All posts related to "research"

Arthritis Research Canada needs your help to inform their research!

The study will be on the risk of damage to vision related to taking hydroxychloroquine (HCQ) or chloroquine (CQ) in Canadians living with lupus and rheumatoid arthritis.

The research team at Arthritis Research Canada and the University of British Columbia want to do research to:

  • Accurately determine the risk of damage to vision related to taking HCQ or CQ in Canadians living with systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA)
  • Provide annual vision testing to approximately 3,000 patients with SLE or RA who have been taking HCQ or CQ for more than 5 years

The research team will use a state-of-the-art vision testing method that can detect any signs of damage to vision at an earlier stage before the damage is irreversible. The researchers need your help in designing this research project. They want your opinion about the best way to invite patients to participate in this study:

  • Option 1
    The research team will send a letter to the patients who have SLE or RA and have been taking HCQ or CQ for more than 5 years. The letter will ask the patient to ask their doctor (family doctor or rheumatologist) to send a referral to see an ophthalmologist for the vision tests.
  • Option 2
    The research team contacts the family doctor or rheumatologist directly and requests that the doctor tells their patients with SLE and RA about the study and sends a referral to the ophthalmologist.

Click on this survey link to select your preferred option.

More information about damage to vision related to taking HCQ and CQ
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Paid study on motivational exercise through virtual reality game design.

Participants needed! Paid study on motivational exercise through virtual reality game design.

Researchers from SFU’s Pain Studies Lab are looking for people with and without arthritis to play their virtual reality (VR) game.

Qualified? If you can stand up for longer than 10 minutes, are encouraged by your physician to do physical exercises, and are over 19 years-old, you’re invited.

We welcome ALL age groups and no prior experience playing video games is necessary!

In this VR game, you use your body to control the interactions in the 3D space. Our goal is to understand how VR can be used as a tool for enhancing physical activity.

The study will be at Room 2765, SFU Surrey Campus. It will last for 40-50 minutes.
You will be paid $25 CAD cash for your time.

Interested? Please contact SFU’s Pain Studies Lab at fmachuca@sfu.ca or call/text 778-999-6005 to book a study time slot now!

About the study Continue reading

ACE presenting abstract at American College of Rheumatology (ACR) Annual Meeting

ACE presenting abstract at American College of Rheumatology (ACR) Annual Meeting 

Cheryl Koehn will be presenting Poster 353 on Sunday, November 5 between 9 am-11 am: Patient Experiences of Rheumatoid Arthritis Models of Care: An International Survey

ACR Annual Meeting BannerThe 81st American College of Rheumatology (ACR) Annual Meeting being held November 3-8 in San Diego is the world’s premiere meeting of over 12,500 rheumatologists and rheumatology health professionals, sharing the latest arthritis advances and research.

Arthritis Consumer Experts (ACE) is excited to announce that Cheryl Koehn, Founder and President of ACE, will be presenting Poster 353: Patient Experiences of Rheumatoid Arthritis Models of Care: An International Survey on Sunday, November 5 from 9am-11am at Poster Hall C. We encourage you to attend the presentation. Cheryl, as lead author of the abstract, will be discussing the results of a first ever global survey, by patients, for patients, examining what patients’ RA models of care experiences are like in their country.

The survey was conducted by the Global RA Network, founded in 2016 by RA patient organizations and leaders from 21 countries to build international relationships and work on common goals and initiatives to improve the lives of people living with RA around the world.

ACE will also be reporting news and information from the ACR on our social media channels throughout the meeting, including ACE’s Facebook and Twitterpages and the Arthritis Broadcast Network.

If you have any areas of interest you would like ACE to report on from ACR, please send questions directly to feedback@jointhealth.org.

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A young lady lying down preparing for massage therapy

Massage therapy for arthritis is conducted by a licensed massage therapist or physiotherapist. After consulting with your specialist, you can do self-massages at home. In a research study, Tiffany Field, PhD, director of the Touch Research Institute at the University of Miami School of Medicine, found that regular use of the simple therapy led to improvements in pain, stiffness, range of motion, hand grip strength and overall functions of the joints.

In another study, Field and her team found that massage also benefits people with painful hand or wrist arthritis. There were twenty-two adults, mostly women, in this study. The women have been diagnosed with either hand or wrist arthritis. Each participant was given four weekly massages from a therapist and taught to do their own massage to alleviate joint pain and soreness at home. Field concluded: “Just a 15-minute, moderate pressure massage per day, led to reduced pain and anxiety, and increased grip strength for the participants as measured on comparative pre- and post-therapy tests.”

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ACE launches first of three new blogs to help you “power up” your arthritis knowledge

ACE launches first of three new blogs to help you “power up” your arthritis knowledge, get more connected to the community, and learn the latest about health policy and politics affecting our group of chronic diseases. 

As Canada’s largest national patient-led organization and provider of evidence-based information and education programming, ACE is always looking for better ways to “power up” Canadians living with arthritis.

As always, we want to know what you think. We encourage you to share feedback and offer topics of interest for future blog posts.

We hope you had a great Arthritis Awareness Month in Canada!

Team ACE


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When Health Canada’s Canadian Institutes of Health Research was created in 1994, I, like many, was puzzled that they included oral health along with musculoskeletal health in the research pillar known as the Institute for Musculoskeletal Health and Arthritis (IMHA). After all, what do researchers trying to solve the thousands of mysteries that make up “arthritis”, a group of over 100 different diseases, have to do with teeth. But were they ever smart to do so; the latest research shows the mouth and the joints are definitely connected.

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Pre-RA Study: Open to patients with RA & their immediate family member

“Preventing Rheumatoid Arthritis (Pre-RA): perspectives of people with RA, people at risk and of rheumatologists” study
group picture of a multigenerational family

 

A research study funded by the Canadian Rheumatology Association’s Initiative for Outcomes in Rheumatology cAre (CIORA) wants to understand the perspectives of people with RA, those at risk of RA and health care providers about potential treatments aimed at preventing rheumatoid arthritis. Arthritis Consumer Experts is a partner organization on the project.

Are you:

  • Aged over 18?
  • Someone with rheumatoid arthritis OR you have a first degree relative (parent, sibling, adult child) with rheumatoid arthritis?
    AND,
  • Someone with access to a computer and the internet?

Join the study as a patient with RA: https://surveys.core.ubc.ca/PreRA_RAs/login.html

Join the study as a first-degree relative: https://surveys.core.ubc.ca/PreRA_FDRs/login.html

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