All posts related to "research"

Survey on pregnancy and parenting with arthritis

pregnant woman with childThe information obtained through this survey will be analyzed and used to develop an educational resource for pregnancy and parenting with arthritis.

Arthritis affects individuals in many aspects of their life, including decisions regarding pregnancy and in carrying out their role as a parent. As a result, the Canadian Arthritis Patient Alliance has launched a project to identify patient information needs as it relates to pregnancy and parenting.

The survey is intended for individuals living with arthritis and for people in their social support network. The information obtained through this survey will be analyzed and used to develop an educational resource for pregnancy and parenting with arthritis.

Share your perspective by taking the survey and help shape the development of this important resource! The survey will take approximately 10 minutes to complete.

Digital Health Technologies: Improving outcomes in paediatric chronic pain

Child and adult Hand HoldingThe Canadian Institute for the Relief of Pain and Disability (CIRPD) regularly hosts free webinars. The next one, conducted in partnership with Pain BC and the Canadian Pain Coalition, will be on Wednesday, December 9 at 9:30 am PST (12:30 pm EST). The Digital Health Technologies: Improving Outcomes in Paediatric Chronic Pain webinar will look at how the use of digital health technologies has facilitated access to appropriate and timely care.  Continue reading

Arthritis Alliance of Canada’s AGM & Research Symposium

AAC Symposium PosterThe Arthritis Alliance of Canada’s (AAC) Annual General meeting and Research Symposium will be held this Thursday and Friday, October 22 and 23 at the Delta Lodge Hotel at Kananaskis, Alberta. The Symposium, entitled “New Directions in Osteoarthritis Research”, will look ahead at promising approaches for future studies, and identify knowledge gaps and research opportunities.

The AAC workshops will focus on building capacity in research and healthcare sustainability. The programme will bring together scientists, engineers, healthcare providers, trainees, specialists, key stakeholders and most importantly, people living with arthritis.

On Thursday evening, guests will attend “Dr. Cy Frank and The Rocky Mountain Pioneers”, a special gala tribute dinner to honour the accomplishments and legacy of Dr. Cy Frank, who was a talented orthopaedic surgeon, skilled researcher, policy maker, and champion for patient. The winner for the Qualman-Davies Arthritis Consumer Community Leadership Award will also be announced. This prestigious award is given to a person with arthritis who has, or is, providing leadership in the community and deserves recognition for their valuable volunteer work.

Juvenile arthritis affects the future of the human race

Close up of kids, a boy and girlIn the United States alone, more than 300,000 kids, teens, and young adults live with some form of juvenile arthritis (JA). A recent study conducted by the British Society for Paediatric and Adolescent Rheumatology in the United Kingdom found that the mortality rate is high in patients with systemic juvenile idiopathic arthritis. Researchers noted that the death rates are the highest among girls, up to 50 times greater than those from the non-JA population.

Juvenile idiopathic arthritis (JIA) is chronic inflammatory arthritis developing in children under the age of 16 years. Previously called juvenile rheumatoid arthritis (JRA), juvenile idiopathic arthritis strikes up to one in 1000 children and is one of the most common chronic diseases among children. Continue reading

ROAR 2015: Osteoarthritis and You – What you can do NOW!

ROAR 2015 BannerROAR 2015: Osteoarthritis and You – What you can do NOW!

Join us at an interactive public forum hosted by the Arthritis Patient Advisory Board of Arthritis Research Canada.

What do a rheumatologist, an orthopaedic surgeon, a clinical bio- mechanist, a clinical health researcher and an arthritis patient/consumer advocate have in common? They are all osteoarthritis (OA) experts, who will speak at ROAR 2015.

What do people with OA want to know? We are honoured to have six speakers share their research with us, guided by topics that represent the patient voice.

What is ROAR?
Continue reading

Do you have rheumatoid arthritis? This study is for you!

Online ToolDo you have rheumatoid arthritis and have you recently been recommended to START or SWITCH biologic medications?

Researchers at Arthritis Research Canada would like YOU to try the latest online tool to help make your treatment decisions. 

We are looking for people with rheumatoid arthritis across Canada to try a new online tool that helps to make decisions about using biologic medications.

If you have been recommended to consider starting or switching biologic medications, we invite you to participate in this study. You may be eligible if you:

  1. Have rheumatoid arthritis
  2. See a rheumatologist
  3. You are considering or reconsidering starting or switching biologics
  4. Have a valid email and internet access

We are more than halfway there! We now have 28 participants who have completed the study. Please help us reach our recruitment target of 55 participants.

The study will take about two hours to complete over a span of four to six weeks, and can be completed remotely.  Any information you provide will be completely confidential. An honorarium will be provided for your time.

If you would like more information, please contact Jasmina Memetovic, Research Coordinator by phone at 604-207-4007, toll free 1-877-871-4575, or email