In honour of Lupus Awareness Month, the Arthritis Broadcast Network is doing a two-part series on lupus. Part I highlights Arthritis Research Canada and Arthritis Consumer Experts’ coverage of the 9th International Congress on Systemic Lupus Erythematous, Vancouver 2010 (“Lupus 2010”). The event was held in Vancouver, British Columbia, Canada in June, 2010. Hundreds of world leading researchers, healthcare professionals, and individuals living with systemic lupus erythematosus (SLE) learned about the current state of the science in SLE and future opportunities in lupus research, education and care.
The objectives of the Lupus 2010 were to: Continue reading
The Michael Smith Foundation of Health Research and Arthritis Research Canada have partnered to co-develop and host a series of monthly expert-led, beginner-level KT training webinars with the goal of developing a sustainable resource for researchers and trainees to learn knowledge and skills that will enable them to develop KT practice in their work.
Topic: Citizen as KT Agent: Keeping the government informed about research
Speaker: Cheryl Koehn, Founder and President of Arthritis Consumer Experts
Date and time: Friday, April 28, 2017 from 12:00 pm-1:00 pm PDT
Register: Please click here to register for this free webinar
The next general election in British Columbia is scheduled for May 9, 2017. What change would you want to see?
Arthritis affects 1 in 5 British Columbia residents, so healthcare to treat the more than 100 different types of the disease is extremely important to the more than 600,000 British Columbians living with the disease. Any party that wishes to become government needs to consider these constituents. To help the parties understand this, Arthritis Consumer Experts (ACE) sent a questionnaire to the candidates of the 2017 BC Provincial Election.
The questionnaire asked the following questions: Continue reading
Each of us has the power to change arthritis—together, we can change the way arthritis is perceived by the public, portrayed in the media, and understood by government. As people with arthritis, and their family members and friends, the arthritis community is in a unique position to provide media, government, and healthcare decision-makers with the real story of arthritis.
But none of us can do this alone. One or two voices may be easy to ignore, but speaking together we are powerful. The voice of arthritis—the voices of all of the people who live with the disease, or care about someone who does—is strong and getting stronger every day.
Please take the time to view the interviews below on patient advocacy and learn what passionate people and patient organizations are doing to promote arthritis awareness. Learn the facts about arthritis, and about the discrimination that people with arthritis face every day. Think about your own story, or the story of someone you love. When you’re ready, join with us and take action.
Challenge the misperceptions. Speak up. Tell your story. Change arthritis.
The interviews below are conducted as part of the “CRA Interview Series 2017 – Facebook Live #CRArthritis Speaker’s Corner” event at the CRA Annual Scientific Meeting & AHPA Annual Meeting in Ottawa earlier this month. Continue reading
City of Ottawa and Aboriginal Peoples Television Network awarded for best arthritis workplaces in Canada
Award presentation to City of Ottawa (From left to right: Cheryl Koehn, ACE; Marianne Phillips, Director, Human Resources, Donna Gray, General Manager, Service Innovation and Performance Department, Mayor Jim Watson; Kelly Lendvoy, ACE)
(VANCOUVER) — To recognize the best arthritis workplace practices in Canada, Arthritis Consumer Experts (ACE) today announced the winners of its third annual search for Canada’s Best Workplaces for Employees Living with Arthritis.
Many Canadian workers struggle to find the right balance between work, family and personal responsibilities, particularly employees with chronic disease who are becoming an increasingly high proportion of the workforce due to aging, arthritis chief among them. Canadian employers who understand chronic disease, particularly the impact of a disease like arthritis, are implementing adaptations in their work environments to accommodate employees. Based on workplace insights shared by employees and company managers, ACE is awarding the City of Ottawa and Aboriginal Peoples Television Network for their arthritis awareness, prevention and benefits practices in the workplace.
Do you need help meeting the basic daily exercise requirement? If you do, then Walk10Blocks is the app
We all know walking is good for your health. Research shows that even walking 10 city blocks a day, equivalent to about 2,000 – 3,000 steps or 1 km, can help delay dementia and may help improve cardiovascular and joint health over time.
Arthritis Consumer Experts has partnered with Canadian Association for Retired Persons (CARP) and Alzheimer’s Society of BC to develop an easy-to-use iPhone app to help people become more physically active through walking called “Walk10Blocks.” This innovative project is supported by ICON (Improving Cognitive & Joint Health Network), a 3-year knowledge translation network research study funded by the Canadian Institutes of Health Research. To learn more about the project, please click here.
Arthritis Consumer Experts is looking for people to join the “Walk10Blocks” community. To start walking, all you need is an iPhone 5s or 6 and five minutes of your time every other day to answer brief survey questions about your experience using the app.
To download the “Walk10Blocks” app, please click here.