On January 18, Eagles guitarist Glenn Frey died in New York at the age of 67 due to a combination of problems associated with rheumatoid arthritis (RA), acute ulcerative colitis, and pneumonia. Frey’s manager, Irving Azoff, said that Frey secretly battled rheumatoid arthritis for more than 15 years before he died.
In the outpouring of mourning for Glenn Frey on Twitter, Cheryl Koehn, Founder and President of Arthritis Consumer Experts and a rheumatoid arthritis patient of 25 years, tweeted, “I’m tired of hearing “no one dies of arthritis”. Time for main stream media to recognize our losses. RIP Glenn.”
The band is famous for tracks such as Take It Easy and Hotel California. Despite his secret battle with RA, Frey participated in the Arthritis Foundation’s 2013 Walk to Cure Arthritis Fundraiser. Below is a picture from the Arthritis Foundation’s website of Frey and rheumatologist Dr. Rinaldi from the 2013 event.
“Rheumatoid arthritis has taken the life of an incredibly talented musician, whose amazing music will always be part of our lives.” – The Arthritis FoundationContinue reading →
2015 was a year full of challenge, empowerment and change, and Arthritis Consumer Experts was by your side through it all, delivering the consumer-patient voice and fighting for the rights of Canadians with all forms of arthritis.
For me, 2015 also marked the point in time when I have now lived more than half my life with rheumatoid arthritis. Where did the time go? It seems like yesterday I sat across the desk of a rheumatologist and heard them say to me, “you have rheumatoid arthritis”.
In my “half-life” with rheumatoid arthritis, I, like hundreds of thousands across Canada, have seen life changing scientific advances in medication and non-medication therapies. New medicines, like biologics and targeted small molecules have literally saved people’s lives and are now commonly used words and terms in an ever expanding arthritis consumer (patient) “dictionary”. Blood tests such as JOINTstat™ are being used to strengthen a rheumatoid arthritis diagnosis and possibly predict disease severity. Research into exercise has proved that even people with severe rheumatoid arthritis should find ways to exercise safely in order to improve or maintain joint function and maintain cardiovascular and general health. And most recently, evidence that begins to suggest people with rheumatoid arthritis’ life expectancy is moving closer to that of the general population, possibly as a result of the treatment paradigm shift from “wait and watch” to “earlier and aggressive”. These types of advances have also occurred in the other common inflammatory diseases, ankylosing spondylitis and psoriatic arthritis. Continue reading →
A recent study from Keio University School of Medicine in Tokyo showed that denosumab inhibited the progression of bone erosion and increased bone mineral density (BMD) in Japanese patients with rheumatoid arthritis (RA) who were on methotrexate. This study confirmed the findings of an earlier study conducted in the U.S. and Canada.
The study followed 350 patients who have lived with RA for 6 months to less than 5 years’ duration. They were randomized to receive placebo or denosumab in doses of 60 mg every 6 months, every 3 months, or every 2 months. Participants were grouped together according to their glucocorticoid use and rheumatoid factor (RF) status at baseline. Throughout the study, they continued taking methotrexate at 6 to 16 mg/week and were treated with supplemental vitamin D and calcium. Researchers found that the changes from baseline in modified Sharp erosion score at 12 months were lower in the denosumab groups than in the placebo group. Continue reading →
The award-winning chef Seamus Mullen, athlete Aimée Espinoza of San Clemente, California, triathlete Dina Neils and Pain Talks Founder Alan Brewington are all successful people, who just happen to live with arthritis. Remember that you have arthritis, but it doesn’t have you.
In an interview with Everyday Health, Seamus Mullen, author of Hero Food and the chef and owner behind New York City’s Tertulia restaurant, said: “I think the first mistake I made was believing that life as I knew it was over. I really felt as though the rug was pulled from beneath me, and that I would never again be able to do the things I once loved doing.” Mullen was diagnosed with rheumatoid arthritis in 2007. He adds, “I really wish that, early on, I’d gotten to know more people who were living and functioning with RA, and that I’d learned more about what I could do as an individual to treat the disease, rather than depending so heavily on the medical community for answers.” Continue reading →
Treating rheumatoid arthritis (RA) early and aggressively is vitally important and can help to prevent crippling joint damage. Today specialists recommend a treatment plan that includes education, medication-often a combination of several different types of medication will be used in a person’s treatment plan-social support, appropriate amounts of range-of-motion, cardiovascular and muscle strengthening exercises, rest, vitamins and mineral supplements and a well-balanced diet. Biomarker tests may also help to detect RA and prevent further joint damage.
Do you have rheumatoid arthritis and have you recently been recommended to START or SWITCH biologic medications?
Researchers at Arthritis Research Canada would like YOU to try the latest online tool to help make your treatment decisions.
We are looking for people with rheumatoid arthritis across Canada to try a new online tool that helps to make decisions about using biologic medications.
If you have been recommended to consider starting or switching biologic medications, we invite you to participate in this study. You may be eligible if you:
Have rheumatoid arthritis
See a rheumatologist
You are considering or reconsidering starting or switching biologics
Have a valid email and internet access
We are more than halfway there! We now have 28 participants who have completed the study. Please help us reach our recruitment target of 55 participants.
The study will take about two hours to complete over a span of four to six weeks, and can be completed remotely. Any information you provide will be completely confidential. An honorarium will be provided for your time.
If you would like more information, please contact Jasmina Memetovic, Research Coordinator by phone at 604-207-4007, toll free 1-877-871-4575, or email email@example.com.