All posts related to "research"

Do you have Rheumatoid Arthritis or Lupus? Join the OPAM-IA study and get active!

Participate in a new study that will use wearable activity trackers, paired with a new web application, and physical activity counselling to help you get more active! 

Rheumatoid arthritis (RA) and systemic lupus erythematosus (SLE) are types of inflammatory arthritis that causes inflammation and deformity of the joints, and affects your immune system. Physical activity can help to decrease pain and disability in joints affected by RA and SLE while benefiting your overall health.

If you are a person living with RA or SLE, and are interested in getting more active, we invite YOU to participate in the OPAM-IA study. Through participating in the OPAM-IA study, you will learn how to get active with RA or SLE. You will be asked to attend an education session, use a Fitbit Flex activity tracker with the new web application, and receive counselling from a registered physiotherapist. The total time commitment for the study is 6 months. There will be an in-person education session which takes place in the Greater Vancouver Area.

If you are interested, please fill out a 2-minute screening questionnaire. All responses will remain confidential, and you will be contacted by a research staff member within 48 hours to discuss your eligibility further.

Survey Link: http://open.arthritisresearch.ca/survey/index.php?r=survey/index/sid/455398/lang/en

For more information, contact Juliane Chien, study coordinator at 604-207-4032 or 1-844-707-4053 (toll free), or via email at opam.activity@arthritisresearch.ca.

Participants needed for research in quality of care for hip and knee replacement rehabilitation

Have you had a hip or knee replacement in the last 4 months? Are you interested in being able to give feedback on the quality of rehabilitation care you received?

Picture of health care professional assessing hip and kneeYou are invited to take part in a study to pilot test a new questionnaire on the quality of rehabilitation care after joint replacement surgery.

Your feedback will help us to develop a patient-friendly questionnaire that will be included in an online toolkit of print and web-based resources that help people having joint replacement surgery participate in their own care and track the quality of rehab received.

You can participate if you:

  • Had a primary (first time) total hip or knee replacement surgery for osteoarthritis (OA) in the past 4 months
  • Have almost finished or just finished your supervised rehabilitation
  • Are 19 years of age or older
  • Speak and read English
  • Are comfortable using a computer

What does participation involve?

  • Complete a series of short online questionnaires and “think aloud” so a researcher can note any questions or issues you experience
  • Share your views about the online questionnaires during a short (45-minute) small group discussion immediately afterwards. Group discussions are currently planned for:
    • Thursday, August 23rd 10-11: 30 am and 1-2: 30 pm
    • Thursday, August 30th 10-11: 30 am

For more information about this Study please contact:
Paul Drexler

Centre for Hip Health and Mobility
2635 Laurel Street, Vancouver
Phone: 604-675-2578 or
E-mail: equip@hiphealth.ca

Honorarium, refreshments & parking provided!

Youth Sport Injury and Osteoarthritis

With summer upon us, millions of Canadian youth are participating in sport activities every day. Sport and recreation is a great way for youth to get exercise, socialize, develop teamwork skills and improve mental and physical health. Unfortunately, the benefits of sport also come with the risk of injury. In fact, one in three youth aged 11-18 years will sustain a sport-related injury that requires medical attention each year, with knee and ankle injuries being the most common. Research has shown that these youth sport injuries, if not treated properly, can lead to osteoarthritis (OA) within 15 years, specifically a form known as post-traumatic osteoarthritis. Youth sport injury can also lead to obesity later in life, which happens to be another major risk factor for OA. This means that youth with 1 major risk factor for OA (joint injury) are in danger of acquiring a second risk factor for the disease (obesity).

Osteoarthritis is caused by the breakdown of cartilage in the joints and affects more than 5 million Canadians nation-wide; the disease can cause moderate to severe pain, disability and even require surgery. Osteoarthritis symptoms generally appear 10-15 years after a joint injury, and by this time the disease is very difficult to treat. Unlike inflammatory arthritis, there are no medications to slow the disease process of osteoarthritis, so preventative measures are of even greater importance. The upside? We can ensure our youth take proper precautions to avoid injury and hugely minimize their risk of developing OA.

What can a coach or parent do to help?

