda Li and Dr. Teresa Liu-Ambrose credit the collaboration between themselves and consumer and patient groups, including Arthritis Consumer Experts, the Alzheimer Society of B.C., and CARP (the Canadian Association of Retired Persons), for the development of the Walk10Blocks app.

Dr. Linda Li, professor in the Department of Physical Therapy at the University of British Columbia and Canada Research Chair in Patient-Oriented Knowledge Translation at UBC and Arthritis Research Canada. 

“We’re very proud of this collaboration. It’s a perfect example of how researchers getting together with patient and public groups can come up with innovative ideas and actually make things happen,” says Dr. Li.

“I’ve built apps before for other research projects and it usually takes a very long time. Walk10Blocks only took one year from conception to testing launch in the community. When consumer and patient groups are involved–they know what works and they’re really driven to get things done fast and done right.”

Walk10Blocks is the first app designed specifically to help adults get over the hurdle of starting regular physical activity by encouraging them to walk 10 blocks a day (or about one kilometre per day), which according to research may help delay or minimize risk of dementia and improve cardiovascular and joint health over time. 

Walk10Blocks, which is currently available for free on iTunes, can be installed on an iPhone 5S or above. The app uses the phone’s core motion sensor to collect data about a person’s movement activity. The app converts this activity into a walking log, which tracks the distance travelled throughout the day and how many theoretical city blocks have been covered. The goal is to encourage sedentary people to walk at least 10 blocks per day. The app offers motivating, friendly alerts, has easy-to-read measurements, helps set reasonable walking goals, and awards badges for meeting goals.

By downloading the app, Walk10Blocks participants have also agreed to take part in an innovative research study that uses the app to collect data through surveys. Information gathered for the study includes patients’ fatigue, pain, mood, stress, and walk ratings to give researchers a better understanding of what individuals’ walking opportunities look like. The study also aims to help users recognize and understand their own physical activity levels and sedentary behaviour, create awareness about neighbourhood resources, and determine the overall feasibility of the app.

Development of the app started with one of Drs. Li and Liu-Ambrose’s research groups consulting with patient groups and receiving a grant from the Improving Cognitive and Joint Health Network (ICON), a Canadian Institutes of Health Research knowledge translation catalyst network.

“What we heard loud and clear through our consultations was a desire for more efficient, effective use of what we know about physical activity and its health benefits in terms of managing diseases, especially for people whose health may worsen without it.”

Early on, the groups met with Dr. Liu-Ambrose, researcher at the Djavad Mowafaghian Centre for Brain Health and the Centre for Hip Health and Mobility, who shared with them current evidence with relation to exercise and cognitive function. According to Dr. Li, the group was most interested in findings from a nine-year observational study in the U.S. that showed that walking approximately 10 city-sized blocks results in better cognition and better brains.

“That specific information had our consumer groups almost jumping for joy because to them it was finally something concrete that could be used and brought back to stakeholder groups as the minimum amount of physical activity you needed to do for positive effect,” according to Dr. Li.

Dr. Liu-Ambrose, who is also Canada Research Chair in Physical Activity, Mobility, and Cognitive Neuroscience, says the group got quite motivated by the idea that you don’t necessarily need to run a marathon to have a positive impact on brain health. “This led to the concept of the app and Cheryl Koehn, president of Arthritis Consumer Experts and head of our arthritis patient group, really has been the driving force behind it.”

“The evidence is accumulating to suggest that exercise is beneficial–but where there is a void is how to put it into action. The app is a bit of that component,” she adds. “When everyone has a common goal and shared interests, I think that’s when we make good progress.”

“And so in many ways, recommending regular activities, such as moderately paced walking, seems to be a pretty reasonable approach for promoting physical and cognitive health over the lifespan.”

JointHealth™ insight – décembre 2016 : Meilleurs vœux de la part du comité ACE !

JointHealth insight French snippet

En ce temps des Fêtes, alors que toute l’équipe se penche sur les 17 années passées à servir les Canadiennes et Canadiens touchés par l’arthrite, le comité ACE (Arthritis Consumer Experts) souhaite également partager avec vous les plus récentes informations sur la recherche et souligner nos programmes pour 2017. Vous trouverez donc dans ce numéro du JointHealth™ insight :

  • Le message de remerciement tout spécial de la part de Cheryl Koehn, fondatrice et présidente du comité ACE (Arthritis Consumer Experts)
  • La revue de toutes les réalisations du comité ACE en 2016
  • Une présentation des nouveaux cours Éducation JointHealth™ sur l’arthrite psoriasique et la spondylarthrite ankylosante
  • Une nouvelle recherche et étude de cas sur les biosimilaires
  • Une explication du concept de « données du monde réel »

Picture of Cheryl Koehn« Au nom de tous les membres de l’équipe ACE et des membres de son Conseil consultatif d’experts scientifiques et médicaux et de personnes atteintes d’arthrite, je tiens à vous remercier encore une fois de votre intérêt soutenu, de votre participation généreuse et du soutien que vous apportez à nos travaux. Nous vous souhaitons un joyeux temps des Fêtes et l’amélioration de votre santé en 2017. » – Cheryl Koehn

JointHealth™ insight – December 2016: Happy Holidays from ACE!

JointHealth insight December snippetThis season, as we reflect on our 17 years serving Canadians with arthritis, Arthritis Consumer Experts wants to also share with you new research information and highlight 2017 programs. In this issue of JointHealth™ insight, you will find:

  • A special thank you message from Cheryl Koehn, Founder and President of Arthritis Consumer Experts
  • A review of ACE’s accomplishments in 2016
  • An introduction to new JointHealth™ Education programs for psoriatic arthritis and ankylosing spondylitis
  • New research and case study on biosimilars
  • An explanation of “real world data”

Picture of Cheryl Koehn

“On behalf of my ACE team members and our Scientific, Medical and Consumer Advisory Board, I want to thank you again for your interest, participation and support of our work. We wish you a joyful holiday season and improved health in 2017.”

– Cheryl Koehn