Arthritis Consumer Experts (ACE) and the Canadian Rheumatology Research Consortium (CRRC) have partnered to create a video, brochure and social media outreach program to help people with arthritis become more informed about clinical trials and to connect with the community. The program is called “Puzzled? Be the missing piece” and features the following:
A discussion between Cheryl Koehn, the Founder and President of ACE, and Dr. Ed Keystone, the Chairman of the CRRC.
A detailed brochure on clinical trials that can be found in CRRC member offices.
A social media platform committed to community and shared arthritis trials experiences.
A new Arthritis Broadcast Network channel devoted to the latest news and information about ground breaking arthritis research.
Find out how this partnership will benefit you and all Canadians in this issue of JointHealth™ monthly that features:
A look at the value of clinical trials in Canada.
An interview with Dawn Richards, a person living with rheumatoid arthritis who would say “yes” to clinical trials.
An interview with Linda Bennett, the Executive Director at the CRRC who discusses clinical trials from a researcher’s point-of-view.
Information about clinical trials.
Answers to your questions on whether to participate in a clinical trial.
A list of questions you can ask your doctor before you sign up for a clinical trial.
Help the ACE-CRRC partnership’s goal of providing information about clinical trials and their benefit to Canadians and of linking people living with arthritis to the broader research community—share this JointHealth™ monthly with your network.
Please tell us what future topics you would like to read about and what you think of this month’s issue of JointHealth™ monthly.
Increasingly, research is showing that gut flora (gut bacteria) play a role in our health.
For example, arthritis researchers at NYU School of Medicine think they may have found a new clue to help understand the cause of rheumatoid arthritis.
The NYU researchers examined the fecal samples of those living with rheumatoid arthritis, and for comparison, also looked at the poop of healthy people. They discovered that those newly diagnosed with RA had more P. copri (Prevotella copri) than people either without RA or living with treated rheumatoid arthritis. Also, though it is typically a beneficial gut bacteria, the researchers found that when there was an overgrowth of P. copri, there were also fewer of another group of beneficial gut bacteria (of the genera Bacteroides).
It has not yet been concluded that the overabundance of P. copri causes rheumatoid arthritis; however, the researchers think problems may occur because this imbalance in gut flora interferes with the immune system and causes it to malfunction. How this happens still needs to be worked out in further studies.
For details about this fascinating study, please check out this article on the website Science Codex.
A poster session at the annual meeting of the American College of Rheumatology reports that the rate of disease activity at 6 months and 1 year affects rheumatoid arthritis outcome. People who do not achieve early remission at these two time points are twice as likely to develop radiographic progression.
Bernard Combe, MD, PhD of Montpellier University in France, and his colleagues reviewed a study called ESPOIR cohort study and found 5-year outcomes for 573 patients. According to MedPage, the findings are as follow: Continue reading →
Arthritis Consumer Experts (ACE) wants to know your views on subsequent-entry biologics (SEBs) and learn how much you know about them. To accomplish this goal, we are asking you to complete a short survey.
Your feedback is vitally important to the work ACE conducts on behalf of the more than 456,000 Albertans living with arthritis. There will also be a survey for residents of British Columbia and Ontario. Please stay tuned on Arthritis Broadcast Network or subscribe to ACE’s JointHealth™ express and JointHealth™ monthly to receive news alert and information on arthritis.
Please take 10-15 minutes to fill out this survey. Please be assured that all responses will remain anonymous and confidential. Personal information will not be collected as part of this survey.
Le comité ACE (Arthritis Consumer Experts) veut transmettre vos questions aux experts.
Cet événement annuel est une première du genre puisqu’il regroupe en un seul événement plus de 12 500 rhumatologues et professionnels de la santé en rhumatologie. Les membres de l’ACR peuvent participer et échanger les renseignements les plus récents en matière de médicaments, de découvertes et de recherche dans le domaine des maladies rhumatismales.
Cette année, le comité ACE sera sur place et a l’intention de suivre les séances de présentations par affiches, le cours de revue de notions de l’ACR et d’assister à autant de sessions scientifiques que possible.
This annual event is the world’s premiere meeting of over 12,500 rheumatologists and rheumatology health professionals in one venue. ACR members can participate and share the latest information related to rheumatic disease treatments, advances and research.
Arthritis Consumer Experts (ACE) will be attending this year. ACE plans to attend poster sessions, the ACR review course and take in as many scientific sessions as possible.