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EULAR News – June 22, 2018: A final observation from this year’s EULAR meeting

EULAR News – June 22, 2018

A final observation from this year’s EULAR meeting
newspaper in mail slot

A final observation from this year’s EULAR meeting encouraging to all patients is the emphasis many sessions had on the importance of patient participation and partnerships for achieving research outcomes that are relevant to the actual patients. Many presentations clearly communicated that no matter how complicated the research or how brilliant the researcher, patients can always offer unique, invaluable insights.

Experience in Europe and North America has shown that patient advice when designing, implementing and disseminating research outcomes makes studies more effective, more credible and possibly even more cost efficient.
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Dr. Cheryl Barnabe – Champion of arthritis care and research in Indigenous communities

Arthritis Broadcast Network had the pleasure of interviewing Dr. Cheryl Barnabe at a #CRArthritis event, a champion of arthritis care and research in Indigenous communities. In this interview, Dr. Cheryl Barnabe, Assistant Professor at the Division of Rheumatology at the University of Calgary, shares with us information from her workshop “Investigating access to arthritis health services for Aboriginal people: A Framework for System Reform”.

Rheumatoid arthritis affects about 1% of the Canadian population or 1 out of every 100 people. This increases to 5% for aboriginal Canadians. This population not only is at greater risk for getting RA but the disease is more severe than with other populations. For aboriginal people rheumatoid arthritis is one of the five top five chronic diseases reported. More Canadian women get RA then men (3:1), however, this figure almost doubles for aboriginal women.

A study conducted by the National Aboriginal Health Organization (NAHO) 2002, by First Nations people for First Nations people, had approximately 22,000 participants making up 238 communities, both on-reserve and off-reserve First Nations people across Canada.

The following highlights some of the results of the study:

  • arthritis is one of the five top conditions to affect the First Nations population
  • more than half (52%) of First Nations adults with disabilities reported having arthritis compared to 14.6% without disabilities
  • 25.3% of First Nations adults have arthritis compared to 19.1% of the general Canadian population
  • there is a higher rate of arthritis among First Nations women compared to other women in Canada, except for women over 60 years of age. The following chart shows the range of difference between these two groups with more than double the First Nations women with arthritis compared to other Canadian women up to age 39 years.

Dr. Barnabe is also a past recipient of the Canadian Institutes of Health Research’s (CIHR) Foundation Grant. Below is the description of the award on the CIHR website:

Developing a more complete picture of arthritis in Indigenous communities

 

 

 

 

 

 

 

 

 

 

 

 

“Most people aren’t aware that women and Indigenous people are at a much higher risk for arthritis, and that kids can get arthritis too.” — Dr. Cheryl Barnabe

CIHR Foundation Grant Recipient

Dr. Cheryl Barnabe
Cumming School of Medicine
University of Calgary

Dr. Barnabe’s Research

Dr. Cheryl Barnabe, a Métis clinician and researcher at the University of Calgary, is exploring why arthritis appears to disproportionately affect Indigenous communities, and what can be done to reduce these disparities. Continue reading

“Nothing About Me, Without Me” – Patient Engagement in Research

Patient engagement in research or patient-oriented research refers to patients, their family members and other informal caregivers partaking in research as more than study participants but as members of the research team. For example, involving patients in some or all parts of the research process from deciding what topic is studied, to how the research is conducted to how the findings are presented and used.

Partnering with patients ensures that health research is both relevant and meaningful to the patient community. For example, in rheumatology, patients’ perspectives have been instrumental in broadening the scope of the research agenda to include more patient-relevant factors such as well-being, fatigue and sleep patterns. These are significant aspects of life with inflammatory forms of arthritis, yet until recently the topics were largely ignored or underrepresented in research and outcome measurement. This example depicts why patient engagement is so critical. If researchers do not work with patients how can they know what they are studying is relevant to the population that will be most affected by it? It is in this context that the saying “nothing about me, without me” applies so strongly. Other benefits of patient engagement include enhanced quality of research with more perspectives considered, meaningful role(s) for patients and greater involvement in their communities, co-learning between patient and researchers as well as getting important research findings to a broader audience. Overall, patient engagement is a promising way to improve healthcare services and patient experience.

Model of patient engagement in research by Clayon

Figure that summarizes the components of meaningful patient engagement in research from a patient perspective. Developed by the PIERS Project Team

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EULAR News – ACE is at EULAR 2018!

ACE is sharing the latest research news from this year’s European League Against Arthritis’ (EULAR) Annual European Congress of Rheumatology in Amsterdam, Netherlands.

