PRECISION Inflammation Elimination
Today, Arthritis Consumer Experts (ACE) unveils the details of an exciting new study—called PRECISION—that re-examines models of care for the three most common types of autoimmune arthritis.
Developed by an expert team of researchers in statistics, epidemiology, and rheumatology, PRECISION looks at arthritis and its associated complications in a way that sets it apart from previous research on the disease.
In this issue of JointHealth™ monthly, you will find out who is behind the PRECISION research and what makes the study unique. As well, you will learn:
- What was discovered from the study.
- How the knowledge gained from the research will benefit people living with rheumatoid arthritis, ankylosing spondylitis, and psoriatic arthritis.
- What pilot interventions were derived from the research.
- The results of a survey of arthritis consumer viewpoints that ACE conducted in collaboration with the PRECISION project.
- What medication adherence is and why it is important, in an interview with Dr. Mary De Vera.
ICON (Improving Cognitive & Joint Health Network) is a 3-year knowledge translation network research study funded by the Canadian Institutes of Health Research. The research is aimed to optimize mobility of older Canadians by modernizing the process of knowledge translation, enhance brain and joint health by improving physical activity, and improve the timely use of first-line treatment in the management of osteoarthritis and rheumatoid arthritis.
As the leader of the Knowledge User Advisory Committee, Arthritis Consumer Experts (ACE) attended a two-day ICON Boot Camp on July 24 and 25, along with representatives and experts from the Alzheimer Society of British Columbia, the Mary Pack Arthritis Program, the Arthritis Research Centre of Canada, Kinduct Technologies, QxMD, GRAND NCE, the Centre for Digital Media, the Arthritis Health Professions Association, and the Canadian Association for Retired Persons met to discuss ways to improve the transfer of healthcare information to improve bone and joint health.
Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study
Participate in this study to help develop and maintain a new equation for change in rheumatology
The International Foundation for Autoimmune Arthritis (IFAA), with the help of the Spondylitis Association of America, Lupus UK, Sjögren’s Syndrome Foundation, and the International Still’s Disease Foundation, have created a study called the “Early Symptoms of Autoimmune Arthritis: A Patient-Centered Research Study”.
The purpose of the study is to develop and maintain a new equation for change in rheumatology. According to the research, early detection + early referrals + early diagnosis + early treatment = better chance to combat unnecessary, irreversible damage and elevate the chances for remission in autoimmune arthritis. The study hopes to address improper identification of early symptoms that may correlate with a delay in diagnosis.
JointHealth™ monthly – May, 2014: Three Women Who “Rock” Arthritis
Women and arthritis are strongly linked: Two out of three living with the disease are women; sixty percent of Canada’s medical students are women, and they will become doctors providing care to women with arthritis; women have led a number of significant advances in clinical arthritis research in Canada.
In this issue of JointHealth™ monthly, Arthritis Consumer Experts (ACE) is proud to profile three women who “rock” the arthritis world. You will find the following interviews:
- Dr. Linda Li on arthritis knowledge and exercise in the digital age
- Dr. Janis McCaffrey on being a “Doctor Mom” living with lupus
- Dr. Julia Alleyne on sports and exercise
This issue’s “Health Happenings” highlights ACE’s latest initiative, Canada’s Best Workplaces for Employees Living with Arthritis competition, and how your company can qualify for this award.
The ARThritis Soiree fundraised $248,000 for arthritis research earlier this May. Over 200 people attended the Soiree, benefitting the Arthritis Research Centre of Canada (ARC). ARC was created in 2000 by world-renowned scientist Dr. John Esdaile and a team of dedicated board of directors who shared a vision to conduct practical research. Their aim is to improve the lives of people living with arthritis. With offices in Vancouver, Calgary, and Quebec and a team of 60 scientists and research staff, ARC has earned international acclaim for its work. Researches are always ongoing. To learn how you can be a research participant, please visit www.arthritisresearch.ca. Continue reading
A team of researchers from the Walter and Eliza Hall Institute in Melbourne has determined that the cell death called necroptosis could be the cause of inflammatory disease like Crohn’s disease, rheumatoid arthritis and psoriasis.
A molecule called RIPK1 (receptor interacting protein kinase 1) is involved in necroptosis; researchers say this particular molecule is essential for survival by preventing uncontrolled inflammation. RIPK1 acts as the ‘gatekeeper’ between cell life and death; RIPK1 is essential for a cell’s decision to live or die, and in determining how to die. Continue reading