Banner for EULAR 2018ACE is attending this year’s annual meeting of the European League Against Arthritis (EULAR) in Amsterdam, which will be host to 14,000 participants from more than 120 countries in Europe and around the world. This year, EULAR received more than 5,050 research abstracts – the most ever. The meeting will feature over 175 sessions and 45 themed poster tours with more than 560 speakers showcasing work from 2,256 poster displays. ACE is here to learn the most current information on the impact, burden and cost of arthritis for patients and society, and the improved ability to diagnose and treat different types of arthritis early.

Many of these advances are the product of collaboration between healthcare providers and patients and patient organizations like ACE. We will be reporting over the next few days on how this collaboration is advancing models of care and development of advanced therapies.

ACE is also leading a meeting with members of the Global RA Network who are attending EULAR. At the meeting, ACE will facilitate discussion on the development of tools for Global RA Network members to use in their countries to raise awareness and advocate for improved models of care. Based on the 2017 Global RA survey findings, ACE is proposing to develop tools that will improve RA patients’ understanding about the kind and quality of care they should be receiving in their country to improve their disease and overall health.

The ARThritis Soirée will be at the Fairmont Hotel Vancouver on Thursday, May 17

Arthritis Soiree for Arthritis Research CanadaHosted by Arthritis Research Canada, the ARThritis Soirée is an evening designed to attract the city’s business and community leaders, philanthropists, doctors, scientists, healthcare professionals, and those who have an appreciation of art and a desire to support arthritis research.

Research has shown art adds to one’s well-being and therefore is a great element in managing chronic diseases on a holistic level. Moreover, art adds an extra factor of excitement and depth to the Soirée each year with the introduction of a different art form.

This year’s event will take place on Thursday, May 17, 2018 at The Roof – 15th floor at Fairmont Hotel Vancouver. The evening’s entertainment will feature Colin James with a guest appearance by RBC Olympian Spencer O’Brien. Fred Lee, CBC, Vancouver Courier and The Province’s Man About Town, and Sonia Deol, Global BC Reporter and Anchor, will be co-emcees for the event. Click here to purchase tickets.

For those attending, remember to participate in the live and silent auction and raffle. The raffle will be for Tag Heuer Carrera Automatic watch, donated by Golden Tree Jewellers. Live auction items include: Continue reading

JointHealth™ insight – April 2018: What’s new in the science of arthritis?

title page for JHI April #CRArthritisIn Arthritis Consumer Experts’ (ACE) April JointHealth™ insight, we explore what “personalized and precision medicine” – the theme to this year’s Canadian Rheumatology Association Annual Meeting and Arthritis Health Professions Association Annual Meeting – means to arthritis patients and health care providers. To help you, we have prepared a curated guide to a selection of #CRArthritis interviews, outlining key points covered during the event.

Among the topics of interest to patients, the interviews provide information on:

  • Personalized and precision medicine
  • Juvenile arthritis
  • Spondyloarthritis and psoriatic arthritis – Advancements in diagnosis and therapy
  • Giant cell arteritis and vasculitis
  • Exercise as medicine
  • Nutrition
  • Pregnancy
  • Medication adherence
  • Medical marijuana and pain management
  • Improving access to and quality of arthritis care
  • New research on preventing rheumatoid arthritis
  • Communicating with your doctor
  • Teamwork and patient-centred care in arthritis Models of Care
All interviews can be accessed through YouTube, Twitter, and Facebook.
  

To turn on French subtitles, please adjust the YouTube settings for each interview.

Interviews from the 2018 #CRArthritis Facebook and Twitter Live event are now available on Facebook and YouTube!

Thanks to our fans and followers, Arthritis Broadcast Network’s 2018 #CRArthritis Facebook and Twitter Live event reached over 94,205 people to date! 

We did it! The Arthritis Broadcast Network (ABN) #CRArthritis Facebook and Twitter Live event at the Canadian Rheumatology Association (CRA) Annual Scientific Meeting and Arthritis Health Professions Association (AHPA) Annual Meeting conducted a total of 39 interviews (7 more than last year) in a little over 48 hours. Thank you to all of our interviewers, interviewees, and online audience who participated in the event. Because of you, the #CRArthritis event have informed and educated over 94,205 people to date. We’d say that’s an unqualified success, and you were a central part of making it happen – thank you!

CRArthritis

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